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View Poll Results: Do you get mouth ulcers on a regular basis?
Yes 154 73.68%
No 55 26.32%
Voters: 209. You may not vote on this poll

 
02-03-2009, 01:40 PM   #31
Collette
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Mouth sores are always an issue for me and I know when I get them that I can expect a nasty flare up. I always have a sore throat and get hoarse. My primary doctor told me they are a form of herpes and prescribed Valtrex. I don't even bother taking it because it didn't help. I have a mouth that was prescribed by my GI that works great but iI have been warned that it can turn your teeth green. There is also Dentapaste that works pretty good.
I never knew why I was haviving so many sore throats until I went to an ENT and he saw the ulcers on my larynex. I sing so this really sucks!
02-09-2009, 09:33 PM   #32
Colt
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You were almost certainly misdiagnosed. Frankly, crohn's mouth ulcers are nothing like an oral herpes infection and I'm rather appalled that your doctor could make that mistake. But, you're a young woman. STDs and depression are always the first things that pop into a doctor's head no matter what that young woman came in for.
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02-12-2009, 12:16 AM   #33
kello82
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my GI recently game me valtrex for the ulcers too. but more as a precaution i think, before i started the tysabri he needed to make sure that it wasnt a herpes infection otherwise the med would screw that up big time.
the valtrex didnt do anything, so i was clear on that front at least
02-22-2009, 03:41 PM   #34
PENWESTERN
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My Dentist was amazed when I had a crohns flare that ended up with ulcers on the roof of my mouth. He told me Never use anything like Listerine. He said to use one part Peroxide to two parts water (I believe that was the ratio) or gargle salt water which I never tried. The ulcers went away and I believe Prednisone helped clear them. I also had an ulcer on my forehead, under my nose and on my throat and a scrape on my elbow ulcerated. I was sure they would leave a SCAR but they did not. It took about three months for the blotch to disappear but disappear it finally did.
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02-24-2009, 09:45 PM   #35
Colt
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Pen, having ulcers outside of the GI tract isn't crohn's. It's likely a different autoimmune disease. Ulcerating as a direct response to an injury wreaks of behcet's but it could also be lupus or any other number of things. Having one autoimmune of course makes it a lot more likely to have another as I'm sure you know by now.
02-24-2009, 11:03 PM   #36
D Bergy
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Occasionally I get a sore in my mouth but I don't think it is a Crohn's related thing.
I guess I am not sure, but it is a rare occurrence.

If I get another one, I will rinse with Chlorine Dioxide and see what that does. It kills acidic bacteria like nothing else. If it is strictly a Crohn's symptom it should not do much.

Dan
03-04-2009, 10:21 PM   #37
Lily24
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Since I got My throat Ulcer 3 weeks ago, which was really bad together with mouth ulcers...I have lost my taste buds...Until today my mouth is tasteles..Anyone have gone thru thiis before? What to do to have the taste buds return? I'm really depressed..
03-05-2009, 02:46 PM   #38
Collette
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I was always told that crohne’s is a disease from tongue to bung. When I feel sores starting in my mouth, I know a flare is soon to follow.
03-07-2009, 11:01 AM   #39
bethyd78
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I had them I used chloroseptic mixed with maalox I know that is probably bad.
But i also used that when i had an esophageal ulcer. I got fussed at by my dr.
but i didn't know what else to do.
Beth
03-16-2009, 03:06 AM   #40
mRae85
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Never have had them, took this poll though just to see what the odds are and I must say it seems to be something I should look forward to having one day... oh, the joy this illness brings
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03-22-2009, 08:15 PM   #41
markymark19857
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I get them they come and go..i find my tongue just gets worn down! when my acid reflux was really bad it got to the point where it hurt to eat b/c my teeth were destroyed
03-22-2009, 08:18 PM   #42
obxgirl
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I've not been dx'd w/Crohn's, but I was told years ago that I have ibs. But, I can certainly identify with many of the day to day issues many on the board deal with, and it actually makes me feel better to know that I'm not alone in dealing with whatever is going on with my abdominal issues that have plagued me for years.

I don't get mouth ulcers very often, but I do get some kind of flare on my bottom lip. It begins with tingling, then burning, it's not my whole lip, just areas on the lip. The areas become red, and a little swollen, very painful, and are ulcerated a bit. They usually last 2-3 weeks, it goes away, then a few weeks later come back. I've had it biopsied, came back negative for everything. (Altho one time there was a small basal cell carcinoma, which they "scooped" out. Later had another area biopsied, negative for everything.) I haven't been able to relate it to anything, nor has my dermatologist or family physician. The only thing that seems to relieve it in any way is Burt's Bees lip balm. Seems to dry the edges out a little.

Has anyone ever had anything like this?

Thanks for reading!
01-26-2010, 04:08 PM   #43
Cookie
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I get mouth ulcers all of the time. I had a huge issue with them as a kid, which I why I think my Crohn's was set "set into action" long before my diagnosis at age 31. Right now I have four annoying ulcers in my mouth, as well as a sore throat. I have also noticed that my ulcers tend to crop up in the same place every time (especially one on my tongue). I just revived this thread because I was wondering if anyone had any input on the following: Do your ulcers always come back in the same place? Do you get a sore throat too, and do you think that the sore throat may be because the ulcers are also down the esophagus? Just curiosity more than anything.
01-26-2010, 05:03 PM   #44
Peaches
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I tended to have mine start out around the same places on my tongue when I would get them. And I did get tonsillitis several times a year for the longest time, but you know, I can't remember if they seemed to happen at the same time or not. It has been since before I started the Remicade (6 years ago) that I had my last bunch of rashes - the Remicade took care of them for good. Maybe it'd be a good idea to see if your GI could take a quick peek down your throat with a scope to see if it looks ulcerated?
01-26-2010, 05:06 PM   #45
imisspopcorn
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I don't get them......just the weird tongue stuff...But they are not ulcers
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07-08-2010, 04:57 PM   #46
Walt
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Yep, I get'em.
Sores mostly in my inner mouth cheeks.
They are aphthous ulcers. (aka cancer sores)
Mine linger for looong stretches of time.

