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08-23-2012, 11:57 AM   #31
CorvusCorax
 
Join Date: Aug 2012
Location: North Vancouver, BC Canada
Hi guys, just wondering if anyone has any experience with joint pain? at the moment my knee's and feet are in absolutle agony and especially in a mornin i can barely walk at all. it can ease off a bit during the day but at the moment its terrible and really getting me down, could it possibly be arthiritis or something else?

also any tips on how i can ease it?
Regards
Martin
A non-medicinal remedy I find works great for me is to soak twice a day in EPSOM SALTS - they work wonders for sore muscles and joints and hydration helps also with sore muscles and joints as that is one of the signs of dehydration.
08-23-2012, 10:34 PM   #32
Rachdonn7
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Join Date: Aug 2012
Location: Grayson, Georgia
Two years or so ago, 2 years into being diagnosed with crohns, i had a horrible pinch in my right hip. I as literally crying and couldnt stand or walk. Had mom tske me to the er. They said tey had no idea what it was from.. Maybe some sort of sciatica or back problem. Two years later, and a few more hopeless er visits, my gastroenterologist did a ct scan for a trial i was doing and diagnosed me with sacroilitis.. Veryyyy common with crohns disease. Inflamation cause the joints and bones in your ack and hps to basically squeeze things gether, they get stand ause this horrible pan. It gets so bad, when im having a flare up especially, that i cant even walk. Awful! But my doctor put me on lortbs when need them and suggedted cortizone shots.very nervous about that. But i ache allllll the time. Woke up feeling like a bus hit me.. Shoulders, lower back, knees, hips killing me. Sort of elieviates during the day, as i get busy and active, and now the pinch has come back. I have an awful time sleeping because of it all. And another thing. My feet killlll me, even when i havent been on them much at all during the day.

You're not alone. Arthritis and sacroilitis are very commo with rohn.
08-24-2012, 03:45 AM   #33
Bob Rose
 
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Join Date: Aug 2012
Location: Sebastian, Florida
Absolutely, just a heads up that it's not for everybody.
08-24-2012, 05:07 AM   #34
ellie
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I'm another joint pain "Chronie" - I used to take slow release NSAIDs daily for years before being diagnosed with CD. My GI has said I can try them again, but my colon is fairly quiet at present, so I'm reluctant to revisit them.
Main problem is sacroileitis that wakes me up if I'm silly enough to lie on my side
I take one paracetamol plus a paracetamol/codeine at bedtime, and 10mg amitriptyline to enhance the analgesics, and apply topical Voltaren gel 1-3 time a day to SI region, plus costochondral joints which also grumble now and then.
The SI joints tend to wake me up at 5am, but I apply some more Voltaren gel and often manage to doze off again.
Nor "perfect", and not a cure, but seems to manage the problem reasonably, keeps me functioning, and doesn't generate too many side effects!


HD
02-21-2013, 09:32 AM   #35
Adr321
 
Join Date: Jan 2013
Location: Chicago, Illinois
I too am having extreme joint pain. I was told by my digestive specialist to take turmeric for joint pain and inflammation. I am going to give it a go and I will let you all know how it works for me.

Alicia
03-02-2013, 11:08 AM   #36
JKLT
 
Join Date: Feb 2013
Location: Lafayette, Louisiana
Hey buddy i have the same problem in the morning as soon as i role out of bed every step is aganizing my ankles my achilles tendons and the worst part is turning the door nob to opent the bedroom door and than walking down the stairs usually as the day goes on the pain goes away but returns close to bed time and again in the morning i dont know what the heck is going on
You should probably get tested for ankylosing spondylitis (AS). That is one of the many symptoms of it. But in the meantime, one thing that really helps is to go to Academy or any sports store and purchase some athletic tape and tape your feet (an X across the bottom is the easiest way). Go on You Tube and watch videos of taping for plantar fasciitis. This may also be what you have but I learned it is also a symptom of AS.
(By the way, all of this, is really relevent if you have crohn's. It is related to the crohn's. They say those with crohn's are most suseptable to getting joint issues.)
About the taping: Even though you have pain in the achilles tendons, you would be surprised how taping an X across the bottom of your feet will relieve this. That is what worked for me. I was like you, I could hardly walk in the mornings and had the same cycle of pain you described in your post. I went through this for a few weeks and then I learned this little remedy. I did this taping for about 3 days and it cleared up. I hoped this helps you or someone else whose going through this pain. I know how miserable it can be. Good luck!!
03-05-2013, 07:53 PM   #37
djp69
 
