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08-03-2012, 09:51 PM   #31
723crossroads
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Wow, I had no idea IBD could manifest that way. I've had a chronic cough, bronchitis, sometimes develops into pneumonia, it's been going on around seven years now. I got a really bad lung infection awhile back and figured it never went away because I was on so many immunosuppressants. I also had an asthmatic cough when I was younger, and I've been smoking for ten years... so I thought I was to blame! I guess I'll have to see what happens, finally quitting smoking now, so we shall see what becomes of this nasty cough!
It's great you may get stem cell transplant! I wish I could. How do you go about that? Teresa
08-03-2012, 11:41 PM   #32
Avw
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If you go to the search engine here in the forum and type in Stem Cell Transplant, it will pull up a few threads on it, I recommend effdee's or Mr.Ziggy's. Effdee has his own blog, documenting the whole process. Honestly if it weren't for finding them, i would be completely out of options.
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Diagnosed with CD in 2004 at age 18.

Previous Medications:
Every oral medication,
Remicade,
Humira,
Cimzia, etc..

Currently Taking:
LDN 3 mg
VSL #3
Prednisone 10 mg
Flagyl 1000 mg
Entocort
Protonix
Xanax as needed

Insurance still rejecting appeals for Stem Cell Transplant. Tested positive for JCV Antibody so Tysabri is not an option. Searching for matches in Cord Blood Registry and working with an attorney to fight insurance company. Fingers and toes crossed!
08-04-2012, 10:19 AM   #33
723crossroads
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If you go to the search engine here in the forum and type in Stem Cell Transplant, it will pull up a few threads on it, I recommend effdee's or Mr.Ziggy's. Effdee has his own blog, documenting the whole process. Honestly if it weren't for finding them, i would be completely out of options.
Thankyou Avw!!! Hope all goes well for you in Sept. God bless you always!
08-15-2012, 01:41 AM   #34
Turnerboy
 
Join Date: Aug 2012
So I've just been diagnosed with chrons and have gone through all the annoying procedures, including a fistula surgery. I've had this fistula and probably chrons for quite some while. But everytime I've been to the doctor I've been complaining about this chronic cough that it's taken years before I've gotten to dealing with the chrons. I'm currently awaiting my insurance to approve humira but every night I've been reading talks and responses about chronic cough because it is what keeps me up at night. I've had asthma since I was very young and inhaler works for a couple minutes, but I'm quickly becoming known as the person who coughs all the time. I haven't really talked to anyone about my chrons but I would love some insights or suggestions about the coughing. The constant meds and procedures are annoying but what everyone sees is my horrible cough. I've tried every steroid and every antibiotic as well as my asthma meds but nothing can shake my cough. Its taking a toll on my life and with everything I have going on, any advice or tips would be greatly appreciated.
Thanks
08-15-2012, 02:09 AM   #35
Avw
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Sorry about that awful cough, Tumerboy. I'm assuming you've been to a lung specialist to no avail? The only thing I can think of is that the cough may be an extra intestinal manifestation of your crohn's, and that possibly getting the crohn's under control could help get all those other things under control as well. I know when I am in a flare, all sorts of fun things pop up that I would have NEVER thought came along with crohn's. So best of luck with the Humira. It worked really well for me for about two years, but I develop resistance quickly, it works longer for most.

