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07-12-2013, 05:39 PM   #1
upsetmom
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Backache

Do anyone's kids get backaches ?

My daughters has been complaining of a sore back...in the middle... on and off for about a year now. We've told the GI many times and they keep saying its from the inflammation. I took her to see my chiropractor a few months ago and he adjusted her spine but it never helped. Would it be a good idea to get an x ray...she just had a bone density test not long ago...I'm wondering would that have showed if anything was abnormal.
Also her knees keep getting sore too.

We just keep putting on cream and using a hot water bottle which helps for a little while.
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07-12-2013, 05:44 PM   #2
Johnnysmom
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My son has been complaining of the same thing for a while.

We were worried it was crohn's or medication related but then we got him a new mattress and that seemed to do the trick. He had his mattress since he was two so it was probably time for a new one. We figured it out when we stayed in a hotel room and after sleeping on that mattress his back felt great.
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07-12-2013, 06:05 PM   #3
my little penguin
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DS gets that ( plus other joints) his is crohn's related.
HIs rheum gave us back stretches for him to do.
it helps some.
here is a link to some range of motion exercises
http://www.dinf.ne.jp/doc/english/gl.../dwe00244.html

the rhuemo gave us ones like the link below

http://www.choc.org/orthopaedics/index.cfm?id=P00550

and it animates so you can really "See" how to do them
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07-12-2013, 06:47 PM   #4
upsetmom
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Johnnysmom l don't think it could her mattress as we've only had it 4 years. But come to think of it my son complains of a sore back too and he has the same mattress bought at the same time. Now you've got me thinking..

MLP... thanks
07-12-2013, 07:24 PM   #5
Tesscorm
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My son had backaches prior to diagnosis, GI said it may have been due to the intestinal inflammation?? For the most part, the backache went away once he began treatment and, now hasn't hurt at all in the past few months.. a year now??

When it was hurting, he used Tiger Balm ointment and found it give him quite a bit of relief. He also found stretching exercises and massage helped.
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07-12-2013, 09:25 PM   #6
ChampsMom
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Same thing here as JM's experience - except instead of buying a new mattress I bought a mattress cover (cushion)... so far, so good (crosses fingers, touch wood)...
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07-12-2013, 09:38 PM   #7
Jennifer
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Abdominal pain and inflammation can cause back pain. Its usually in the middle or lower back. You can try to relieve the pain with some of the methods listed above already (physical therapy, tiger balm, massage, heating pad or hot bath etc) yet getting the inflammation down and under control is what will stop the pain. Unless the pain is caused by arthritis (which is treatable with other medications). An x-ray should show if there's any arthritis going on in the spine or other joints (you mentioned knees as well).

I had physical therapy done on my back when I was a kid due to a lot of back pain and had tiger balm rubbed in every night. Those only helped temporarily and the pain only went away when I finally went into remission. My most recent flare caused a lot of abdominal pain and extreme back pain (I felt both abdominal and back pain in the middle). Once I had IV steroids both the pain in my abdomen and spine went away completely (I do have osteoarthritis in my spine but the pain caused by abdominal inflammation and swelling from gas build up feels different).
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07-12-2013, 10:06 PM   #8
jmckinley
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Rheumy checked out Ryan and told him he was too tight and needed to do stretches like MLP said. Now he has had some severe middle back pain, but that was with a flare.

One thing I noticed about him pre-dx is that he sat kind of hunched over with his arms crossed over his abdomen a lot. Posturing because of discomfort might cause back pain.
07-13-2013, 07:31 AM   #9
DustyKat
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Sarah suffered with back pain around her kidney region when she was undiagnosed but since being in remission I can only recall her complaining of it maybe once or twice and that was following the drive home from Sydney. The only other thing that springs to mind is that she does prefer a very firm bed so I'm not sure if that plays into it being because of back pain or not.

Matt occasionally suffers with lower back pain. Now bear with me while I waffle on!

