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12-07-2013, 01:28 AM   #31
Sparkle2012
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My B-12 is good!!

Curcumin (turmeric) helps my joints. It's a spice but it works.
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Chronic Stomach pain, Gerd, Anemia. Rosacea, Migraines, Skin Issues
Longterm Prilosec/Antibiotics
Chronic C&D, blockages
Doc:"chubby=not Crohns"
GI #1: Pillcam, DX Crohns Humira ordered
GI#2: NOT Crohns; cancel Humira. pillcam stuck X6 wks! RX Entacort!
11/2012 ER SM bowel stricture resection/GB
GI#3: End Entacort. RX Pentasa! Flu symptoms. joint pain follow-neg RA
4/2013 Prometheus Positive/Crohns
Markers flat post surgery
Chronic Arthritis
No Crohns symptoms
On Pentasa
12-07-2013, 04:30 AM   #32
PVail
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Hi tummygirl

Ive had pain in the wrists and hands for a couple of years now. Found out that taking Asacol can cause this ans i agree that since been on it Ive had these pains and tingling in the arms . Now i have discovered that im loosing more water and need to keep more hydrated than i thought . This has made a difference in the waking up tingling and numb feeling .
But in general the main improvement has come i two ways . I started to wear copper wrist bands ( advised by a long term sufferer of arthritis) and to be honest they do work. All i can say is try it and give it a few days. the second thing was regular mild stretching like a gentle yoga . this will improve your blood circulation greatly and I can not stress enough how much this will both aid digestion and improve the flexibility of your joints. This is not a quick fix but I would not go back to how I was last year. Joint pain is part of getting older as well as IBD .You've got to face this head on i believe and take steps to improve your general fittness as it will not only help these issues but it will also make you stronger and more able to tolerate the general daily grind with IBD.
I dont mean to preach but you can overcome the joint pain it just takes some time and you will see an improvement.

Good luck
Peter
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DX March 2012 IBD - Inflammation of the Terminal Ileum with inflammed appendix
Asacol 800mg 4 x day
Amitriptyline 50mg
Omeprazole 20 mg when needed.
12-07-2013, 07:31 AM   #33
Sparkle2012
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Hi tummygirl

Ive had pain in the wrists and
I dont mean to preach but you can overcome the joint pain it just takes some time and you will see an improvement.

Good luck
Peter
Well Peter that post has given me a lift. I have been doing some yoga but not often. I've always heard about the copper - thought it was a myth. I will definitely try that. I don't care a fig about the pain, but I don't want distorted joints and for that matter was considering Humira. I will tell you that Circumun Turmeric spice derrivative) has given me noticeable relief when I decide to take it. I'll recommend that one to you.

Can you tell me, the joint pain you had 2 years ago and the joint pain you have now -- how has it improved with yoga and copper? Is it well improved?

Good luck to you Tummygirl on your issues!
12-07-2013, 07:41 AM   #34
Sparkle2012
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just wondering if your on prednisone? i developed osteoarthritis in my knees from long term pred use. also my gi doc told me arthritis can be developed from this wonderful illness. going for a bone density scan next week.
Mine started after 3 months of Entacort. I tapered off...started Pentasa...and woke up one morning feeling like I had a bad flu-- hard to walk and move due to joint pain. It never completely left me. Now my hands are the worst part and it has increased the osteo in my right old injury knee. Also ankles feel sprained some days and I have to watch or I will hit the pavement.

I have considered going off Pentasa to see if the joint pain goes away......I have no Crohns issues after surgery. Also, I'm taking Circumin and it definitely makes a difference in the way my joints feel. Pain is diminished.
12-07-2013, 07:51 AM   #35
PVail
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Mine started after 3 months of Entacort. I tapered off...started Pentasa...and woke up one morning feeling like I had a bad flu-- hard to walk and move due to joint pain. It never completely left me. Now my hands are the worst part and it has increased the osteo in my right old injury knee. Also ankles feel sprained some days and I have to watch or I will hit the pavement.

