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Crohn's Disease Forum » Treatment » Pain medication and addiction in Crohn's Disease


 
09-08-2012, 11:30 AM   #301
JohnnyRottenAppleseed
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If you withdrawals are still bad ecu drummer anything opiate based will ease the widrawals an let u come off more slowly .
I see your in america so I have no idea what's over the counter there but I thought tramadol was over there.
The thing with me is I've taken more of my tablets for legitamate pain an so I end up too early for my script as you do but I told my gp this was what was happening an he still wouldnt refer me to the pain clinc ( he's going to now coz I kicked off lol)
He said you have crohns right ? I said yes an then he replied well your always going to be in pain so what do you expect me to do ?
What a twat so I should just put up with the pain until I end up in hospital each time !
Hes going to refer me when my xray results are back good or bad thank god
He says he hates dihydrocodeine an it should be taken off the Market , that's what I'm up against !
So I get penalised because he hates the stuff that somewhat relieves my pain !
I'm due my script this week but he added up the days wrong an put tablets not due till 18 th don't give early !
So I'm gonna look like a druggie if I try an get them on the date there actually due which is a whole week before the date he put down idiot.
I'm hoping the pain specialist will help me by changing my tablets and referring me to whoever I need to c , I just hope they don't think I'm an addict I'm dependant yes but not an addict !!
Can anyone else put up there story of the pain clinc ?
Jen xx

Get a new doctor ASAP. He's a douchebag.
09-09-2012, 02:27 PM   #302
Dixiedoll23
 
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Tramadol helped me with my pain, but I will never take it again. EVER. My body became dependent on it. I recently had to go on antibiotics for about a week for a minor infection and they exacerbated my flare temporarily. I had to take more tramadol to account for the pain. I was originally ordered to take 3 50mg/day as needed but was taking 4-5 depending on how I felt. I ran out of my script early and cannot have them refilled until 9/14. It has been 72 hours exactly since my last dose of tramadol and I plan on not taking it ever again. The withdrawal symptoms are hellish- flu like symptoms, temp changes and a feeling of your skin crawling. They have toned way down since yesterday morning and I think I'm on the other side now (thank god). I hate the feeling of having a dose run your life. I was constantly worried about when I would take my next dose of tramadol. I feel that way to an extent with my dicyclomine, but I'm ok with that since its not an opiate like tramadol. I felt so ashamed going through the withdrawal symptoms, I felt like I was some sort of junkie. In the end, I'd rather deal with the pain of crohns and learn how to properly manage it rather than rely on some pain killer that can do me more harm than good.

If I was told tramadol could be addictive and cause withdrawal symptoms when coming off of it, I would have never taken it.

Tramadol withdrawls can be a double-whammy.You get the classic opiate withdraw symptoms on top of serotonin WD symptoms.A lot of people don't know trams have serotonin in them.

You can take immodium to help ease your WD symptoms, but you have to take more than the recommended dosage.Since you have crohns, and have been on pain meds, it's not going to hurt you to take at least double recommended dosage.Personally I take 8 3x a day if I happen to run out of trams too early.Immodium is actually an opiate that doesn't cross the BBB (Blood brain barrier) so it helps with the gut tremendously.You may want to take something like gasx with it, to relieve any possible gas that can come along with taking immodium.There has been numerous people say that taking a tagament with immodium helps it to cross the BBB. Or prilosec would work too.

Here is an interesting read on immodium.It does help.
http://en.wikipedia.org/wiki/Loperamide
__________________
Dx with Crohns disease in 2010.Have been dealing with symptoms since 1999.
I was the 1 percent chance of the camera pill getting stuck, so off to emergency bowel resection surgery in July of 2010/removed 13 inches.

