ok im new to this..first of all i will tell my story.. in 2011 i became very ill.. thought i had stomach flu,, turned out i have crohns , i was placed on the surgery list since i have a foot and a half of my small intestine ulcered and blocked, but my GI decided to start me on Remicadee.. it worked perfectly along with the lovely prednizone (nasty drug) but about 6 months after treatment i started with joint pain.. my knees mostly.. and now 2 years later of treatments every 6 weeks.. i am in so much pain.. my joints are sore.. i can barely walk on some days the swelling and pain in my feet is crazy.. i wear slippers at work.. but it is getting worse and worse.. i dont know what to do anymore.. yesterday was my worse episode.. i was sitting there watching tv and felt a tightness on my forehead. so i passed my hand and omg here is a huge bump felt like a bump that would be cause if i banged my head and hurt just like a bruise. but i didnt hit my head.. so i panicked. went to see my family physician and she says nothing to worry about.. it is not red.. helloooo it is swelling on my head.. what next?.. , i think the remecaide is doing havoc on my body and i cant handle this anymore.. there is days where i get home from work and lay in my bed and cry with pain.. i am 42 yrs old and walk around like i am 82.. i am so tired.. i was a very active person, and the only thing i can do now is barely go to work , and come home and lay there and pray for no pain..
i wish for one day to have no pain at all.. my crohns is fine.. but the price i pay for Remicadee and then suffer and lose out on the quality of life.. i used to hike and go to the gym ,, now i can barely get up off the floor if i get down on my knees..
the joint pain and swelling moves around from body part to body part.. feet, ankles , knees. elbows , shoulders and wrists. oh and the lovely swelling of the fingers.. i cant take this anymore..
i wish for one day to have no pain at all.. my crohns is fine.. but the price i pay for Remicadee and then suffer and lose out on the quality of life.. i used to hike and go to the gym ,, now i can barely get up off the floor if i get down on my knees..
the joint pain and swelling moves around from body part to body part.. feet, ankles , knees. elbows , shoulders and wrists. oh and the lovely swelling of the fingers.. i cant take this anymore..