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07-19-2012, 06:50 PM   #1
dahlfacepoet
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Eye pain and blurred vision

On sunday night I noticed my eye was blurry and kind of goopy. It started to hurt and figured I had pink eye. So I was prepared to call my eye doc in the morning. But I was also prepared to have the crazy gunked eye that comes with pink eye. When I woke up my eye felt fine so I chalked it up to allergies.

Last night I felt more pain but less goop. In fact it feels super dry now and my vision is still blurry. I am pretty familiar with eye pain and being at the eye doctor. I'm spectacularly near sighted and have had a number of infections as well as a case of optic neuritis.

What kind of eye problems are associated with IBD? More specifically, what do these problems present as? Has anyone also experienced pain like this?
07-25-2012, 03:14 PM   #2
Sophia
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Hi,

I have keratokonjunctivitis sicca and my problems are dry, itchy eyes, mucus (not bacterial, but clear to white mucus strands blurring my vision). If I ever rub my eyes when they are itchy they start to run like mad, and they are quite red. Also the insides of my eyelids are very red. Seems like allergy but it is autoimmune. In my case they don't know if it is linked to the Crohn's or not, but my problems started at the same time as I got Crohn's and it seems like I have good and bad periods just like with my Crohn's...

Is your pain in just one eye? That indicates that it is not Crohn's related, I would say. Usually you would get it in both eyes. I'm nearsighted too, by the way.
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07-29-2012, 04:13 PM   #3
dahlfacepoet
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Thanks for the information. At first it was just one eye, but now it is both. It goes away during the day for the most part, but during the evening it gets worse. It feels like I have a bump or something there that is causing the dryness and the pain. I have an appointment tomorrow with GP, maybe he can give me some advice.

I don't see any bumbs, can't feel anything when I rub my upper eyelids. I once had a bump develop because of my contacts. The shape of my cornea changes so often that I can't wear contacts without getting an infection, because they don't fit my eye. At least that's what my eye doc said at the time.

I've had a lot of eye problems. I'm so nearsighted that every time I order glasses, they make fun of me. I always thought it was really insensitive. My eye rx is -9/-9.5, and I'm only 23! I always get my glasses with the extra thin lenses and they still look like coke bottle glasses. I cannot see clearly more than 4 inches from my face.
My optic neuritis left me color blind in one eye too.

It kind of sounds like what happens with you. I try not to rub my eyes, but they bug especially when I'm trying to sleep.
07-29-2012, 04:24 PM   #4
Sophia
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Ach, same here... Evenings are worse for some reason. Must be so frustrating to be that nearsighted and not be able to wear contacts! I'm 'only'-6,5, and I also get the thinnest lenses. So conscious about the lenses being thick, and I don't like wearing glasses. But I suppose it's better than going blind. We want to be nice to our eyes. Hope you feel better soon, maybe som eye drops will help?
07-29-2012, 04:41 PM   #5
dahlfacepoet
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I've had glasses since I was 6 years old. I wore contacts for about 7 years when I was old enough, but it just wasn't worth it when I hat two eye infections in less than 3 months. I've gotten used to glasses now and they make me look older, which is a plus for me, since I get carded at movie theaters!

I tried some eye drops once, and it really didn't help. I notice that if I flush my eyes before I go to bed, it's a bit less irritating. Thanks again Sophia!

May I ask something? When you aren't wearing lenses, especially at night, how does light appear to you? For some reason, since I was little light appears as giant bursts of light, the brighter the light, the bigger the burst. It's actually really pretty, but then if I focus on a light the light burst starts to move, I've always thought it look like cells under a microscope. I thought it was normal, but I haven't met anyone that has the same experience.
07-30-2012, 03:43 AM   #6
Sophia
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Yes, I have that. Think it's normal, actually. The eye is trying to find the focus (I think of it almost as a zoom on a camera lens) and because we are nearsighted, it can't find the proper focus and hence the blurry and moving focus. I've also had glasses since I was six. Lol. Contacts since I was twelve and then atm I'm mostly wearing glasses. I don't like looking older, though.
07-30-2012, 03:54 PM   #7
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I'm both far sighted and near sighted. I can't read a thing without my glasses. Light hursts my eyes. I have polorized glasses becasue of the light issues. I have a progressive lense pair for general wearing. I have reading glasses for reading and computer work or any other close up work. Origanlly my eye doc had me get the second pair of glasses because I home school. Gotta read lots of small print to grade those papers. I'm so glad my doc suggested it. If I use my regular glasses and use the reading part of them for longer than reading the lable on a can or something, I get nasy headaches and eye pain to the point that I get sick. My right eye is so much worse off than my left eye.

