Share Facebook


10-08-2011, 05:58 PM   #1
georgiabird
New Member
 
Join Date: Oct 2011
Optic Neuritis?

Has anyone had optic neuritis? I had it in both eyes several years ago.

I'm just curious about others' symptoms... I have so many autoimmune diagnoses... but none of them can explain all of the extreme things I've experienced over the years.

Am I alone with this? Thanks for responding!
10-08-2011, 09:18 PM   #2
crohnicaly stinky
Senior Member
 
crohnicaly stinky's Avatar
 
Join Date: May 2010
Location: annandale, Virginia
Has anyone had optic neuritis? I had it in both eyes several years ago.

I'm just curious about others' symptoms... I have so many autoimmune diagnoses... but none of them can explain all of the extreme things I've experienced over the years.

Am I alone with this? Thanks for responding!
My eye doctor said crohns can cause inflamation in the eyes. I notice sometimes my right eye is all but useless, I see a blur when I close my left. Then after time it comes back to being better.
10-08-2011, 09:49 PM   #3
glum chump
Senior Member
 
glum chump's Avatar
 
Join Date: May 2010
Location: British Columbia

My Support Groups:
Hi Georgiabird

I was diagnosed with optic neuritis about 23 years ago. I'm not sure if it was a prelude for Crohn's disease or MS. At the time, my doctor said it was linked to MS since I was diagnosed with MS six months later. I was diagnosed with Crohn's about 10 years ago

The optic neuritis is in my right eye. I have no central vision with just a slight amount of peripheral vision. The amount of vision I lost has never been regained.

So...no, you're not alone with this!

Kismet
10-08-2011, 11:16 PM   #4
outlier
Senior Member
 
outlier's Avatar
 
Join Date: Jun 2010
Location: New York, New York

My Support Groups:
I thinks that the only place in my eye that has not been inflamed, but when i was getting my million second options it was part of a doctor dialogue. So it is an option, if that helps. Sorry, and good luck.
__________________
Diagnosed: Crohn's Oct '09
Extraintestinal: scleritis May '08, GERD Aug '09, ankylosing spondylitis Feb '10
Current Meds: Humira, Asacol, Dexilant, domperidone, Tramadol and a whole lot of vitamins
No more sulfasalazine, Methotrexate, Xibrom, Pred Forte and Iron
10-09-2011, 12:48 AM   #5
sunflower
Senior Member
 
sunflower's Avatar
 
Join Date: Jun 2010
Location: Kansas

My Support Groups:
My reading has led me to believe that ON is mostly associated with MS. IBD tends to cause iritis and uveitis. Have you been checked for MS? I know it is one that no one likes to say outloud, but it is not always severe and is rarely a death sentence especially with all the new meds
__________________
Diagnosed: 1992 with Crohn's
Current meds: Asacol HD, Humira plus many more!
Also have hypothyroid, diabetes type II, Fibromyalgia, Insomnia, AS diagnosed 12/11 (on my birthday).
10-10-2011, 08:49 AM   #6
georgiabird
New Member
 
Join Date: Oct 2011
Thank you all for the feedback.

Yes, I was watched following the ON for signs of MS, but that was all that happened. (thank goodness!)
10-10-2011, 11:05 AM   #7
Carrie630
The Prettiest Princess
 
Carrie630's Avatar
 
Join Date: May 2011
Location: Ohio

My Support Groups:
I don't know what the dx is on my eyes, but I have very bad problems. They get inflamed, over dry, then my cornea? gets all scratched and not smooth and I can't see. I have lacrimal plugs in the inner corners of my eyes to try to keep tears on my eye balls, but I don't make many tears. sometimes it feels like the pressure in my eyes is going to make them explode, but the pressure tests have never shown extremely increased pressure which I guess means it's not in the eyeball but outside of it thats causing the pressure problem. I also have restasis but it doesn't help much.
10-12-2011, 11:25 AM   #8
sunflower
Senior Member
 
sunflower's Avatar
 
Join Date: Jun 2010
Location: Kansas

My Support Groups:
Have your doctors checked you for Sjogren's? It is a common secondary condition and causes dry eyes, dry mouth and some other less common symptoms. Sjogren's can also be a primary illness. It is less common in IBD than it is with other conditons like RA, but it does happen. Your condition sounds serious. Are the doctors looking into better treatments for you? If not, maybe you should seek another opinion for your eyes. I am so protective of my eyes because I only have normal sight in one of them.
10-12-2011, 11:29 AM   #9
Carrie630
The Prettiest Princess
 
Carrie630's Avatar
 
Join Date: May 2011
Location: Ohio

My Support Groups:
I'm about to seek out new doctors. I have to make an ophthalmologist soon, and I'll press them about the sjogren's thing.
Reply

Thread Tools


All times are GMT -5. The time now is 07:43 AM.
Copyright 2006-2017 Crohnsforum.com