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03-11-2011, 08:52 PM   #1
tummygirl
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Pain in fingers/hands?

I am having a bit of joint pain in general; but it especially bad in my fingers.

My arms seem to 'fall asleep' (go numb) several times in a night, probably because I'm a side-sleeper. When I get up in the morning, I waddle because my knees and hips are stiff.

But, what seems odd to me is that I've also noticed that in the middle of the night, or first thing in the morning, my fingers feel frozen and I can barely make a fist. They feel very, very sore. It goes away for the most part during the day, and then comes back in the evening. During the day, I have noticed my hands in general are weak (I can't get bottle caps off easily, or open packages... that sort of thing). I've told Dr.s and they all say it could be a bunch of things.... but don't seem to worry about it...

Anyone else dealing with finger pain?
03-11-2011, 09:39 PM   #2
ameslouise
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Hi Tummy - I have been dealing with SEVERE arm and hand numbness for weeks, but like you, only at night. Really, only when I am lying down flat. Nothing has changed except now I am not on any steroids for the first time in about a year and a half.

I assume it's inflammation pressing down on a nerve in my neck, or perhaps arthritis pinching down a nerve, or maybe just plain old carpal tunnel.

I about to go into the hosp for surgery and my biggest fear is laying down for hours on end. I can't bear the thought of the hand/arm numbness and PAIN!

Surprised your docs haven't had you see a neurologist. The word "pain" should be a hint to any doctor that things need to be looked into more closely.

Have you tried sleeping with a wrist brace on? I do and it helps a little. Not tons, but a little.

- Amy
03-11-2011, 10:18 PM   #3
AndiGirl
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When I flare-up there are times when I can get a lot of tingling in my hands and feet. Lately, I've had a slight increase in joint pains in my fingers and toes.
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03-11-2011, 11:13 PM   #4
MADiMarc
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Hi, Tummy. The numbness is the scary part. That can be an indicator for nerve damage/interference stemming from the neck. As Amy stated, you may wish to see a neurologist.
Good luck,
Michele

Edit: yeah, I have it too! Forgot that part!
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03-12-2011, 10:45 AM   #5
Tina_86
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Hi, I have been suffering really bad joint pain for quite sometime, when it is really bad my fingers ache where the finger like joins / meets my palm. My knees seem to get it worse! I am seeing joint specialist on 22nd this month so will let you know if I get told anything that may be of interest to you
03-12-2011, 11:52 PM   #6
ameslouise
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A friend of mine told me tonite she suffered horrible carpal-tunnel like symptoms while she was pregnant with her twins. She said everything in her body was swollen and inflamed and after she gave birth it went away. I am kind of hoping this is just a temporary inflammation that will go away very soon.... I know my upcoming surgery won't cure my Crohn's or my propensity toward inflammation. If this does turn out to be carpal tunnel and I then have to deal with THAT, I just might lose my shit completely!
03-13-2011, 04:02 PM   #7
Crohn's Mom
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Just wondering if any of you with the arm numbness and pain are on Flagyl??
My daughter had those symptoms and it was driving her crazy. We mentioned it to the doctor thinking she would blow it off...but, turns out that it is definitely a side affect of Flagyl for whatever reason. Needless to say, she can't take that anymore.

Just a thought...
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03-13-2011, 04:18 PM   #8
MADiMarc
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Huh. These meds just keep getting better & better don't they?
03-13-2011, 07:49 PM   #9
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Nope, not on Flagyl over here.... But that last couple night have been better so at least I am getting some sleep....
03-14-2011, 03:33 AM   #10
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just wondering if your on prednisone? i developed osteoarthritis in my knees from long term pred use. also my gi doc told me arthritis can be developed from this wonderful illness. going for a bone density scan next week.
03-14-2011, 08:15 PM   #11
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I never heard of tingling being a Crohn's / medication side effect until I joined here. I have had a tingling in my left hand and fingers while driving, though it was a seat and or the car issue until it happened in a different vehicle. I'll have to keep an eye on this.
03-15-2011, 03:27 AM   #12
Keona
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wow.. same here.
I have difficulty sleeping and tend to sleep when I can so this happens specifically to me when I am sleeping. I wake up with pins and needles in my hands quite bad (or it is also referred to as "asleep")..the numbness sensation and the more I massage it the more it wakes up and the more painful it is until it is fully awake. I find it happens mostly in my left arm/hand. It runs down my ring finger and baby finger down the side of my palm up my arm. Once I wake it up so-to-speak it seems to be fine so it isnt that big of a deal in the grand scheme of things. I woke up this morning though with both of my wrists hurting without the sensation of being asleep. It may be premature and it could be a one time thing - but this all sounds very familiar to me. I am not on any Crohns meds yet (until after they do the next MRI in a week) just what is listed below.
It has crossed my mind what ameslouise wrote about carpel tunnel syndrome but I am also aware of the whole arthritis thing with Crohns.
The numbness has been an ongoing issue though in the mornings and it isnt as though I am sleeping on the arm so it is cutting off the circulation... not sure what it is.

