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Crohn's Disease Forum » Treatment » Enteral Nutrition & TPN » Modulen Diet for Crohns


 
01-04-2014, 01:22 PM   #61
Spooky1
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That's exactly what I had to do with the elemental 012 extra. pint glass, add ice, tip in carton and fill with water. not bad, but as you say loads to drink lol.
01-23-2014, 02:41 PM   #62
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I must recommend blender bottles and similar products, you can find on google or amazon.

I've been on Modulen IBD for 6 days now and I bought one of their bottles half way through, giving the Modulen a shake in that mixes it completely smooth and lump free. I quite like the taste of it on its own, it's like sweeter skimmed milk.

I have been basically chugging 500ml 3 times a day, to give me 1500kcal per day. I guess I should drink it slower, but so far I've had very little D. I have had bad breath though which doesn't go away no matter how often I brush.
01-23-2014, 04:27 PM   #63
Spooky1
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Hi Bodie,
well, fancy being able to chug 500mls at a time. Omg, that would zip straight through me, lol. It's great that you have very little D. For some of us it's liquid in and liquid that goes straight through. Hope it resolves some issues.

Also, some people do experience bad breath. I don't know if brushing with bicarb of soda (gluten and aluminium free) would help, but it is supposed to get rid of lingering smells. Otherwise, I'm not the one to advise you. But good luck.
01-23-2014, 05:40 PM   #64
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The bad breath is from a bacteria die off I think so I don't know how much brushing teeth helps, I had it aswell when I was on modulen, unfortunately the modulen didnt work for me, too many sugars in it I think
01-23-2014, 06:07 PM   #65
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I am finding my energy is all over the place, massive blood sugar peaks and crashes I assume.
01-23-2014, 09:29 PM   #66
zilla7777
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Bodie, maybe try having it spread over a longer period of time, like 250ml 6 times a day. I tried having it in meal-like sizes and I found that I felt much more energetic just sipping on them throughout the day.

As for the bad breath, I have found that brushing my tongue as well as my teeth helps a bit, presumably because of the bacteria on the tongue I'm guessing.
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01-24-2014, 05:13 AM   #67
Spooky1
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I'm in agreement with the above comments. I also take a probiotic that is lactose free to help build good bacteria. I can understand the massive spikes in energy, and as Joshua says, there are so many sugars and oil in there it can be difficult. I swear these liquid foods are too oily for me as well as having sweetners in which aren't good for me.

Good luck with trying 250ml 6 times a day.
01-24-2014, 12:44 PM   #68
kiny
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All the carbs in EN are simple carbs, which is why it's so sweet.

EN takes all 3 macronutrients and uses the most bioavailable (most easily absorbable) version of it.

Carbs -> most bioavailable carb is glucose, so they use glucose syrup
Protein -> most bioavailable protein is whey (often hydrolised), so they use whey
Fat -> most bioavailable fat is medium-chain triglycerides, so they use m-c t.

That's the idea behind EN, if there are issues with digestion, then take the shortest way to Rome and use the most bioavailable macronutrients.

That's the reason why I assume most people easily get D. on EN, even though they're not usually in pain. If you absorb most of your food, all that's left is water that hasn't been absorbed by the colon, so you get D.
01-24-2014, 03:11 PM   #69
Spooky1
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Very well put, and thanks, Kiny.
01-24-2014, 10:31 PM   #70
zilla7777
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It's funny you should say that Kiny, because I am usually constipated on it. Ahah.

It might have something to do with Crohn's being higher up in my GI tract though. I guess everyone reacts differently in pretty much all cases. Ahah
01-25-2014, 05:57 PM   #71
Spooky1
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Zilla, you'll make a lot of people on here incredibly jealous if you have the luxury of constipation. Me especially, lol.

Kiny, you explain it loads better than some of our specialists. thanks.
01-27-2014, 02:30 PM   #72
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Any update, Colin? Still feeling well? After reading this thread I might just have to try it! Now to find it in the U.S....
02-03-2014, 08:32 AM   #73
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Day 17 reporting in.

I've lost about a stone, which is good for me as I'm about 3 stone overweight.

Energy levels are improving slightly, still kinda tired.

Haven't been hungry or cheated with food, but I have a cold now so am eating Soothers, which I hope won't be too bad (mostly sugar).

I am however CRAVING salty, savoury foodss, all this sweetness is making me miss things like toast so so much...

I am still mostly having my drinks as 3 large ones, due to my job and lifestyle, but havent had any D since the first 7-10 days (felt like battery acid, was terrible for a few days).
02-04-2014, 04:50 PM   #74
zilla7777
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That's great to hear!

The one thing I love about EN is you can get exactly what you need to gain, lose or maintain; whilst also giving your gut a rest. 2 birds with one stone. Ahah.

I was told I was allowed Allen's lollies without milk powder, so I at least have one thing I can go to when I want to chew something. I agree with you on the missing savoury foods though. I'm just counting down the days til my first boiled potato.

I'm 11 days in and doing pretty damn well too
02-06-2014, 08:16 AM   #75
Spooky1
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Bodie,

You're doing brilliantly. It's great you're losing weight and getting all the nutrients that you need. Perhaps the tiredness comes from losing weight. However, it is quite normal, unfortunately, for people with Crohn's to experience extreme fatigue. I fully comprehend that you want the savoury stuff too. Don't let the mind wander too much into the fantasy land of 'Oh, I could just fancy....' It doesn't bear thinking about. And try not to listen in to what others are doing for dinner later. Great the D has stopped. Good luck with the module. I have Vital 1.5 through a PEG.

