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04-24-2014, 07:54 AM   #1
Roxyl
 
Join Date: May 2013
Fed up

Hi guys,It's already been 2 years that I am fighting with this so called anal fistula😢😢.had my setons put in last year as I have complex fistula.my surgeon told me it will help to drain n when it is dry they can do advancement flap surgery.Its been a year and still it's draining.I don't feel like it's gonna get dry.sometime it pains a Lott n I take panadene for that.my GP gave me vit C,A-Z zinc and iron to help healing but I dnt know whether it's working.i dnt know is it my diet that's nt right or something else.I have turned to vegeterian from last year.now I hv small skin tear in the old scar(not in fistula hole).is that another abscess??God pls someone tell me it's nt another one.my surgeon didn't suggest me any medicine or gel to apply.now I am seeing him on 16 may.dnt know what shock he gonna give me again..😞😞😞 fed up struggling with it.my work,love life and my studies is really affected.I am loving in painkillers now
04-24-2014, 11:17 AM   #2
theOcean
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I'm so sorry to hear you've been having such a bad experience with your fistula. Has your GI talked about going on Remicade or Humira to treat it? I've been treating mine with Humira and it doesn't drain anymore at all, and I'm getting my seton removed soon...
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
04-24-2014, 04:23 PM   #3
Roxyl
 
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Thanks for d reply Ocean.No I am not in any medication except painkillers.now I am jst scared to go toilet.The new tear keeps draining as well as bleeding.is that another abscess??coz I really dnt want to go through another surgery.also wen I try to move my seton it's very painful that I can't even move it.i tried in hot water as well but doesn't work.Does that mean I hv some infection inside??😞😞😞
04-24-2014, 04:42 PM   #4
theOcean
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The skin tear sounds more like a fissure, which is exactly that -- a small cut in the skin. It's something that heals and is just caused by having bad bowel movements. It can be scary because it hurts, and sometimes can even bleed quite a bit. But it's something that can be managed. What are your bowel movements like? Are they soft or hard?

It may mean that you have some bacteria, and that would be why your fistula is still draining. It's probably a good idea to call your GI and request to be put on antibiotics, which would help with that. In addition, it would be a good idea to bring up possibly going on Remicade or Humira, which are both good medications for treating fistulas more aggressively and help reduce draining and inflammation.

What's your diagnosis? Is it active right now?
04-26-2014, 12:33 PM   #5
Roxyl
 
Join Date: May 2013
Thank u Ocean.Ya I went to my GP and had it checked.She gave me some antibiotics as well as rectinol ointment.i asked about remicade bt c jst ignored.I don't know about it.Can we buy in counter or need a prescription??i hv normal bowel.its not that soft nor hard.but sometime I hv my gases passing through fistula hole it's so uncomfortable.My GP took a sample of that pus to know what kind of bacteria is it so I am going to get report tomorrow.hopefully they will give me something to cure that bacteria.its bit relief after reading ur reply.i hope I can manage it as u said.thanks heaps
04-26-2014, 12:51 PM   #6
theOcean
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You would need a prescription because Remicade is usually given by infusion at a clinic, and Humira is a medication you inject either using pre-loaded pens (like an epi-pen) or a syringe. I'm sorry your GI ignored you when you mentioned it. Being on Humira has completely stopped any drainage for my fistula.

Good luck!
04-27-2014, 06:00 PM   #7
David
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That you have fistulizing Crohn's disease and are not on any medications tells me you need a new GI.

Please get a new GI.
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04-27-2014, 07:01 PM   #8
Roxyl
 
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Hi David,yes I changed my GP.My new GP gave me some antibiotics and ointment to apply.she took the sample of pus in fisula to check the bacteria type.Going to get report today.Will post soon what's in the report.For pain control she just gave me some Advil and Panadol.So I have stopped all vitamins and panadene .
04-27-2014, 07:02 PM   #9
David
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You need a new GP as well as Advil for Crohn's disease is a TERRIBLE idea.

You need to be under the care of a competent gastroenterologist.
04-27-2014, 07:11 PM   #10
theOcean
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Agreed with David. Absolutely do not take NSAIDs, as they will aggravate your Crohn's. If you have GI problems, always go to your GI rather than your GP.

For pain for now, I recommend taking sitz baths with epsom salts. I found nothing really worked for pain for fistulas otherwise.
04-27-2014, 07:19 PM   #11
Roxyl
 
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May be that's why my fistulas weren't healing.I am definitely gonna stop the painkillers.thank u so much guys.I am going to find a good GI.Are they too expensive??Just wondering if I can afford 😔😔
04-27-2014, 07:37 PM   #12
theOcean
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Unfortunately, I live in Canada so I can't answer for you. I've never had to pay for a doctor here. You can also check out our doctor directory.

And the NSAIDs may have contributed to how your fistulas are doing, yes. But I think you really need to be put on some good medication to help with them, which hopefully a good GI would realize. Sitz baths also aren't just good for pain -- they also help promote healing.
05-14-2014, 03:51 PM   #13
Roxyl
 
Join Date: May 2013
Hi guys,this fistula is just like living in hell.got my pus report and the doctor have me bactrim to cure it.all went well for few days but 2 days ago early morning all of a sudden I got this swollen lump in the old scar.i tried to press it and got some pus out.thought it will settle down in some days bt it didn't.i have got appointment with my colorectal surgeon tomorrow and m just scared if I hv to go through another surgery and take off from work 😢😢😢.its really hard when u r alone in a foreign place and have to go through all this***.and I am just 26 and I feel like not living anymore.wish some kind of magic wud happen n my wound heals.its exactly 2 years that I am suffering.😞😞
05-14-2014, 03:55 PM   #14
theOcean
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That's surprising that they gave you Bactrim instead of Cipro or Flagyl. Those are usually the go-to antibiotics for fistula treatment.

Did you end up finding a GI? Is your GP able to refer you to one? You really need to see one to get better treatment for this. Remicade and Humira are really good treatments for fistulas as well, and Humira completely stopped any drainage from mine. You'd still need antibiotics to stop the initial infection, though.
05-14-2014, 04:10 PM   #15
Daisy123
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I had a fistula a long time ago, the pain was horrendous and plain Panadol won't help. You need a good GI, I wonder whether the reluctance is over the high cost of Remicade and Humira. I ended up having a surgical repair and a temporary ileostomy to allow it to heal. Your treatment has been shoddy to put it mildly.
05-15-2014, 12:18 AM   #16
Roxyl
 
Join Date: May 2013
My GP didn't refer me to anyone and specialists need a refer letter. going to see my surgeon tomorrow.dnt know whether ill b spending few days there.will post what happens tomorrow.😞😞
05-15-2014, 10:58 AM   #17
Cookie
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Hi Roxyl

I agree with everyone that your doctor's choice of treatment appears to be questionable. I have had two flap advancement surgeries for complex fistula. Both times I was given Cipro and Flagyl to help with the drainage prior to the surgery. They clear it up quickly. This also helps with the pain. I would seek out a new doctor if I were you.
05-15-2014, 11:02 AM   #18
theOcean
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My GP didn't refer me to anyone and specialists need a refer letter. going to see my surgeon tomorrow.dnt know whether ill b spending few days there.will post what happens tomorrow.😞😞
You should be able to ask your surgeon for a referral!
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