Crohn’s Disease really is the gift that keeps on giving. It doesn’t stop for Christmas, it doesn’t give you a break during the summer, and doesn’t ‘rise again’ during Easter because it’s always there anyway. It is relentless and punishing and about as far from the spirit of Christmas as you could get.
Regardless, I’m looking forward to the festive season this year, but I can’t quite settle into the idea of fun and lights and laughter yet because, as always, I still have various medical bits and bobs to get through. Continue reading →
It’s incredibly difficult to cope day to day with Crohn’s Disease; or with any Inflammatory Bowel Disease, or chronic illness for that matter. The very experience of having to deal with all the rollercoaster-like ups and downs these conditions come with, both mentally and physically, is completely and utterly knackering. Throw having to try and live a normal life outside of your defunct body into the mix and suddenly it’s a feat of human endurance that Rocky Balboa would struggle to take on. Continue reading →
It’s very important to remember in living with a chronic illness, that you are not alone. I don’t mean that solely in the sense of you as the patient having someone to support and care for you, but in remembering how your illness inevitably affects those around you.
Often in my lowest moments, my main thoughts drift to what an absolute pain in the neck I must be for my partner. Continue reading →
One of the most infuriating aspects in living with IBD is in trying to find the resources to educate and inform yourself on your condition. The first stop in learning more about your particular ‘brand’ of IBD is, more often than not, your doctor. However sometimes even your own practitioner doesn’t have the level of understanding or knowledge you may need. Continue reading →
Fatigue is one of the most common, and surprisingly most brutal, symptoms in living with a chronic illness. It can be increasingly difficult to manage, as other than sleeping like a Disney princess for over 100 years, there really is little to nothing that can be done. Let’s be honest, feeling tired is one of the most common complaints most ‘normal’ people have on a day to day basis, but fatigue is a whole other ball game (or pillow fight, if you will). Continue reading →
Writing as only I can, on my own experience of chronic illness; and in particular Crohn’s Disease, I’ve established (over time) that in order to come to terms with something that isn’t going to go away, it’s important to try and achieve a somewhat challenging balance of ‘feeling sorry for yourself’ and maintaining a positive, forward-thinking attitude.
I do like to think I fall on the brighter side of that scale the majority of the time, however I regularly, and seemingly helplessly, find myself slip into those bleaker moods. Continue reading →
One of the trickiest tightropes to walk with a chronic illness is managing your relationships. Yes, I choose the word ‘managing’, as cold and clinical as it may seem, because you may find that not everyone is able to ‘step into line’ and cope with your illness as well as you might. You may have to dedicate more time and patience to certain branches within your family tree. Perseverance may be a frustrating necessity in gaining the understanding and support of those you love. You may initially feel this should never be something you should ask for, or something that would even be in question. It should naturally be unconditional? But it often takes those around you much longer to begin to understand you have an incurable illness than you do. Continue reading →
When I was diagnosed with Crohn’s disease in October of 2008, I really didn’t understand how that news would change my life. My symptoms were mild at first, but by 2010 I was spending most of my days in bed or in the bathroom. Not able to find relief through conventional drugs, alternative therapy, dietary modification, herbs or supplements, I ultimately ended up without a colon and with a permanent ileostomy in August of 2013; something that would return some normalcy back to my life. As I look back and reflect on the ups and downs of this illness, I realize that the challenges I’ve faced have offered up some important lessons. Continue reading →