I have very, very, very, dry eyes. Just had plugs put in to see if that helps along with using Restatis, Dry Eye gel @ night and moisturizing saline drops throughtout the day. My eye doc at Johns Hopkins Wilmar Eye Institute said that my yes are so dry that is dangerous. Dry eyes can damage the cornea as well as the optic nerve. I count my self lucky. Kock on wood.
07-31-2012, 09:20 AM   #8
723crossroads
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Do any of you get the stabbing pain from the inside of the eye? That and my left eye actually broke a blood vessel from it. It finally cleared up. But, my eyes feel dry sometimes and other times water for nothing!
09-06-2012, 02:48 PM   #9
maxxjd
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I started having eye symptoms about 8 months ago, usually in the lower eyelid. The lower eyelid swells and becomes irritated, and at night it becomes so dry that it hurts to try to open my eyes in the morning (and I get lots of hard dry particles in the morning). Lower eyelid swells so much that it blocks a large part of my vision. I have been cycling through various stages and levels of this for about 8 months. It is somewhat like styes I used to get once every few years, but different in some ways (particularly in that it never seems to go away). Went to a doc in the box at first, then my GP, then an eye doctor, then brought it up to my gastrodoc at an appointment. Had antibiotic shots, pills, eye drops and creams, together with hot compresses and baby shampoo, without much success. My gastrodoc then told me it could be related to my Crohn's and recommended another eye doctor. The last eye doc gave me a prescription that was a special combination antibiotic and anti-inflammation (I cannot recall offhand) and it almost cleared up for the first time in 8 months but the prescription has bad side effects for the stomach so it is hard to keep taking regularly. Not sure if any of this sounds familiar to you, but in any event I would bring it up to yoru gastro and if you see an eye doctor make sure you bring up your Crohn's or IBD as there is some literature out there that ties eye trouble to these diseases. Hope you find some relief, I know it can be difficult to deal with constant eye problems.
09-06-2012, 02:51 PM   #10
723crossroads
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I started having eye symptoms about 8 months ago, usually in the lower eyelid. The lower eyelid swells and becomes irritated, and at night it becomes so dry that it hurts to try to open my eyes in the morning (and I get lots of hard dry particles in the morning). Lower eyelid swells so much that it blocks a large part of my vision. I have been cycling through various stages and levels of this for about 8 months. It is somewhat like styes I used to get once every few years, but different in some ways (particularly in that it never seems to go away). Went to a doc in the box at first, then my GP, then an eye doctor, then brought it up to my gastrodoc at an appointment. Had antibiotic shots, pills, eye drops and creams, together with hot compresses and baby shampoo, without much success. My gastrodoc then told me it could be related to my Crohn's and recommended another eye doctor. The last eye doc gave me a prescription that was a special combination antibiotic and anti-inflammation (I cannot recall offhand) and it almost cleared up for the first time in 8 months but the prescription has bad side effects for the stomach so it is hard to keep taking regularly. Not sure if any of this sounds familiar to you, but in any event I would bring it up to yoru gastro and if you see an eye doctor make sure you bring up your Crohn's or IBD as there is some literature out there that ties eye trouble to these diseases. Hope you find some relief, I know it can be difficult to deal with constant eye problems.
Thankyou for the info. I know it was from crohn's, just like the cough I never had before. My eyes have been better lately, but if it starts up again I will go to the eye Dr.'s like you said. It was awful! But yours sounded much worse!!!
09-06-2012, 03:24 PM   #11
Naturelover
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yep! get the stabbing eye pain. Hurts like the dickens. Teresa and Max, has anyone checked out your oil duct glands to your eyes? Mine produce oil that is the consistency of toothpaste. I was told to take fish oil. Fish oil gel tabs too big for me to swallow with all the throat inflammation and crud. It was suggested to me to take Krill oil as they are smaller gel tabs. Doc said OK. Another ophthalmologist recommended ...


Will finish this later. Gotta run hubby to the docs.

Back for a short visit while hubby drives....

My daughters ophthalmologist recommended HydroEye SoftGels www.sciencebasedhealth.com as this is what works for her.

Just taking a stab in the dark. Snort, snicker, snicker...