Best of luck to you, and hope you can get rid of that cough! Mine just sounds like a smoker's cough, and people still look at me like a walking flu epidemic. My friends know I'm not contagious, but still prefer I don't go around their kids, which is sad because I have four year old who never gets to have play dates! She's healthy as a mule, but gets judged because I'm sickly. But, that's life I suppose. Good luck and welcome to the forum!
08-15-2012, 07:20 AM   #36
723crossroads
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So I've just been diagnosed with chrons and have gone through all the annoying procedures, including a fistula surgery. I've had this fistula and probably chrons for quite some while. But everytime I've been to the doctor I've been complaining about this chronic cough that it's taken years before I've gotten to dealing with the chrons. I'm currently awaiting my insurance to approve humira but every night I've been reading talks and responses about chronic cough because it is what keeps me up at night. I've had asthma since I was very young and inhaler works for a couple minutes, but I'm quickly becoming known as the person who coughs all the time. I haven't really talked to anyone about my chrons but I would love some insights or suggestions about the coughing. The constant meds and procedures are annoying but what everyone sees is my horrible cough. I've tried every steroid and every antibiotic as well as my asthma meds but nothing can shake my cough. Its taking a toll on my life and with everything I have going on, any advice or tips would be greatly appreciated.
Thanks
Hi there!
I get a cough when I'm flaring, but it's not real bad. Just a litlle extra phlegm than normal. Sometimes I'll get hoarse too. Did you ever hear of elderberry syrup? It's supposed to really help. They sell it at healthfood stores. The more vit.c sources you can get, the better. Do you take omega 3's and vit. D3? If not, start. They really are no.1 to help start the healing process. May God bless! Teresa
08-15-2012, 07:46 AM   #37
Turnerboy
 
Join Date: Aug 2012
Thank you both for the responses. Besides all the normal symptoms I'm in hopes to get control of, hopefully the medicine will some how help the cough. And thank you for the suggestion, I will go to a whole foods today as I'm willing to try anything. This forum is nice, I'm in my 20's and all my friends know is that I've had to go to the doctor a bunch lately.
Thanks
08-15-2012, 10:37 AM   #38
michaelearnest
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Location: Cuyahoga Falls, Ohio
Crohns patient since 1988 and had a few run ins with bronchitis. Both my GI and Primary Care physician said normal with Crohns.
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10-30-2012, 01:44 PM   #39
lingle12
 
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I have coughed and coughed for years every fall / winter season. I am realizing now (after reading on this site) that many of the issues I have battled are so totally CD related. At least there is some solace in that discovery and I am not just whining.
10-30-2012, 01:50 PM   #40
Turnerboy
 
Join Date: Aug 2012
I have now started CIMZIA and am slowly backing off prendisone, and now my cough is coming back even stronger. But after a little 4 day sty in the hospital I have reached my maximum out of pocket for my insurance so I figure why not go see a pulmonary doctor as well. I have an appointment tomorrow. Hopefully will find out what's causing this year long cough.
10-30-2012, 02:06 PM   #41
723crossroads
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I so agree with u. Everyday now I have a time after dinner when I cough and cough to get up what I call my fur ball and then it goes away. I had a runny nose too for months and then it stopped. So, I wonder if that too will come back in the winter. I bet it will. Never before crohn's tho did I have these symptoms.
11-01-2012, 02:13 PM   #42
newlymarriedtocrohns
 
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I had no idea chronic coughing could be symptomatic of Crohn's. My hubby has had a chronic cough for almost two months now while in a flare-up. He's said that the pain spasms from his gut seem to trigger the coughing fits or vice versa. Maybe he should get that checked out if it could be a different manifestation of Crohn's.

kd82286, I was wondering the same thing if the chronic cough could be also related to drugs. My dad is on methotrexate for rheumatoid arthritis, and he has been instructed to stop taking his meds the instant he develops a common cold, so that the immune system isn't suppressed. Could autoimmune suppressants make a common cold much worse and turn into these chronic coughs?
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Hubby's current treatment: Asacol, Mercaptopurine, Stelara, and Low Fiber/Low Residue diet.
11-01-2012, 02:17 PM   #43
723crossroads
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I had no idea chronic coughing could be symptomatic of Crohn's. My hubby has had a chronic cough for almost two months now while in a flare-up. He's said that the pain spasms from his gut seem to trigger the coughing fits or vice versa. Maybe he should get that checked out if it could be a different manifestation of Crohn's.

kd82286, I was wondering the same thing if the chronic cough could be also related to drugs. My dad is on methotrexate for rheumatoid arthritis, and he has been instructed to stop taking his meds the instant he develops a common cold, so that the immune system isn't suppressed. Could autoimmune suppressants make a common cold much worse and turn into these chronic coughs?
I have not been on a crohn's med since last Jan. and I developed a crohn's cough and a runny nose which I have never had in my life before. The runny nose stopped over summer. But, I cough out a bunch of phlegm everyday after suppertime for some odd reason. My husband is always concerned as to why. I told him it is from the crohn's. Not to worry. Many of us share this symptom!!!
11-02-2012, 01:13 PM   #44
doctor's mom
 
