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Crohn's Disease Forum » Community Newsletter


Viewing Issue: 03-01-2013 - The Crohnicle Select Issue

 
The Crohnicle
Welcome to the seventh issue of The Crohnicle, crohnsforum.com's quarterly newsletter, collaboratively created by our staff and amazing members.

We Need Your Help

Since our last newsletter was sent just three short months ago, Crohnsforum.com has seen an increase of 15,000 unique visitors PER MONTH to the site and now hosts 235,000 unique visitors monthly. That means 500 more people are visiting per day than just 3 months ago. As such, there are times that we have trouble keeping up with all the new members and requests for support from veterans. It can get a little overwhelming at times. :( We need your help as we feel it's essential that everyone be heard and feel supported. Replying to even one thread on occasion or simply clicking the, "hug" button makes a huge difference. This is especially true if you're off living the good life because your disease is so well managed. Letting others know it can get better can go a long way and is very appreciated.

Recent Changes to Crohnsforum.com

We continue to work hard to improve all facets of crohnsforum.com. Recent changes include:

- We recently coded and implemented a new system we're calling, "Support Groups". Support Groups are a way for you to connect with other members regarding any specific condition or issue you want. For example, if you want to create a Specific Carbohydrate Diet Support Group, you can. Arthritis Support Group? Sure! Fitness and Exercise Support Group? Well, someone already made that, but you can join it. To learn more about Support Groups go here. And to see the current Support Groups to join and/or create your own, visit this link.

- Due to popular demand, we created a Paleo / Specific Carbohydate Diet subforum under our Diet/Fitness forum. It's now easier to connect with others on these diets or learn why so many are on them. The new subforum can be found here.

- We have a new Administrator at crohnsforum.com. Formerly known as, "Crabby" when she was a Supermoderator, we're excited to have Jennifer take an even greater leadership role. Leave her a visitor message congratulating her or a picture of a kitten because everyone loves kittens.

- Crohnsforum.com was recently moved to a shiny new and much faster server because we outgrew the old one. Does the site seem faster for you? We hope so! If not, please file your complaint with the new administrator above so we can break her in.

Interviews

- Walter A. Koltun, M.D., Chief, Professor of Surgery and Peter and Marsha Carlino Chair in IBD, Penn State Hershey Medical Center and the former president of the American Society of Colon and Rectal Surgeons Research Foundation was kind enough to share his time with one of our staff members which resulted in a great article titled, "Coordinated Patient Care and the Surgical Management of Inflammatory Bowel Disease". Read it here.

- Crohnsforum.com was lucky to be able to sit down with Dr. John Cannell of the Vitamin D Council who answered all kinds of great questions about vitamin D and Crohn's disease for us. Dr. Cannell is one of the foremost experts in the world regarding Vitamin D and is in high demand, so we're grateful for his time. Read the interview.

Research and Medications

- Yet another win in the vitamin D column yet too many with IBD are still deficient (I'm looking at you. No, really, I'm looking at you; I hacked into your web cam. Nice curtains. Now get your vitamin D level tested already.) Vitamin D helps enhance macrophage function.

- Increased IL-13 may lead to fibrosis (scarring of the intestines which is somewhere between extremely terrible and absolutely terrible on the terrible scale) in Crohn's Disease. Read the study.

- Is Cytomegalovirus (CMV) more prevalent in people with IBD? If so, what are the risk factors? Read the study and see if it's worth discussing with your doctor.

Knowledge is Power

- Do you have a canker sore which is also known as an aphthous ulcer? Yeah, they're terrible (I wanted to use a stronger term but didn't want to offend anyone) and some people with IBD get them a lot. Why, and what can you do about them? Check out our in-depth wiki entry on aphthous ulcers for some insight.

- Do you have or think you might have arthritis? If so, learn more than you probably ever wanted to know by reading our arthritis wiki entry and follow its 61 references for even more reading.

- In our last newsletter we mentioned the changing consensus towards medical marijuana. In this newsletter, we invite you to learn the exciting science behind medical marijuana.

Clinical Trials

You may remember the interview with Dr. Hal Gunn of Qu Biologics mentioned in our last newsletter which can be found here. In short, Qu Biologics is a Canadian biotech company that has a super exciting potential treatment for Crohn's disease where, in a compassionate use program, 10 our of 10 people responded to their treatment called Site Specific Immunomodulator (SSI) therapy. And seven of those patients had full clinical remission with three sustaining remission even after stopping all treatment. Even better, toxicology studies of SSIs in mice showed no adverse effects at 100x the human equivalent dose. And no serious treatment related adverse events have been reported in any patients to date, just some fevers in a few patients. Awesome huh?

Anyway, they finally received regulatory approval for their clinical trial from Health Canada (high fives all around) and are looking for participants! Currently only Canadian patients are eligible for the trial although the trial may be expanded to include American and international patients. If you're a Canadian patient you can learn more about the trial and go through an online pre-screening questionnaire to assess your eligibility by visiting http://www.qucrohnstrial.com -- good luck!

Diet, Fitness, and Travel

- Maltodextrin. It's in SO MANY foods. Could it make Crohn's disease WORSE? In short, yes. In long, read this thread. In longest, who do we need to punch (with a brick) that is responsible for this kind of stuff getting into our food supply?

- Are you into juicing? Want some new recipes? Have some to share of your own? Then check out this discussion.

- What (if anything) will you NEVER again eat and why? My answer: maltodextrin. So pretty much everything that tastes good.

- Want to exercise but need a little support? Join the Fitness and Exercise Support Group!

Thank you

As always, thank you to the countless unsung heroes that make a support forum like crohnsforum.com a success. Without the members out there who are providing answers and support on a daily basis, often while suffering in one way or another themselves, such a community would not be possible. You are absolutely incredible people. Thank you for all that you do.

Humor

The best form of medicine, laughter!

- If you were going to open a Crohn's Diner, what would YOU include? Let us know.

- Since we first posted about it in the newsletter, our "Funny Pictures" thread has added hundreds of new entries. Check them out if you're in need of a good laugh.

Interesting Polls

- Do you have or have you had a fistula? If no, let us know. If yes, how long after onset of initial IBD symptoms did it take to develop? Share your experience.

Feedback and Help

First off, we're curious what Crohnsforum.com means to you?

Second, do you have feedback regarding our newsletter? Or maybe a suggestion for something to include or would like to help? As our newsletter is community-driven, simply join us in the Newsletter Forum.

Twitter

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