I have considered going off Pentasa to see if the joint pain goes away......I have no Crohns issues after surgery. Also, I'm taking Circumin and it definitely makes a difference in the way my joints feel. Pain is diminished.
The pain i had was in my ankles and wrists. Across my back was bad and found out that this was caused by spasms in my bowel. The wrist pain has gone now completely. I cycle regularly and take it quite seriously . the focus and concentration certainly help too. The yoga if you do it everyday really helps and lessens the intake of painkillers to be honest.
I still get real bad days but i know its all inside and not mush i can do with that but the joints i feel are in a much better place . i will certainly try the tumeric too.

Cheers Peter
12-07-2013, 09:07 AM   #36
Sparkle2012
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Thanks Peter. Good luck with the Curcumin (turmeric)-- let me know how you do with it. I notice it when I don't take it.
12-09-2013, 04:27 PM   #37
mish2575
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Hi tummygirl

Ive had pain in the wrists and hands for a couple of years now. Found out that taking Asacol can cause this ans i agree that since been on it Ive had these pains and tingling in the arms .


Good luck
Peter
Funny. This shows how everyone is different. I've been on Asacol for 15 years with absolutely no signs. I thought it was actually pretty harmless.
12-09-2013, 04:57 PM   #38
Sparkle2012
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Pentasa is supposed to be on the low end of the medicine scale....but it gave me the arthritis....either that or the steroid withdrawal. Maybe both. You never know how something is going to sit with you personally do you?
12-10-2013, 12:51 AM   #39
haakjess
 
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The Mayo clinic team thing sounds good to me. I just feel like no one thinks or discusses me as a patient and my pain as soon as I walk out the door "NEXT!" Lately it has been bad wrist and horrible knees. When I bend down, I need to use my hands to push me up again and it kills every time. My husband has admitted he is sick of hearing me say ouch. I am just having a hard time graasping the fact that it is GI IBD Arthritis. After 3 years I had a blood test confirm Humira was no longer working. I am off everything for Crohns. I have had a colonoscopy and endoscopy, getting ready to do a pill cam, and my intestines show s
old crohns scarring and microscopic colitis, no biggie right! Now the beautiful rectal prolapse has invited my vagina to the party as well. I freaked and the nurse said she thought there would be surgery in the future and would have my doc call me first thing Monday. No call of course. Ugh. I am very afraid of that kind of surgery. I havent done any research on it but I don't like the sound of them tieing things up in there. I think I blame the prolapse on part Crohns and part hysterectomy last October and 3 babies all vaginally delivered. Anyone have any experience in this? Thanks as always for letting me vent. Can't really vent as much as I would like to. Husband can only hear so much. He worries for me too much and we do have 7, 9, and 19mth old wonderful children that need mommy to be at her best while daddy travels for work.
01-20-2014, 05:53 PM   #40
haakjess
 
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Just an update. I was complaining about the numbness in hands and arms and my GI doc said it could be the Humira not working anymore. He said you get "Lupus-like" symptoms when the Humira stops working. They set up a phlebotomist to come to my house and take my blood to check for anti-ANAs or something like that. Please donnt quote me on that, Im not 100% sure that's what they called it. Anyway, turns out my body was NOT accepting the Humira anymore so they took me off of it. I notice no big difference and my joint pain that I had been complaining about for 6 months 3 years ago and 4 months this summer just went away on it's own. I don't think the Humira did a bit of good for my joint pain at all. So, I guess what I am trying to tell you guys is if you are on Humira and getting Lupus-like symptoms then get your blood checked to see if the stuff is helping or harming.
08-02-2014, 02:49 PM   #41
Glenlava
 
