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07-19-2012, 12:29 AM   #61
izzi'smom
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I am guessing that with the right kind of nut butter (and omission of the sprinkles...crushed nuts/shaved chocolate instead maybe?) this is PALEO worthy also. TY for posting!!
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Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
07-19-2012, 10:01 AM   #62
Tesscorm
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Oooh, hadn't thought about chocolate shavings! I would love to add crushed nuts but Stephen's dietitien told us no 'pieces' of nuts (nut butter is fine) - maybe I worry too much about that and it would be okay??? I, personally, would love the crushed nuts in these chocolates!

(We're still eating the batch I made, so I'll reiterate - skip/switch the sea salt! The chocolate melts quicker then the salt, then you're left with just little bits of salt still melting in your mouth! )
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Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
07-19-2012, 10:30 AM   #63
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Great idea, I know when I find something that J can and will eat we make it a lot! so the more choices the better. Any ideas on an easy snack he can have in the baseball dugout while everyone else is munching and spitting sunflower seeds?
Pirate's Booty is a great snack, puffed cheese balls. Great substitute for popcorn as well.
07-19-2012, 01:22 PM   #64
izzi'smom
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Remind me, Tess...does Stephen have strictures or fistula problems? My GI tells me that it is a knee jerk reaction to tell us no nuts. Izz doesn't have either of these problems and I let her have them now. ty for the salt tip lol!
07-19-2012, 01:47 PM   #65
Tea
 
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This recipe was in Naturally Savvy today and it sounds easy (no cooking involved) and delish.

Blueberry Lavender Mousse
Ingredients3 Cups Fresh Blueberries
1 Sprig of Fresh Lavender
3 Tablespoons Agave Nectar (or Honey)
Methods / StepsBlend the blueberries, lavender and sweetener into a liquid, then pour into a serving bowl and chill in the fridge for half an hour. The pectin in the berries will firm up the liquid into a thick gel that is a cross between the texture of a jell-o and a mousse. Enjoy!

I haven't had much success in finding a cook book for crohn's patients. Seems some of you on the board could write one from what I've seen posted.
07-19-2012, 01:52 PM   #66
Tesscorm
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I've wondered the same thing (about seeds too) and think you're right about the knee-jerk reaction. As he still has some inflammation, his last MRE showed some mild narrowing but from the way it was said (forget exactly what it said???), it gave me the impression that it was not worrisome. So... probably some crushed nuts would be okay. We were also told no seeds - he avoids all breads with seeds and I remove them at home (cooking, fruits, etc.) but, I don't worry about the few he gets on pizza (in the sauce), etc. He can forgo almost any food but not his pizza!
07-19-2012, 03:52 PM   #67
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it sounds easy (no cooking involved) and delish.
Bahahaha you know us well! Does sound good. I will have to try it.
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
07-19-2012, 04:05 PM   #68
Farmwife
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Tea that does sound great! It's blueberry season up here I'll have to make it.

Farmwife
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I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
07-20-2012, 09:36 PM   #69
izzi'smom
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Tea looks good!
I started our transition to PALEO today...my kids have tried shittake mushrooms, radish pods, nasturtiums, and beet greens (and liked 2 of the 4...radish pods and nasturtiums a bit spicy), plus eaten broccoli, salad, cukes, peppers, blueberries, bananas and green beans. I think that this may not be as hard a transition as I thought. (Izz used to do a ton of fruit/veg but cut back as a result of her Crohn's). I have a feeling eating socially and sticking to the diet may be the hardest part for them. I let them cheat today (we had a picnic with family) but will cut out more and more as the week goes on.
07-20-2012, 09:38 PM   #70
izzi'smom
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Oh, and Tea...
http://www.google.com/products/catalog?q=cooking+for+crohns+and+colitis&hl=en&cli ent=firefox-a&hs=x75&rls=org.mozilla:en-USfficial&channel=fflb&prmd=imvns&biw=1247&bih=5 23&um=1&ie=UTF-8&tbm=shop&cid=9352334179117720316&sa=X&ei=7xUKUMK jLqOM6QG63tjdCQ&ved=0CFYQ8wIwAA
I have this one and I like it. I think it is geared more toward including foods that are beneficial than excluding foods that may trigger, though.
07-24-2012, 01:49 PM   #71
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I started our transition to PALEO today...
We are on day 5 of PALEO transition. Jack started LDN the first of the month and things were going really well until about a week ago and we had 5 days of the big D and stomach pain.
We didn't want to start Prednisone again and are hoping we can make it through with diet until the LDN kicks in. So far so good he is feeling better and eating but I guess I never realized how much starch we eat. He is doing much better then the rest of us but then he has always preferred his veggies over starch. That certainly does not come from me! I'm always the first one to grab from the bread basket.
I do let him cheat and have ketchup...
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Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
07-24-2012, 02:23 PM   #72
Tesscorm
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Good luck with the diet! And the LDN!!

