Hi all,
my name is Hampus and this is my first post at this forum. I'm glad I found my way here.
I've probably had CD since the spring of 1998 eventhough i wasn't diagnosed with it until the late summer of -99.
I don't remember so much of the weeks when I first started feeling bad. But I was home from school i feeling kind of weak and with a bad stomach. Me and my family thought it was just like flu or something and that it would pass after some time.
well, it didn't
After the summer of -98 I started high school, but was only getting worse. During this time I still went to the 'childrens clinic' of my hospital. And the doctors there were, hmmmm, how shall I put this? Not very used to listen to what their patients had to say? So it took another year for me to finally be diagnosed with CD and get medicine.
CD has obviously changed so much for me. I do not have severe problems with diarrhea.
The worst thing for me is that when i'm bad, I have so little energy and that - as you all know - effect so much: not having enough energy to go out and meet my friends, not being able to work or study as much as other people. The feeling of being rejected so much that others in their late teens and twenties can do. Not having enough energy brings my whole spirit down.
Its just crap (sometimes litterraly)
But the big change for me came a little more than a year ago.
I got my first infusion of Remicade. And what a MIRACLE drug it is!! When i woke up the morning after, I began to feel something I hadn't felt in over seven years. A slight sensation of being well and healthy. It was obviously a feeling i wasn't used to =)
The last year has been one of the best of my life! I've enjoyed being able to participate in things i thought were out of my life for ever. Not so much practical things - but more psycological things. Like the feeling of pure joy, the feeling of beeing young and free and invincible. haha, it sound very weird, but you know what i mean? When you're sick, thats the primary thing that occupies your mind.
But in the back of my head I knew that it was kind of borrowed time. That my state of health was very fragile and that things could and would change.
And that is what has happened over the last few weeks. Ive become a little 'less good'. And it feels like a full flare of CD could be just ahead.
This makes me very sad
I will probably be seeing my doctor sometime next week, and we'll see what happens.
Be well everyone.
/Hampus, Sundsvall - Sweden
my name is Hampus and this is my first post at this forum. I'm glad I found my way here.
I've probably had CD since the spring of 1998 eventhough i wasn't diagnosed with it until the late summer of -99.
I don't remember so much of the weeks when I first started feeling bad. But I was home from school i feeling kind of weak and with a bad stomach. Me and my family thought it was just like flu or something and that it would pass after some time.
well, it didn't
After the summer of -98 I started high school, but was only getting worse. During this time I still went to the 'childrens clinic' of my hospital. And the doctors there were, hmmmm, how shall I put this? Not very used to listen to what their patients had to say? So it took another year for me to finally be diagnosed with CD and get medicine.
CD has obviously changed so much for me. I do not have severe problems with diarrhea.
The worst thing for me is that when i'm bad, I have so little energy and that - as you all know - effect so much: not having enough energy to go out and meet my friends, not being able to work or study as much as other people. The feeling of being rejected so much that others in their late teens and twenties can do. Not having enough energy brings my whole spirit down.
Its just crap (sometimes litterraly)
But the big change for me came a little more than a year ago.
I got my first infusion of Remicade. And what a MIRACLE drug it is!! When i woke up the morning after, I began to feel something I hadn't felt in over seven years. A slight sensation of being well and healthy. It was obviously a feeling i wasn't used to =)
The last year has been one of the best of my life! I've enjoyed being able to participate in things i thought were out of my life for ever. Not so much practical things - but more psycological things. Like the feeling of pure joy, the feeling of beeing young and free and invincible. haha, it sound very weird, but you know what i mean? When you're sick, thats the primary thing that occupies your mind.
But in the back of my head I knew that it was kind of borrowed time. That my state of health was very fragile and that things could and would change.
And that is what has happened over the last few weeks. Ive become a little 'less good'. And it feels like a full flare of CD could be just ahead.
This makes me very sad
I will probably be seeing my doctor sometime next week, and we'll see what happens.
Be well everyone.
/Hampus, Sundsvall - Sweden