Ok so im not a newbie and i did introduce myself a year or 2 ago on here. But things have changed a hell of a lot since then and this is a good Oppurtunity to let a lot of my thoughts and feelings out about what has happened, especially the last 5 months which have changed things forever.
So i was diagnosed towards the end of 2008. I had been ill for a while and having problems. Mainly pain and blood when going to the toilet. I eventually saw a doc and had the usual blood tests and examinations. and was then on a waiting list for a colonoscopy. Whilst waiting symptoms worsened and I eventually ended up in hospital. Only for a week. Id just had my colonoscopy and was waiting for results so they told me then i had crohns disease. I was started on Pentasa along with the dreaded steroids, but my god they did the trick!... I felt well for a year until things went wrong and i was back in hospital. This time i was very very ill . had lost a lot of weight and could not stop pooping or being sick. i was in for a week again. but sorted by going back on steroids and then onto azathioprine. again this worked for a year until i started having problems tolerating the aza and having a few issues so at the beggining of this year i started infliximab infusions.
This stuff was working brilliantly, i had never felt better and things where going better than ever, great health new job, and finally a bit of happiness.
So i decided to go out with a group of friends. A friend was kicked out of a club for arguing and so i tried to follow. The next minute 2 bouncers decided to throw me about and ended up kicking and stamping on me whilst i lay on the floor. A lot of people assume id done something to deserve this, but its been proven that i hadn't. this left me with serious stomach pain and i could not move. so an ambulance came and rushed me into hospital.
I later found out that i had a badly perforated bowel and that i needed an emergency op or i would die. So i had a laparotomy, I had some bowel removed and an anastomosis join was created.
this is a local newspaper article from the time. about 2 weeks after the incident http://www.wigantoday.net/news/search_for_attackers_of_man_with_chronic_illness_1_3277709
things however got a lot worse. It became clear that there was something wrong. i developed very bad sepsis and there was a collection in my abdomen that seemed to be the source. but the hospital wasnt a very specialist one so i spent 2 weeks in a bad way being told they didn't know what to do. Eventually after a month i was transferred to salford hope hospital which is a more specialist hospital for this thing.
I was here for 3 months where i spent a long time still with sepsis, i had drains in my back to clear the fluid i had around 10 ct scans and countless mri's. was being fed via tpn, on countless drips, having blood transfusions. eventually a water soluble enema made it more clear than the join in my bowel had not healed and i required more surgery.
So i had another op and ended up having an ileostomy and a mucus fistula. recovery in hospital went well and i have now been home for around 6 weeks and doing seemingly well. I spent a long time in hospital being very depressed. constantly crying, if i wasnt crying i was being sick or having a septic "episode" I am mentally exhausted and cant even begin to describe how i felt at times but i am glad i am now able to still sit here and live to tell the tale. and get things of my chest. I will never forgive the people who did this to me. And with any luck they will soon be in jail where they belong. I've also learnt a lot over these few months. especially how important my family are. I could of not made it through this without them.
This is possibly the longest message i have ever written, But if you have made it this far, thank you for reading!
So i was diagnosed towards the end of 2008. I had been ill for a while and having problems. Mainly pain and blood when going to the toilet. I eventually saw a doc and had the usual blood tests and examinations. and was then on a waiting list for a colonoscopy. Whilst waiting symptoms worsened and I eventually ended up in hospital. Only for a week. Id just had my colonoscopy and was waiting for results so they told me then i had crohns disease. I was started on Pentasa along with the dreaded steroids, but my god they did the trick!... I felt well for a year until things went wrong and i was back in hospital. This time i was very very ill . had lost a lot of weight and could not stop pooping or being sick. i was in for a week again. but sorted by going back on steroids and then onto azathioprine. again this worked for a year until i started having problems tolerating the aza and having a few issues so at the beggining of this year i started infliximab infusions.
This stuff was working brilliantly, i had never felt better and things where going better than ever, great health new job, and finally a bit of happiness.
So i decided to go out with a group of friends. A friend was kicked out of a club for arguing and so i tried to follow. The next minute 2 bouncers decided to throw me about and ended up kicking and stamping on me whilst i lay on the floor. A lot of people assume id done something to deserve this, but its been proven that i hadn't. this left me with serious stomach pain and i could not move. so an ambulance came and rushed me into hospital.
I later found out that i had a badly perforated bowel and that i needed an emergency op or i would die. So i had a laparotomy, I had some bowel removed and an anastomosis join was created.
this is a local newspaper article from the time. about 2 weeks after the incident http://www.wigantoday.net/news/search_for_attackers_of_man_with_chronic_illness_1_3277709
things however got a lot worse. It became clear that there was something wrong. i developed very bad sepsis and there was a collection in my abdomen that seemed to be the source. but the hospital wasnt a very specialist one so i spent 2 weeks in a bad way being told they didn't know what to do. Eventually after a month i was transferred to salford hope hospital which is a more specialist hospital for this thing.
I was here for 3 months where i spent a long time still with sepsis, i had drains in my back to clear the fluid i had around 10 ct scans and countless mri's. was being fed via tpn, on countless drips, having blood transfusions. eventually a water soluble enema made it more clear than the join in my bowel had not healed and i required more surgery.
So i had another op and ended up having an ileostomy and a mucus fistula. recovery in hospital went well and i have now been home for around 6 weeks and doing seemingly well. I spent a long time in hospital being very depressed. constantly crying, if i wasnt crying i was being sick or having a septic "episode" I am mentally exhausted and cant even begin to describe how i felt at times but i am glad i am now able to still sit here and live to tell the tale. and get things of my chest. I will never forgive the people who did this to me. And with any luck they will soon be in jail where they belong. I've also learnt a lot over these few months. especially how important my family are. I could of not made it through this without them.
This is possibly the longest message i have ever written, But if you have made it this far, thank you for reading!
