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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Beginners guide to Fistulas and Abscesses



 
04-29-2012, 09:34 AM   #31
Kendra
 
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has anyone had surgery for this? my Dr is sending me to a surgeon to look at it, not sure what they are going to do about it, just wondering if anyone knows the hospital stay, how much healing time, things like that
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05-08-2012, 06:38 PM   #32
RFarmer
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has anyone had surgery for this? my Dr is sending me to a surgeon to look at it, not sure what they are going to do about it, just wondering if anyone knows the hospital stay, how much healing time, things like that
What's the surgery? Like, what is he going to do?
06-30-2012, 01:23 AM   #33
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has anyone had surgery for this? my Dr is sending me to a surgeon to look at it, not sure what they are going to do about it, just wondering if anyone knows the hospital stay, how much healing time, things like that
It usually depends how severe your abscess/fistula is. I've had six operations. All were conducted by my colorectal surgeon, most of them were outpatient at surgery centers, but two were done in the ER and required one night in the hospital.
06-30-2012, 01:30 AM   #34
Avw
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So yesterday was my fourth operation for abscesses within the last month. The first abscess (I believe he said it was the "horseshoe" kind), which still has a seton/drain, the surgeon went in to check on it while he had me in the operating room for abscess number three. He said the cavity of the original abscess is growing. Even though it's still draining and isn't filling back up with puss, the cavity is still expanding. Is this common, is it cause for concern, and is there anything that can be done about it??
06-30-2012, 09:01 AM   #35
RFarmer
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So yesterday was my fourth operation for abscesses within the last month. The first abscess (I believe he said it was the "horseshoe" kind), which still has a seton/drain, the surgeon went in to check on it while he had me in the operating room for abscess number three. He said the cavity of the original abscess is growing. Even though it's still draining and isn't filling back up with puss, the cavity is still expanding. Is this common, is it cause for concern, and is there anything that can be done about it??
That's... Weird. Maybe it's necrotic, and rotting

Did he not offer any explanation as to why?

I'm interested as to what is going on.
07-30-2012, 07:37 PM   #36
Avw
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No he didn't offer much explanation, and my GI just said it was a sign of my crohn's advancing out of control.

Kinda starting to worry about it though. I actually never felt any pain from the perianal horseshoe one, I've been feeling pain in my right cheek the entire time... but now I have strange, dull pain near my tailbone. Feels like when you have a broken tooth and the root is exposed. Except it's not a tooth, it's my spine. Eek!
08-01-2012, 08:04 AM   #37
joanik
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I need help....

I had 17 perianal abcess surgeries and 5 that drained on their own.. I had a seton drain installed for several months, hemmroids and fissures... This has been going on for about 10 years now... I have been tested for crohn's, IBS, pretty much everything related to this and docs don't know what's going on... I have blood in my BM every time. (not drops, large quantities) and am always in pain...

I have noticed a routine over the past years... I will heavily bleed with every BM then all of a sudden it stops and a abcess forms within a day or two... Gets drained and the process starts all over again...

Here is a list of things i've gone through:

17 Abcess Surgeries + (5 that drained by themselves)
6 colonoscopies
3 MRI
2 under anesthetics manual examinations
1 contrast x-ray (upper) through nose
1 contrast x-ray (lower)
2 endoscopies
1 fissure surgery
1 seton drain surgery (2 months)

Hemorrhoids during the whole time


Now the problem is that i got operated so many times at the same spot that my skin doesn't heal anymore... I basically have a permanent hole where the seton drain was... I can literaly see my muscle tissue in the hole (kinda discusting and painfull).

If anyone has anything, please let me know... I have top gastro docs looking after me and don't know what's going on.

Please help.
thanks

Last edited by joanik; 08-01-2012 at 09:29 AM.
08-01-2012, 09:15 AM   #38
joanik
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So yesterday was my fourth operation for abscesses within the last month. The first abscess (I believe he said it was the "horseshoe" kind), which still has a seton/drain, the surgeon went in to check on it while he had me in the operating room for abscess number three. He said the cavity of the original abscess is growing. Even though it's still draining and isn't filling back up with puss, the cavity is still expanding. Is this common, is it cause for concern, and is there anything that can be done about it??


I would ask your doc to do a MRI for a fistula...
10-24-2012, 04:13 PM   #39
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**Very Important**

Anyone experiencing a fistula please read this and take to heart. I had fistula for 18 months on my backside, one of the most morbid things I've ever experienced. I'm a very spiritually strong person and have endured a lot physically as I'm sure many of you have, but this was starting to weigh on me mentally. I had visited multiple GI doctors, and a surgeon who said it surgery wasn't even an option due to having it so long and its position. They had no answers for me and told me to expect to live that way for the rest of my life because they typically don't heal and if they do they reoccur. I was at the end of my rope and one night reading online and researching like I often do I discovered a miracle diet called the SCD Diet. After being on the diet it was completely healed in less than a month, God as my witness.

