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Crohn's Disease Forum » Extra Intestinal Manifestations » Mouth » Jaw pain and stiffness like TMJ from Crohn's Disease

05-23-2011, 01:37 PM   #1
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Join Date: May 2011
Jaw pain and stiffness like TMJ from Crohn's Disease

I was just diagnosed with Crohn's Disease, but I have had stiffness and pain in my jaw for months now. My dentist said he didn't think it was TMJ so now I'm wondering if it's the Crohns that is doing it. Does anyone else have jaw issues?
05-23-2011, 01:45 PM   #2
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Join Date: Feb 2010
Location: canada
My dentist said i have tmj. I get pain in jaw on and off which extends to ear and basically lower side of face with bad toothaches. I've worn a mouth guard a little over a month now and its helped a bit. Does the stiffness feel light a tightness, that's what i felt on the cheek area. Also ringing in ears on and off. I told dentist and that's what he dx me with,tmj.
05-23-2011, 02:15 PM   #3
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Join Date: May 2011
I have Crohn's and have had pain in my jaw also. I believe it's from clenching my teeth in my sleep because of the pain I feel in my gut. During the day I try to consciously relax my jaw by aliening my teeth and just relaxing the jaw. It does help. Stress also will cause a person to clench their teeth while they sleep.
05-23-2011, 02:31 PM   #4
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Yup, I get jaw pain. It can be set off by my pillow if I don't punch it down in just the right way, or by leaning by chin in my hands on the desk. I used to grind my teeth so it could be that, or related to my Crohn's as it only came on whilst I was delaying about going on azathioprine.
05-23-2011, 02:45 PM   #5
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Join Date: May 2011
I get this too. My mother has tmj but i don't grind my teeth or anything. My face will just hurt around where my jaw bones connect and up into my temples.
05-23-2011, 07:50 PM   #6
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Join Date: Mar 2011
Location: Washington
I was diagnosed with crohns a while ago, I just went to the denist couple of months ago and got a mouth guard because I grind and bite down hard at night. Since I have got the mouth guard my jaw has stopped hurting, it is worth it to get one. You can ask your denist or buy one from the store. Denist is more expsensive but it fits a lot better. My denist also told me I was more likely to get cavities to because crohns can dry your mouth out. I actually had a lot of cativies so make sure you take care of your teeth!
Diagonsed at 19 had surgery in
Aug 2009 bowel resection and fistula fixed,
now it's IBS for me
currently on: Humira every 2 weeks,
Pentasa 2x day 500mg, Iron, B-12 shot,
hyoscyamine as needed
New med: belladonna-phenobarbital

have been on: Prednisone (which I will never take again), asacol (waste of time for me),
Entocort, sulfasalazine (made me have weird side affects),Remicade (Horriable reaction after 3rd dose)
10-14-2012, 09:56 PM   #7
Join Date: Mar 2011
I had TMJ for years and last year it got so bad that chewing became a big problem
I couldnt even get the mouth open for the dentist to clean the teeth
they told me to go see the oral surgeon .
I told him its gotten so bad i cant even eat a sandwich .
He told me then dont eat sandwiches , gave me some pain meds Xrays that showed nothing and billed me.
Anyhow around that time i started using allegra and relieved my tmj and a whole lot of other Crohn's related ailments that i had since i was about 13. YMMV
01-21-2013, 10:44 AM   #8
Join Date: Jan 2013
Location: Stillwater, Oklahoma
TMJ is common amongst all auto-immune disorders and it is very serous....there is a Jaw pain / TMJ thread here:

Please also consider LDA Immunotherapy. LDA Immunotherapy will loosen the muscles in your neck/face/head/haw and shoulders.
My super doc here in Oklahoma likes to use LDA and LDN together. I have had amazing results. There is an LDA Immunotherapy thread on this forum...found here:
01-21-2013, 12:18 PM   #9
tabes's Avatar
Join Date: Jan 2013
Location: Stratford, Ontario

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Wow. I have Crohn's and TMJ. I didn't think they would be related, but maybe they are?
01-21-2013, 01:12 PM   #10
Join Date: Jan 2013
Location: Stillwater, Oklahoma
yep... they most certainly are....some, maybe many, also develop cervical dystonia....LDA Immunotherapy will stop the reactions that cause the muscles to constantly contract.
02-01-2013, 02:12 AM   #11
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This is curious, because I've been getting what I was told were "Ice pick" headaches it's a horrible horrible sharp severe pain next to my ear but in my face (not in my ear) and whenever I looked up the symptoms they were all related to tmj huh. It always makes me curious what other puzzle pieces are doctors putting in the wrong places :/
02-01-2013, 10:25 AM   #12
Join Date: Jan 2013
Location: Stillwater, Oklahoma
My experience has been that certain types of dentists like Dr Klemons @ and also medical doctors that don't accept insurance are usually the most intellectually curious and thus are the most apt to have searched for solutions that work and do so in dramatically positive ways.
03-18-2013, 10:28 PM   #13
Join Date: Mar 2013
Wow. I have Crohn's and TMJ. I didn't think they would be related, but maybe they are?
The more I read on these forums the more answers I find to the problems I'm having. And I had no idea they are most likely linked to Crohn's. I was diagnosed with Crohn's 4 years ago.

All in the space of 2 months I have had bad jaw pain/clicking, severe neck/back pain,cracking, tingling in my hands, chest pain.

Crohn's Disease Forum » Extra Intestinal Manifestations » Mouth » Jaw pain and stiffness like TMJ from Crohn's Disease
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