It’s sadly very easy to feel alone and isolated in living with a chronic illness like Crohn’s Disease. Even if you are surrounded by loving family and friends, who are more than willing to offer unconditional support and understanding, it can sometimes feel you are acting to appease them rather than sharing the worst parts of your condition. Continue reading
Runaway Train. That’s how I feel sometimes. Like a runaway train of invisible to the eye invaders are ravaging my body. Sometimes the secondary illnesses that tag along over the years with an autoimmune disease become more stressful than the disease itself. Fear of the unknown is one of my biggest challenges, and every time I learn of some new ailment attacking my body, I peer into a void of what-if’s all over again. Continue reading
It’s incredibly difficult to cope day to day with Crohn’s Disease; or with any Inflammatory Bowel Disease, or chronic illness for that matter. The very experience of having to deal with all the rollercoaster-like ups and downs these conditions come with, both mentally and physically, is completely and utterly knackering. Throw having to try and live a normal life outside of your defunct body into the mix and suddenly it’s a feat of human endurance that Rocky Balboa would struggle to take on. Continue reading
Change can be tough for Crohnies. We find comfort in routines, because we are able to accommodate our vast and varying needs with practice over time. If you always take the same route to work, school, or your kid’s soccer match, you know where the closest healthy food options are, the cleanest restrooms, and the exact travel time in case you need to race home. Continue reading
- That wee curly bit of hair in my fringe that NEVER sits right no matter what I use on it.
- Rudeness and/or lack of manners.
- Racism, Sexism, (any ‘ism basically).
- Having Crohn’s Disease.
Some things I love:
- Listening to the same song over and over and over until I hate it.
- Having Crohn’s Disease.
It’s very important to remember in living with a chronic illness, that you are not alone. I don’t mean that solely in the sense of you as the patient having someone to support and care for you, but in remembering how your illness inevitably affects those around you.
Often in my lowest moments, my main thoughts drift to what an absolute pain in the neck I must be for my partner. Continue reading
One of the most infuriating aspects in living with IBD is in trying to find the resources to educate and inform yourself on your condition. The first stop in learning more about your particular ‘brand’ of IBD is, more often than not, your doctor. However sometimes even your own practitioner doesn’t have the level of understanding or knowledge you may need. Continue reading
Fatigue is one of the most common, and surprisingly most brutal, symptoms in living with a chronic illness. It can be increasingly difficult to manage, as other than sleeping like a Disney princess for over 100 years, there really is little to nothing that can be done. Let’s be honest, feeling tired is one of the most common complaints most ‘normal’ people have on a day to day basis, but fatigue is a whole other ball game (or pillow fight, if you will). Continue reading
A few weeks ago I had the awfully stressful experience of driving my Mini Cooper three hours on Interstate at 55mph. Yes, the actual speed limit – gasp! It was because I had activated my run-flat tires, which can get you home but at slower, cautious speeds. My husband met me halfway and followed behind, as hundreds, if not thousands, of cars veered by at appalling speeds, while I clutched the steering wheel like Driving Miss Daisy. Many times I thought we’d be hit from behind, even with my hazard lights flashing. Continue reading
Writing as only I can, on my own experience of chronic illness; and in particular Crohn’s Disease, I’ve established (over time) that in order to come to terms with something that isn’t going to go away, it’s important to try and achieve a somewhat challenging balance of ‘feeling sorry for yourself’ and maintaining a positive, forward-thinking attitude.
I do like to think I fall on the brighter side of that scale the majority of the time, however I regularly, and seemingly helplessly, find myself slip into those bleaker moods. Continue reading