[Submitted] Parents with young IBD patients

We have a very active Parents forum at crohnsforum. For young patients, who might not yet be able to express some of the complex symptoms or disease manifestations an older patient might be able to, could you suggest some particularly helpful observations that parents might keep in mind for the benefit of the gastroenterologist?

Sawdust,

To clarify, are you wanting our experts to suggest symptoms/signs parents should keep an eye out for and notify their GI about if they present?

That would be good to ask as well. I was thinking we could ask the doctor what information they might not always know in pediatric cases, but they would value as very useful if they did know it. That way, parents would know that it might be important to note or communicate to the doc.

I'm sure there are more subtle things we will learn, but for instance, if the doctor said that lethargy or fatigue was something to note, then parents would have in the back of their mind that this might be of importance to the GI and maybe prompt them to keep track or write it down. I suppose I was thinking of non-emergency symptoms.

I don't know. My heart just aches for the young ones and parents. :hug: It was the best question I could think of without having more direct experience. I hope we get lots of questions from the Parents subforum.

sawdust said:

We have a very active Parents forum at crohnsforum. For young patients, who might not yet be able to express some of the complex ideas an older patient might be able to, could you suggest some particularly helpful observations that parents might keep in mind for the benefit of the gastroenterologist?

Click to expand...

How about changing, "Ideas" to, "symptoms" or, "disease manifestations"?

Thank you for the submission. We'll take it into consideration for our next batch of questions we send out.