The specific carbohydrate diet is the best diet out there for IBS/Crohns Disease period. Take it from someone who has delt with a very progressive and early stage Crohns Disease for 14yrs. I went to one of the leading and most renowned places in the United States for Crohns and Colitis during a lot of my childhood (Cleveland Clinic), and even there they didn't focus on diet being a lead cause to symptoms, the speeding up of damage and autoimmune responses, and irregular bowel movements/internal and rectal bleeding (you should only be having 1 bowel movement in the morning with zero pain and no bleeding).

Make sure you all purchase and read this book Breaking the Vicious Cycle by: Elaine Gottschall, all the research was done for us to be learned and applied to our everyday diet for vast improvement. You can also google SCD Diet A-Z and get a solid list of what to and what not to eat if you'd wish to start the diet before the book arrives. This woman changed her career and became a biochemist and cell biologist to keep up studies for a Elderly New York GI doctor who passed away that she had visited with her daughter. He was doing extensive research with food and its correlation to IBS related diseases and she wanted to continue his research in hopes for her daughter who had Colitis and was looking at losing her colon potentially which thankfully didn't happen because of diet corrections. God bless Elaine, she has given me a entirely new outlook on life and I hope that every one of you who reads this goes to the website and reads about her Biography and all the information she put together to improve IBS diseases dramatically for everyone.

I'm currently 25 years old and of the 7-8+ GI doctors I've spoken with over the course of my years, and countless numbers of nurses, none of them even knew about it. It's a damn shame it is up to us to discover a lot of this stuff, but the blame cannot be placed entirely on the medical community because they don't live and experience the diseases like we do on a daily basis. That said, it doesn't excuse them for typically ignoring diet to the extent they do. I could go on all day, but the rest is up to ya'll please check out the website ***( I urge ya'll to google Elaine Gottschall and read all about her )***. One thing I would like to add as well is the diet must be followed to a T, if you're into cheating on diets or don't have the will power it won't be for you. We all have the will power within us though, best wishes and God bless you all. Jeff-
10-24-2012, 09:29 PM   #40
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Thanks for all of the information! I am on my 26th year with CD (diagnosed in 1986 at the age of 12). I have had one bowel resection in 2009 and have managed the disease fairly well. Recently, I have developed perianal abscesses. I have had to get it lanced twice in two weeks. That was an eye popping experience at the CR surgeon's office to say the least. It is always reassuring to hear from everyone on here, and to see what is working (or not working) as far as treatment and prevention (or mitigation). While this is a new "area" for me with Crohn's, it is just another hurdle. It was nice to tell my boss why I was out of work yesterday....Sorry dude, my ass fell off.
10-24-2012, 10:45 PM   #41
guitarjamie03
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I have a fistula going from my colon to my bladdar and I am not in any pain, nor do I feel like I have a UTI, but when I went for me routine blood work and urine sample a week ago my GI doc saw that I still have an infection. So I am on the cipro + flagl combo for the next four weeks and I have to go every Friday for a urine test for the next four weeks. I am beginning to wonder if it is time for surgery, or should I wait a little longer? I have also been on the Humira + Imuran combo since August. I can already tell a HUGE differnce with my fistula since I started my injections. Any thoughts?
10-25-2012, 01:34 PM   #42
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I guess it you're not having to many symptoms and that you feel there's been an improvement, it might be worth waiting a bit longer? If it's small, it could possibly heal up with the meds.
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10-25-2012, 01:39 PM   #43
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It must be small because I have never actually seen food particles pass, but I have seen mucus and other random things that should not be there. Guess I just need to be more patient. Thanks grumble!
10-25-2012, 06:43 PM   #44
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It's good that they are doing the urine tests. One of the reasons my consultant recommended surgery was that I was getting repeated UTIs and he was worried that this could lead to damage to my kidneys. I know intestinal fistulae are pretty hard to heal with meds, but you might be lucky.
12-20-2012, 07:08 PM   #45
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Hi Emily and a big warm welcome to the forum. I'm going to attempt to move your post to its own thread on this subforum, because I think you might not get many replies here on this sticky thread.
04-03-2013, 01:30 AM   #46
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Hi there,

Just to start off, huge thank-you to all who post on here! Comforting when something new happens.

I had never heard of Perianal abscesses before last week. Turns out what I thought was hemorrhoids, turned out to be a good size perianal abscess. I am sure others have had DVT's associated with Crohn's disease but I am on warfarin which always is out of control when Crohn's flairs up, so they would not lance the abscess until it my warfarin levels were good. It burst on its own the following day, and I get to see my gastro (appointment was made 6 months ago, so good timing on that) later this week. However I am concerned with the healing process, what do the abscesses feel like when they are healing? Mine isn't really shrinking anymore, while it is not painful, it is hardening, normal?