This is something I hadn't given any thought to until very recently. When Matt was about 10, I think, he was diagnosed with Sever's Disease and then about a year after that he developed right knee pain that was characterised by a very noticeable lump under his knee and was diagnosed with Osgood Schlatter's Disease. At the same time all this was happening he complained of right hip and lower back pain and it was put down to being a flow on effect from the knee. Given time it did resolve.

Anyway, as you likely know Matt was diagnosed super quick and with very few symptoms indeed and his disease was rated as mild to very mild. In the 6 months following diagnosis Matt had numerous scans done but one in particular made a comment that at the time I didn't give a lot of thought to and it is only of late that I have pulled the report out again.
It was from the sinogram he had about 6 weeks post diagnosis and this is what it said:

There is irregularity of several regions of the sacroiliac articular surfaces, raising the possibility of early erosive arthropathy.
Now if this is indeed the case then I can't see that it would have happened in 6 weeks. So either it had been present asymptomatically for some time in the lead up to diagnosis or was it like most of the EIM's and present for quite some time before the intestinal symptoms became apparent. Was what he was experiencing for quite a period of time as an 11/12 year old sacroilitis that subsequently went into remission? Hmmmmm....

Dusty. xxx
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07-13-2013, 08:04 AM   #10
CrohnsKidMom
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Pre-dx my son complained of a lot of middle back pain, knee pain, and other various joint and bone pain. Now on meds, the back pain seems to have resolved, the knee pain is diminished, but he still gets occasional aches and pains in his joints all over. Currently his L heel is really bothering him. Gel insoles in his shoes has helped a bit. Our poor kids!!!
07-13-2013, 08:12 AM   #11
DustyKat
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I should mention that I don't doubt his diagnoses of both Sever's and Osgood Schlatter's Disease as he did fit both the demographic and lifestyle. That being a male, child/adolescent and athletic.

Dusty.
07-14-2013, 04:31 PM   #12
upsetmom
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We had a bad day yesterday.

Last day of school holidays so l decided to take her shopping to Sydney ( just over an hour drive ). It was lunch time when we got there so we had something to eat and then went shopping. Not even 15 mins and she had so much pain in her stomach that she couldn't walk. I gave her some Panadol and we sat down for a while. She was still in pain half an hour later so we come home.....on the drive back i kept asking her questions ...about this pain...had it happened before...For the last few weeks every time she eats she gets pain but this was the worst that had happened.. This was the first time i had heard of it . ..This might seem like a stupid question but do i contact the nurse...Shes had pain after eating before but all they did was a blood and stool test and said everything was alright...Now l'm convinced her backache has something to do with her crohn's
07-14-2013, 05:43 PM   #13
Jennifer
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I'd contact the GI and let them know. An MRI or CT scan would be good (CT scans do give off a lot of radiation so try to limit them if possible yet the procedure is quick so its a toss up) to see what's going on inside. Pain after eating usually points to a narrowing/stricture (could be inflammation or scar tissue or both) somewhere in the GI tract.
07-14-2013, 06:17 PM   #14
my little penguin
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I second the call to the Gi
Any new symptoms I let them know
But hey I call at least once a week
07-14-2013, 06:44 PM   #15
upsetmom
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I've sent an e-mail to the nurse.
07-14-2013, 06:52 PM   #16
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My son hasn't complained of back pain yet, but he occasionally has pain in his fingers and ankles.
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07-14-2013, 07:39 PM   #17
crohnsinct
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I am glad you contacted them. I would also but I am like MLP. I think they got caller ID after they got O as a patient The way I figure, a call doesn't hurt anyone but a missed call could potentially cause something to be missed.

As for pain, O frequently had knee pain prior to dx but we put it down to breast stroke kick and overuse and awkward movement. Once treated for Crohns, knee pain went away. She did have back pain surface but chiro took care of that. I would think if it were a mattress problem chiro would make it feel better even if only temporarily. Our GI takes all joint and back pain reports pretty seriously. Doesn't panic but does perk up and say, "hmmm".