The more I hear about flagyl and prednisone, the more I hope I never have to take it....
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03-17-2011, 06:25 PM   #13
tummygirl
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I don't find that I get a lot of tingling... it's just completely numb usually... not overly painful.

The painful part is in my fingers.

I was on prednisone from Feb-Sept. 2010.

Now I'm on weekly Humira.

It started when I stopped prednisone/started Humira so the Dr. thinks the finger pain is inflammation/arthritis that the prednisone was fixing, and now that i'm not taking it, I'm feeling it.

Tell me more about neck issues? i didn't think I had a sore neck at all...
07-28-2013, 02:26 PM   #14
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I am having a bit of joint pain in general; but it especially bad in my fingers.

My arms seem to 'fall asleep' (go numb) several times in a night, probably because I'm a side-sleeper. When I get up in the morning, I waddle because my knees and hips are stiff.

But, what seems odd to me is that I've also noticed that in the middle of the night, or first thing in the morning, my fingers feel frozen and I can barely make a fist. They feel very, very sore. It goes away for the most part during the day, and then comes back in the evening. During the day, I have noticed my hands in general are weak (I can't get bottle caps off easily, or open packages... that sort of thing). I've told Dr.s and they all say it could be a bunch of things.... but don't seem to worry about it...

Anyone else dealing with finger pain?



I am having the exact same symptoms. Do you guys think it is related to Crohns? I have been diagnosed with Osteopenia and Osteoporsis in the hips. They have never checked my hands, wrists, fingers, knees, and ankles. Maybe I should. I have been on Humira 2 times a month since I had extremely bad joint pain a few years ago. The Humira toook away the joint pain, it took a few months, but it eventually worked. Now I am having it all come back and left arm and hand (funny how it is the left) asleep and my fingers are bent almost into a fist on both hands but it hurts to stretch my fingers straight or make a fist. I have been waking up quite a bit in the night. This post is old, but I havent seen any news.. Could someone tell me what happens next? Thank you.
07-28-2013, 02:44 PM   #15
shamrock15
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Have you had all your nutrient levels checked? I am not sure which specific one it is, but you can get symptoms like that due to vitamin deficiency and some of them will become irreversible. I do sometimes get this, for me it is in the pinkie and ring finger on either hand if I sleep with my arms bent by my sides. Vitamins are easy to check, and possibly fix. Don't let it go too long...
07-28-2013, 02:45 PM   #16
lblair
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I have joint pain knees ankles and fingers and in the hips too!! I started having neck pain in the mornings I thought tha I just sleep on it wrong but after a couple of days still hurt it started after I started Humira not sure what to think?? Is it the meds or did I sleep on it wrong????
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07-28-2013, 04:02 PM   #17
wildbill_52280
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it sounds a little bit like iron/mineral deficiency or b12 deficiency.

do you also occasionally feel lightheaded when rising from sitting position? that is almost certainly b12.

but general weakness could be iron deficit.
07-29-2013, 02:22 PM   #18
pb
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Just wanted to mention, tingling and numbness especially in fingers/toes can be a sign of low B12 and CDers are prone to low B12 because of issues with absorption of nutrients so if any of you haven't gotten your B levels checked, please do...it made a world of difference for me now that I've been taking B12 pills (first started with shots at the docs office then weaned on to pill form).

The tingling/numbness is the first sign of nerve damage that isn't reversible if it's left too long before getting treated with B12...it's been 10 yrs and I'm still taking the B12 supplement as directed by my doc.
07-29-2013, 02:32 PM   #19
lblair
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My B-12 is good!!
07-30-2013, 03:29 PM   #20
mish2575
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I just read an article this week saying that pain/stiffness in fingers and hands are an indicator of Arthritis.

