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12-21-2010, 07:18 PM   #1
Lydia
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Trying To Conceive (TTC) Support Group

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Anyone else trying to conceive? Guys TTC are welcome to join the chat too if they dont mind the TMI talk.

I'll start first. I have a DD that is going to be 3 in March. We had no problems conceiving, it only took us 6 months which is normal. I was in med free remission back then. I had an uneventful pregnancy which ended in an elective c-section.

We started trying again in Oct 2009. I got pregnant on the first try but it was a dud. I thought it was just a fluke and kept trying. Then I started flaring. I didnt conceive in that time, but we kept trying anyway. I went on remicade in March and went into remission. I conceived in June, Sept, and Oct and I could not make it to 5 weeks before losing it. So that is 4 failed conceptions. We took a break and we are thinking about starting again as soon as my next cycle starts which should be today. My GI put in for a referral back in Nov but I still havent heard from them. I called again on Thurs and they said they would send a reminder. I guess I wont hear from them until the new year.

I just cant believe after having an easy first go at it that its so hard for me this time around.

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12-22-2010, 09:56 AM   #2
Cookie
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Best of luck to you Lydia. I have been trying to conceive for several years with no success, which has been hard enough to accept, but 4 failed pregnancies??? My heart goes out to you.

My husband and I finally went to a fertility doctor in August. I am almost 39 and do not have any kids, so I am starting to get anxious. The fertility doc was not too happy about my being on Imuran, but he said we should proceed with the plan of stopping it if I do get pregnant. Of course, others on here have taken Imuran throughout their pregnancies without problems, but both he and my GI advised against it. At the advice of my GI, I am weening myself off of Imuran. It's been a bit of a catch-22 because as I decrease my dosage, my symptoms increase. My GI said, regarding pregnancies, if you go into it in a flare, you are more likely to have worse symptoms, but usually people that go into it not flaring end up feeling better. At least that has been his experience.

Sorry, I somehow got off track and babbling. Right now my husband and I have just been trying on our own and are waiting until after the holidays to pursue more aggressive means of fertility. I will keep you posted.

Best of luck and keep us posted as well!
12-22-2010, 04:17 PM   #3
Lydia
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Thanks for sharing Cookie. Infertility sucks so bad. I hope you have your miracle baby. Good luck and keep me posted on how they are handling you.
01-10-2011, 02:09 PM   #4
Lydia
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So I am 4 DPO (days past ovulation) into my 2WW (2 week wait). I am not testing until my period is 1 week late because if I have another loss, I dont want to know. I will just tell myself it was just a late period.

I still have not heard back from my referral and I am getting pissed about that.
01-10-2011, 02:29 PM   #5
Grumbly-Guts
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Hi Lydia,
I'm sorry to hear you are having trouble with conception and pregnancy.
My first preg. went off without a hitch also, and my second one was my miracle. I was infertile for two years and kept asking the docs to fix it (as I was 22) and had my first child when I was 15. They kept saying I would be fine and it would eventually level out. It never did, when I went into remission my first and only time I went running around like a chicken with my head cut off as my GI had told me "now or never". So he sent me to this WONDERFUL Gyno who also did fertility tx's In GP Alberta. He was fantastic. He said technically I had been trying for 2 years already (no birth control as I had no periods, didn't ovulate either) He gave me these little pills and a cycle to follow and wouldn't you know first cycle BOOM I was in flare b/c I was preggers!! To keep the pregnancy viable they rx'ed me progesterone for the entire 1st trimester. My gyno explained that with crohn's your body sees a baby as something else taking your nutrients, body fat etc. from you and as it is already combatting this problem with CD and can't get rid of the problem, so unfortunately it eliminates the pregnancy instead. Especially if you're not in complete remission and pretty healthy with good weight. I was in remission but weight stayed low and had much of my bowels removed so I already had absorption issues. They tried to also put me on pantasa while preg. but made me too sick and lost 11lbs. But, the progesterone I think helped to keep him in there. Maybe if you mention that to the doc? I am not sure (can't remember) if they rx'ed it to me before or immediately after I became preg.

Hope that helps, and I wish you and your family all the luck, well wishes and hugs!!