Currently dealing with another obstruction.Don't know what the plan is yet.Surgery or? I don't know of any other options....
My Meds;
Prednisone 20mg
Vitamin D (50,000 units)
Tramadol 50 mg
Butran patch 15 mcg
Imuran
Gabapentin
09-09-2012, 05:51 PM   #303
JohnnyRottenAppleseed
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I'd get on suboxone if you are really addicted to opiates or use some benzodiazepine to help withdrawal symptoms. Clonodine (BP medication) helps withdrawals too. Use at your own risk or advice of doctor and research the meds thoroughly. I've been through opiate withdrawals and it can be awful but I doubt tramadol withdrawal is as bad as oxy, morphine, or heroin. Good luck!
09-09-2012, 07:39 PM   #304
Mountaingem
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I haven't gotten addicted but I can certainly understand how it happens. I feel so good without the constant pain when I take Dilaudid that I'll find myself reaching for it even after the flare improves. I keep a sticky note on the bottle to remind myself not to use it unless I'm in pain; it sounds stupid but I need the wake-up call.
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Current Meds: Cimzia, Methotrexate, Prevacid, Sertraline, Nortryptaline, Prednisone, Atenelol
09-11-2012, 11:08 PM   #305
KWalker
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Does anyone know how many percocet I can safely take in a day (the absolute most)? I'm having surgery next week and in a lot of pain so the doctor prescribed me 40 tablets which I have to try and make last till Monday which should be okay. On my bottle it says take 1-2 EVERY 4 hours but I tried looking online (which is useless) to find out how many I can safely take in a day and one link said a max. of 6 a day! If I were to take 2 every 4 hours that wouldn't even get me half way through the day before I reach 6.

It actually just reached my 8th hour since starting them and I just took my 3rd percocet which is actually under the 2 every 4 hour rule but if the max is 6 I need to figure something out to get the pain relief without worrying about the liver damage.

Any opinions? Thanks guys!
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Remicade
Humira
Methotrexate (oral)
Methotrexate (injections)
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200mg Simponi, Psyllium
09-11-2012, 11:59 PM   #306
Mountaingem
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Sorry I don't have the info on Percocet-I do know more that six will cause liver damage, but it varies from person to person as to how quickly that happens. I would say you need a stonger painkiller like Dilaudid if you are still in that much pain. Maybe the dr. will give you a scrip since your having surgery anyway.
09-12-2012, 01:35 AM   #307
JohnnyRottenAppleseed
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Percocet has acetaminophen which causes liver failure in high doses especially when combined with alcohol.
09-12-2012, 01:52 AM   #308
KWalker
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I know that, but was wondering the max I can take in a day...and I am way too much pain to be drinking alcohol right now haha. I only ever take 2 percs at a time every 4 hours (prior experience) but I just needed to check because in the mean time before surgery I'll be trying to go to school the rest of the week. If you've ever been to University they use the cheapest/hardest chairs you could possibly ever sit on so if I'm going to sit through consecutive 2 hour lecturs, I need to make sure its going to work.

Also, is there a thing called a "breakthrough"? Apparently its a time when the percs are now in your body enough that you could start taking 1 perc and supplementing the other for an extra strength tylenol (500mg) or extra strength Ibuprofen (500mg)? I have both so which one would be better to use with the percs but also in exchange for the percs so I can make them last.

Thanks for the help!
09-12-2012, 01:57 AM   #309
JohnnyRottenAppleseed
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I'd avoid the acetaminophen and ibuprofen as that is what hurts your liver, not the oxycodone component of the Percocet . Smoke some weed if you have it or get a pure opiate so you can take a higher dose.
10-25-2012, 11:42 AM   #310
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Hello to all of you. I have been on fentnyl, dilaudid, MScontin, oxycodone, and Demerol in the past. For me personally the opiate meds caused more suffering than they alleviated. The doses had to be increased consistently because of tolerance. Before I started using narcotics for pain I had no idea of the addiction possibilities. No one explained it to me. I just could not stand the pain. I have had so many bowel surgeries that I barely digest any food and don't want any more taken out of me. Anyway, I became physically and mentally addicted to opiates and it was what I think of as hell. I did not have any idea that this may happen before starting them.