Glad he's feeling better again!

(Very nice picture! )
07-26-2012, 06:35 AM   #73
izzi'smom
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We are on day 5 of PALEO transition. Jack started LDN the first of the month and things were going really well until about a week ago and we had 5 days of the big D and stomach pain.
We didn't want to start Prednisone again and are hoping we can make it through with diet until the LDN kicks in. So far so good he is feeling better and eating but I guess I never realized how much starch we eat. He is doing much better then the rest of us but then he has always preferred his veggies over starch. That certainly does not come from me! I'm always the first one to grab from the bread basket.
I do let him cheat and have ketchup...
i am glad Jack is feeling better! By transition< I mean we are cheating. While I have added a ton of fresh preoduce and removed most grains/carbs, we have been travelling/staying with family and she preps for a scope today-not terribly conducive to starting a new diet. I bought organic honey bunny ketchup at the local natural foods store, sweetened with honey. i think it is paleo friendly.
07-26-2012, 08:10 AM   #74
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So good to hear that Jack is feeling better Jacqui!

I hope it stays that way and the LDN is indeed a magic pill!

Dusty. xxx
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07-27-2012, 12:30 PM   #75
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May have to look for the hunny bunny ketchup, thanks for letting me know that there is indeed something out there and I don't have to try and make my own
07-30-2012, 12:00 AM   #76
izzi'smom
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I have heard ketchup is not worth making yourself...so the organic is pricey, but I am guessing it is worth it!
07-30-2012, 05:45 PM   #77
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Just made some fantastic wraps that are SCD and Paleo legal. Here is the recipe.

3 Tbsp almond flour
1/4 tsp baking soda
1 egg
1 Tbsp coconut oil, melted
1 Tbsp water

Stir ingredients together and pour into a greased pyrex (glass) pie plate (8 - 9 inches). Microwave on high for about 2 minutes. Cool for 1 minute and then lift out of the pan with a spatula.

I turned one of these into a SCD quesadilla by adding cheddar cheese to one side and putting it back into the microwave for about 20 seconds then folding it over.
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Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
08-02-2012, 02:39 PM   #78
Tesscorm
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Twiggy - going to make your wraps this weekend!


And, the chocolate coconut oil candies - tried a variation and, according to Stephen, they are even better now...

I, personally, don't even like the smell of Nutella BUT for you Nutella fans...

Recipe changes were: used only 1 heaping tbsp of cocoa and only 1 tbsp of peanut butter but added 2 tbsp of Nutella. Also cut back on the salt - used only 1/4 tsp of 'table' salt.
08-02-2012, 02:52 PM   #79
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You guys have been so busy making so many yummy things!!
I have given up on the more natural diets while Freddy is low residue, but no way can he stay low residue forever and once he is back to normal food (hopefully soon!) we will be giving it another go - so I will be able to share my cooking disasters with you!!!!
08-04-2012, 10:43 AM   #80
Tesscorm
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Looking to pick the brains of my far off friends and their strange and unusual foods

I'm looking for ideas for new veggies... I always stick to the tried and true (broccoli, carrots, green bean, etc.) but my daughter would like me to try new veggies. I often see different veggies (not 'common' to Ontario, like fiddleheads?!?) at the grocery store but have no idea what they are, what to do with them, if they're worth the effort, etc.