GG
__________________
Dx.May 26/06 symptomatic 15yrs.
June 10/06 surgery + complications
June 13/06 surgery + complications + iliostomy
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July 26/09 obstruction
Sept'09 Drains for abcess
Start Humira
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Stop Humira
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01-11-2011, 04:15 PM   #6
Lydia
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Join Date: Mar 2010
Hi Lydia,
I'm sorry to hear you are having trouble with conception and pregnancy.
My first preg. went off without a hitch also, and my second one was my miracle. I was infertile for two years and kept asking the docs to fix it (as I was 22) and had my first child when I was 15. They kept saying I would be fine and it would eventually level out. It never did, when I went into remission my first and only time I went running around like a chicken with my head cut off as my GI had told me "now or never". So he sent me to this WONDERFUL Gyno who also did fertility tx's In GP Alberta. He was fantastic. He said technically I had been trying for 2 years already (no birth control as I had no periods, didn't ovulate either) He gave me these little pills and a cycle to follow and wouldn't you know first cycle BOOM I was in flare b/c I was preggers!! To keep the pregnancy viable they rx'ed me progesterone for the entire 1st trimester. My gyno explained that with crohn's your body sees a baby as something else taking your nutrients, body fat etc. from you and as it is already combatting this problem with CD and can't get rid of the problem, so unfortunately it eliminates the pregnancy instead. Especially if you're not in complete remission and pretty healthy with good weight. I was in remission but weight stayed low and had much of my bowels removed so I already had absorption issues. They tried to also put me on pantasa while preg. but made me too sick and lost 11lbs. But, the progesterone I think helped to keep him in there. Maybe if you mention that to the doc? I am not sure (can't remember) if they rx'ed it to me before or immediately after I became preg.

Hope that helps, and I wish you and your family all the luck, well wishes and hugs!!

GG
What was your gynos name, because GP is closer to me than Edmonton? My GI can give me a referral there as well.
01-11-2011, 09:31 PM   #7
Domsmom
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Keep us posted! I'll look forward to hearing the good news
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Past meds:
Asacol
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Prednisone
Imuran
Cipro
Flagyl
01-15-2011, 07:08 PM   #8
Lydia
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Waiting is so hard to do. *sigh*
01-20-2011, 12:16 AM   #9
Lydia
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No red-headed witch today. Maybe she will come tomorrow and crash my party. If she is not here by Saturday I think I will take a pregnancy test.
01-20-2011, 05:52 PM   #10
Lydia
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Well onto another cycle. I am so devastated. This does not get any easier for me. I wont even be able to see a fertility doc until July 19th.
02-10-2011, 10:56 PM   #11
Lydia
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Well we had good timing this cycle. I ovulated about 3 days ago. Its out of my control now. The hubs and I decided to keep trying while we wait to see the specialist. I agreed with the understanding that he is going to have to see my cry each month it doesnt work out. I only get upset for a day or two and then I am fine, but I do need some extra hugs to get through it.

Am I really the only one here trying to get pregnant?
02-11-2011, 09:47 AM   #12
Maryam
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Well we had good timing this cycle. I ovulated about 3 days ago. Its out of my control now. The hubs and I decided to keep trying while we wait to see the specialist. I agreed with the understanding that he is going to have to see my cry each month it doesnt work out. I only get upset for a day or two and then I am fine, but I do need some extra hugs to get through it.

Am I really the only one here trying to get pregnant?
Lydia, you are not alone. I am trying to get pregnant too. MY OB/GYN ordered a semen analysis on my hubby so lets see how that goes. she feels that Remicade could affect the sperm count.

so don't feel alone. I know it can be very frustrating and exhausting. hopefully you will see a light at the end of the tunnel.
__________________
Wife of a Crohns Patien
Diagnosed: at age 14
Current Medications: Remicade and Reclast for Osteoporosis
supplements: vitamin D,Calcium,Cayenne pepper pill,Ginger Force,
Surgeries: fistulatomy 2010
02-11-2011, 09:09 PM   #13
Lydia
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Thanks.