I judge no one when it comes to this subject. No one would knowingly go into this if they knew the possible outcome. I now have permanent brain damage and depression. I would use these drugs for short term pain only knowing what I now know. I had to go through detox no different than a heroin addict. There is no difference in the withdrawal symptoms. I would not wish it on my worst enemy. I do know that many people have had many different experiences with pain meds and everyone is different.

I now use cannabis oil to combat the symptoms and pain from the disease. For myself it works better than any other medication that I have tried. it is not addictive and his few if any undesirable side effects. I have discussed it with my doctors and surgeons and they agree that I should use it. It has become a quality of life issue for me. Before trying the oil, I was in the bathroom up to 30 * per day, the frequency was reduced 2 between 3 and 5 * per day and the pain is under control. I have no nausea or reflux and can eat almost anything I want 2. My appetite has increased and I have gained some weight. So far, the side affects have been a feeling of peace and positive attitude. I have been on Social Security disability and actually feel good enough to try working part time, but cannot get a job because of the very same medicine that might allow me to work again.

this happened overnight and is a miracle for me. It has allowed me to actually leave my house without the constant anxiety created by the need to find a bathroom. nothing is right for everyone but for me this was the answer.

I have used Remicade, Humira, and Cimzia. All three of the biologicals that I have used caused severe infection that required more surgery. I developed something called MRSA in my bloodstream. That nearly killed me. My doctor has taken me off of the biologicals. I have taken so much prednisone over the past 35 years that my bone density is that of a 90 year old man and my immune system is shot. I have found marijuana to be a safer and more affective medication for me.there have been many studies in Israel regarding the affectiveness of cannabis on inflammatory bowel disease with positive results. The truth about this plant slowly being realized by the scientific community. Before I really looked into it I did not know much about this plant. Much of what I had heard turned out to be untrue. Pharmaceutical companies do not want the effectiveness of this medication to be known. If people could grow their own medicine, pharmaceutical companies would lose money.

If I could be a public advocate for this cause, I would, but without it I am useless to anyone. I would not receive this medication in prison. I flew to Portland and got my Oregon State medical marijuana card as well as Washington state. Currently, I do not live in a state that is legal so technically I am a criminal here. I am classified as a criminal for using a medicine that allows me to have somewhat of a life. it is changing slowly but has a ways to go.

Thank you for reading my post. I hope that others find some relief from this nasty disease any way they can.
10-27-2012, 04:46 AM   #311
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I'm not sure how many people check this thread, but I thought I'd add to it.

Codeine works really well for me. I do become tolerant really quick - i.e. need to take larger amounts to get the good effects - but I've been able to make sure I keep it for "as needed." There was one period where I tried just taking it every day, then found I'd go into physical withdrawal without it, and learned my lesson. The withdrawal was easily bearable though - just felt like having flu and feeling miserable. I wasn't compelled to go seeking out codeine even after I'd told myself I wasn't having it or anything like that.

It just works for me in ways that other pain killers don't. Especially since Ibuprofin and Aspirin upset my stomach - and don't do much good! Paracetamol does nothing when I have pain, and it makes me feel sick. It seems I'm just someone who responds to opiate (opioid?) drugs. I've had morphine (the same type of drug as codeine) - only while in hospital of course - and that makes me feel a little too good.