Join Date: Mar 2013
My first post so here goes.

I was diagnosed with either Crohn's or Ulcerative Colitis around 3-5 years ago. I don't think the pathology report could categorically say which one.

My bowel movements since then don't seem too abnormal.

About 9 months ago I started to get pain in both my big toes. I didn't think anything of it & it went away.

Around 4 months ago I started to get tingling in my hands, some cracking in my neck & back, now also getting the big toe pain again & pain in my knees. Also have bad pain in the back of my right hand, playing tennis is making it worse.

I pretty much had to diagnose myself as doctor was useless.

I asked him to do blood tests for RA, the Rheumatoid factor came back as borderline. All else they tested was negative.

I didn't realise there were other medical problems associated with crohn's, the specialist never advised me about other issues.

I now have a Rheumatologist appointment in 5 weeks ( the wait is driving me nuts ).

Is the rheumatologist best equiped to deal with the arthritis & crohn's together OR should I also be going back to Gastroenterology specialist as well.
03-06-2013, 10:47 PM   #38
MrsGuts
 
Join Date: Mar 2013
Location: Ontario
Hello everyone this is my first post. I am 35 yrs old diagnosed with Crohn's back in Aug 2012. To date it has been pretty crazy trying to get the treatment. I started Imuran about 4 months ago. Over the past few months I have been experiencing extreme lower back pain. It would come and go over the past 10 days I have had it 24 hrs per day. I went to the Dr and was put on celebrex but this aggravates Crohn's as well. Does anyone know of a natural remedy?
03-06-2013, 11:08 PM   #39
araceli
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Location: El paso, Texas

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Hi everybody. What you may have is called Enteropathic Arthritis. RA usually comes negative. Just my opinion. go to a rheumatologist. Hope you all feel good.
__________________
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
Supplements
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
03-06-2013, 11:11 PM   #40
araceli
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Hello everyone this is my first post. I am 35 yrs old diagnosed with Crohn's back in Aug 2012. To date it has been pretty crazy trying to get the treatment. I started Imuran about 4 months ago. Over the past few months I have been experiencing extreme lower back pain. It would come and go over the past 10 days I have had it 24 hrs per day. I went to the Dr and was put on celebrex but this aggravates Crohn's as well. Does anyone know of a natural remedy?
Tumeric with black pepper. is very good to reduce inflammation but you have to make sure it does not interact with your meds. Also try the hot and cold packs.
03-06-2013, 11:18 PM   #41
araceli
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Location: El paso, Texas

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My first post so here goes.

I was diagnosed with either Crohn's or Ulcerative Colitis around 3-5 years ago. I don't think the pathology report could categorically say which one.

My bowel movements since then don't seem too abnormal.

About 9 months ago I started to get pain in both my big toes. I didn't think anything of it & it went away.

Around 4 months ago I started to get tingling in my hands, some cracking in my neck & back, now also getting the big toe pain again & pain in my knees. Also have bad pain in the back of my right hand, playing tennis is making it worse.

I pretty much had to diagnose myself as doctor was useless.

I asked him to do blood tests for RA, the Rheumatoid factor came back as borderline. All else they tested was negative.

I didn't realise there were other medical problems associated with crohn's, the specialist never advised me about other issues.

I now have a Rheumatologist appointment in 5 weeks ( the wait is driving me nuts ).