I sometimes wonder if remicade can affect fertility, but there is no data on that, and there are many women here that have had remicade babies. I had no problem getting pregnant when I was in med free remission. I need the remicade to be well so its hard.
02-13-2011, 01:20 PM   #14
Lydia
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Well I had some red spotting toady at only 6 DPO. I am not testing until I am late which will be the 21st. My fingers are crossed that its implantation bleeding. It find it funny that I still have hope after all the stuff I have been through.
02-13-2011, 01:23 PM   #15
Mayflower537
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Did you have implantation bleeding with your other pregnancies? This is a symptom I never experienced with either of mine. I hope that you efforts will soon result in a successful pregnancy.
02-13-2011, 01:28 PM   #16
Lydia
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I did have it with one of my pregnancies, but not the one that resulted in my daughter.
02-14-2011, 03:36 PM   #17
xJillx
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I am crossing my fingers for you - good luck!
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Diagnosed with Crohn's Disease - July 2010
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I am still sick and so confused...
02-14-2011, 03:46 PM   #18
Mary
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Good luck-it will happen!!!
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Mary Mack

Diagnosed 10/2010 Mild Crohn's
01/2011 Severe Crohn's with fistula

Meds I was on-
Imuran

Current meds-
Pentasa
Humira 3/11
02-15-2011, 01:59 PM   #19
HeatherMN
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A really great website for TTC/miscarriage/infertility (and all it's accompanying BS!) is www.inciid.org

We did IVF to have our twins and this website seriously helped me! I met some other members in person and it was so nice to have a resource and somewhere to go to vent and bitch and compare notes on treatments and stuff. They have tons of great resources and research from people in the field.

I had three ectopic pregnancies-first one was an oopsie pregnancy, the other two were very wanted I ended up having my fallopian tubes removed after the 3rd one and moving on to IVF. It was such a whirlwind of emotions and procedures and problems, but all worth it in the end. My kids are almost 10 now. I didn't have the stress of Crohn's to deal with at the same time though, I was diagnosed about 6 weeks after they were born.

Best of luck to you, hope your dreams come true for you soon!!
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Crohn's diagnosed in 2001
Gallbladder removed May 2005
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Humira 40 mg; also Flexeril, Wellbutrin XL, Klonopin, Salagen, vitamin D,
co-Q-10, DMAE, biotin, acai, multivitamin with ginger
02-18-2011, 03:50 AM   #20
Tan
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Hi Lydia how are u going?

I'm yet to seriously start trying yet but have a lot of concerns about becoming pregnant. I was recently dx with arthritis on top of having crohns and have been put on new meds. I'm doing ok so far crohns has been good for nearly 3 months but arthritis still not so good. Hoping that settles down soon too. My hubby and I have concerns regarding the future trying to deal with my illnesses, raising a family and working etc. He is worried that if we have a bub and I get sick he will have me and a bub to look after plus the house plus work and it will all be too much!

I understand his concern but is that enough of a reason to not have a baby. If we could see the future and know that would be great but we can't so just have to stay positive it will all work out.

I'm just wondering how everyone else copes with these diseases and babies?

I'm sorry I have kinda hijacked your thread Lydia but wanted you to know your not the only one out there to feel lost etc. Even tho we haven't technically been trying everytime I get my periods my heart sinks as I kinda hope it would just happen so I don't have to stress bout the future!

All the best Hun and take care x
02-18-2011, 02:47 PM   #21
xJillx
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Hi Lydia how are u going?

I'm just wondering how everyone else copes with these diseases and babies?

Even tho we haven't technically been trying everytime I get my periods my heart sinks as I kinda hope it would just happen so I don't have to stress bout the future!
I am with you, Tan! I am not exactly "trying" yet, but I think my husband and I would like to start within the year. But I am so scared! I have read many women spiral downward after giving birth; even my GI said it is common to flare afterward due to the hormone changes. I want to be able to enjoy my newborn! Any advise from the moms would be greatly appreciated! I will start a new thread so not to overtake your TTC thread, Lydia. Which by the way, Lydia, I am crossing my fingers for a positive update next week!
02-18-2011, 06:06 PM   #22
Lydia
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I wont lie, flaring does impact your parenting. However, I think that life, anybody's life has some type of obstacles that teach us lessons. For my daughter, its having a mom with a chronic illness. She will know what thats like and I am ok with that. I still manage when sick. I still get up every morning, and keep the same routine. I may have a shorter fuse, but I tell her the truth and I apologize when I screw up. My husband is a great help and he is an awesome father, and a support when I am sick. So that helps. I also have a wonderful support where I live. I have friends that will give me a break, if I ask them. Sometimes I have to humble myself and ask, thats the key.

