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Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Flares- frequency and duration


View Poll Results: How often do you flare and how long do they last
I flare more than once a year 26 28.57%
I flare about once a year 5 5.49%
I flare every couple of years 6 6.59%
I haven't flared in more than two years 6 6.59%
Other flare 3 3.30%
My flares last less than a month 10 10.99%
My flares last 1-3 months 16 17.58%
My flares last 3-6 months 7 7.69%
My flares last 6 months to a year 7 7.69%
My flares last more than a year 5 5.49%
Multiple Choice Poll. Voters: 50. You may not vote on this poll

06-01-2010, 05:06 AM   #1
stargirl
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flares- frequency and duration

1. How often do you flare?

2. How long does your typical flare last?
06-01-2010, 07:12 AM   #2
Nyx
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Since my diagnosis I've only flared twice, but both times wound me up in the hospital and they lasted about 6 months to a year each.
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Cindy

Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009

"Never trust a fart." Jack Nicholson, The Bucket List

Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

06-01-2010, 08:27 AM   #3
MapleLeafGirl
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I am still trying to get a handle on what is a flare and what is not for me. I haven't felt truly well for over a year now, but there have been periods of feeling really horrible mixed in with periods of feeling only mildly horrible. I think I may be coming out of it though (fingers crossed).
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Kelly

Diagnosed: August 2006
Current Meds: Imuran (125 mg), Budesonide (9 mg)
06-10-2010, 10:03 AM   #4
Lisa
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I used to go a few years between flares - but each time got shorter and shorter....until finally ending up on Remicade - no major problems since then!
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30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
06-11-2010, 08:34 PM   #5
Manzyb
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Well, technically I have never been in remission the entire 11 years I've had it. There are times where it gets better and I feel ok, but there is also about once a year that I lose a bunch of weight and end up in the ER/hospital. So it really goes back and fourth for me.
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06-13-2010, 02:15 PM   #6
stargirl
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hope that you are feeling better. I'm not sure what constitutes a flare either. My doc describes it as active disease? Good luck to you!
06-15-2010, 10:49 PM   #7
Jennifer
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Well its always active but I've had 2 major flares. The first giving me a diagnosis, I was hospitalized for almost 2 months and it took a little over a year to get in remission with the help of lots and lots of Prednisone. My second flare landed me in the hospital again for a few weeks where I was put on Prednisone again and at 65mg for a year they decided it wasn't working and tried another steroid for a few months but I forget its name, and since neither worked and I was simply going downhill, I had my surgery and have been in remission now for 11 years.

So I guess my flares generally last over a year so far.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
06-16-2010, 12:39 AM   #8
ChefShazzy
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Seems like I've had flare ups about every 6 months or so for the past few years. I've had to be hospitalized for three of them, and have had to miss a lot of work. I'm still figuring out how to manage this condition, so hopefully I can enjoy more time between flares in the future.
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-Sharon
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Diagnosis: Crohn's Disease (May 2007)
Meds: Double-dose of Remicade, every 6 weeks
*I'm going to start saying I'm in REMISSION now! Three years since my last hospitalization!*
06-22-2010, 07:50 PM   #9
RollinontheRvr
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That is the big question for me as well. Last year when I was DXed I was having a constant stomach ache all the time with diarrhea and fatigue. I am having the same thing going on right now but without the diarrhea. If I get up and do something around the house or go out to lunch with the family my stomach starts feeling pissed off and tells me to knock it off. My first flare lasted for a month but never even came close to putting me in the hospital and neither has this one. It seems to me that there is not a "Right" answer as to what constitutes a flare but a multitude of symptoms that each of us could experience at one time or another...

OBTW...Did I mention that I hate this thing called Crohn's
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Diagnosed 8/2009

Asacol 3600 mg/day
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08-02-2010, 05:06 PM   #10
Hornetsting
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for me presonally my trigger for a flare up seems to be linked to stress, so depends on the situation and how Im handling it. But when I was seriously stressed out a few years ago I awoke one night with the worst stomache pain Ive ever had. Almost like being shot in the stomache.
In hindsight everyone classes there flare ups differently so as ' RollinontheRvr ' there is no right answer
08-02-2010, 07:07 PM   #11
sdbook
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I think my flare ups are linked to stress also. I've had 4 flare ups since diagnosed in 1996 that lasted about 6 mo each. I can't figure out any other trigger. Stress all job related. I'm 52 and down to high school weight.
08-02-2010, 07:41 PM   #12
acg101
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Had many flares during the 15 years... BUT cipro/flagyl kept me on remission for few years, then flared for 18 months, then Remicade remission for few years, flare for a year and so on and so forth.
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-Best wishes - Dan