Is the rheumatologist best equiped to deal with the arthritis & crohn's together OR should I also be going back to Gastroenterology specialist as well.
With crohn's you may develop arthritis, enterophatic arthritis, ankylosing spondalitis. Or may be just plain joint pain due to inflammation or due to your meds. Sorry I know its to much on top of everything else.
03-06-2013, 11:54 PM   #42
tmclaren
 
Join Date: Mar 2013
arthralgia's are very common with Crohn's flare ups and usually subside when the flare calms down.
03-06-2013, 11:55 PM   #43
tmclaren
 
Join Date: Mar 2013
Arthralgias are a result of cytokine release such as IL-1, which also acts as Osteoclast Activating Factor. If you get lab results during a flare, look at your Alkaline Phosphatase and see if its slightly elevated. If you have no underlying liver pathology, it explains the lab finding due to high bone turnover due to the IL-1 secretion.
03-08-2013, 05:30 PM   #44
suzette
 
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Location: Eastbourne, United Kingdom

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Hi 💐 I can't do any ibuprofen type meds. I even tried the creams on the joint area but it still upset 'my tubes' ( crohns - ' my tubes ' is what I mainly call it.- feels less real some days not to give it the power of its own name lol ) I've had it over 20 years. Some times in remission 😃yippee !!! some times hitting me with a sledge hammer. 😔 It's only in the last 2 years that I've been able to find a pain killers that work for me. Tramadol & cocodamol. Down side is I won't drive or make important decisions on them. As I feel a bit spaced/relaxed. So some days i struggle through the day (hiding the pain - as crohns suffers tend to do) until I can stop & take pain relief . Guess its my way of not giving in !!! I hope you find one that helps you🌹
04-12-2013, 09:53 AM   #45
James of LinHood
 
Join Date: Apr 2013
Location: Minneapolis, MN
Leading up to my Crohn's diagnosis, I suffered from extreme back pain as well as joint pain in my knees and feet. Climbing stairs and getting in out of my car/chairs/bed was pure torture.

My doctor originally loaded me up on Codine but that had zero impact. Pain relief patches were not much more help.

It was only after I was diagnosed with Crohn's and my doctor put me on Prednisone that my joint pain faded away. Perhaps it was just a coincidence. Either way, that was seven years ago and the joint pain has never returned.

On a side note, I just want to say what a relief it is to finally know that the joint pain was indeed linked to my Crohn's and that I wasn't alone in that. Over the years I've always wondered about it since the doctors I've asked have always had the attitude of "Well, it certainly could be linked" rather than, "Yep, it definitely is linked."

Although, I suppose I shouldn't be too happy about that as I suppose the joint pain could come roaring back anytime. But, here's hoping it doesn't.
04-20-2013, 08:30 AM   #46
Su-bee
 
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Join Date: Apr 2013
Location: Maryland
I rely on pillow placements for sleep. Either almost propped to a point of sitting up, or on my side with a pillow between my knees, a pillow under my waist (that doesn't touch the bed while laying on my side), and one of those special pillows that gives support under my neck. And this is the best I've felt in 2 years! No meds seemed to help entirely (tried humira, amitriptyline, trammadol), only some that took an edge off enough to get 6 hours of sleep a night.

I also thought I was having back problems, but after doing research found arthritis goes with crohn's. I always had joint problems even as a child, and now wonder if it was early signs of inflammation and a precursor to my crohn's diagnosis.
04-30-2013, 08:30 PM   #47
djp69
 
Join Date: Mar 2013
Leading up to my Crohn's diagnosis, I suffered from extreme back pain as well as joint pain in my knees and feet. Climbing stairs and getting in out of my car/chairs/bed was pure torture.

My doctor originally loaded me up on Codine but that had zero impact. Pain relief patches were not much more help.

It was only after I was diagnosed with Crohn's and my doctor put me on Prednisone that my joint pain faded away. Perhaps it was just a coincidence. Either way, that was seven years ago and the joint pain has never returned.