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Hi all. I have been having bad joint pain and numbness in my hands, too. I have Crohn's and have been taking Humira for about three months now. Just wondering if anybody checked out Rheumatoid Arthritis as a possible reason for the symptoms.
08-02-2014, 07:53 PM   #42
Sparkle2012
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I developed arthritis after coming off steroids and starting Pentasa. Not sure which triggered it. I was tested for Rheumatoid Arthritis and it was negative. Add trigger finger on ring and pinky fingers of both hands....and a ring finger that is rotating and moving towards the middle finger....my arthritis is mostly in hands, wrists and knees. I take the spice turmeric (pill = Curcumin) and that has helped my hands considerably. I notice it when I do not take it. I had Synovisc injections in my knee which has helped lots. It has not been helpful to gain 30 lbs since taking the steroids which is bad for arthritis. Working on that. My Crohns is in remission, inflamation markers are all flat....for 2 years since surgery.....although I take 4 Pentasa tabs a day and will stay on that regimen just to be safe. I think the steroid withdrawal triggered this...Pentasa has been known to cause joint pain too. My physician said "the people on Humira love it because their joints don't hurt any more and they feel great." Aren't we all different??
09-15-2014, 12:23 PM   #43
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I am having a bit of joint pain in general; but it especially bad in my fingers.

My arms seem to 'fall asleep' (go numb) several times in a night, probably because I'm a side-sleeper. When I get up in the morning, I waddle because my knees and hips are stiff.

But, what seems odd to me is that I've also noticed that in the middle of the night, or first thing in the morning, my fingers feel frozen and I can barely make a fist. They feel very, very sore. It goes away for the most part during the day, and then comes back in the evening. During the day, I have noticed my hands in general are weak (I can't get bottle caps off easily, or open packages... that sort of thing). I've told Dr.s and they all say it could be a bunch of things.... but don't seem to worry about it...

Anyone else dealing with finger pain?
Yes - the exact same pain. It's sporadic, but really inhibits my ability to use my hands.
09-16-2014, 05:52 PM   #44
my little penguin
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Laughngirl
Have you seen a rheumatologist ?
If you are having problems with have function- highly recommend seeing one.
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09-17-2014, 11:02 AM   #45
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Hi My little Penguin, I haven't, however, my PCA tested me for RA and it was negative. I've been diagnosed with osteoarthritis in my knees, but that's it. Do you think a rheumatologist would be more helpful? Thanks!
09-17-2014, 11:07 AM   #46
my little penguin
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Yes Rheumo handles lots of issues that come with Ibd including joints.
Most SpA is negative for RA

See here
http://www.spondylitis.org/about/

DS has The kiddie version. Of SpA associated with Ibd in his hands .
It runs independant of his GI activity .
Good luck
09-17-2014, 11:17 AM   #47
Laughngirl
 
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my little penguin- Thank you so much for the link! I don't have to read it right now, but can't wait to learn!
11-07-2014, 08:20 PM   #48
djj
 
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B12 can be a problem. Low levels of the minerals magnesium and potassium are associated with muscle and neurological problems. Low levels from lots of diarrhea or bowel resection common but not every doctor checks. Not all joint pain is arthritis. My hands were so painful that it was impossible to get dressed. Better now. Blood tests for mg and potassium are easy and should be done before referral to rheumatic specialist. Ask you doctor.
01-22-2015, 04:44 AM   #49
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I get the numbness in my fingers. It's tended to be in my left hand but recently my right hand has joined the party. Strange how most people on here have it in their little finger & ring finger. Logic would suggest it's some kind of nerve-related issue but there's not much logic in IBD, is there?

I must confess that, being a teacher & a musician, the numbness does worry me a bit.
02-04-2015, 11:42 AM   #50
DEmberton
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I've had a few problems like this recently. I have some wrist braces that do help and especially if I wear them at night. So if you have hand pain and numbness in the morning it could be worth a try. Stretching exercises also helped me a lot.
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02-06-2015, 04:12 PM   #51
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Have joint pain hands and wrists and feet and toes,toes are worst keep me awake as I can't get comfortable to sleep and quite painful at times.
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