Any favourites of yours that you can suggest? I might even get lucky and find one that Stephen likes (assuming he even allows a bit within arms length of his mouth!!)!
08-04-2012, 07:33 PM   #81
izzi'smom
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We have recently tried beet greens with success (both kids love them)http://http://www.simplyrecipes.com/...s/beet_greens/
I replaced the bacon w/ andouille sausage.
I made kale chips (remove stems, wash/dry, toss in evoo/salt and bake @250/20 min) with mixed reviews (but kale is so good for you i am happy if they only eat a few bites)
We also love asparagus here. Otherrwise we eat a lot of standby veggies also!
08-04-2012, 07:42 PM   #82
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WOW, I'm impressed. We're horrible on veggies around here.
My farmer man loves meat and potatoes with either corn or green beens.
THAT'S IT! I do make casseroles now. So at least were branching out.
08-04-2012, 08:05 PM   #83
crohnsinct
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HA! I finally have something on Farmwife in the kitchen! Lots of veggies here! But none that adventurous. Have you tried Broccoli Rabe? Yummy with sausage (Italian sausage that is). I agree with Angie...Kale is the new miracle veggie so any recipe you can find using that. We also have made the chips and my kids love them. Cabbage in the slaw form is fun to experiment with and corned beef and cabbage made in the crock pot is to die for. I have a recipe for Chinese Cole Slaw that ALL kids LOVE...has a lot of sugar and some sesame seeds and almonds (our nutritionist is O.K. with sesame seeds and small nut pieces...she says just chew a lot) in it though so that kinds stinks as I know you aren't doing nuts and seeds. I have started cutting the sugar way down.

In the summer we are always throwing zucchini, eggplant, peppers etc on the bbq rubbed with olive oil and garlic. Oh and speaking of Zucchini...I have a recipe for a zucchini pie (but you have to be o,k, with cheese and eggs) that all kids usually love as well but not home so you will have to wait for it.
08-04-2012, 08:21 PM   #84
Farmwife
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I'm SHOCKED crohnsinct!!!!
You almost sound like a cook!
I almost want to make the stuff you said.
But wasting money is something we can not do.
Once my hubby and son saw the food, they would get up from my table and go feed the cows and still want me to feed them.
08-05-2012, 09:58 PM   #85
Tesscorm
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Hmmm... not seeing the same enthusiasm as with the beavertails and s'mores conversation!!

Am going to try the kale chips Is broccoli rabe the same as rapini?

Actually, had a great new broccoli recipe today at a friends' cottage... heading off to bed now but will post tomorrow
08-07-2012, 08:21 AM   #86
Tesscorm
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So..., broccoli salad I had...

Raw broccoli (although, I think it would be better if broccoli were slightly cooked and cooled), cole slaw dressing, roasted almond slices and raisins! It was a great salad! The friend we were with was once a chef and made his own dressing but said the bottled dressing would be fine as well. So simple but was really yummy!

Also, re Kale... look up a recipe for a Portuguese soup called Calde Verde (translates to 'green soup' ). I grew up with my mom making this soup and it's delicious!! (And, can be frozen.)
08-19-2012, 10:12 AM   #87
Tesscorm
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Angie (izzi'smom) - tried the kale chips and thought this was a reallllllll long shot for Stephen (Stephen does NOT eat 'green' )... anyway, they were GOOD! Everyone at home liked them, even Stephen! Thanks for the idea!
08-21-2012, 07:35 AM   #88
izzi'smom
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So glad everyone liked them! I couldn't remember how long to bake them yesterday so only did them for 10 min...I actually thought they had less of the "green" aftertaste. I figure they are such a nutritional powerhouse even if I get a few in the kids it's better than nothing (snuck some greens in our quesadillas last night )
03-24-2013, 05:15 PM   #89
momoftwinboys
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I found these recipes on a site for gastroparesis from the University of Virginia while looking for something else. Anyway, these are recipes for nutritional liquid recipes. Thought many would work for adding nutrition and calories for our kids

http://uvahealth.com/services/digest...resis-diet.pdf

FRUIT DRINKS
Unless otherwise specified, mix all ingredients together in a blender.

Bucky Badger Punch
2 cups cranberry juice cocktail
1/2 cup orange juice
1/2 cup grapefruit juice
1 cup 7-UP or club soda
Combine the 3 juices in a pitcher. Add 7-UP or club soda when ready to serve.

High Protein Fruit Drink
8 ounce Enlive or Resource Breeze
½ cup sherbet
6 oz gingerale

Sherbet Punch
1/2 cup sherbet
6 oz gingerale

BREAKFAST SHAKE
6 oz. can frozen concentrated orange juice
¼ cup cold water
1 cup ice cubes
1 carton (8 oz.) plain yogurt
Combine all ingredients except ice cubes in blender, blend until frothy. With mixture still running, drop in ice cubes one at a time.