On a side note, I just want to say what a relief it is to finally know that the joint pain was indeed linked to my Crohn's and that I wasn't alone in that. Over the years I've always wondered about it since the doctors I've asked have always had the attitude of "Well, it certainly could be linked" rather than, "Yep, it definitely is linked."

Although, I suppose I shouldn't be too happy about that as I suppose the joint pain could come roaring back anytime. But, here's hoping it doesn't.
I have just finished my 2nd Rheumatologist app, the results of my x-ray & gene test for possible ankylosing spondylitis (AS) were negative. Does this definitely exclude I have AS?

The doctor still thinks I have Psoriatic Arthritis & has prescribed Prednisone.

Hopefully I get same result & joint pain disappears.

My main issues are still big toe pain, knee pain, jaw pain, chest pain, skin issue on scalp.

I think I have TMJ & my jaw/face seems to be tilted slightly. No one else would notice so I'm not too worried about this.
04-30-2013, 09:54 PM   #48
Beatit
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Location: Waunakee, Wisconsin
Yeah you pee most of your calcium out with crohns.
__________________
Got Crohns: 2006 they scoped throat and colon age 18. They said I could get from throat down anytime.
Current Medication: Taking Asacol
05-07-2013, 11:11 AM   #49
Jim Gonsler
 
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Location: Troy, Michigan

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I have joint pain and was told by a physician that it was due to the unusually high amount of uric acid in my blood. This is supposed to be absorbed into the kidneys and out of the body, but not always. Uric acid crystals are like little pieces of glass that rub up against the joints causing inflammation, whether it be in the knees, elbows, wrists, fingers, anywhere. Reduce the Uric acid and you begin to get rid of the joint pain. I'd like to know if my Crohn's has anything to do with this. Most of my ailments I've found are in someway Crohn's related.
__________________
Suffered badly with Crohn's/Ileitis till diagnosis in 1971and received bowel resection surgery to fix resulting obstruction and perforation the spring of that year. Few symptoms displayed since then, but diagnosed with Celiac Disease about 6 years ago.
Take Asacol occasionally for flare-ups (due mostly to antibiotics), supplements like multi-vitamins, Calcium and OPC-3 in Isotonix form.
05-08-2013, 03:25 PM   #50
josephd
 
Join Date: Apr 2013
Location: pennsylvania
I am currently undiagnosed. waiting to see the gastroenterologist on Monday. I have severe joint and muscle pain. my rheumatologist started me on sulfasalazine a few weeks ago without any noticeable improvements as of yet. nor has it taken away a any of the severe right upper quadrant pain that I was told was do to intestinal erosions. however I belong to our local ymca and luckily they have two heated pools a hot tube sauna and steam room. I have found that doing easy stretching and other exercises in the heated pool. and a little bit of time in the hot tube helps with the muscle pains as well.
05-11-2013, 07:44 AM   #51
kimar
 
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Join Date: Apr 2013
Location: Waynesville, North Carolina
I finally have found a group that is suffering from arthritis. Mine migrates. At least twice, it was so bad that I couldn't even move in the bed in the morning, much less get up and out. Fortunately, my GI doc and Rheumatologist are in the same building and keep in touch. They upped my Remicade, which helped until I had a reaction to my last infusion. We'll try another biological that treats both (I also have UC). I think the sulfasalazine I'm on helps as much as anything. It made me extremely fatigued but am building it back up. Tylenol arthritis helps, but at times it doesn't even take the edge off. It's just so hard to feel bad because it is really hard to break free and start to get back to "normal." Du courage!
05-11-2013, 09:04 AM   #52
Jim Gonsler
 
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Location: Troy, Michigan

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Hi,
My brother was on Remicade, he has Crohn's too. He's off it now. While he said it helped, it had to be administered interveniously and over a period of hours and was very expensive. Remicade has it's share of side effects too. I'd ask if there are any healthier alternatives or find a doctor that would consider more holistic treatment alternatives. I take Asacol when I have a flare-up, but my doctor doesn't encourage I use it at any other time. Drugs have side effects I've learned that can be damaging to other organs and cause osteporosis, depleting natural calcium from the bones and joints and actually causing inflammation and pain. Just a thought,
Jim
05-11-2013, 09:29 AM   #53
Traumanurse
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Location: Colorado