I can see how one could easily develop a mental addiction to the high of morphine. Codeine's effects on my mood are too subtle for me to call them a high though. The side effects list "euphoria," but for me it's more a kind of calmness, like everything seems a little bit easier to deal with. That effect doesn't happen when taking on a regular basis and tolerant though. So now I keep codeine for when I feel really rough, and then make sure I give it a while before I take it again.
10-29-2012, 02:23 PM   #312
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Thought I'd write in on this subject since I am going through the vicious cycle of pain from CD and withdrawl pain from years of being on dilaudid and fentnyl patches. I had been seeing a pain specialist for years and I have tried every drug under the sun to help ease the pain. Let's face it, opiates are a great way to relieve pain and D. Opiates react very positivly in a GI track that is prone to chronic D, like I have. Unfortunatly, your body becomes addicted to them and requires more and more to get the desired effect after a while. I was never mentally addicted, I think it just became a habit to take them whenever I felt any pain coming on, hence my body required more and more as time went on. Problem: vicodin(codine), percocet and oxy all have acetominophin and are bad for the liver if used for long periods so I avoided those (also they made me feel drugged and I don't like that). Told that drugs like Dilaudid a "clean" drug(no fillers) was more effective and has less side effects on the liver etc. But they are short acting so need to take more often, like every 4-6hrs. Because oxycontin, pentasa and exalgo are extended release they can last longer and not have to take as much, but I just poop them right out. They never get a chance to break down in my short GI tract(I can't taker any extended release meds for this reason). So I was put on a transdermal fentnyl patch for any break through pain. These worked great, for a while until my GI doc couldn't find any "active" CD and thought I may have what they call narcotic gut syndrome. (Thats when opiates begin to cause symptoms instead of relieve them.) After reading up on this I didn't think that was the case but my pain doc jumped on it to get me off of everything. So I did, and used Subutex(Suboxone without naltrexone in it) for withdrawl. After 4 mos of weaning, I was done, but all my symptoms came back; severe cramping and bloat, horrible D, fatigue, lack of appitite. Was given dicyclomine and lomotil...did nothing. Went through the battery of tests and have found no "active" CD, which is good but not helpful to get to the bottom of this. I had to seek the ER for IV fluids and IV dilaudid, and it put me right back to where I started!!! The docs were very kind, they told me it wasn't my fault( i never left the hospital w a script for meds) but was the medical profession and having a very difficult disease to treat fault. I needed to accept that narcotics are a blessing and a curse to the gut. I basically reactivated my pain receptors and they screamed for more drugs and my body did the same. It was very discouraging. So now Im back on a small dose of Subutex, which does help, but what is the difference? My body will either be addicted to opiates or an opiate agonist? Both cause with drawl when stopping them and my continues on. I haven't worked in 4yrs ( I used to be a drug and alcohol counselor, but was too stressful of a profession for me) I'm depressed and lay on the couch or sit in the bathroom most of the day. My quality of life is diminishing but I will carry on.

Im now taking azathioprine; wellbutrin and lexapro for depression; nexium for reflux and hiatal hernia; and donnotal and valium for bowel spasm and pain. We'll see what happens. Im in the process of giving a 72hr stool collectionto see if they can find out anything there.

Bottom line, I dont know what to do re pain relief anymore. No doctors will give me pain medication anymore, and after all of this i don't know if I want them, so I will need to deal. Pot does help with some of the symptoms, but hate the fact that I could get busted for using a drug that should be legal!(it's not in my state) Maybe the government will wake up to how bad the opiate problem has become and begin to use a drug that doesn't reek havoc on our bodies and isn't physically addictive? NOT!!

Sorry for the babbling, but life has got to be better than this! Sad thing is, I know I will need opiates again someday and will need to do this process over and over again. I guess it just a part of dealing with chronic pain in a medical society that can't decide if people should have pain relief or worry about those who really need it and the federal regulations these pain docs are having to deal with. Forgive me if I didn't make a lot of sense, Im on little sleep for too long now
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diagnosed: Crohn's desease 1988, Hiatal hernia, reflux, chronic pain syndrome
surgeries: 2 bowel resections(removed ilium; approx 2 1/2-3ft of small bowel and some of colon) 4-5 rectal fistula repairs; gallbladder and appendix removed
Current medications: Immuran(azathioprine)100mg, nexium 40mg, alprazolam, wellbutrin, lexapro, lomotal, donnatol, monthly B12 injection