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Crohn's cough could be related to sarcoidosis. This is from http://shortreports.rsmjournals.com/content/3/2/10.full

'The incidence of both sarcoidosis and Crohn's disease co-existing in a patient has been suggested as early as 1947 with very few definite cases reported in the literature. Fries et al.2 produced two cases of both inflammatory bowel disease and sarcoidosis, but were unable to identify a link between the two conditions. These granulomatous disorders are often reported as ‘mimicking’ one another, with up to 10% of patients affected by sarcoidosis to have alimentary tract involvement3 and approximately 40–50% of patients with inflammatory bowel disease"
05-20-2013, 11:22 AM   #45
723crossroads
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HMMMM~Very interesting my dear Watson!
05-22-2013, 03:57 PM   #46
jessica112598
 
Join Date: May 2013
Location: Alabama
Yes, I get the cough from time to time. The more I talk, the more I cough. Sometimes it feels like what I imagine a mild case of asthma to feel like. Bronchial passages somewhat swollen, nagging tickle in throat. I've asked my doctor..all says is 'anythings possible w/ this disease'.
10-20-2013, 04:52 PM   #47
Spooky1
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So pleased I found this thread. I've not stopped coughing since I started Humira. Mind, I often had bad chest infections which could sometimes swing into pneumonia. But Humira sent me all the way. i'm not on it now, but hey, still hacking away. It also happens if I exert myself or if I go into a room, or outside and there is a temperature change.
12-13-2015, 03:59 AM   #48
Nick Boots
 
Join Date: Dec 2015
Been dealing with the same symptoms for a couple of years now. Have had GERD for over a decade already at 35. Just diagnosed with Crohn's about a year ago now. My flare-ups are generalized primarily to my esophagus. I take Nexium for indigestion, and have tried all kinds of other traditional treatment options. The 40mg Nexium works for the burn, but not for the inflammation and other related Crohn's symptoms I experience. I am a medicinal marijuana patient for my Crohn's Disease in NJ, and I can tell you it is a game changer. The last thing you would think of to stop a cough would be smoking something, but after a couple hits symptoms not only subside... they disappear altogether! The first hit may be a little tough, but 2 or three is all it takes. You can also ingest in other forms, but the effects are not immediate. A combination of medical marijuana and a acid pump prohibitory meds has been effective for me to live as close to a normal life as possible. I do sometimes need a benzo for my PTSD which can flare up my Crohn's. I have noticed that it can in turn make my Crohn's cough worse as a consequence. From speaking with my doctors, and researching thoroughly it seems to be a rare side effect of the combo of benzodiazepines with nexium or other acid pump prohibitors. Marijuana has made it possible for me to keep from using NSAID's, and works incredibly well medicinally for both PTSD and all IBD's. More and more research shows how terrible the side effects of current medications available through pharmaceuticals can be. Research needs to be focused more on marinuanna and less on making Pfizer and alike companies pockets fatter. I am hoping this post can help some of you out there find natural medicinal relief, and validate the amazing medical qualities inherent in the marijuana plant. More testing needs to start immediately by the FDA so sufferers of diseases such as ours don't have to due to DEA beurocrocy, and special interests.
12-13-2015, 04:41 PM   #49
2010mustang
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I cough off and on. More in the mornings hut always unproductive. Doc had me go do a breathing rest to check my lungs since ive smoked for years. Dr doing the test said everything looked normal. They said alot of people with crohns seem to cough. I took sone pills for 2 months to try to help but it didnt.
12-15-2015, 02:07 PM   #50
Spooky1
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I've more recently wanted to try medical marijuana but I've no experience in drugs and worry a little about approaching the wrong sort of person and buying something like skunk or whatever. Just wish it was available to try on the nhs. probably would save them a fortune. Good luck with taking it.
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