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Arnica salve is and baths are about the only thing that helped my knees and it didn't affect the Crohns. I keep it around for the roving joint pain.
05-11-2013, 11:33 PM   #54
Twiggy930
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Has anyone else developed enthesitis? My son had it in his upper thigh last year and now seems to have it in the back of his heel.
__________________
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.
05-14-2013, 01:12 PM   #55
RunningDownIBD
 
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Join Date: Nov 2012
Location: Belgrade, Montana
I have it in my heel, too. It's a bear to deal with, quite painful. I've had lots of significant pain in both my hands and my right hip and knee along with the painful enthesitis in my left heel. I take great care to rotate it in a circle and stretch it real good before I try to get up and stand on it...that seems to help. I wish him the best with his!
__________________
_________________
Jodie
dx Crohns 1995
Remicade since 2002
monthly B12inj
dx RA 2012
MTX inj. 12/2012
Vit D 2000mg/day
folic acid 2mg/day
Mom to Dylan (14)
dx Crohns 2010
Tried prednisone, prevacid, endocort, immuran
EN Nov 2011 - April 2012
Remicade 3/12-4/13, MTx jan-april 2013
Humira - starting May 2013
Folic acid 2mg/day
4000mg Vit D
1000mg calcium
10-07-2013, 01:52 PM   #56
Chally2
 
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Hi, after reading all these posts I'm glad to see I'm not alone. I'm having severe roving joint pain and on a lot of different pain killers. 100mcg Fentanyl patch, 300 mg Pregabalin twice daily and OxyContin when required. I also do a really heavy job and the thought of facing it each day along with the pain is making me really depressed. How are you all coping?
10-07-2013, 04:56 PM   #57
Jim Gonsler
 
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Join Date: Jul 2010
Location: Troy, Michigan

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You might try taking a pine bark extract called Pycnogenol. I saw a video on Fox News about it. Fox Sunday morning house calls by Isadore Rosenfeld. It has really helped me. It's a very powerful antioxidant 20 times more powerful than vitamin c. I'ts available in different forms, but I take it in powder form. It's marketed as Isotonix. What's good is it dissolves in water which means it is absorbed right into the stomach lining and goes right into the blood stream in just a few minutes. Due to a past surgery I'm missing a lot of my small bowel, ileum and intestines so quick absorption is important. I take two cap fulls a day for bad knee pain I was suffering. For the past 3 years I've been pain free. It's good too, because you can skip some days and the effect still lasts. Call me if you want more information, or e-mail me. [email protected]
10-07-2013, 05:34 PM   #58
SoOoO CoNfuSeD
 
Join Date: Nov 2012
Location: Quebec

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Hey, when my crohn's was at it's worst i definitely had arthritic pain in my hands and forearms...it sucked! That was prior to my taking any medications whatsoever... Thankfully it went away when i was put on prednisone. I have since been on imuran and remicade and have rarely felt the same symptoms since. Very rarely during a RARE flare-up, i feel the same pain, but doesn't last long. I agree that it goes hand in hand with crohn's. P.s. One of the first things my doc advised me to avoid was ibuprofen. To add to her advice, i recently read a book on crohn's that also advised against it. Hope you find treatment for both your gut and your joints. Good luck
10-07-2013, 10:20 PM   #59
Careyearl
 
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Location: Kelowna, British Columbia

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I too suffer from joint pain which moves around but mainly in my hip joints. I'm getting acupuncture and it is helping with the joint pain. May be something to try.
10-08-2013, 06:47 AM   #60
Chally2
 
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Is anyone haveing skin problems when their joints flare? Generally a few days before I get a bad flare up the warning is skin starts to peel off my feet really badly, then my hands, this time it's moved up my right leg. I think there is an element of stress related to this was wondering if anyone else had the same symptoms?


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