My biggest piece of advice is to get yourself as healthy as you can before you start. For some that may not be remission, but going from a severe flare to a mild one. Whatever you think your best can be.

Many of the crohns maintainance drugs like 6MP, Azathioprine, remicade, prednisone, and humira are compatible with both pregnancy and breastfeeding.

The ones that are contraindicated are methotrexate, flagyl, and cipro.

This is one of my favourite videos in regards to crohns and pregnancy.
http://crohnstoday.com/the-impact-of...ancy/#more-147
02-19-2011, 09:13 AM   #23
xJillx
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Wow! What an informative video! About all of my questions were addressed! Thank you so much for sharing, Lydia!
02-19-2011, 11:59 AM   #24
Lydia
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Another thing to keep in mind when you start trying, is that it can take healthy couples up to a year to conceive. Thats with perfect timing. It may happen right away, but dont get discouraged if it doesnt. It took me 6 months to conceive Lilly and that was when I was in med free remission and totally healthy.
02-19-2011, 12:48 PM   #25
xJillx
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Another thing to keep in mind when you start trying, is that it can take healthy couples up to a year to conceive. Thats with perfect timing. It may happen right away, but dont get discouraged if it doesnt. It took me 6 months to conceive Lilly and that was when I was in med free remission and totally healthy.
Yes, you are absolutely right. That's something I have had in the back of my mind, too. And, of course, causes another concern, because what if when we first start trying I am feeling well, but in several months flare back up and have to put the baby making on hold! It is going to be so tricking to time everything perfectly. *Sigh*

PS - Your Lilly is just beautiful. You are very lucky. Of course, a brother and sister for her would be wonderful, too. Keeping my fingers crossed for you, Lydia!
02-19-2011, 03:49 PM   #26
Lydia
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Yes, you are absolutely right. That's something I have had in the back of my mind, too. And, of course, causes another concern, because what if when we first start trying I am feeling well, but in several months flare back up and have to put the baby making on hold! It is going to be so tricking to time everything perfectly. *Sigh*

PS - Your Lilly is just beautiful. You are very lucky. Of course, a brother and sister for her would be wonderful, too. Keeping my fingers crossed for you, Lydia!
We have been trying since Oct 2009, but I did take like 2-3 months off, when my flare got severe. It happens.

This is a really good site for keeping track of your cycles. I just use the free version, and track using cervical fluid and cervical position, but you can also take your temperature in the morning for more accuracy.
http://www.fertilityfriend.com/
02-19-2011, 04:44 PM   #27
Maryam
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Join Date: Jan 2010
Location: Boston, Massachusetts
A really great website for TTC/miscarriage/infertility (and all it's accompanying BS!) is www.inciid.org

We did IVF to have our twins and this website seriously helped me! I met some other members in person and it was so nice to have a resource and somewhere to go to vent and bitch and compare notes on treatments and stuff. They have tons of great resources and research from people in the field.

I had three ectopic pregnancies-first one was an oopsie pregnancy, the other two were very wanted I ended up having my fallopian tubes removed after the 3rd one and moving on to IVF. It was such a whirlwind of emotions and procedures and problems, but all worth it in the end. My kids are almost 10 now. I didn't have the stress of Crohn's to deal with at the same time though, I was diagnosed about 6 weeks after they were born.

Best of luck to you, hope your dreams come true for you soon!!
just wanted to say that this a great website that you posted.
02-19-2011, 06:43 PM   #28
Lydia
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just wanted to say that this a great website that you posted.
I agree. It is a wealth of information.
02-22-2011, 11:40 AM   #29
Lydia
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A new cycle started this morning. I knew it was coming though.
02-22-2011, 11:46 AM   #30
xJillx
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Oh, Lydia, I am so sorry. Don't give up!!
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