Share Facebook
Crohn's Disease Forum » Parents of Kids with IBD » Risks - Where do you draw the line?


 
03-15-2013, 12:53 PM   #1
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Risks - Where do you draw the line?

After two years, DS is finally in remission. Woohoo! As you all know, this disease is unpredictable so we decided to take advantage of this lull in the action and went on vacation for spring break - a great way to recharge after the ER visits, hospital stays and surgery earlier this year.

We splurged on a once in a lifetime opportunity to swim with dolphins and as I was signing the waiver release form, I was saddened to realize it truly might be a once in a lifetime opportunity for him. If you have a suppressed immune system due to meds or otherwise, you are not allowed to swim with the dolphins. I didn't know about this until we got there and was signing the waiver.

DS is currently only on Pentasa (likely starting 6mp or Remi this summer), so we were able to still swim, but it made me wonder... had he been on stronger meds, would I have let him swim anyway? Would we have risked it? We rarely go on vacation, let alone have an opportunity like this. I don't ever want Crohns to define who he is or what he is capable of achieving, yet... sometimes there are risks.

Where do you draw the line? Have you taken any risks simply to see joy on your child's face?

And what other situations have you come across where suppressed immune systems were an issue that surprised you or you weren't prepared for?
__________________
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013

Last edited by Mehita; 05-14-2013 at 07:29 AM.
03-15-2013, 01:17 PM   #2
Jmrogers4
Moderator
 
Jmrogers4's Avatar
 
Join Date: Jun 2012
Location: Boise, Idaho

My Support Groups:
Honestly - I probably would have risked it depending on how he was feeling at the time. My hubby was dx'd right before we got married. We had reservations, everything set for a honeymoon in Puerto Vellarta his GI nixed it said he wouldn't know whether to treat him for Crohn's or Montezuma, while I agreed at the time as he was in pretty bad shape. If I had the opportunity now, he is pretty good for the most part we would go and take our chances.
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-15-2013, 01:18 PM   #3
Jenn
Senior Member
 
Jenn's Avatar
 
Join Date: Jul 2011
Location: San Diego, California
I wouldn't risk anytime they restrict for immune suppression. They are immune suppressed, so therefore less able to fight off infections, that's a serious, possibly fatal risk. This particular event would be a bummer to miss, but not tragic. Good to plan ahead as much as we can though. I've learned to accept that there's just some things he probably can't do because of Crohns, but that's true of anyone, I'd never be a competitive track star for instance either. That doesn't keep him from living a fulfilling life, just missing out on some nice-to-do experiences that we all do for some reason or other.
__________________
Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (15mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
03-15-2013, 01:53 PM   #4
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Nursing homes.
Sadly I've stopped visiting those. I would love for Grace to get the opportunity to volunteer with me but I can't take the chance right now. Once she's better and it's NOT flu season maybe.
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
03-15-2013, 02:01 PM   #5
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Great question!

I'm curious to see how everyone feels... I tend to stress and worry, however, I think I also tend to take the risk because I'm worried that I'm being overly cautious (and I also hate to say 'no' and disappoint)! But, remicade is new to us, so I don't have much experience in having to consider these issues.
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
03-15-2013, 02:59 PM   #6
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
For me it would depend on the activity and how my child was presenting at the time.

There are varying degrees of immunosuppression and accompanying conditions. By that I mean for example...if you have an organ transplant you are on the same immunosuppressant drugs as our children, in much larger doses, but the type of restrictions and risks they face are far greater than what our children do. Looking at my Crohn's children at this given point in time, in remission and on Imuran, I would allow it.

There are many precautions that immunosuppressed people are mean't to take when dealing with animals whether they be wild, farm or pets that primarily pertain to their environment (handling of droppings, litter boxes, aquarium water, etc). The benefits of a pet can never be underestimated but we should be mindful of keeping them in good health as well to minimise risks. The one group of animals I would be the most cautious about is primates, due to our close genetic relationship with them.