Good luck. Let us know what GI says.
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07-14-2013, 07:45 PM   #18
723crossroads
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My son had backaches prior to diagnosis, GI said it may have been due to the intestinal inflammation?? For the most part, the backache went away once he began treatment and, now hasn't hurt at all in the past few months.. a year now??

When it was hurting, he used Tiger Balm ointment and found it give him quite a bit of relief. He also found stretching exercises and massage helped.
Be careful though, that tiger balm burns people with sensitive skin. I found out the hard way.
07-14-2013, 08:04 PM   #19
Tesscorm
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Glad you contacted the nurse as well. I agree, it doesn't hurt to let them know what's going on.

And, yes, good point re the Tiger Balm. The ointment never bothered Stephen when he used it before/after hockey or just when his back was sore, HOWEVER, it did cause him a fair bit of discomfort when he once put it on immediately following a hot shower! I guess the shower had opened his pores, or his skin was sensitive from the heat but it did burn for a while! He also found out the hard way! I should've mentioned that before!
07-15-2013, 03:48 AM   #20
upsetmom
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The nurse got back to me asking if she was on Ozmerperole (?) and if she was getting nausea. She said she'll talk to the DR and get back to me.

My daughters not feeling too good today. She's had a fever and been really tired and has no appetite. I'm just hoping she's coming down with the flu.

I did buy some Tiger Balm....it does sting a little bit but it is helping.
07-15-2013, 06:11 AM   #21
DustyKat
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Ugh, so sorry to hear about yesterday and today.

Good to hear you have made contact and I hope they get back to again ASAP! Do they know about the fever?

The medication would be Omeprazole, it is a PPI.

Thinking of you!

Dusty. xxx

Last edited by DustyKat; 07-15-2013 at 07:04 AM.
07-15-2013, 06:55 AM   #22
upsetmom
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She's definitely getting the flu. She started to get a runny nose and sore throat.

Dusty when l emailed the nurse l never realized she had a fever.
The med she asked about was a PPI...It sounds like she thinks its an acid problem.

Hopefully she gets back to me tomorrow.
07-15-2013, 07:07 AM   #23
DustyKat
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Poor love.

Ah okay, I thought you mightn't have known.

I hope she does too! I would give her to 2pm and then ring her.

Dusty. xxx
07-15-2013, 03:41 PM   #24
crohnsinct
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Weird...my friend just told me that she was recently put on Omeprazole and it made her very nauseous. She called her doc and she said that nausea is a side effect. Who knew?!

Wish it was a simple as coming off a PPI and not the flu but we will take flu over flare any day. Hope it all passes quickly.
07-15-2013, 03:53 PM   #25
upsetmom
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I should have mentioned my daughter has never taken a PPI. A few times they've tried to put her on them but l wasn't convinced it was an acid problem. It was when she was getting stabbing chest pain.
07-15-2013, 07:47 PM   #26
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Ozmerperole is what I was put on a week before I went to the ER for a partial obstruction. Methotrexate does seem to increase my acid reflux but sometimes those symptoms can be caused by other things (such as a narrowing in the intestines). Hope its just the flu (no one wants that either but better than something worse). Either way stay on top of it like you've been doing.
07-16-2013, 02:55 AM   #27
upsetmom
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DR wants blood test done.

As she has come down with the flu would this change anything on the blood test ?
07-16-2013, 05:09 AM   #28
DustyKat
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What blood test upsetmom?

Dusty. xxx
07-16-2013, 05:20 AM   #29
upsetmom
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She told me to use the form that we have at home.

B12 / Folate / Zinc / UEC / CUP ?
FBC / ESR / CRP /LFT /IRON STUDIES
Vitamin D / PTH / TGN / 6MMP
07-16-2013, 05:46 AM   #30
DustyKat
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B12 - No
Folate - No
Zinc - No
UEC - No
CUP? - CCP? It is a test for a Rheumatoid antibody - No
FBC - Yes, it may affect the White Cell Count.
ESR - Yes, if inflammation is present.
CRP - Yes, if inflammation is present.
LFT - No
IRON STUDIES - No
Vitamin D - No
PTH - No
TGN - No
6MMP - No

Dusty.
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