Share Facebook


 
01-13-2013, 10:44 AM   #301
Charleigh
Forum Monitor
 
Charleigh's Avatar
 
Join Date: Nov 2012
Location: Southern USA

My Support Groups:
We survived our first birthday party.
__________________
Mom to 4 incredible kids ~ 17, 15, 13, & 7
Including Incredible "E" ~ 15 year old Crohn's kid
Diagnosed at 11.
Enteral Nutrition
01-13-2013, 03:07 PM   #302
mvond5
Banned
 
Join Date: Jan 2013
Location: Snellville, Georgia

My Support Groups:
I would've thought pasta and rice were OK but my stomach seems to find them a bit heavy, but that could be because of the narrowing I've been diagnosed with. My main concern is not being able to get a lot of stuff here. Our biggest 'supermarket' is a Co-op which would be classed as a corner shop on the mainland!

Try a farmer's market, publix, or wholefoods. You could even ask your store to order it for you. Below is from a search engine.
http://www.scdiet.org/8resources/drycurd_sources.html

If you can not find the "Dry Curd Cheese" /Farmer's Cheese.... You can make the 24 hour yogurt and drip it with cheese cloth for 8 hours.
01-13-2013, 03:45 PM   #303
mvond5
Banned
 
Join Date: Jan 2013
Location: Snellville, Georgia

My Support Groups:
The key to the diet is to always have legal foods ready. My son will eat lots of bananna. I work hard to always have a batch of Almond bread and trying to be better about keeping a batch of almond crackers in the frig ready to bake. I make large batches that I founds in the "Breaking The Visious Cycle" book.





Yes, itís hard to be hungry. I canít stand feeling hungry, especially between the breakfast and the lunch if I do not eat I canít concentrate and itís even like getting dark in my eyes. I have my breakfast at 6:45am during working days (2 scrambled eggs, cup of SCD yogurt with ďjamĒ, 2 slices of nut bread (they are not large, probably ľ of the regular bread slice) with butter and cucumber and tea with honey. I have 2 satsumas at 10am, lunch at 12:30pm (roasted veal or chicken, fried fish) with the fresh salad and tomatoes (I am fine with lettuce but have D. from spinach, other types of salad). I have dried dates or nuts at about 15:00pm and then at home at about 19:00pm I have 2 pears and again 2 slices of nut bread with cucumber, tea and honey. Believe me I am not skinny ( 65 kg at the height 164cm) as honey, nuts and dates are high in calories. My menu looks repetitive but I donít care as I am happy that I finally can control my being. I am happy that my blood tests are normal and do not show any inflammation. I do consider the food as a fuel but not a pleasure now
01-13-2013, 03:51 PM   #304
believeinbeingwell
 
Join Date: Jun 2010
you'd have to ask one of the people who work there. In the store here, it's packed in a plastic litre bottle, no label. Don't give up. You must be able to find it pre-made somewhere.
01-14-2013, 05:38 PM   #305
Mica
 
Join Date: Sep 2012
Location: Edmonton, Alberta
Hi Mica,
I read somewhere that sugars are necessary for your body so if have eliminated all sugars, including monosaccharides, itís not very good also. By the way mushrooms are not good for your bowels even they are legal on SCD diet. I suggest you try to make yogurt and you will see the difference. Have you read the book? I do not remember anything about not starting yogurt while you have D. Please be aware that yogurt maker makes temperature too high over night ( it has to be 38-42C) so please purchase dimmer switch ( sorry I am not English and do not remember the correct name of it, it a plug between the electricity plug and your device and you can control the temperature in this case or the light of the lamp in other case). I had this problem earlier but was kindly suggested by the members of the forum.
Hey Tantija,

I'm just eliminating them until my colonoscopy which is a month away. I'm trying to starve out the yeast in my gut. Hopefully that's what it is. I have had more normal bowel movements now since doing this. My husband's aunt who has been on the Scd advised me not to have any diary including the yogurt until I'm symptoms free. Whether that as correct or not I'm unsure. All I know now is that my Naturopathetic Dr wants me not to have the yogurt along with other diary products. I'll definitely be eating the yogurt again after my colonoscopy. Thank you for the dimmer digestion.
01-14-2013, 05:39 PM   #306
Mica
 
Join Date: Sep 2012
Location: Edmonton, Alberta
How long has it taken to be symptoms free on the diet?

