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11-02-2013, 03:02 PM   #1
Jison0612
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Constipation!!

So I was diagnosed with Crohn's cause I couldn't poop and still to this day I have trouble havering a successful bm I'm a 28 year old male that weighs 230 so I love to eat!!! I get so backed up that my back hurts and I get so full it's hard to breathe sometimes!! Anybody have this issue with Crohn's and if so whats a good way to fix this issue I drink a glass of mucil a day but it's only doing so much. Help!!!!
11-03-2013, 09:05 AM   #2
Shirl
 
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Hi Jison.
I too get very constipated, my consultant prescribed me 3 movicol a day. That seems to keep things moving
11-03-2013, 10:03 AM   #3
HorseLover!!
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Hi Jison.
I too get very constipated, my consultant prescribed me 3 movicol a day. That seems to keep things moving
That's what my consultant prescribed me as well it really does keep things moving
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Had my first Colonoscopy and Endoscopy at age 2 1/2 years old

Diagnosed with Crohn's in 1998 when I turned 3

19 Years and counting with Crohn's!

Previous: Prednisolone and Pentasa slow release, Had tube feeding at age 3, Azathioprine

Currently in a flare but not taking any medication because doctor hasn't bothered to prescribe anything

My HORSE is not just a HORSE, he is my SANITY, my HAPPINESS, my THERAPIST and my BEST FRIEND


11-03-2013, 03:05 PM   #4
bubbleshdrn
 
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Hi Jison,
I too have this problem. I started on Amitiza about 9-10 months ago. Low dose at first 8 mcg 2 times daily. I initially saw GI doctor because I had IBD-constipation. I likely have had Crohn's for the past year but end of August, I had a severe flare. My intestines haven't worked the same since. I am now taking 24 mcg 2 times daily. It is working better at the higher dose. I also use Miralax and docusate. I'm not sure we have Movicol here in the United States. I googled it and it's made in the UK. On Amazon but is a little pricey.

When I got told I had Crohn's, I was so hopeful my days of laxatives were over. It hasn't been the same since the end of August. Poop isn't moving out of my colon. I've had to use Fleets enemas 1-2 times a week but I think the increase in Amitiza dosing is helping. My new GI doctor also brought up colonic inertia.
11-03-2013, 10:08 PM   #5
my little penguin
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DS has a similar issue with constipation and crohn's.
I can say when he is on the right Ibd meds for crohn's then his constipation issues really decrease as does the need for miralax .

Lots of juice plus fruits with "p"
Pears
Prunes
Plums
Etc ... Keep things moving
Plus lots and lots of water
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12-16-2013, 09:01 AM   #6
Naturelover
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So I was diagnosed with Crohn's cause I couldn't poop and still to this day I have trouble havering a successful bm
What test did the doc run to discover you have crohn's w/constipation?
12-16-2013, 09:04 AM   #7
Naturelover
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Hi Jison.
I too get very constipated, my consultant prescribed me 3 movicol a day. That seems to keep things moving
Do you happen to know what name the product is sold as in the US. I have discovered that the same medication can have multiple names. It just depends on the name your country gives it.

What is the main ingredient in movicol? This might help those of us in the US figure out what the US name of the movicol product is.

Many thanks,
Naturelover
12-16-2013, 09:06 AM   #8
Naturelover
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Hi Jison,
I too have this problem. I started on Amitiza about 9-10 months ago. Low dose at first 8 mcg 2 times daily. I initially saw GI doctor because I had IBD-constipation. I likely have had Crohn's for the past year but end of August, I had a severe flare. My intestines haven't worked the same since. I am now taking 24 mcg 2 times daily. It is working better at the higher dose. I also use Miralax and docusate. I'm not sure we have Movicol here in the United States. I googled it and it's made in the UK. On Amazon but is a little pricey.

When I got told I had Crohn's, I was so hopeful my days of laxatives were over. It hasn't been the same since the end of August. Poop isn't moving out of my colon. I've had to use Fleets enemas 1-2 times a week but I think the increase in Amitiza dosing is helping. My new GI doctor also brought up colonic inertia.

What test did the doc run to dx IBD w/constipation.?
12-16-2013, 09:21 AM   #9
Naturelover
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Thank you to everyone in this thread for sharing about constipation with IBD & Crohn's. I have severe constipation with a ton of other symptoms such as severe dry eyes, GERD, gastritis, esophugitis, colonic dysmotility (verified by Sitzmarker test), doc said possibly some delayed gastric emptying, dry skin, yada, yada, yada. I have pain in my abdomen not only where the large colon is but where the small intestine is as well. My new GI doc said he would do a colonoscopy but not with biopsy and not right now? HUH? He said we just have to find the right combination of Rx for the constipation. So I am now on 290mcg of Linzess, 3 tabs of Senekot three times a day plus if still no BM then take 2 pills of Bisacodyl USP 5mg every other day and if that doesn't do the trick, I was told to drink one glass of Golytely.

Any help woul be appreciated. Thanks.

Blessings,
Naturelover
I just want to
12-16-2013, 01:40 PM   #10
Shirl
 
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Location: Blackpool, United Kingdom
Hi Naturelover hope this is helpful, not sure what it is called in USA

Movicol

Main use Constipation
Active ingredient Macrogol (polyethylene glycol '3350'), sodium bicarbonate, sodium chloride, potassium chloride
Manufacturer Norgine

Shirl
12-16-2013, 04:35 PM   #11
mccindy
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I use psyllium husks (2 tbsp with oj 2x daily), and take docusate sodium (4 of them 2x daily). IF I still don't go for a couple days I take an overnight Ducolax. Usually a couple of times per week. I remain undiagnosed as my GI doesn't think I have Crohn's. I was diagnosed with it in 1995 but after a colonoscopy this year the new GI took the diagnosis away. He thinks I have IBS-constipation with multiple food intolerances.
What I've found is diet is very key to maintaining less pain and keeping things moving better. I'm gluten- and dairy-intolerant and avoid legumes, corn, corn syrup and gas-producing veggies and fruits. I also avoid beef as that tends to constipate me pretty well also.
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current diagnosis is undiagnosed (possible Celiac disease)

Colonoscopy done August 2013, no evidence of Crohn's seen, biopsies done and one polyp removed.
Polyp is precancerous adenoma

(Diagnosed with a diffuse astrocytoma (brain tumor) 5/31/13.
Craniotomy with tumor resection performed July 2013. 99% of WHO grade II diffuse astrocytoma removed, MRI scheduled every 6 months to monitor for regrowth.)
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