I used to live in Hove by the way. I so miss living up country. I really should move back to the civilized world. However, having crohn's is somewhat uncivilised anyhow.
02-06-2014, 08:18 AM   #76
Spooky1
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Great you're doing well Zilla. Getting all the nutrients is great news. it's kind of a relief to find that you just don't have to eat all the things that disagree with a Crohn's intestine just to get good and needed nutrients in. It's almost the easy way out isn't it? Good old liquid food.
02-24-2014, 05:15 AM   #77
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Hi All,

I am starting Modulen for the first time today - it strongly reminds me of milk but just not as nice - looking forward to being able to add some Chocolate flavouring to it!

My dietician appointment was only last week and already i have thought of a few hundred questions i didn't ask him so was wondering if anyone could help!

During the 8 weeks at anytime could i have a light soup (with all lumps strained) or is this a no no?

Also without sounding terrible I was wondering about the odd glass of wine? (And by odd i mean a small glass once in a blue moon) would this be okay or is it a complete no go too?

I do love my food so hope i can adjust to it without becoming too miserable!
If anyone has any advice I would really appreciate it! Thank you!
02-24-2014, 06:54 AM   #78
Spooky1
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Hi Silverdale,
I think when going on liquid feed for the very first time it feels so tough. I lived on soups for many years. However, you might need home made soup made with a Kallo gluten fee stock. You might need to stuff it through the blender until it can be sieved easily. Having said this I would consider contacting your dietician first. He (I've never met a He dietician lol) will probably want you to stick with modulen only to start with and then when you can reintroduce foods then he may allow a liquid soup.

I say cheers to the once in a blue moon glass of wine. If its not that regular then actually you will be able to test whether wine itself is a trigger drink. So do enjoy that once in a blue moon drink, but don't tell the dietician.
02-24-2014, 06:55 AM   #79
Spooky1
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Oh, I forgot, Do write that question list for the dietician. You'll only forget the most important ones if you don't.

And good luck Silver.
02-24-2014, 07:06 AM   #80
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Thanks Spooky1!

My dad has offered to make a homemade soup whichever way is easiest for me bless him so I will double check if I am allowed - it's my birthday next month and was hoping i could have a cheeky bowl of soup and a glass of wine how crazy haha but i don't want to ruin it by giving into temptation!

Thanks for the info
02-24-2014, 07:48 AM   #81
Spooky1
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What a wonderful dad you have. I'd mention things, except the glass of wine, to the dietician and sound him out. Temptation is one of our worst enemies when on liquid diets, lol.

I have bland food like salmon and boiled potatoes. And at Xmas, I come off the liquid feed for 3 days, whoooppeee. How very naughty I am.
04-06-2014, 05:10 PM   #82
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I've done 5 weeks nearly now and no improvement keep running to the loo when I've drank it .
Going on hols in two weeks so need to get off it .does anyone know how much food to eat when coming off it .
I'm at the end of my tether now and don't want to ruin the family holiday .
04-07-2014, 02:55 AM   #83
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Hi Goose4462,

O no really That's not good. I haven't had that side effect as constant but i have the occassional "loo emergency". I've just reached 6 weeks and i have struggled, my mum didn't think i'd manage it but i think i've surprised her I have a dietician appointment a week before i come off it for him to explain how to start eating again, maybe you should have one too?

Hope you get better and have a lovely holiday!
04-07-2014, 06:33 AM   #84
Spooky1
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Hi, Goose,
well done for sticking it out. For some of us it is literally liquid in, liquid out! So sorry you're still suffering. Try small meals, mainly salmon and potatoes. Don't go straight for the chocolate cake, pizza and spicy foods, lol. try the bland stuff first. Good luck, and enjoy that holiday, you need one by the sounds of it.
04-07-2014, 10:23 AM   #85
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Thanks spooky.I rang the dietician today and I can start soup on Friday then just bits and bobs .
Leaves me 8 days before my hols need to be right for the family just chilling and a bit of golf .
Thanks for the support .
07-10-2014, 10:31 AM   #86
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Hi, not sure if anyone will see this, but I am have just had to stop drinking Elemental 028 as it went straight through. Tried for 5 days, sipped slowly but couldn't retain it. My dietitian now thinks I should try Modulen. Has anyone got any experience about one being better than the other?
07-10-2014, 06:27 PM   #87
zilla7777
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I can't say anything about Elemental 028, but I found that modulen has been easier for me to tolerate than Ensure Plus and Fortisip. I think it might be because it contains more water and feels a bit less sickly to drink. I flavoured it with nesquik and let it sit in the fridge overnight. Letting it settle makes a great difference in flavour.
07-11-2014, 02:21 AM   #88
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Thanks very much for the reply. I have been following the Lofflex diet really successfully for over 2 years with remission so am disappointed to find myself ill again, mostly caused by a stressful period in my life. I've had Crohn's for 20 years and only have just over a metre of my gut left so have to protect it. I can't go into the operating theatre again. Previous drug regimes have always failed so to find the Lofflex diet was a life saver for me. I just need to nip this current flare in the bud and then hopefully go back to the diet. Currently just eating chicken, white fish and rice, but that's fine, I don't mind what I have to do as long as I am well. Good luck to everyone else struggling with this horrid illness, it's great to read when some of you seem to be doing well.
07-11-2014, 02:23 AM   #89
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Thanks spooky.I rang the dietician today and I can start soup on Friday then just bits and bobs .
Leaves me 8 days before my hols need to be right for the family just chilling and a bit of golf .
Thanks for the support .
Me too re golf. Keeps me sane! Can cope with diets, bland food and no treats, just so long as I can go and play golf.
07-11-2014, 07:05 AM   #90
Spooky1
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Tbh, EW8, I find all liquid foods the same as far as output. I too have little guts left so that might be half the problem. I'm never having surgery again. I do have salmon and potatoes, not much else lol. Hope all goes well. I used to flavour modulen also.
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