I'm 4 months on the diet and have seen an improvement however I'm definitely not symptoms free.
01-15-2013, 06:31 AM   #307
Charleigh
Forum Monitor
 
Charleigh's Avatar
 
Join Date: Nov 2012
Location: Southern USA

My Support Groups:
How long has it taken to be symptoms free on the diet?

I'm 4 months on the diet and have seen an improvement however I'm definitely not symptoms free.
I wonder if you have other food issues in addition to SCD? My son is SCD but without any raw veggies, beef, or anything fried in peanut oil. He just can't handle those (at least not yet). I hope that when he is completely healed we can try them again. Since we used a slow intro diet we were able to find what he could and could not tolerate. There is a good chart on www.pecanbread.com
01-15-2013, 06:35 AM   #308
Charleigh
Forum Monitor
 
Charleigh's Avatar
 
Join Date: Nov 2012
Location: Southern USA

My Support Groups:
I was thinking too...this might vary depending on whether you were in remission when beginning SCD. If you were not in remission then I highly suggest starting with the intro diet and introducing foods. Since we are trying to obtain remission without any medication, we chose to go the slow intro route. KWalker just jumped right into the full diet because he was already in remission. Some people will go on meds to reach remission while following the full SCD and then wean off meds.

One more thought ~ are you using the yogurt? For some people they just can't handle the milk protein and even though the yogurt should be lactose free, it is still not tolerated because of the proteins. We do not use the yogurt.

Just my two and one half cents

Last edited by Charleigh; 01-15-2013 at 06:52 AM.
01-15-2013, 09:11 AM   #309
mvond5
Banned
 
Join Date: Jan 2013
Location: Snellville, Georgia

My Support Groups:
How long has it taken to be symptoms free on the diet?

I'm 4 months on the diet and have seen an improvement however I'm definitely not symptoms free.
Matthew was feeling better after about 4 weeks. But, his stools have not completely turn to normal. (whatever is normal?)
01-15-2013, 01:09 PM   #310
Mica
 
Join Date: Sep 2012
Location: Edmonton, Alberta
I start the intro diet and slowly added food in. It never cleared up at all. It helped on the sense I wasn't running to the bathroom multiple times a day. It would take 2-3 days then have D 1 or 2 times then again back to nothing for 2- days. But it never went away. I got diagnosed with Crohn's and within a week I started the SCD.

Honestly all I was eating was:

Nothing raw
Eggs
Homemade ketchup
Mustard scd legal
Meatballs (ground beef, garlic,onion, salt, pepper & fresh parsley)
Homemade tomato sauce (tomatoe,garlic,celery,carrot,onion,mushroom,basil ,oregano & parsley)
Zucchini with the sauce bakes with salt and pepper
Roasted chicken thighs with salt,pepper and grape seed oil
Broccoli with olive oil, garlic, salt and pepper
Baked salmon (scd mayo,dill,salt,pepper and fresh lemon juice
Carrots steamed with onions and sometimes a little honey.
Boiled water with lemon and honey.

I was eating that for 3 months the went to the naturopath path

Now I'm down to just chicken,pasta sauce with zucchini and eggs. So it's even more simple now then before.

I did do a trial for 2 weeks eliminating the eggs for 2 wks then eating but it didn't seem to do anything. I was actually secretly happy because I would like to bake in the future.