Dusty.
03-15-2013, 03:29 PM   #7
crohnsinct
Senior Member
 
Join Date: Mar 2012
Location: Connecticut

My Support Groups:
Wow! Thanks for the warning. This is something O has talked about for years and I have actually never thought it would be a problem. I wouldn't necessarily bow out though. I would ask our GI about it and see what he says. A lot of those waivers rule out almost any little thing because they are scared of law suits. But if I made the decision alone to let her participate and something happened the guilt would eat me alive. That's why I ask the G.I.. Our GI has approved a few things saying, "the immune suppression isn't that great and I am comfortable with her participating"

She has not been allowed to travel to Ecuador, Africa, white water raft in some suspicious waters, or volunter in a nursing home.

He has O.K.'s her working in a home for developmentally challenged individuals (children and adults) even though the form clearly asked about immune suppression.
__________________
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Methotrexate (12.5mg wkly - oral)
Vit d 2000IU
Multi vitamin plus iron
Calcium
Folic Acid
Previously used - Prednisone, Prevacid, Enteral Nutrition

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohns
Methotrexate (15mg weekly oral)
Enteral Nutrition
Entocort
IBD-AID Diet
Vit d 1000IU
Calcium
Folic Acid
Previously used: Mtx injections
03-15-2013, 03:40 PM   #8
Jmrogers4
Moderator
 
Jmrogers4's Avatar
 
Join Date: Jun 2012
Location: Boise, Idaho

My Support Groups:
Nursing homes? Jack has for the past several years taken dogs from the humane society to nursing home once a week during school holidays.
He is volunteering at an animal sanctuary over spring break.
03-15-2013, 03:50 PM   #9
Lisa
Adminstrator
 
Lisa's Avatar
 
Join Date: Apr 2010
Location: New York

My Support Groups:
Interesting! I recently swam with dolphins, and NEVER was anything asked/said about being immunosuppressed.....wonder what the issue is with that?.....

While I know everyone is different, here are somethings that I do, and have been doing even since starting Remicade over 7 years ago -

Volunteer firefighter
Building inspector - including labs where infectious disease work is done, etc - these are Level 1 BSL - so no protective equipment required for anyone to enter
Swam with dolphins
swim in ocean, my Mom's pond, etc...
Work in a facility that can get over 10000 visitors/day - including children
interact with daycare-aged children
work in the yard, clean up after my horses, and YES - even walk BAREFOOT in the pasture where there is manuer, etc!

I am in fact probably the 'healthiest' one in my family - I get colds/sick a lot less than my daughter and husband on average.
__________________

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
03-15-2013, 04:00 PM   #10
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
@Paso - I guess most swimming with dolphins involves dolphins in captivity so it would be the aquarium water.

Again I think it boils down to the perspective of immunosuppressed that you take. Has anyone ever been warned of the dangers that pets may pose? If not then that may give you an indication of the risk involved.

I'm not sure about the nursing home either. If comes down to those that are immunosuppressed being a vulnerable population then nursing home residents are also a vulnerable population so they should cancel each other out.

Dusty. xxx
03-15-2013, 04:13 PM   #11
Clash
Forum Monitor
 
Clash's Avatar
 
Join Date: Apr 2012
Location: Georgia

My Support Groups:
I've have written several responses to this and erased them all. I know there are risks and I do run things by the GI as CIC mentioned. I feel like I am giving C all the relevant info to his disease, meds and risks but, C will soon be out on his on and even well prepared, cautious, mature, rational teens make risky decisions. I think this has played a role in how I approach situations similar to the dolphin swimming. I wouldn't think twice about letting C swim with the dolphins if he has been doing well. Then it occured to me, I don't let C change the litterbox at home, ever! Ha how crazy is that, I'm going to throw him into bacteria ridden waters with sea mammals and germs but I won't let him bag up the litter! I'm terrified of toxoplasmosis, it was the first warning label I read for "people with suppressed immune systems" and it stuck! The worst part is C likes his steak medium rare, if I allowed it he would eat it rare....and undercooked meat carries the risk of toxoplasmosis. So swim with the dolphins, don't touch the cat litter but heck yeah you can have that steak oozing blood...hmm!