In the midst of my first flare in 13yrs
10-29-2012, 02:50 PM   #313
JohnnyRottenAppleseed
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Try eating the cannabis. Cook it into butter then make cookies or with food or just eat a few tsp butter
10-29-2012, 03:08 PM   #314
ke22y
 
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I have MS, and it came first, then Crohn's came last year in June. I have been told that having one autoimmune disease, makes it easier to get another. I feel like, no, I know I am addicted to pain killers. I have been taking them non-stop for over a year, every since I got out of the hospital in July of last year. It is horrible, the whole situation, the Crohn's, MS, and the other, which is incredibly shameful to me.
10-30-2012, 03:05 AM   #315
Jenny06xx
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This thread is so helpfull for everyone to read coz 1 day we will all be in a situation where pain meds may be needed on a regular basis .

At the moment my dihydrocodeine usage is waaay too high I know this but my gp keeps telling me to take extra till I see a pain specialist , so what else can I do ?

I try hard not to take the extra meds an stick to 3 x 120 mg slow release dhc and 8x30 mg instant release dhc a day but on really bad days I have to take extra for any relief which I know is a terribly high amount !!
I dont get high or anything just pain relief , it will never give the same effect as that "first ever pill " did no matter what amount I take .
An that's not what I use them for ! I legitimately need pain relief and until I see a pain doc it is my only choice

I hate being a slave to my pill , panicking when my next script is due , worried if I've put them somewhere an can't find them , waking up thinking have I got enough to last today?

It's an awful cycle but Id rather be a slave to the pills than at home not able to manage in agony with no pills an down the hospital every 5 mins !

I suppose it's my choice an I've chosen pills , that is because my life would not be worth living without them .
Jen xx
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diagnosed with crohn's disease September 2010 symptoms since 2003
Acute pancreatitis 2003
gallbladder removed laprascopic 2003

Meds

Budesonide finished again !!
Pentasa 2g 2x a day
Pred 40mg
Ensure plus ( no longer needed)
Dihydrocodeine 120mg slow release 3 a day
Dihydrocodeine 30mg 2.. 4x day
Tramadol 50 mg 2 ...4x a day ( stopped coz it's not helping )

Waiting for fist appointment at pain clinc I hope it helps !
10-30-2012, 06:00 AM   #316
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[QUOTE=long time crohnie;522896] Problem: vicodin(codine), percocet and oxy all have acetominophin and are bad for the liver if used for long periods so I avoided those (also they made me feel drugged and I don't like that). Told that drugs like Dilaudid a "clean" drug(no fillers) was more effective and has less side effects on the liver etc. [QUOTE]



This must vary in different countries. In the UK, if you buy codeine over the counter - i.e. the customer chooses it, rather than being given out by a professional - the codeine is always mixed with paracetamol (acetominophin). I read that the only reason they put the paracetamol in there is to prevent people using codeine for the wrong reasons - if you take a large amount, the paracetemol will make you feel sick, so people will not be able to take large amounts and get high of the codeine. But doctors prescribe codeine without paracetamol or anything else added. With the extra control involved where the dosage is being monitored by a doctor, they must think it's safe enough to prescribe like that.

long time crohnie: sorry you've not been able to come up with a solution. It is difficult that there just doesn't seem to be a solution for pain that doesn't have negative consequences - whether unhealthy side effects or addiction. Especially when pain is chronic. I suppose I can see why the medical profession finds it hard to know what to do a lot of the time as well. I'd never heard of "narcotic bowel syndrome" before. As I wrote in my post above, I've taken a fair amount of codeine for the past year or so. It still seems to be beneficial for my bowels - the only effect is the one that's desired because I have chronic diarrhoea. The main problem I have with other non-addictive types of pain meds is they always seem to upset my stomach (in the short term). I hope you find some relief soon.
10-31-2012, 03:38 AM   #317
Jenny06xx
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I have the same problem with non narcotic painkillers , they all upset my stomach an cause more problems , so my only option is opiate medication .
I also have the chronic diarrhoea even when I'm really well so the added side effect of constipation is great for me ! I recently reviewed my medication with my gp , an she actually said ( we were going to change to oral morphine but I really didn't want to at the time )
" keep taking the dihydrocodeine we won't swap that as it helps with your diarrhoea
aswell doesn't it "

It's an added bonus for me an if I'm honest I'd be buggered without itbecause immodium has always been so hit an miss for me , 1 day 2 would do the job, the next day 14 wouldn't touch me but then I'd be backed up the next 2 days !