Last edited by Naturelover; 09-06-2012 at 03:53 PM. Reason: Finish post
09-06-2012, 07:50 PM   #12
723crossroads
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Glori,
I've been taking fishoil for ten yrs. So, not sure if that is my problem.
09-06-2012, 10:51 PM   #13
Naturelover
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Teresa, Are you staying real hydrated? I'd rather it be something simple and not something complicated or anything.
09-06-2012, 11:57 PM   #14
723crossroads
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Yes, I drink water all day long and I drink one glass of juice a day and one glass of almond milk. Plenty of fluids. Too much probably. I am up all night running to the b.room!
09-07-2012, 01:22 AM   #15
annawato
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Crohn's can affect the eyes in lots of ways. Uveitis is inflammation of the middle layer of the eye and causes pain, blurry vision, redness and light sensitivity. Episcleritis affects the white part and mainly causes redness but also pain/tenderness. Keratoconjunctivitis sicca causes burning and itching and is caused by a lack of vitamin A. The Retina and Optic nerve can also be inflamed by crohn's disease. Any of these need to be diagnosed by an eye doctor so you're on the right track in getting it checked up.
I've had the odd eye problem, not sure if crohn's related or not - the main problem now is majorly deteriorating (sp?) sight which is probably due to my age (50) but I'm also wondering if infliximab is affecting it. After my last but one infusion I had very blurry eyesight (and headache) for several hours. I'm a bit worried that the infliximab is actually affecting the optic nerve. Has anyone else noticed blurring after an infliximab infusion?
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10-07-2012, 01:02 PM   #16
Trish22
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I had to go to local eye hospital last night,had a film blurring over my left eye,with a type of headache over my eyebrow area,got so bad has it was getting dark outside and having t put on lights in the home,hubby took me to A &E eye hospital,well could not be believe what he said,yes I have had Uvietis on a few occasions relating to my Crohns in small bowel and expected home to say again that what it was,but he said I had Herpes Simplex in my eye and also starting in my right eye,has he said all sensitivity had gone from right eye,although that one seemed ok,he reckons that it is because I am on Immunosuppressants azathioprine.i asked him if I could lose my sight through it,Is answer was as long as I continue to take antiviral a for the rest of my life,it should be ok.I was mortified!!!!!
So now to get the pain under control,and to prevent permanent scarring on my cornea,I am taking Zovirax tablets by mouth 5 times a day (antiviral )Zovirax eye ointment 5 times a day,Mydralate eye drops 3 times a day,(antibiotics)Maxidex steroid eye drops 3 times a day,and painkillers to keep the pain under control.I am so worried and scared,I need to drive because it is part of my job.
Can anyone help me here please,has anyone had this with Crohns or whilst on Immunosuppressants.i could do with some good news.

Thanks you
10-07-2012, 01:47 PM   #17
723crossroads
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I had to go to local eye hospital last night,had a film blurring over my left eye,with a type of headache over my eyebrow area,got so bad has it was getting dark outside and having t put on lights in the home,hubby took me to A &E eye hospital,well could not be believe what he said,yes I have had Uvietis on a few occasions relating to my Crohns in small bowel and expected home to say again that what it was,but he said I had Herpes Simplex in my eye and also starting in my right eye,has he said all sensitivity had gone from right eye,although that one seemed ok,he reckons that it is because I am on Immunosuppressants azathioprine.i asked him if I could lose my sight through it,Is answer was as long as I continue to take antiviral a for the rest of my life,it should be ok.I was mortified!!!!!
So now to get the pain under control,and to prevent permanent scarring on my cornea,I am taking Zovirax tablets by mouth 5 times a day (antiviral )Zovirax eye ointment 5 times a day,Mydralate eye drops 3 times a day,(antibiotics)Maxidex steroid eye drops 3 times a day,and painkillers to keep the pain under control.I am so worried and scared,I need to drive because it is part of my job.
Can anyone help me here please,has anyone had this with Crohns or whilst on Immunosuppressants.i could do with some good news.