Slushy Punch
1 cup sugar
2 ripe medium bananas, cut up
3 cups unsweetened pineapple juice
2 tablespoons lime juice
1, 6 oz can frozen orange juice concentrate
1, 1 liter bottle carbonated water or lemon-lime beverage, chilled
Combine carbonated water and sugar until dissolved. In a blender, combine
bananas and juices. Blend until smooth. Add to sugar mixture. Pour in
carbonated water.

FROZEN FRUIT SLUSH
6 oz can frozen fruit juice
4 Tbsp sugar
3 cups crushed ice
Combine all ingredients in blender and
mix until slushy.


SMOOTHIES
**Tip for great smoothies with bananas: Peel very ripe bananas, put in quart size freezer storage bag and freeze until ready to use.

Basic Smoothie
½ cup vanilla yogurt or other creamy smooth yogurt such as lemon, key lime, strawberry, etc.)
1 small ripe banana

Strawberry Yogurt Frappe
1 tablespoon strawberry syrup or other flavoring
½ cup vanilla yogurt
½ cup milk
¼ cup orange juice
Dash vanilla


Strawberry Cheesecake Shake
(not sweet)
6 to 7 strawberries
½ cup cold milk
½ cup cottage cheese
Honey to taste
Combine all ingredients in blender until smooth.

Strawberry-Banana Frappe
(not sweet)
1 cup milk (or substitute)
2 bananas
1 carton (8 oz.) strawberry yogurt
1 Tbsp lemon juice
Combine all ingredients in blender.

Peach Plus
1/2 Peach, canned
¼ cup vanilla yogurt
¼ cup Milk
Dash vanilla
Dash nutmeg

Kefir Smoothie
8 oz Kefir – any flavor
1 ripe banana
Mix in blender until smooth.

Tropical Smoothie
½ cup creamy fruit yogurt
½ banana
2 tablespoons orange juice

Fruity Yogurt Sipper
1 ripe large banana or, 2 medium peaches, peeled and pitted
1 ½ cups whole milk
1 cup vanilla yogurt
1 tablespoon powdered sugar
½ cup ice cubes
Cut fruit into chunks. Combine all ingredients except ice in a blender until
smooth. Add ice, one cube at a time. Blend until smooth.

Key Lime Delight Shake
1/2 cup vanilla yogurt
6 oz key lime yogurt
1 ripe bananas
1/3 cup milk (or substitute)
Put all ingredients into a blender and blend until smooth.

Berry Good Smoothie
6 oz strawberry yogurt
6 oz raspberry yogurt
6 oz blueberry yogurt
½ cup milk
Mix in blender until smooth.

FRUIT BLENDS
Pear
½ cup canned pears
½ cup cottage cheese

Peach
½ cup canned peach
½ cup cottage cheese

Banana-Apple
½ small banana
½ cup cottage cheese
¼ cup apple juice

Combine these next 3 recipes in a blender until smooth. Chill until firm.
Option 1
¼ cup cottage cheese
¼ cup vanilla ice cream
½ cup prepared gelatin
Option 2
¼ cup flavored yogurt
¼ cup vanilla ice cream
½ cup prepared gelatin
Option 3
¼ cup ricotta or cottage cheese
¼ cup vanilla ice cream
½ cup blended fruit
½ cup prepared gelatin

SHAKES

Super Milkshake
½ cup fortified milk
½ cup high fat ice cream
1 packet instant breakfast

The Super Shake
1 can Ensure Plus / Boost Plus or equivalent
1 cup milk
½ cup ice cream
Put all ingredients into a blender and blend until smooth.

High Protein/High Energy Shake
½ cup milk (or substitute)
1 package instant breakfast
¼ cup egg substitute
½ cup ice cream
Put all ingredients into a blender and blend until smooth.

Chocolate Peanut Butter Shake
1 can chocolate Ensure or Boost or store brand equivalent
2 tablespoons smooth peanut
½ cup vanilla ice cream

Juice Shake
¾ cup pineapple juice (or other juices)
¼ cup egg substitute (optional)
1-½ cups vanilla ice cream
Put all ingredients into a blender and blend.

Sherbet Drink
½ cup milk or fortified milk (see
below for recipe)
1/2 cup sherbet or sorbet
Can substitute ½ cup for ½ cup milk:♦Osmolite, OsmoliteHN♦ Nutren 1.0, plain♦Soy Milk
Optional: Add ½ cup vanilla ice
cream for “Dreamsicle equivalent”

High-Calorie Malt
½ cup whole milk
1 tablespoon malted milk powder
½ cup half and half
1 oz package instant breakfast, any flavor
2 cups ice cream, any flavor
2 tablespoons Ovaltine
Mix all ingredients together in a blender. Process until smooth.