Edit: Of course I am dramatizing a bit with the bacterial ridden waters and germs but it goes to effect! haha
__________________
Clash
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara


Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
03-15-2013, 04:25 PM   #12
Henrietta78
 
Henrietta78's Avatar
 
Join Date: Nov 2012
Location: Vista, California

My Support Groups:
I struggle with the overprotective/paranoid thing, and for me its not so much the larger risks, but the everyday smaller "risks"- like over doing it with too many activites. I always feel defensive saying, "no, that's too much for us". I know its what is in the best interest of my child, but sometimes I feel like people think I'm overprotective. Recently we cancelled a family weekend trip b/c H wasn't TOTALLY recovered from his pneumonia...and I worried a long weekend of traveling, disrupted sleep and eating out would cause a relapse, or a flare...I think some of our family doesn't really get that it's not just "tummy trouble"...
03-15-2013, 04:31 PM   #13
DustyKat
Super Moderator
 
DustyKat's Avatar
 
Join Date: May 2010
Location: New South Wales, Australia
^^^^ LMFAO Clash!

Now if they would just find out what causes this disease and a cure for it then we wouldn't have to worry about all this shit!

Seriously though, I am with Paso on this. I am in no way down playing the potential risks but my kids are healthier than most of the young adults I know, even those I work with!
Matt has been unwell this week with some sort of URTI (Upper Respiratory Tract Infection). A few days of mild symptoms and then it hit with a vengeance on Monday and I was running around with a face like The Scream. It lasted 24 hours, that's it, one day!

Dusty.
03-15-2013, 04:40 PM   #14
Clash
Forum Monitor
 
Clash's Avatar
 
Join Date: Apr 2012
Location: Georgia

My Support Groups:
I think part of the reason I have a laid back approach(excepting the cat litter) is because of my oldest being in college. She entered college about the same time all of C's symptoms started and before I realized she was employed, surrounded by friends and making her way through college life. I sure there were hitches and bad decisions I'll never know about. But I was so preoccupied with C's issues I didn't stop to worry about all the decisions she may be making.

I'm assumming all is well, the only time she has showed up on Fox News is when she was at spring break!! Haha..Actually it was a news story about a bikini world record or something and they used a pic of her and all her friends on the beach that a beach photographer had taken. She bathed in the notariety, which might should worry me but she's a good kid so hopefully that is the end of her 15 min fame! Ha

Anyway, C is way more mischeivous than her so I'm sure he will get into his share of predicaments and some of them will contradict what he should be doing for his illness or while on certain meds.
03-15-2013, 04:48 PM   #15
Jmrogers4
Moderator
 
Jmrogers4's Avatar
 
Join Date: Jun 2012
Location: Boise, Idaho

My Support Groups:
I generally worry more about my younger son as he is the risk taker. When I went to pick them up from practice the other day. I told James to walk over the the baseball field from lacrosse practice as he would be done before Jack and they are at the same sports fields. I get there and don't see James anywhere and I'm starting to get a little angry until the guys on Jack's team point out that he is sitting ON TOP of a basketball hoop/pole

Clash - Jack loves the raw steak as well, I tell him it at least has to be warm in the middle.
03-15-2013, 04:57 PM   #16
Clash
Forum Monitor
 
Clash's Avatar
 
Join Date: Apr 2012
Location: Georgia

My Support Groups:
Jmrogers4, that is exactly what I tell C!! All of my family like med. rare to rare, my poor hubby likes his burnt, like charcoal.
03-15-2013, 04:58 PM   #17
izzi'smom
Senior Member
 
izzi'smom's Avatar
 
Join Date: May 2011
Location: New York

My Support Groups:
Clash, love that profile pic!!


Izz has also talked about dolphins for the last year and I, too, was interested in getting her in the water with them at some point.

Interestingly, her dose of Tacro is the same pediatric dose at the bottom of the range for pediatric transplant patients, so she IS suppressed to the nth degree.

I have never considered not letting her do things...never crossed my mind...and other than her first ear infection this winter and a chronic cough (that has been checked multiple times) she has been healthy on Tacro and is going on a year (touch wood!!!).

I will have to give this some thought. I would love to find out why suppression is an issue.

