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Crohn's Disease Forum » Your Story » Success Stories » My story and how remicade helped.


09-25-2012, 04:39 PM   #1
Victoriaashleyy
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My story and how remicade helped.

Hey I'm Victoria, I'm 17. Iv'e had Crohn's for 12 years, so since i was 5!

I was a healthy child until I was 5 thats when the symptoms started. I had really bad pain when i had bowel movements and there was bleeding. We went to a local doctor to see what was wrong but he made me worse. I was just starting kindergarten weighing 30 pounds, i was so underweight. He had me taking fiber to go to the bathroom and trust me that was not my problem. That doctor didn't have any experience with young kids and Crohns, he was no help. We went back to my pediatrician and he recommended a gastro specialist at Connecticut Children's Medical Center in Hartford. So here I am at the age of 5 confused on what was going on. When I got to the doctors he knew right away what was wrong with me. I was emitted into the hospital and got a colonoscopy the next day. I was in the hospital for 2 weeks. They made me better until my next flare up a year later. That put me in the hospital for 10 days. Thats when i started steroids. I has such bad moon-face.

That helped me out for a little while. I got flare ups over the next couple of years in and out of the hospital. When i first got remicade wasn't out for very long and my mom didnt want to try it but after years of struggle i got it when i was 10. Every 6 weeks I would go to the hospital and get my treatments. I stopped for around 6 months and I got sick again. I started the remicade back up and my body reacts to it good, now i got 11 weeks between treatments.

These treatments are one of the best things for me. It keeps me going. I dont have to worry about having a flare up because i know the remicade is working. I can do the things I love without being held back. It was a big life changer.

Crazy to think I've had Crohn's for 12 years! i was so young when i got it!
I wanna get a tattoo for my struggle. We need to get people more aware of this disease, because of it I am going to pursue a career in nursing. It made me stronger and I believe God gives us what we can handle and I have been doing a pretty good job at it!

Just thought I tell everyone my story! Thanks for reading
09-25-2012, 04:55 PM   #2
Angrybird
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Hello Victoria and welcome to the forum

I am sorry that you have had to put up with this nasty disease at such a young age It is however really great to hear that you are doing well on the Remi - long may it continue! We do have a sub forum dedicated to this that is worth checking out so you can have a chat with the folks here as well: http://www.crohnsforum.com/forumdisplay.php?f=58.

Wishing you all the best with your plans to go into nursing and hope to see you around the forum.

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
09-25-2012, 07:07 PM   #3
Judith
 
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Welcome to CrohnsForum Victoria!

I am thrilled that you have found an effective treatment with Remicade.

I think you would be such an asset here as we have many people that are questioning whether they should give Remicade and Humira type treatments a try. Although there can be side effects, it is always great to hear from a success story such as yours. If you wouldnt mind posting your story on the Remicade Forum that AngryBird suggested that would be great.

Thank you for sharing and Welcome!
Judy
09-26-2012, 04:22 PM   #4
joeychang
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Great to hear your story Rebecca. Count me as one of those considering Remicade ~ Humira. Based on crowdsourced patient data at curetogether, Low dose naltrexone would appear to be the most effective treatment for crohns but it didn't help my gut inflammation at all.

I was diagnosed with c-dominant IBD in '11 but treatments for gut motility never helped. Despite my insistence this whole time on natural treatments first, I'm at the point where I would definitely consider an anti inflammatory drug if it allows me to live a somewhat normal life.

Wishing you continued success w/your treatments! Pls keep up posted.
10-05-2012, 01:16 PM   #5
sid
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Nice to hear your story ...I hope the drug always work for you and you remain n remission. You may hear about remicade's side effects but do not worry about if it has worked you, as not everything suits everyone in crohn's desease.

..congrats and welcome aboard.
__________________
In remission since Diagnosis

Crohn's since Jan 2011.

No meds.
Diet as per ayurveda.
Vitamin D and B12 shots.
Currently experimenting with Probiotics, starting 2016.
And a large joint mad family, thus stress cant touch me.
10-06-2012, 09:15 PM   #6
connecticut
 
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Stay strong Victoria, I am a fellow CT Crohn's diseased person as well....we are out there!
08-12-2013, 04:58 AM   #7
rollinstone
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hey Victoria, just wondering how you are getting on, I hope you are still in remission!
08-30-2013, 04:01 AM   #8
ericwsmith
 
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Location: Johannesburg, South Africa
I was diagnosed with c-dominant IBD in '11 but treatments for gut motility never helped. Despite my insistence this whole time on natural treatments first, I'm at the point where I would definitely consider an anti inflammatory drug if it allows me to live a somewhat normal life.
joeychang, have you considered EN? Have a look at the stuff that Professor John Hunter has written on the subject. It would in fact appear that it is possible to treat Crohn's through diet alone.
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