Fruit and Cream
1 cup whole milk
1 cup vanilla ice cream
1 cup canned fruit in heavy syrup
(peaches, apricots, pears)
Almond or vanilla extract to taste
Blend all ingredients and chill well before serving.

High-Protein Shake
1 cup fortified milk
½ cup ice cream
½ teaspoon vanilla extract
2 tablespoons butterscotch, chocolate, or your favorite syrup or sauce
*For variety, add ½ cup banana or 1 tablespoon smooth peanut butter and 2 teaspoon sugar
Put all ingredients in a blender. Blend at low speed for 10 seconds.

Butterscotch Shake
8 oz milk
1 tablespoon butterscotch powdered pudding mix or syrup
1 teaspoon brown sugar
1 vanilla instant breakfast
Blend all ingredients together.

Chocolate Mint Shake
1 cup whole milk
1 cup chocolate ice cream
½ teaspoon peppermint extract
½ packet of chocolate instant breakfast
Blend all ingredients together.

Coffee Buzz
2 tsp of instant coffee, mixed in 1 TBSP water
1 cup milk (or substitute)
1 pack of chocolate or vanilla instant breakfast

Cocoa Supreme
1 envelope chocolate instant breakfast
8 oz milk
1 tsp chocolate syrup
Heat milk and add instant breakfast and syrup. Stir well to blend. Top with
marshmallows.

Orange Breakfast Nog
1 ½ cups buttermilk
2 tablespoons brown sugar
1 teaspoon vanilla extract
2-3 large ice cubes
1/3 cup of frozen orange juice concentrate
Combine all ingredients except ice in a blender until smooth. Add ice, one
cube at a time. Blend until smooth and frothy.

Chocolate Crème de Menthe Shake
1 cup whole milk
1 cup chocolate ice cream
1 teaspoon crème de menthe
½ packet of chocolate instant breakfast
Blend all ingredients together.
NOTE: Contains alcohol.

Nana-Peanut Shake
½ cup milk (or substitute)
1 banana
2½ TB peanut butter
1 cup vanilla ice cream
Place milk in blender container. Add banana, peanut butter and ice cream.
Cover; blend on high for one minute or until thick and smooth.

Creamsicle Breakfast Shake
¾ cup vanilla or plain yogurt
¾ cup orange juice
1 pack vanilla instant breakfast
Blend all ingredients together in
blender.
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Son (age 13) dx Crohn's October 2011 (age 10)
Azathioprine 10/2011-11/2012
Remicade October 2012
krill oil, multivitamin, liquid Vitamin D/Calcium/Magnesium, zinc, pro-thera complete probiotic.

"The decision to have a child is to accept that your heart will forever walk about outside of your body" Katherine Hadley
03-24-2013, 10:35 PM   #90
momoftwinboys
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OK I still have not found what I am searching for ...but found this...an alternative for nuts? Have not tried it, it could be abrasive as nuts?

Spiced Chickpea "Nuts"
When roasted in a hot oven, chickpeas become super-crunchy. They're a great low-fat
substitute for nuts when salty cravings hit.
Perfect to have in your bag for a quick snack or on the road traveling
Yields: 4 servings, 1/4 cup each
Total Time: 50 min
Cook Time: 30 min
1 can(s) (15-ounce) chickpeas, rinsed
1 tablespoon(s) extra-virgin olive oil
2 teaspoon(s) ground cumin
1 teaspoon(s) dried marjoram
1/4 teaspoon(s) ground allspice
1/4 teaspoon(s) salt

Directions

Position rack in upper third of oven; preheat to 450°F.
Blot chickpeas dry and toss in a bowl with oil, cumin, marjoram, allspice, and salt.
Spread on a rimmed baking sheet. Bake, stirring once or twice, until browned and
crunchy, 25 to 30 minutes. Let cool on the baking sheet for 15 minutes.
Nutritional Information (per ¼ cup serving)
Calories 103 ,Total Fat 5g ,Saturated Fat 0gms, Cholesterol 0gms, Sodium 303mg, Total Carbohydrate 14g, Dietary Fiber 5g, Sugars ogms, Protein 4g
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