Has anyone had to go on meds kick start.
01-15-2013, 11:55 PM   #311
KatyBuckeye
Senior Member
 
KatyBuckeye's Avatar
 
Join Date: Jul 2012
Location: Michigan
If you are still having problems on SCD, these are some additional things you may want to try eliminating. You could try one at a time or all at once if that doesn't seem to be working:

1. Eggs
2. Nuts/nut products
3. Too much fruit/honey
4. SCD yogurt/cheeses
5. Eliminate nightshade vegetables and spices

Things seemed to get worse before they got better for me on the SCD. I noticed a major improvement in 3 weeks, then got worse again, and then at 6 weeks--> solid stool!!! I really had to tweak the diet to work for me though. I'm doing great on Paleo and low dose naltrexone now, but loose stools will return if I accidently get any of my triggers (nightshades, too many nuts, etc).
__________________
Current Treatment: Probioics, Fermented Cod Liver Oil, Butter Oil, Boswellia, Tumeric, Serropeptase, Low Dose Naltrexone
Diet: Paleo diet (after following a customized version of SCD/GAPS for several months)
*Grain-free, Dairy-free, Legume-free, Added cane sugar-free, Preservative- and Additive-free.

**Check out my blog at http://www.thepaleonurse.com/blog

**Like my facebook page at http://www.facebook.com/PaleoNurse
01-16-2013, 02:57 AM   #312
KWalker
Moderator
 
KWalker's Avatar
Is there a problem with too much honey, or only for some people? Since starting the diet two weeks ago I've already gone through 2kg of honey! By not being allowed to use sugar, I use honey for coffee, baking, and even glazes/sauces for meats. I almost feel like I'm going it through it so fast but there are no other substitutes we can have and some of the recipes call for up to a cup of honey at a time!
__________________
Diagnosed:
Age 2 (1992)

Previous Meds:
Prednisone
Remicade
Humira
Methotrexate (oral)
Methotrexate (injections)
Cipro
Flagyl

Current Treatment:
200mg Simponi, Psyllium
01-16-2013, 08:27 AM   #313
Charleigh
Forum Monitor
 
Charleigh's Avatar
 
Join Date: Nov 2012
Location: Southern USA

My Support Groups:
Honey is predigested so in theory it should be fine and is not limited on SCD. I think some who might have a tendency toward blood sugar complications might need to limit honey though? I think when you are balancing it with such a large amount of protein (ground almonds, etc) it should not be such a problem. That being said, I have heard a few testimonies where they had to get rid of all fruit and honey to feel better.
01-17-2013, 01:22 PM   #314
mvond5
Banned
 
Join Date: Jan 2013
Location: Snellville, Georgia

My Support Groups:
Honey,
I have not ever seen that you would need to eliminate it from your diet. We have been doing the diet since March 2012 and I have read several blogs, etc.
01-17-2013, 01:47 PM   #315
KWalker
Moderator
 
KWalker's Avatar
have you had much success with the diet?
01-17-2013, 01:53 PM   #316
mvond5
Banned
 
Join Date: Jan 2013
Location: Snellville, Georgia

My Support Groups:
My 14 year old son is on the diet. And absolutely!
01-17-2013, 01:55 PM   #317
KWalker
Moderator
 
KWalker's Avatar
awesome, glad to hear! Is he maintaining a healthy weight?
01-19-2013, 06:19 AM   #318
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
∑ Stoma
Have any of you tried coconut flour? Maureen (?) uses it a lot for cakes, etc.
__________________
Crohn's Disease - symptoms since c1955, diagnosed early 1970s. On Prednisolone until...
Total Proctocolectomy in 2000.
Ileostomy that behaves most of the time
Currently on no medications, but under constant gaze of very caring GP, with annual blood and other tests.
01-19-2013, 08:27 AM   #319
KWalker
Moderator
 
KWalker's Avatar
that's next on the list for me, as well as coconut milk for coffee. I found a can of SCD legal "organic coconut milk" that I haven't tried yet but I've tried the hazelnut milk as well as the almond milk so I decided to try the coconut next. If you were to make it yourself, would it be the same process as the nut milk? I imagine it being sweet enough that you wouldn't even need to include honey.
01-19-2013, 08:41 AM   #320
Susan2
Senior Member
 