I have asked that her school let me know when there are outbreaks of diseases, but I work in a hospital and in close conjunction with the er. We had a record breaking flu season and I didn't catch it or bring it home to the kids. (I didn't get vaccinated, much to my employers dismay).

Way to get us thinking today...
__________________
Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
03-15-2013, 05:06 PM   #18
Clash
Forum Monitor
 
Clash's Avatar
 
Join Date: Apr 2012
Location: Georgia

My Support Groups:
Thanks, Izzi'sMom! C loves to fish, well when there is nothing else to entertain him!! I love the pics of Izzi and Xavi!! Izzi looks so much like you!!
03-15-2013, 05:32 PM   #19
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
I really should have asked about the immune suppression. I have to admit I wasn't thinking too clearly... I was too excited myself! I will email the dolphin place later and let you know what I find out.
03-15-2013, 05:51 PM   #20
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
 
Join Date: Sep 2010
Location: Florida

My Support Groups:
I am curious about what the risks would be. Dusty Kat you make a good point about pets. We just got a chinchilla. I know they can carry giardia. We had her checked though a d she was negative thanks goodness. I still make everyone wash their hands as soon as they are done playing with her.
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
03-15-2013, 07:58 PM   #21
Tesscorm
Moderator
 
Tesscorm's Avatar
 
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Whew, I was worried that I was going to have to start worrying about more!! But it sounds like just making sensible choices most of the time!

Clash - you're right in that the older they get, the less control we have of their choices. Stephen's staying with friends at their dorm this weekend to celebrate St. Patrick's day ( need I say more!) I printed a copy of the remicade side effects you provided (made him read it in front of me!), I made up a wallet sized card with all his medical info/emerg. contacts (watched him put it in his wallet) and gave him lots of 'advice'... the rest is up to him.

As much as you worry and protect, sometimes it just is out of your control... For years I worried about Stephen playing hockey, for years I worried about Emily horseback riding/jumping, for years I DIDN'T worry about soccer, relaxed and enjoyed those games....... guess what... in soccer, Stephen tore a knee ligament and Emily got a concussion! No serious hockey/riding accidents!
03-15-2013, 09:11 PM   #22
Jennifer
Adminstrator
 
Jennifer's Avatar
 
Join Date: Jan 2010
Location: California

My Support Groups:
I didn't know I couldn't swim with dolphins. D: That's not cool. Whatever, I just wont tell them I'm on Remicade. :P

I've been on immune suppressants for a long time and never lived my life any different. I've gone to amusement parks, used public transportation for years, visited sick relatives/friends, gone to old folks homes, played around on farms and at the winery where my dad worked, brought home stray cats, caught lizards on a regular basis, rarely washed my hands or face, went to school, went to the hospital (for ER, tests), been to doctor's offices (usually the worst place to be in my opinion if you're trying to avoid sick people) and I've swam with sea turtles in Hawaii off shore. I wouldn't trade my turtle swimming experience for anything.

Main thing I've always gotten sick from was sitting around in my own home while everyone else gets to have all the fun (I really did get sick with colds and strep just by being at home).

I didn't have any limits when I was a kid and I don't put any on myself now that I'm older and on stronger meds than 6MP and steroids. If/when I have children and if they did have a suppressed immune system like mine, I would not set limits either.
__________________
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
03-15-2013, 09:52 PM   #23
Brian'sMom
Senior Member
 
Brian'sMom's Avatar
 
Join Date: Dec 2010
Location: Kansas

My Support Groups:
Is having dogs a problem for crohn's kids? (I've been looking for a reason to pass them on to someone else for YEARS!!) Yip Yappy malteses that bark a lot
__________________
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
03-15-2013, 10:30 PM   #24
Twiggy930
Forum Monitor
 
Twiggy930's Avatar
 
Join Date: Feb 2012
Location: Canada

My Support Groups:
I am amused because I am reading this right after letting my son eat sushi for dinner! It was from a place we always go to which we know has a clean kitchen and good fish. Heck, I ate there when I was pregnant with the kids. We also have a bunch of pets (lizards, budgie, dog and fish) and they have never been a problem.

