Hi all
I have been on 6MP for around 3 months now and I am really struggling (1.5 months of 25mg and 1.5 months on 50mg). I am suffering from extreme exhaustion (maintaining a social life around full time work is impossible) and my symptoms are no better. My bowel frequency is just as bad as it was before 6MP and I am taking more imodium than ever - daily (plus codiene which is supposed to make you constipated!).
In all honesty I feel like I want to come off the drug because I feel it is doing me more harm than good. I know it takes a while to work but I thought I would at least see some improvement by now? I have been tapering down my Entocort too.. now on 3mg daily.
Can I just stop taking 6MP suddenly?
My NHS IBD service is useless and my GP has asked for them to see my urgently (I was seeing someone privately but my GP refused to prescribe me the drug and maintains I need to stay in the NHS). I feel like I have lost all my support and noone can help me.
Has anyone else had any similar problems on 6MP? I am so exhausted I come home from work and sleep and I am getting bored and fed up of feeling so crap all the time. Part of me has also considered reducing my hours at work (has anyone done this?) but part of me feels that I will probably feel just as rubbish anyway.
Any advice would be greatly appreciated. I think the hardest thing is knowing that if I come off it there may be no other options (I didnt get on with Azathriprine)... but it feels so bad I would rather suffer my symptoms without the exhaustion than suffer with the exhaustion on this drug.
Thanks guys
So fed up now!
M xx
I have been on 6MP for around 3 months now and I am really struggling (1.5 months of 25mg and 1.5 months on 50mg). I am suffering from extreme exhaustion (maintaining a social life around full time work is impossible) and my symptoms are no better. My bowel frequency is just as bad as it was before 6MP and I am taking more imodium than ever - daily (plus codiene which is supposed to make you constipated!).
In all honesty I feel like I want to come off the drug because I feel it is doing me more harm than good. I know it takes a while to work but I thought I would at least see some improvement by now? I have been tapering down my Entocort too.. now on 3mg daily.
Can I just stop taking 6MP suddenly?
My NHS IBD service is useless and my GP has asked for them to see my urgently (I was seeing someone privately but my GP refused to prescribe me the drug and maintains I need to stay in the NHS). I feel like I have lost all my support and noone can help me.
Has anyone else had any similar problems on 6MP? I am so exhausted I come home from work and sleep and I am getting bored and fed up of feeling so crap all the time. Part of me has also considered reducing my hours at work (has anyone done this?) but part of me feels that I will probably feel just as rubbish anyway.
Any advice would be greatly appreciated. I think the hardest thing is knowing that if I come off it there may be no other options (I didnt get on with Azathriprine)... but it feels so bad I would rather suffer my symptoms without the exhaustion than suffer with the exhaustion on this drug.
Thanks guys
So fed up now!
M xx