Susan2's Avatar
 
Join Date: Dec 2011
Location: Geelong, Victoria, Australia

My Support Groups:
∑ Stoma
Most of the recipes say to soak shredded coconut in water (temperature and time seem to vary depending on whether shredded coconut is fresh, frozen, or dried) blend till well broken down and strain through muslin/cheesecloth, wringing to get out all liquid. Then you can dry the remaining solids in a dehydrator or very low oven and then process in food processor to make coconut flour.
01-19-2013, 08:54 AM   #321
KWalker
Moderator
 
KWalker's Avatar
Okay yeah that's the same process I do with the nut milk/flour.
02-16-2013, 05:08 AM   #322
PollyH
Senior Member
 
PollyH's Avatar
 
Join Date: Oct 2012
When following the SCD diet, people substitute nut flours for the usual grain flours. This may put an unusually high amount of nuts in the diet. Nuts are high in the amino acid called arginine, and low in lysine. This amino acid ratio creates an environment that is conducive to the growth of certain viruses. To control these viruses, you want the opposite ratio --- food high in lysine and low in arginine, like milk. Milk has about twice as much lysine as arginine. If you aren't eating a lot more cheeses than nuts, then I think you have the wrong amino acid balance in your diet --- one that could make the gut viral problem worse.

Dr. Tent has his autoimmune patients taking lysine in the morning and calcium at night to help control their viruses. His patients are usually dealing with CMV, Epstein Barr, HHV-6, and Parvovirus. These are exactly the same viruses that show up in the intestines of people with Crohn's or colitis. Therefore, it may be wise to include a supplement of lysine in your diet, especially if you are eating nuts.
02-16-2013, 04:13 PM   #323
Tantija
Senior Member
 
Tantija's Avatar
 
Join Date: Mar 2011
Location: London, United Kingdom
Hey Tantija,

I'm just eliminating them until my colonoscopy which is a month away. I'm trying to starve out the yeast in my gut. Hopefully that's what it is. I have had more normal bowel movements now since doing this. My husband's aunt who has been on the Scd advised me not to have any diary including the yogurt until I'm symptoms free. Whether that as correct or not I'm unsure. All I know now is that my Naturopathetic Dr wants me not to have the yogurt along with other diary products. I'll definitely be eating the yogurt again after my colonoscopy. Thank you for the dimmer digestion.
Hi! How was your colonoscopy?
__________________
Got ill in 1997
Diagnosed in 2006 Crohn's of ileum and small intestines
Operation: September 2006 removed ileum and part of small intestine 35sm in total
SCD Diet since December 2011
B12 one injection in 3 month
Vitamin D, Zinc
Medication free
02-16-2013, 04:16 PM   #324
Tantija
Senior Member
 
Tantija's Avatar
 
Join Date: Mar 2011
Location: London, United Kingdom
How long has it taken to be symptoms free on the diet?

I'm 4 months on the diet and have seen an improvement however I'm definitely not symptoms free.
hi. It depends what you mean by symptoms. From all my symptoms I stll have D. but not all the time. It depends from the food I eat and my period. I was told that it's because of harmones. Also for some reason I cannot eat out. It's just very expensive poo, sorry
02-16-2013, 04:22 PM   #325
Tantija
Senior Member
 
Tantija's Avatar
 
Join Date: Mar 2011
Location: London, United Kingdom
Is there a problem with too much honey, or only for some people? Since starting the diet two weeks ago I've already gone through 2kg of honey! By not being allowed to use sugar, I use honey for coffee, baking, and even glazes/sauces for meats. I almost feel like I'm going it through it so fast but there are no other substitutes we can have and some of the recipes call for up to a cup of honey at a time!
Hi. To be honest I do not know how bad it is but I do use quite a lot of honey. And I do use raw honey. This i just my decision. Honey is a great sourse of minerals and vitamins and I do not want to eat dead honey.
02-16-2013, 05:06 PM   #326
Mica
 
Join Date: Sep 2012
Location: Edmonton, Alberta
Well I don't see her until March 20th but the note that I left the hospital with just said my colon looks fine but I still have significant small bowel Crohn's.