Two years ago (before my son's diagnosis) our family went to Peru for a vacation and in preparation for the trip we all got the Yellow Fever vaccination. Now that my son is on azathioprine he can no longer have that vaccination because it is a live vaccine. The vaccination is good for 10 years so I figure we have about 8 years in which to get in as much travel to places that require that vaccine.

In all seriousness I do plan to go to Africa one day with the kids.
__________________
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.

Last edited by Twiggy930; 03-15-2013 at 10:46 PM. Reason: typo
03-15-2013, 10:38 PM   #25
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Ds has been on some version of immunosuppression since Oct 2011 ( so a year and half)
WE have talked with his docs numerous times - and do not limit anything activity-wise based on the drugs.
The only thing we have been told to limit was swimming when he had an open wound ( more than a normal kid scrape ) and that was only after he developed cellulitis.

IF we are in doubt we ask the gi but typically they do not want us to limit.
__________________
DS - -Crohn's -Stelara
03-16-2013, 05:54 AM   #26
Dexky
To save time...Ask Dusty!
 
Dexky's Avatar
 
Join Date: May 2010
Location: Kentucky

My Support Groups:

I have never considered not letting her do things...never crossed my mind...
That's the way we've been with EJ as well. I figure he's going to miss out on a lot in life as it is so I'm willing to take the chance while he is relatively healthy.

And all this talk about pets!!! My wife is a vet…EJ and I would have to move out to get away from animals!!…..hmmmmm…EJ pack your bags. Bachelor pad!!!
__________________
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
03-16-2013, 06:19 AM   #27
izzi'smom
Senior Member
 
izzi'smom's Avatar
 
Join Date: May 2011
Location: New York

My Support Groups:
^^
I think that's where I was coming from as well...last summer we were able to hike and boat...two things that were impossible the summer before (heck, we couldn't even take a long walk around the neighborhood without her needing a restroom). While I truly would never forgive myself if she DID get sick, I can't imagine her growing up and missing out on life experiences "just in case".
03-16-2013, 07:50 AM   #28
Samboi
Senior Member
 
Samboi's Avatar
 
Join Date: Jan 2012
Location: Australia

My Support Groups:
When I'm feeling fit and healthy - I disregard warnings about what I can and can't do etc.
When I'm sick with some infection I've picked up - I listen to every warning.

My doctor recently gave me a very stern lecture about where I am allowed to travel whilst I'm on Humira. She ruled out Sth America and most of Asia.
Foolishly - last year I traveled around Cambodia six weeks after having Surgery. I was sick of being sick and feeling defiant. I got through the trip - but only just.
I am more considered with my decisions now.
I don't like being restricted.
But I don't like falling sick with something I could avoid.
__________________
Dx - Crohns Disease - 1992
Ileostomy - Jan 2012, Reversed Aug 2013
Pred works, all else seems to fail
Trying Vedoluzimab - running out of options
Neupogen
03-16-2013, 08:06 AM   #29
Maree.
Forum Monitor
 
Maree.'s Avatar
 
Join Date: Jan 2013
Location: United Arab Emirates

My Support Groups:
Sounds like I should get Liam vaccination for Yellow Fever now (given Twiggy's tip about it lasting 10 years) just in case he does end up need immune suppressant medication at some point in the future.

My husband's team cover Middle East & Africa and they have a big project in Ghana and we have close friends in Tanzania we've been promising to visit. So hoping to fit an African trip for myself and the kids sometime in the next year, just need to get school holidays to line up with my husbands work schedule.
03-16-2013, 10:08 AM   #30
Brian'sMom
Senior Member
 
Brian'sMom's Avatar
 
Join Date: Dec 2010
Location: Kansas

My Support Groups:
Isn't there people with IBD in other countries!!!(sarcasm) And aren't they immunocompromised with medicine too? Am I missing something?
Reply

Crohn's Disease Forum » Parents of Kids with IBD » Risks - Where do you draw the line?
Thread Tools


All times are GMT -5. The time now is 05:39 AM.
Copyright 2006-2017 Crohnsforum.com