1. Diagnosed with Crohn's UC 1995
2. Flagyl/Cipro Imuran in 80%remission 1997 2005
3. Used 5mp, asacol, 6mp, remicade, imuran, Cimzia, entocourt, Flagyl/Cipro and enemas/suppositories until 2010 with periodic relief.
4. July 9th 2010 total ProctoCollectomy surgery! Free at Last!
08-02-2010, 11:37 PM   #13
Entchen
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I'm now 11 months and 4 days into my first flare, and have been on treatment for 2 months and 2 days. I'd like to think that it will settle down soon.
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Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
08-03-2010, 06:29 AM   #14
rob911
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hi im new to the site im currently having symptoms of ibd i dont know which one it all started 10 weeks ago i woke with a burning pain in left abdomen followed by fast trip to toilet it really hurt it happened a few times after mostly at night it would be worse when laying on my left side,cramping pain that would come and go,i started taking buscopan and it helped abit,not long after whilst on holiday i started gettin dull achey pain mostly in left side,also felt tired early at night,soon after getting back off holiday i lost my appetite and lost weight nearly a stone in 3 weeks i couldnt be bothered to do anything,my stool are now back to normal and have been for the past few weeks,also ive been eating more, got my appitite back but im not putting any weight on at all,the cramping has eased but still get pain when i hold myself if im out and about or usually when i wake up,has anyone had pain in chest area it usually hurts when i lay down,ive got colonoscopy on the 16th aug ive had endoscopy blood tests and ultra sound all normal been to a+e twice but there all saying its ibd and told me there's nothing they can do till colonoscopy,any ideas guys? im just at my wits and its very scary going thro this
08-09-2010, 05:56 PM   #15
fateful_one
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I have never been in remission "offically". I have had normal bloodwork, but never normal tests - colonoscopy, Endoscopy, capsule, CT, etc.

But disregarding this tidbit -

I flare on average every 3-6 months.
A bad flare lasts anywhere from 2 weeks to 6 months, but the time it takes to recover from them can take forever!
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In complete remission!!!!
1 Resection 12/2010[/FONT]
08-09-2010, 06:16 PM   #16
fateful_one
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hi im new to the site im currently having symptoms of ibd i dont know which one it all started 10 weeks ago i woke with a burning pain in left abdomen followed by fast trip to toilet it really hurt it happened a few times after mostly at night it would be worse when laying on my left side,cramping pain that would come and go,i started taking buscopan and it helped abit,not long after whilst on holiday i started gettin dull achey pain mostly in left side,also felt tired early at night,soon after getting back off holiday i lost my appetite and lost weight nearly a stone in 3 weeks i couldnt be bothered to do anything,my stool are now back to normal and have been for the past few weeks,also ive been eating more, got my appitite back but im not putting any weight on at all,the cramping has eased but still get pain when i hold myself if im out and about or usually when i wake up,has anyone had pain in chest area it usually hurts when i lay down,ive got colonoscopy on the 16th aug ive had endoscopy blood tests and ultra sound all normal been to a+e twice but there all saying its ibd and told me there's nothing they can do till colonoscopy,any ideas guys? im just at my wits and its very scary going thro this

Hey there Rob! its true, ur best bet is the colonoscopy.


My Crohn's was dx by colonoscopy, but only after a bunch of other tests. My endoscopy showed inflammation in my stomach, but didn't provide enough info for dx. And the camera pill test just showed damaged tissue. CT's were inconclusive.

08-16-2010, 08:35 PM   #17
stargirl
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hope the colonoscopy went well and that you find some answers. I am fairly new to this all too and I know how scary it is. For me to be honest this website has made it scarier b/c the people who are on it most are obviously the people for who IBD's have had a major impact on their lives. If you are diagnosed go get a book and read up on it. I read self managing IBD (or something like that) and it really helped to inform yet not scare me. Good luck to you!
04-12-2011, 08:33 AM   #18
David
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I've added a poll to this thread. You can select multiple answers on it.
04-12-2011, 10:03 AM   #19
spcwife23
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since being diagnosed in janurary im still flareing.. my flares is link to stress, and definilty my monthly...
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Meds as of now: keep me in remission.
Humira: every 14 days(my best friend)
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05-16-2013, 04:04 PM   #20
Mike001
 
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I'm going to bump this up. I found it via a google search, and I'd love to see some additional statistics added to the poll results.
07-05-2013, 01:27 PM   #21
HorseLover!!
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Since i have had crohns diagnosed when i was 3 years old i havent been in remission yet :-( i have a flare up at least every 2 weeks maybe more i think it is due to stress and because i work and train with horses it is quite a bit of work, when i am stressed out and it is really hot weather that is when it is at its worst :-(.
09-27-2013, 01:28 PM   #22
monterey
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I def flare when I am stressing about things. I am sure everyone is pretty much like that. I try very hard not to let things build up in me or I do end up in worse shape. Ya learn to roll with life the older ya get
09-28-2013, 05:34 AM   #23
plantluvr
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been flaring since feb. stress and usually a cold or flu makes me flare. usually every couple years when i fall off my path of diet exercise and spirituality. i get so stressed i cant focus.when im on my routine i dont have any symptoms.
09-28-2013, 10:17 PM   #24
Justanothercp
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Thanks for this poll!
09-29-2013, 01:36 AM   #25
Josephine
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Last flare was five nths, March to July this year. I am apparently remision but not sure about that.
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Acid Reflux for 15 years med

Sacroiliitis and add to grew list auto immune diseases.

Now on Lansprazole 15 mg And Gavin son 5mg-10mg 3a day.

Crohns from Oct 2007
Domperidone 10 mg -20 mg, Mebeverine 135 mg,
3 a day.
Balsalazide 750 mg 3 X3 a day on going.
Bone protection.

Azathioprine is not working, still waiting to find out what next. Still on low dosage Prednisolone

Mesalamine Enema


No Wheat

English my native language and have characterizes of dyslexia.
09-29-2013, 09:29 PM   #26
DougUte
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I have not had a major flare since my surgery in Oct 2010.
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Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
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10-02-2013, 12:49 AM   #27
Sunione
 
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My worst flares seem to be cyclical and start in late October, either resulting in hospital time and/or last until spring. Might be the stress of the approaching holidays?
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