My life before codeine was first prescribed ( for diarrhoea not pain ) was awful I couldn't leave my house , I'd just had a baby an couldn't drive at the time an honestly I really think My life wasn't worth living at the time I seriously couldn't manage , I had to take my baby up on the bathroom floor because I would be up there sooooo long an couldn't leave her downstairs .
That's a horrible memory of my undiagnosed days .

I don't know where I'd b now if it wasn't for codeine an other narcotic / opiate type meds
So even though I know I'm " dependant " on dihydrocodeine now , I'm grateful for the life it has given me !

Jen xx
10-31-2012, 09:49 AM   #318
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The thing with opiates is that they work so definitively.

Once a doctor tried to get me to switch from using codeine to paracetamol. I told her paracetamol does nothing for me. She told me that it might be reducing pain without me noticing.

That made no sense to me. Did they do a research trial and managed to find a way to measure patients' pain even when the patients' themselves didn't notice? I get what she was saying really - she meant that paracetamol could reduce the pain a bit, so you're still in pain but not as much as you would have been if you hadn't taken anything.

But I'm at a point where I don't care about effects that are that subtle. I used to worry about long term health risks and avoid medication but now I view my long term health as a lost cause and just want to feel as comfortable as possible. When I have so many symptoms deterioriating so fast (not just pain), trying to counteract them with subtle changes doesn't stand a chance. There'll be too many new symptoms and the deterioration will be too fast, and finding ways to counteract them at that rate will mean there is an inevitable decline in quality of life. The only chance is to find things that work strongly and quickly.

Codeine consistantly makes me feel better - I know it's not coincidence or another factor - and it makes a difference that is noticable.
11-01-2012, 06:49 AM   #319
Jenny06xx
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Yep i think it cones down to personal choice on the end , to take opiate medication an become dependant an have a normal quality of life with crohns and other illnesses or to take non opiate meds ie paracetamol / Tylenol etc an have a less than normal quality of life but not be dependant on opiates .

But then every med works differently for ever individual person , an what works for sone may not work for others !

If I was just handed codeine now an only ever taken say paracetamol I would think it was
a miracle tablet !
Yet on the high doses of dhc I'm on it would be a case of , it lessens the diarrhoea but does nothing for pain .
So I know I need to get off dhc I don't want to be on it an I'm hoping that next year will be a good year an that will be a possibility!
It will be a long hard slog of withdrawal but I'd sooooo love to be opiate free , although I'm happy to continue taking them if I have the need them.

At the end of the day if you have a headache you try to fix it with tablets cold patches whatever , if you have a bad back you go to see someone who specialises in that area an take what is offered to help or fix it, so if you have crohns you see a specialist , you take the treatments offered an you try to get into remission , so if the painkillers offered are opiates an they're the thing that works for you take them an don't feel guilty about taking them , they're part of the package to get you into remmission .
Jen xx
11-01-2012, 07:52 AM   #320
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Yep i think it cones down to personal choice on the end , to take opiate medication an become dependant an have a normal quality of life with crohns and other illnesses or to take non opiate meds ie paracetamol / Tylenol etc an have a less than normal quality of life but not be dependant on opiates .