I have carpal tunnel but my fingers dont get stiff/numb, just a numb pain in my wrist/hand.
07-30-2013, 05:12 PM   #21
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I am going to get my B12 checked. It wouldnt suprise me if I were deficient. But I am thinking this numbness might be from something else. I am getting small mouth ulcers and bowels are acting up. Might be a little flare starting. I am also very concerned with the pain in my joints. Thanks for the advice on B12.
08-02-2013, 05:04 PM   #22
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You might want to consider calcium levels too. I imagine a lot of us don't tolerate much dairy.
08-02-2013, 10:05 PM   #23
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Defiantly get your b12 checked. I have had a lot of issues with my hands and feet falling asleep, getting numb and my hands hurting while grasping objects. i also would wake up in the middle of the night with an arm or leg totally numb. my B12 was 338 not deficient but on the low end. I started weekly b12 injections along with a multivitamin and these things have improved
08-03-2013, 08:33 AM   #24
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I've had really sore, stiff fingers the last month, but my bloodwork is all good and my docs think it is just a "extraintestinal manifestation" (and yes, the student doctor working with my doc actually spoke that way to try and explain it to me) so arthritis pain because of Crohns. Joy.
08-18-2013, 01:11 PM   #25
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I started with crohns 26 yr ago and had been in remission for 24yr until earlier this year, my flare lasted around 6 wk and was treated with pred, I made a good recovery but over the past 2wk I have had severe numbness in both hands on waking and even symptoms waking me from my sleep, I am also having pain in my hands and finding it really difficult to pick things up, I am on no regular meds at the mo, I suppose I have been really lucky for the past 24yr hope this is not the start of things to come :@
08-18-2013, 01:18 PM   #26
nogutsnoglory
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I have pains all around but also in hand and arm. They feel frozen, they hurt and are sore.
08-23-2013, 11:24 PM   #27
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Pain in both arms and hands waking me from a deep sleep still. I had diarhea for a week, then vomited for a day, now I have been constipated for 1 week. This time I have been introduced to a prolapsed rectum ( I believe this is what it is.) I called my GI and he wants me to go into ER tomorrow AM where he is on call this weekend....I am scared and confused and what worries me most is that I am going to get the same BS, vague answers. That is what is so nerve racking about all of this. I wish there was a specialty Doctor that dealt in all auto-immune diseases, the GI and Rheumatologist, and Pain doc all have me bouncing around telling me to ask the other one. So off I go to the ER in the AM for an enema and God only knows what else....I do believe it is all related, I just wish someone could give it a name. Any thoughts or suggestions? I am 37 and my body it seems is falling apart.
12-07-2013, 01:19 AM   #28
Sparkle2012
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I am having a bit of joint pain in general; but it especially bad in my fingers.

My arms seem to 'fall asleep' (go numb) several times in a night, probably because I'm a side-sleeper. When I get up in the morning, I waddle because my knees and hips are stiff.

But, what seems odd to me is that I've also noticed that in the middle of the night, or first thing in the morning, my fingers feel frozen and I can barely make a fist. They feel very, very sore. It goes away for the most part during the day, and then comes back in the evening. During the day, I have noticed my hands in general are weak (I can't get bottle caps off easily, or open packages... that sort of thing). I've told Dr.s and they all say it could be a bunch of things.... but don't seem to worry about it...



Anyone else dealing with finger pain?

Hi - Im experiencing similar issues. I wake up in the night and have severe pain in my hands, movement immediately settles it down. It's in both my entire hands. I also feel weird bone pain sensations here and there in different places in my body at times. I suppose I've contracted the Crohns arthritis and I'm getting tested this week. I'm really nervous about the Humira they keep suggesting for me. I don't have Crohns symptoms so why are my hands hurting? Other joints too like my ankles sometimes feel sprained. Knees have gotten worse...osteo. Not the back yet thank God. I feel like Humira could be a death sentence because I dont' know much about it but the docs look at it like awesome candy---- my take is arthritis can only cripple me. Sad eh? This all came on me after my surgery for bowel resection --- they put me on entacort for 3 months and when I went off it and started Pentasa.....I had an episode like the flu which never quite left my joints. I think it was a flu going around - I caught it and it stayed in my joints...or it was from the medicines. Hate this stupid immuno disorder. Grateful I don't have Crohns symptoms post surgery X 1 year.
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Last edited by Sparkle2012; 12-07-2013 at 07:54 AM.
12-07-2013, 01:22 AM   #29
Sparkle2012
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Pain in both arms and hands waking me from a deep sleep still. I had diarhea for a week, then vomited for a day, now I have been constipated for 1 week. This time I have been introduced to a prolapsed rectum ( I believe this is what it is.) I called my GI and he wants me to go into ER tomorrow AM where he is on call this weekend....I am scared and confused and what worries me most is that I am going to get the same BS, vague answers. That is what is so nerve racking about all of this. I wish there was a specialty Doctor that dealt in all auto-immune diseases, the GI and Rheumatologist, and Pain doc all have me bouncing around telling me to ask the other one. So off I go to the ER in the AM for an enema and God only knows what else....I do believe it is all related, I just wish someone could give it a name. Any thoughts or suggestions? I am 37 and my body it seems is falling apart.
Supposedly it is all autoimmune disorder -- which can cause many issues at the same time. I am now blessed with Crohns, chronic asthma, arthritis, skin issues, migraines, eye inflammation. THANK you world for giving me all that at the same time. psssffftt!!!! The thing I like about Mayo is the doctors manage you as a team. They all have a meeting once a week to review your case as a TEAM. That is how all docs should work but they give you the least bang for your buck. My insurance won't pay for Mayo. Boo hoo....Good luck to you!
12-07-2013, 01:26 AM   #30
Sparkle2012
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I've had really sore, stiff fingers the last month, but my bloodwork is all good and my docs think it is just a "extraintestinal manifestation" (and yes, the student doctor working with my doc actually spoke that way to try and explain it to me) so arthritis pain because of Crohns. Joy.
I believe it's called reactive arthritis or crohns related arthritis or enteropathic arthritis. I have it too -- in my hands mostly ....and sometimes my ankles which is a drag because they feel sprained and don't act right at times. I dread taking Humira...I feel like crippling joints is a better option. But I can't seem to find much from people who are taking it long term on this forum. All they are talking about is how they hate the shots. not happy
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