@Kit and stephanied...:hug:
I hear you both. My daughter went undiagnosed for 18 months which resulted in emergency surgery and her diagnosis. I have been over that time so, so many times thinking if I missed something, did I push hard enough and on and on it goes. To save my sanity I have had to drop it and move on, focus on the here and now. I can't change anything and if the truth be told I really don't think I could have done anything different based on what I knew at the time and I think it is most likely the same for you.
Then on the other side of the coin there is my son. Five years down the track from my daughter and one very informed mama, :lol:. I acted on symptoms that were so minor and vague that under other circumstances you would dimiss them outright. We had a diagnosis in two weeks, it sucked but everything pointed to mild disease. Well everything went downhill from there and the next 6 months were hospital stays, drains, specialist visits, bloods, bloods and more bloods and finally surgery. Phew!
As you say Kit, this disease has no clear cut answers so take it day by day and follow your instinct. The decisions you make, and have made, are based on what you know at the time not by what you know with the advantage of hindsight.
Dusty. xxx