But then every med works differently for ever individual person , an what works for sone may not work for others !
This is so true: it's just finding if it's ok for you. If you have a tendency for addiction and taking drugs for the wrong reasons, then that's different to the inevitable physical dependency of long-tem opiate use. Physical dependecy can be problematic, but is not the same as a mental addiction or sign the drug is necessarily being abused.
12-10-2012, 03:50 PM   #321
Sherrod
 
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I see you have narrowing areas I can see why you wanted want to take but so much narcotics, because it slows your bowels and can make you constipated. But I believe that most of us have diahrea and not constipation, I realize some do though.

For me I can take say 1 or 2 vicodin a day and it will slow my bowels so that I am more formed...which helps a lot considering I have an ostomy.

I was going to offer up that you should ask about something like levsin, an anti-spasmadic instead of pain killer.

Do you ever go to the ER GNC crohns man? The reason I ask is because almost 100 percent of the time if your in pain they are going to give you a narcotic, atleast in my experience, they've never given me something that isnt.



other forums we've actually had a discussion of the "narcotic energy", might be a good thread to start...

I have diarrhea with mine and I find the slowing affect of narcotics and the energy extremely helpfull and it helps with the pain. There are really only two classes of major pain med- NSAIDs and narcotics and I cannot take NSAIDs so that leaves Narcotics. Oddly enough though my body does not metabolize codein or morphine so I have to go with other things like tramadol or hydros or percs...
12-10-2012, 05:21 PM   #322
JohnnyRottenAppleseed
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Why don't you UK folk get in Sativex? I'd rather be addicted to sativex than opiate pain killers.
12-15-2012, 01:23 AM   #323
Liesia
 
Join Date: Oct 2012
Hello Long time crohnie, has your GI doc done biopsies during a colonoscopy. It sounds like you could have Lymphocytic or microscopic colitis. The colonoscopy appears normal and you can only find it by biopsies of the tissue. There is usually no bleeding involved. There has not been as much research on it as crohns and UC and usually it is treated the same as crohns but at least you would have a DX and know what you are dealing with. It is also painful. I see you are on Wellbutrin, that helped me with my pain, it is a TNF inhibitor but does not have the side effects as a biologic. Good luck I hope you find out soon and get some relief.
12-15-2012, 02:15 AM   #324
JohnnyRottenAppleseed
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I love all these fancy names for inflammation of the bowels. No name, no snake oil!!!$$$$$$$$$$$
03-12-2013, 02:35 PM   #325
Dixiedoll23
 
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Location: Sanford, North Carolina

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I have diarrhea with mine and I find the slowing affect of narcotics and the energy extremely helpfull and it helps with the pain. There are really only two classes of major pain med- NSAIDs and narcotics and I cannot take NSAIDs so that leaves Narcotics. Oddly enough though my body does not metabolize codein or morphine so I have to go with other things like tramadol or hydros or percs...

I don't think most people who have crohns can take NSAIDS? I know my GI said it was a no-no as it can cause a flare or make a flare worse.So that leaves opiates for us.I find it to be much safer to use opiates that are tylenol/ibuprofen free, especially if used for long term.

I also agree with opiates helping diarrhea.If I'm not on pain meds for a day,I might as well sleep in the bathroom and put a TV in there, because that's where I'm spending the day.After all, that is what immodium is.Originally prescribed for pain until they realized it didn't cross the BBB.
I find the energy to be helpful too, especially since crohns makes me feel so lazy all the time, but I have chronic fatigue syndrome.However after being on opiates for a long time, that energy doesn't last long, and I find myself having to take pills just to feel "normal" everyday.
I like Tramadol because it seems to last about 6 hours compared to 3 or 4 tops that the other meds last me.But I've had my experience with pretty much all of them at one time or another.
03-12-2013, 03:28 PM   #326
HospitalPatient
 