Thanks you
I have eye pain alot but am not on immunosupressants. Wish I could be of some help. Someone on here will be...
10-07-2012, 03:43 PM   #18
Trish22
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Thanks very much,hope someone can help me out with this,or give me some words of comfort/
10-07-2012, 04:15 PM   #19
annawato
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Sorry Trish I have no idea about any of this but I can understand how worried and upset you must be. Vision is so precious to us. Sounds like your vision will be ok so long as you take the antivirals but what a hassle and what a regime! As if you didn't have enough to put up with with the Crohn's. All I can do is send my love and support. Let me know how you go.
10-08-2012, 01:46 AM   #20
Trish22
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Annawato,thank you so much for your kind words,We never know what is going to pop up from this disease do we,I would not ind so much if these manifestations were trivial,but they are not,so far I have had to have my Gallbladder removed through open surgery,because of the Crohns,I have Seron Negative Polyarthralgia,again Crohns related,I have had to have a Funicplasty operation,due to severe Crohns cause Acid reflux and eroding my gullet,this is without the 3 bowel ops,Uvietus and now this Herpes Simplex in my eyes.I still have to struggle to work,because it is so difficult to get DLA (disability Living Allowance with this illness)Am feeling a little better today ,pain not so bad,but left eye extremely blurred.
Thanks for you good wishes
10-08-2012, 07:44 AM   #21
annawato
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You're more than welcome Trish, sometimes we just need to know someone is listening and caring even if there is nothing they can do to help. The things this disease throws us would not be believed by most of the population. Its not just our bowels its everything else that gets attacked on the way or damaged by the medicines or surgery plus the sheer difficulty with just never feeling 100% but looking to all intents and purposes as if you are well.
10-08-2012, 02:36 PM   #22
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When I had this problem it was diagnosed as iritis inflamation. If check with a othmologist for steroid eye drops to see if it helps.
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10-08-2012, 04:18 PM   #23
Trish22
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When I had this problem it was diagnosed as iritis inflamation. If check with a othmologist for steroid eye drops to see if it helps.
Thanx for your reply,yes I would have agreed with you regarding the Iritus possibility,but the ophthalmologist said it was definately Herpes Simplex,
My eye feels a lot better today after taking all the drugs I am on,started the steroids last night,but having to take loads if antiviral to push the problem back into the nerve,apparantley it attacks the cornea of the eye.
Thanx for replying
10-08-2012, 06:13 PM   #24
723crossroads
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Thanx for your reply,yes I would have agreed with you regarding the Iritus possibility,but the ophthalmologist said it was definately Herpes Simplex,
My eye feels a lot better today after taking all the drugs I am on,started the steroids last night,but having to take loads if antiviral to push the problem back into the nerve,apparantley it attacks the cornea of the eye.
Thanx for replying
Hugs to you Trysha from all of us. I'm still sorry to hear what you are going through. This disease is a monster we have to fight and give it all we have! I am angry at it and miserable today. Been sick all day and want to scream and cry and make it go away! I just keep praying for us. You're not alone Trysha~ I care!
10-08-2012, 09:11 PM   #25
Trysha
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Hello Teresa
I am so sorry for all you are suffering.The eye infection is a monster but it will get better,
does take time though. How miserable for you.
You are in my prayers and thoughts.Wish I could heal you quickly.Feel better soon
Hugs and best wishes
Trysha
10-08-2012, 09:33 PM   #26
Trysha
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I have had many eye problems, uveitis,keratitis, dry eye syndrome, herpes eye infection and map dot fingerprint syndrome (where the basement membrane shifts and you can't see , very blurred vision.
Been through the antibiotics, eye ointment, creams fluids etc.
What seems to work for me is taking flax seed oil, 1000mg/day.Also Muro eye ointment and drops.
The flax oil was suggested by an ophthalmologist but he said 1000mg x 2 daily which I did for a while and things seem to improve, now I just take 1/daily.
I also have had glasses since 8yrs old.
There are some preps such as Ocuvite capsules which seem to help some people.I have not yet tried them.
Problem is these things seem to go with the crohn"s territory.
hope everyone soon heals and starts to feel better.
Trysha
10-08-2012, 10:14 PM   #27
723crossroads
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Hello Teresa
I am so sorry for all you are suffering.The eye infection is a monster but it will get better,
does take time though. How miserable for you.
You are in my prayers and thoughts.Wish I could heal you quickly.Feel better soon
Hugs and best wishes
Trysha
Hi again Trysh, Just been a bad day and trying to pray tomorrow I wake up and am fine. My hubby's show of his Photos at Ligonier days is this Friday thru Sunday and I want to be there with him. Fri. is our 5th wedd. anniver. and Sun. is his Birthday. So you can see why. Praying for a miracle...
10-08-2012, 10:33 PM   #28
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I had a few days of headaches and eye pain in the back of my eye once and woke up one morning after and my vision was very blurry. I went to the bathroom to look at my eyes and saw white stuff collecting inside the bottom of my pupils. Turns out I had uveitis. The white things were white blood cells collecting in my pupils. Had to do prednisolone for two months before it finally went away. Luckily I was able to treat it and it went away since it's nothing you should play around with and let linger.
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10-09-2012, 05:20 AM   #29
Trish22
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Thanks everyone for your very caring thoughts,and I sincerely mean that,I have attended the eye hospital again this morning here in the UK,they gave me another thorough eye check,they said it was healing but they reckon the infection and steroid drops I am having to administer have put the pressure up in my eyes,I have now to take another eye drop that drops the pressure down,hopefully this will only be temporary,I am to stay off work till infection clears up and to return to eye hospital next Tuesday.
I am you all start to feel better really soon,and my healing thoughts are being sent to all of my new founds friends here on this forum.
Thanks
10-09-2012, 06:07 AM   #30
annawato
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Crohn's chicago, congrats on stopping smoking. I've also stopped recently though still using an electronic cigarette but it feels great not to be so dependent on something so bad for us cronies. Good on you!
Trish, sorry to hijack this little bit but just wanted to send chicago crohn's my support for stopping smoking. A very hard thing to do.
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Crohn's Disease Forum » Extra Intestinal Manifestations » Eyes » Eye pain and blurred vision
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