I have not had cracked corners yet, but hear that many do.
Sometimes I have problems with a taste bud or two, they stand proud and hurt.

Prednisone let my candida run wild, icky thrush.
So much so that I could not taste anything... even a strong garlic dill pickle.

So many personal twists on Crohns symptoms!
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whew, just a little Prednisone?

I'm starting to think Crohn's isn't as much fun as they made it sound in the brochure?

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07-08-2010, 05:00 PM   #47
Crohn's 35
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As soon as I am on antibiotics, boom, guaranteed a canker sore. Now two at a time and had a cold sore to boot! Have had these all my life on and off. I hate them!
07-08-2010, 05:21 PM   #48
DustyKat
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Roo doesn't suffer with mouth ulcers.

My son who doesn't have IBD always seemed to be plagued with canker sores, they were pretty frequent and he could have two or three at a time. Did a bit of research and started him on a B Complex tablet once a day about 6 months ago and voila, he has had only one in that time.
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07-08-2010, 07:46 PM   #49
Starlight
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I used to liven with them. I would have literally 20+ ulcers in my mouth at one time. Having like 10 or less and i would consider that "relief". Now that I'm on remicade, I'll get Maybe 1-2 every once in a while, but no where near like before.
07-08-2010, 07:50 PM   #50
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Ouch Starlight that is awful, how did you eat and or drink. I get one canker and I can hardly talk! The upside to me having them is my husband doesnt get nagged lol.
07-08-2010, 09:20 PM   #51
Starlight
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I lost a good bit of weight because I couldn't eat very well. I have a pretty high pain tolerance, but it sure wasn't easy. Knowing how remicade has helped me today and I don't have the ulcers anymore, I don't know how I made it with so many of them at one time. Especially since I love sauces like ketchup and mustard. Talk about BURN!!
07-09-2010, 02:33 PM   #52
Rebecca85
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I only get mouth ulcers when I have damaged the inside of my mouth (usually by biting the inside of my lip). I accidentally found out that putting lemon juice on them helps - stings like crazy when you put it on but then usually they are noticably better the next day. Don't know if that works on Crohn's related ulcers or not though.
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08-12-2010, 09:55 AM   #53
maxibear
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i have a large hole in my tongue. its the lenth of my finger and wont go away. i assume thats its part of crohns, but does not bother me
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emergency stricturplasty surgury april 1, 2010- april fools on me, lol, dianosed mid april chrones, although i had no symptoms- currently on pentassa 8 blue ones a day, vit d, liquid fish oil, and a bunch of other great drugs for my i various problems.
08-14-2010, 06:08 AM   #54
debs1983
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I've been lucky
I had a mouthful when in the hospital waiting to be diagnosed but not since
09-09-2010, 12:02 AM   #55
girlygirl
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Hello

I get the mouth ulcers as well! Painful they are!! Recently my colorectal surgeon/specialist gave me an rx for triamcinolone o.1% paste. Its a dental paste and works wonders for me. Wish I would have known about this before! But only recently found out I had Crohns. I get the ulcers on my tongue. Surprisingly the paste clears them in just a few days, doesn't taste bad, and sticks to the inflamed area.

I hope this helps someone! I just happened to have a flare up following surgery. And I'm greatful to have foubf something that works!
GirlyGirl
09-09-2010, 05:27 AM   #56
Dexky
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Girlygirl, I added triamcinolone to the Wiki list. The website says it is used to treat UC as well so I thought it should be there. My son has the tongue issues too but his have seemingly been helped by taking a B-complex vit. on advice from DustyKat.
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09-09-2010, 10:31 AM   #57
girlygirl
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Girlygirl, I added triamcinolone to the Wiki list. The website says it is used to treat UC as well so I thought it should be there. My son has the tongue issues too but his have seemingly been helped by taking a B-complex vit. on advice from DustyKat.
Awesome! Thanks Dexky! I will keep that in mind too

GirlyGirl
01-14-2011, 12:20 PM   #58
Josephine
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I used get loads in early to late twenties now once in blue moon.
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Acid Reflux for 15 years med

Sacroiliitis and add to grew list auto immune diseases.

Now on Lansprazole 15 mg And Gavin son 5mg-10mg 3a day.

Crohns from Oct 2007
Domperidone 10 mg -20 mg, Mebeverine 135 mg,
3 a day.
Balsalazide 750 mg 3 X3 a day on going.
Bone protection.

Azathioprine is not working, still waiting to find out what next. Still on low dosage Prednisolone

Mesalamine Enema


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English my native language and have characterizes of dyslexia.
01-14-2011, 01:41 PM   #59
allieinwonder
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I get terrible mouth ulcers ALL the time. They last for a month at least, and nothing seems to work on them. I generally get 3 at a time. Lots of scars in my mouth from it too. I have had them on my tongue numerous times, and I had one on the corner of my mouth a few months ago. A few times I have had to go on a liquid diet they hurt so bad.
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www.behcets.com

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01-14-2011, 03:54 PM   #60
chrisnsteph1022
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I never get them, but when I was 19, I had a mouth full of them. The doctors were stumped and just gave me 'magic mouthwash' to numb the pain until they went away. Four years later, I was dx with Crohn's and I fully believe those ulcers were my first flare. I haven't gotten them since. Well, maybe one here and there, but not a mouthful like that first time.
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Stephanie
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