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10-25-2013, 05:48 AM   #1
Dreamer
 
Join Date: Oct 2013
Afraid of misdiagnosis - please help

My partner is having excruciating pain like his intestine is going to explode, bleeding and having water come out "its not really stool, its just water". He is in the ER for 13 hours now and he is gonna be there till the next day. They don't know whats going on, the tests and blood work are not showing anything and the rectoscopy they did was not clear so they couldn't see what was wrong. I am really afraid that they will misdiagnose him or want part of his digestive system removed. Did anyone else experience the same episodes in one day? and what it is exactly? He has Crohn's for about 4 years now.
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Last edited by Dreamer; 10-25-2013 at 04:46 PM.
10-27-2013, 11:31 PM   #2
SarahBear
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I'm sorry to hear what you two have been dealing with, Dreamer.

Have they released him or been able to figure anything out?
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10-27-2013, 11:49 PM   #3
Jennifer
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Sorry for the late reply Dreamer. How is he doing now? Was it an obstruction? Did they do a CT scan?
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
10-28-2013, 12:08 AM   #4
nogutsnoglory
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It sounds like he had an obstruction. I hope everything is ok that sounds miserable.
10-28-2013, 08:00 PM   #5
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Thank you everyone for the replay. After 28 hours in the hospital, the GI said it was an obstruction and now he is put back on steroids.

Last edited by Dreamer; 10-28-2013 at 09:08 PM.
10-28-2013, 08:28 PM   #6
nogutsnoglory
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I'm assuming a partial that didn't involve surgery and resolved? Glad it's worked out.
10-28-2013, 08:30 PM   #7
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I'm assuming a partial that didn't involve surgery and resolved? Glad it's worked out.
Yes I am so thankful it didn't require surgery, he is at home recovering. Thank you for your concern.

Wishing you well.
10-28-2013, 09:03 PM   #8
Jennifer
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Thank you for the update Dreamer. Hope the steroids help get the inflammation under control and that he starts feeling better.
10-28-2013, 09:06 PM   #9
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Thank you for the update Dreamer. Hope the steroids help get the inflammation under control and that he starts feeling better.
Thank you so much. I haven't met so many wonderful people in one place! Wishing you all the best.
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