I took a blood test in Jan and got my family doctor compare it to just before I got diagnosed and she said my inflammation increased a lot.

I have a feeling I'm going to have to go on the meds at least to maybe to just bring the inflammation down. I will continue the diet in hopes that I can get off the meds and keep myself in remission with the diet.

I feel very discouraged because I worked so hard on the diet and never cheat not even once. I was so strict and I didn't help. I keep hearing about other success stories for people who have worse Crohn's then I do. I keep wondering why it didn't work for me. On a positive note I did en up losing like 50lbs in 5 months so I wasn't a total loss.

Has anyone else had the same kind of outcome. Or it worked after they started meds?
02-16-2013, 05:08 PM   #327
Ya noy
Senior Member
 
Ya noy's Avatar
Very old thread, that seems to have been hiding because I didn't see it in this section before.

I would think honey would be beneficial, especially for those who have a problem gaining/retaining weight.

However, there are current "theories" which claim you may be able to starve bad gut bacteria by not eating any carbs., at least for periods of time. There are even those who claim to have "cured" their terminal cancer by not eating carbs., because cancer cells need glucose to live and grow, and can not survive on ketones alone.

Whether any of this is true or not, I don't know.

Related articles, including one on a terminal cancer patient with 3 months to live who claimed he was cured with a ketogenic diet.

http://www.cbn.com/cbnnews/healthsci...y-to-Recovery/

http://www.thebarrow.org/Research/Neuro_Oncology/213930

http://www.journals.elsevierhealth.c...189-1/abstract
02-16-2013, 05:13 PM   #328
Ya noy
Senior Member
 
Ya noy's Avatar
I feel very discouraged because I worked so hard on the diet and never cheat not even once. I was so strict and I didn't help. I keep hearing about other success stories for people who have worse Crohn's then I do. I keep wondering why it didn't work for me. On a positive note I did en up losing like 50lbs in 5 months so I wasn't a total loss.
Everyone's body chemistry is different, so I don't believe there is just one diet that will work for absolutely everyone. If the SCD diet as you are currently implementing it hasn't been working for you, you may wish to experiment and modify, until you figure out what works bet for you.

Best of luck!
02-16-2013, 05:14 PM   #329
Mica
 
Join Date: Sep 2012
Location: Edmonton, Alberta
My symptoms just include D and cramping leading up to D. Sometimes the cramping really hurts but other times is manageable.

I've had a lot more normal bowel movement then before. I've even been constipated which probably was cause if lack of water. I still have the occasional D bit nothing compared to before.
02-17-2013, 06:38 AM   #330
Tantija
Senior Member
 
Tantija's Avatar
 
Join Date: Mar 2011
Location: London, United Kingdom
Well I don't see her until March 20th but the note that I left the hospital with just said my colon looks fine but I still have significant small bowel Crohn's.

I took a blood test in Jan and got my family doctor compare it to just before I got diagnosed and she said my inflammation increased a lot.

I have a feeling I'm going to have to go on the meds at least to maybe to just bring the inflammation down. I will continue the diet in hopes that I can get off the meds and keep myself in remission with the diet.

I feel very discouraged because I worked so hard on the diet and never cheat not even once. I was so strict and I didn't help. I keep hearing about other success stories for people who have worse Crohn's then I do. I keep wondering why it didn't work for me. On a positive note I did en up losing like 50lbs in 5 months so I wasn't a total loss.

Has anyone else had the same kind of outcome. Or it worked after they started meds?
Dear Mica
I am so sorry. Yes, it's discouraging. I do not know why it doesn't work for you, my dear. I guess we have different Crohn's reasons. It does work for me, I just received my blood test results: Haemoglobin -13, PLT- 243, C reactive protein <5. And I am not on any meds.
Reply

Thread Tools


All times are GMT -5. The time now is 05:57 PM.
Copyright 2006-2017 Crohnsforum.com