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Crohn's Disease Forum » Surgery » Stoma Subforum » 6 Months Post Op, Symptoms


11-30-2013, 05:33 PM   #1
guest78
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6 Months Post Op, Symptoms

Hi everyone,
So it will be 6months on Dec 6th that I have had my ileostomy, Margaret.
I am currently having these symptoms:

- passing bloody mucous / soft stool like stuff. - x2/x3 a week
- stomach cramps
- a bit of bloating
- extremely loud stomach noises
- crohns related arthritic knee is sore

What do you guys think is happening? a flare?
I last had bloods a 4-5 weeks ago and my inflammatory markers were down
However, in the past 3 weeks or so I have been under a huge amount of stress, my 4 year relationship has ended and I am in final year of my degree.

Any thoughts would be great? as I am not sure what to do and need a bit of support.
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11-30-2013, 06:18 PM   #2
VeganOstomy
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Have you spoken to your GI about this? I'd hate to guess as to what's going on without a professionals opinion.

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11-30-2013, 06:30 PM   #3
guest78
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I haven't no, I'm not due to see her until feb/march time, as I only saw her a month ago. Have emailed nurse but no reply as yet x
11-30-2013, 06:32 PM   #4
VeganOstomy
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I haven't no, I'm not due to see her until feb/march time, as I only saw her a month ago. Have emailed nurse but no reply as yet x
Hopefully your nurse will offer you some guidance. Good luck. I hope you're able to sort this out quickly.

11-30-2013, 07:53 PM   #5
Nyx
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Are you on any sort of maintenance meds?
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11-30-2013, 08:10 PM   #6
guest78
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Humira every two weeks
& 125mg of aza
X
11-30-2013, 08:26 PM   #7
Nyx
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Hmmmm...symptoms of a flare sound kind of unlikely then. But, I definitely could be wrong. Sorry I haven't been more helpful! I think managing your stress would probably help immensely, but I know that saying that is much easier than doing it. I hope you hear from your GI soon and get in and find out what's going on. Good luck! Keep us posted...
12-02-2013, 07:01 AM   #8
2thFairy
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The bloody mucus is concerning to me. I hope you will be able to see someone soon or at least get feedback from your nurse that you feel is solid advice.
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12-02-2013, 02:16 PM   #9
nogutsnoglory
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I agree, the blood is concerning. The stoma is delicate and can bleed a little and be totally normal but if you are seeing a significant amount coupled with mucus that is alarming. I hope your GI or ostomy nurse will be able to provide some answers.

Is your wafer cut wide enough for your stoma to move around properly?
12-02-2013, 02:17 PM   #10
guest78
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Ah sorry, the mucous/blood is passing from my bottom, not Stoma
12-02-2013, 02:21 PM   #11
nogutsnoglory
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Do you have any setons in place? I pass A LOT of mucus from my bottom and when i pat with tissue I get some blood but I have setons.

Mucus that isn't an odd color is normal but any significant blood is not. Either way I think it is important to mention.
12-02-2013, 02:32 PM   #12
guest78
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No I don't have any setons.
I'm going to re email and see if I can get an answer this time!
12-02-2013, 03:19 PM   #13
2thFairy
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I am disease free, but do pass blood-tinged mucus from time to time. However, my small intestines are directly connected to just a teeny bit of remaining rectum and I have been told that blood-tinged mucus is still normal since the small bowel bleeds easily same as what you might see with a stoma...."tinged" being the acceptable level.

Passing straight out bloody mucus sounds like a flare to me.
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