Share Facebook
Crohn's Disease Forum » Your Story » Success Stories » My story with Crohn's & Fistulas


03-09-2014, 07:05 AM   #1
mtm31
 
Join Date: Mar 2014
Location: sunshine coast, Queensland, Australia
My story with Crohn's & Fistulas

Hi My Name is Monika i am new to this form,

My story starts like this about 3 years ago my Crohn"s started getting bad , by the way i have had it for about 21 years. Had been working had a family and got married in between that time and have a few sugury's until 3 years ago when i started to loss a lot of weight and was tried all the time trying to work a full time job and run a family all at the same time. Until i started to get really sick, i was on medication which never helped. By the way i tried the lot and nothing helped. So my husband told the doctor to put me in hospital. I was there for 2 month & nonthinking was don't. So i was sent to a bigger hospital & they found i had 3 obstructions so i had sugary all was fine until just i was heading home a fistula form in where they did the sugary. So the doctor told me i had to stay for 4 months so they could operate again so they did. While i was healing from all the operations more fistulas came, so they had to put draining tubes in to get rid of the fluid. I had no appetite and i was 34 kg. I put on TPN. I was for 9 months until i was transferred home to a other hospital i was there for about 6 months they let me out mean while i still have fistulas. Was home for about 4 months then my kidneys shut down from the infection i got. So i was back in hospital on dialysis for about 6 months. After that i was sent back to a big hospital for more sugary. When i woke up i had 3 stoma s and have of my bowel gone. i have only 70mm left. My life in those 3 years was touch and go my family was getting ready for a funeral. But i was strong and i over come it. Now i am at home with my family and trying do get on with life. ( I have 3 stoma's and i am on a machine 18 hours a day but i gratefully i am alive. PS Hope to get my stoma's reverse this year.
03-09-2014, 10:25 AM   #2
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
Hi Monika and welcome. You've been to he'll and back. I admire your positive out look.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
03-09-2014, 12:29 PM   #3
pink&green
Senior Member
 
pink&green's Avatar
Hello Monika and sorry you have been having a hard time you are one strong women sending your way. I am so glad you found this forum there is lots of support on here.

Glad you are home with your family sending prayers your way.
__________________
Hubby Diagnosed 12/15/90
1/3 colon removed
12 inches of small intestine removed
Appendix removed
2007 Hemorrhoids removed
2006 resection:
2005 first perianal fistula(removed 3x & lanced still keep coming back)
2014 partial nephrectomy (stage1)
Previously medications:Humira-anaphylaxis reaction, Remicade, Cimzia, Entyvio
Current medications:
B-12, 6mp, flagyl, prednisone,
Tramadol(fistula & joint pain)

LeeLee
03-10-2014, 06:48 AM   #4
mtm31
 
Join Date: Mar 2014
Location: sunshine coast, Queensland, Australia
Hello Monika and sorry you have been having a hard time you are one strong women sending your way. I am so glad you found this forum there is lots of support on here.

Glad you are home with your family sending prayers your way.
03-10-2014, 06:50 AM   #5
mtm31
 
Join Date: Mar 2014
Location: sunshine coast, Queensland, Australia
Thanks guys it means a lot to hear from people that have what i have & are surviving
03-10-2014, 06:52 AM   #6
mtm31
 
Join Date: Mar 2014
Location: sunshine coast, Queensland, Australia
Hi Monika and welcome. You've been to he'll and back. I admire your positive out look.
Hope all goes well. I am thinking about you.
03-10-2014, 06:55 AM   #7
mtm31
 
Join Date: Mar 2014
Location: sunshine coast, Queensland, Australia
Hello Monika and sorry you have been having a hard time you are one strong women sending your way. I am so glad you found this forum there is lots of support on here.

Glad you are home with your family sending prayers your way.
Thanks. It seems that you haven't a nice life.
03-10-2014, 06:56 AM   #8
mtm31
 
Join Date: Mar 2014
Location: sunshine coast, Queensland, Australia
Hello Monika and sorry you have been having a hard time you are one strong women sending your way. I am so glad you found this forum there is lots of support on here.

Glad you are home with your family sending prayers your way.


I I hope it will get better for you.
Reply

Crohn's Disease Forum » Your Story » Success Stories » My story with Crohn's & Fistulas
Thread Tools


All times are GMT -5. The time now is 06:03 AM.
Copyright 2006-2017 Crohnsforum.com