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Join Date: May 2010
Location: West Orange, New Jersey
Re: Pain Meds, Narcotics and living with a Chronic Disease like Crohn's, below is a respectful 7-minute Video "Retort" I produced in response to CNN's & Dr. Sanjay Gupta's recent show "Deadly Dose," which revealed the growing tragic problem of narcotic/opioid prescription drug overdoses. The perspective is that of a chronic pain patient (with Crohn’s Disease) who is worried about new laws addressing this tragic problem but over-reaching in doing so, and thus, "throwing out the baby with the bath water," and making lives of many chronic patients, with Crohn's, MUCH more difficult.
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Sincerely,

Michael A. Weiss, Esq., MBA
03-13-2013, 06:57 AM   #327
UnXmas
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I don't think most people who have crohns can take NSAIDS? I know my GI said it was a no-no as it can cause a flare or make a flare worse.So that leaves opiates for us.I find it to be much safer to use opiates that are tylenol/ibuprofen free, especially if used for long term.

I also agree with opiates helping diarrhea.If I'm not on pain meds for a day,I might as well sleep in the bathroom and put a TV in there, because that's where I'm spending the day.After all, that is what immodium is.Originally prescribed for pain until they realized it didn't cross the BBB.
I find the energy to be helpful too, especially since crohns makes me feel so lazy all the time, but I have chronic fatigue syndrome.However after being on opiates for a long time, that energy doesn't last long, and I find myself having to take pills just to feel "normal" everyday.
I like Tramadol because it seems to last about 6 hours compared to 3 or 4 tops that the other meds last me.But I've had my experience with pretty much all of them at one time or another.
I thought the same about NSAIDs - they make me feel a bit sick and don't do much for my pain either.

You get energy from opiates? I always feel so much more energetic after taking codiene, but when I told my GP she said that was surprising as it's supposed to be a sedative. She thought that the fatigue I feel when I've not taken any codeine was withdrawal, but after months with no opiates at all I concluded that I actually do get bursts of energy from codeine. I take regular breaks off codeine to avoid building up too much tolerance, so I can still get the energy, pain relief and anti-diarrhoea effects when I need to.
03-13-2013, 07:52 AM   #328
aleciabc09
 
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Join Date: Sep 2012
Location: auburndale, Florida

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i was just wondering if anyone else here has experienced getting addicted to a pain med? (like codeine)-and-if so--what do you use for pain now? (if anything)
i got addicted to tylenol 3's (tylenol w 30 mg codeine). i had been taking them for awhile then-(starting with shingles-one small nerve was in pain along eye--but-that one little nerve caused enormous pain-worse than my migraines)
then-i started using it for migraines til i got hooked. anyway-now-at times-i still get headaches. i am seeing maybe dehydration can maybe be in part what at least triggers a migraine..i don't know. but..the migraine meds scare me (as i am already on other strong meds)
the crohn's stuff -i worry if i feel pain again: well--what do others do? if in pain -and if not able to take narcotics? just deal? so far -i don't need anything for the crohn's-(though the heartburn is hard to cope with--at least the diarrhea almost gone-(still have quite a few bm's a day tho) -and some ab discomfort.
just-sometimes i wonder if the shingles/crohn's and endometriosis -and even migraines-all somehow relate (immune trouble)--(sorry-guess that is another topic)
but my key thing: it seems that if one has one crohn's-it tends to involve other stuff too (like headaches..and other messes--which= sometimes: pain) just..really wish i could take a pain pill at times (legitimately need one sometimes..)
I also had issues with addiction to pain meds for Crohn's artheritis and lots of other health stuff so am no longer taking anything accept tylenol and am in a flare, I have leaned a very hot bath helps a lot and just doing something when I am in pain helps me not think ablut it, Good Luck to you!
03-15-2013, 12:12 PM   #329
BabsToo
 
Join Date: Mar 2012
YES! A hot bath with epsom salts every day is what let me get off my pain meds.
03-15-2013, 01:21 PM   #330
JohnnyRottenAppleseed
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Join Date: Oct 2011
Location: Colorado
Studies and my own personal experience show Cannabis has the analgesic equivelant to Vicodin without the addictive properties.
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