Thanks
Mike
04-03-2013, 11:17 AM   #47
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Hi Mike
And a very warm welcome to the forum. Glad you found us. I have copied your post into a thread of it's own ('New with abscess healing question' ) Sometimes posts that are tacked on to the end of this sticky get a bit overlooked.
04-14-2013, 03:10 PM   #48
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I just wanted to say that it is extremely important that if you have anal abscesses to see a colorectal specialist,I have had Crohn's for over 20 years and had so many abscesses over the years.Two years ago I developed anal cancer,the surgeon told me it was caused by all the abscesses I had over the years.I thank God I went to the specialist because the cancer was a stage 2,I went through chemo and radiation and the cancer is now gone.I do have other complications but thankfully not cancer.
04-14-2013, 06:45 PM   #49
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I'm sorry for what you've been through, Debbie but thank you for posting this and glad to hear that the cancer has gone.
04-22-2013, 06:37 PM   #50
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Has anyone had problems with enteroenteral fistulas showing up in scans? I was in soo much pain and scans showed nothing. After exploratory surgery they found enteroenteral fistulas between the ascending and transverse colon and from the ascending to the caecum.
04-24-2013, 07:36 AM   #51
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Has anyone had problems with enteroenteral fistulas showing up in scans? I was in soo much pain and scans showed nothing. After exploratory surgery they found enteroenteral fistulas between the ascending and transverse colon and from the ascending to the caecum.
That was me, only it was my small intestine. I did a small ball barium pass through in 15 minutes. The other scans showed nothing.
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05-03-2013, 11:54 PM   #52
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can you have abscesses from crohn's not in the anal area? Like on your stomach? I get them and they take forever to heal. Is this crohn's related? What should I use on them? I have been cleaning with peroxide and applying antibiotic ointment.Is this good ar bad?
05-04-2013, 01:03 AM   #53
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First thing that comes to mind are boils/skin abscess (very common with an impaired immune system so if not from Crohn's then definitely from certain medications used to treat Crohn's such as Prednisone and other immune suppressants) but have a look see at this as well just in case: http://www.mayoclinic.com/health/hid...rativa/DS00818

Here's info on treatment for boils: http://www.medicinenet.com/boils/page3.htm

If they are recurring then it would be good to have them cultured to see what you're actually dealing with so you can receive proper treatment. What has your doctor said about them?
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05-04-2013, 08:47 AM   #54
723crossroads
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First thing that comes to mind are boils/skin abscess (very common with an impaired immune system so if not from Crohn's then definitely from certain medications used to treat Crohn's such as Prednisone and other immune suppressants) but have a look see at this as well just in case: http://www.mayoclinic.com/health/hid...rativa/DS00818

Here's info on treatment for boils: http://www.medicinenet.com/boils/page3.htm

If they are recurring then it would be good to have them cultured to see what you're actually dealing with so you can receive proper treatment. What has your doctor said about them?
Dr said maybe a round of ANTIBIOTICS WOULD HELP. BUT, i DON'T WANT TO TAKE THEM AGAIN UNLESS i HAVE TO, YA KNOW?Sorry hit caps again. Thanks for your help Jen!
07-21-2013, 11:53 AM   #55
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thanks for info....I still have questions, but it is so nice to have found a place with answers from real people
07-21-2013, 12:03 PM   #56
Fosterfamily2303
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i had an absess between my vag and butt hole...Im sorry tmi. i am already on a lot of med for Ibd..so they gave me 2 weeks of cipro and flagyl and that seemed to help. it was gone but Im starting to see it come back. praying it dont get any larger or i am off to see wjat a surgeon thinks.
03-06-2014, 02:53 PM   #57
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Wow, this blog was amazing. I had surgery at the end of January and it ended up they had to remove to fistulas while they were doing a right colectomy. I never knew there were different kinds of fistulas. I now wish I would have asked the surgeon what kinds of fistulas they were. I will definitely be inquiring about this with my GI doc. Thanks for the great info about fistulas. :-)
05-16-2014, 12:21 PM   #58
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i didn't understand it at all can you make a simpler version (i'm 16).
07-01-2014, 01:22 PM   #59
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I have just had a huge anal abscess removed and am in recovery - as soon as I've recovered I'm having an op to remove a transsphincteric fistula ( goes through my inner and outer sphincter muscle )
Does anyone know anything about this type of fistula?
Anyone had the op?
Any advice?
Thanks xx
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Perennial Abscess diagnosed April 2014
MRI in June 2014 - Transphincteric Fistula aswell as the Abscess.
June 18th 2014 - Abscess removed under general anaesthetic .Wound packed and dressed daily for 8 weeks.
September 18th 2014 - Fistula "laid open" under general anaesthetic - wound packed and dressed daily for 6 weeks.
November 16th 2014 - As above.
April 28th 2015 - Seton placed under general anaesthetic . Leaking everything at present. Itchy. Sore.
12-04-2014, 03:19 PM   #60
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Thanks
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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Beginners guide to Fistulas and Abscesses
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