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Crohn's Disease Forum » Extra Intestinal Manifestations » Do you see a rheumatologist?


06-24-2014, 01:21 PM   #1
Cookie
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Do you see a rheumatologist?

My mother thinks that because I have Crohn's and often have joint pains in a flare, that I should see a rheumatologist. I am on Remicade and doing fine and don't believe it is necessary. Just curious, how many of you regularly see or have seen a rheumatologist?
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Diagnosis: 2003, Crohn's colitis, peri-anal Crohn's
Current meds: Remicade, Imuran, Prednisone (tapering)
Previous meds: Cipro, Flagyl, Canasa, Asacol, Lialda, nitroglycerin (topical for fissure)
Surgeries: 2 flap advancement surgeries for complex fistula
06-24-2014, 01:28 PM   #2
nogutsnoglory
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I do but I got osteoporosis from being on prednisone too long. If you have been on pred for any extended time and have bone pain or aren't absorbing calcium or vitamin D it's worth getting a bone density scan every few years.
06-24-2014, 07:53 PM   #3
sickofcrohns
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Agree with nogutsnoglory. I also have arthritis related to Crohn's and it's worthwhile to get x-rays and/or MRIs every once in a while to track disease progress.
06-24-2014, 09:03 PM   #4
Farmwife
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Hi Cookie,
My Grace see's a Rheumatologist.
I was told it's important to stay on top of even the smallest aches and pains if you have an auto-immune disease. Little can become big really fast and your don't want inflammation to destroy your joints.
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dx Juvenile Arthritis
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dx Erthema Nodosum
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Bladder and Bowel Dysfunction
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06-24-2014, 10:02 PM   #5
fozheart
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I have seen a rheumatologist for over 20 years, diagnosed with lupus at the time. Did not have GI problems until 4 years ago.
06-27-2014, 09:58 PM   #6
my little penguin
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Same here - DS is followed by a Rheumo - first for arthralgia - which helped get a faster dx of arthritis + treatment quickly .
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06-27-2014, 10:20 PM   #7
Jennifer
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If you have joint pain, even if it's Crohn's related then a Rheumatologist is the way to go. I have osteoarthritis from Crohn's and see my Rheumy on a regular basis. One of the main things mine suggests is to get the Crohn's in complete remission (no inflammation at all) and that will help reduce a lot of joint pain. My Rheumy even took over my med treatment for Crohn's because he felt my GI wasn't being very proactive. I highly recommend a Rheumatologist for any chronic joint pain.
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Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
06-28-2014, 03:55 AM   #8
Droopy Drawers
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If you have joint pain, even if it's Crohn's related then a Rheumatologist is the way to go. I have osteoarthritis from Crohn's and see my Rheumy on a regular basis. One of the main things mine suggests is to get the Crohn's in complete remission (no inflammation at all) and that will help reduce a lot of joint pain. My Rheumy even took over my med treatment for Crohn's because he felt my GI wasn't being very proactive. I highly recommend a Rheumatologist for any chronic joint pain.

Same with my Rheumy
She calls my Gastro on a regular basis & is in charge of my meds
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