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Crohn's Disease Forum » Diet, Fitness, and Supplements » What are your SAFE and UNSAFE foods?


 
06-20-2014, 07:22 PM   #301
fissure2
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ohh i was thinking about those instant cup of noodles ramen
06-30-2014, 09:44 PM   #302
ronroush7
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I had peas last night and still experiencing the effects today.

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07-02-2014, 09:07 AM   #303
Eridon2002
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Some of the FODMAPs foods. Not all though-but unfortunately some of the yummy ones I love(Wasabi peas, Onions, pistachios) Any cruciferous vegetable(broccoli, cauliflower). Carrageenan is evil causing instant pain(I think of it as "gluten of the sea"). I hate being scared of food. Especially nutritious foods like high fiber vegetables, beans, etc. I have found that Quinoa, Oats, Kasha, millet are a way to get easily digestible fiber. I soak these overnight to get rid of any phytic acid(an "anti-nutrient") then cook up large batches in my pressure cooker. Yum!
08-05-2014, 08:28 AM   #304
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2. BELL PEPPERS (all caps for emphasis) and mushrooms

3. Pasta, Avocados, Plantains, Coffee
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08-05-2014, 11:54 AM   #305
ronroush7
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Lately, I am wondering if red grapes might be bad. There are so few fruits I can enjoy.

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08-06-2014, 06:27 PM   #306
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I have moved up to peaches, apples, bananas and cooked cherries. All but the cherries are without peels. Grapes, blueberries, blackberries and strawberries have to many seeds as I have a stricture in my small intestine. Canteloupe was OK but not wonderful and tomorrow I am going to try watermelon.
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08-07-2014, 09:34 AM   #307
ronroush7
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Earlier in the year, a specialist wondered if I had a stricture. I think I have a problem with fruits that have seeds. Bananas are the only fruit I feel comfortable with.

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08-08-2014, 07:38 AM   #308
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My narrowing or stricture is in the small intestine. I had a flouroscopy to determine how bad the narrowing was and I do not eat anything with seeds and no corn or popcorn, no nuts and not brocoli for example. The narrow 4 inches will always be there but I am hoping that if I am careful I will not end up in the hospital with another partial blockage.
Anyway, the flouroscopy was not too bad a procedure. This fall my GI hopes to visit this area at the end of my small intestine during a colonoscopy. If the methotrexate injections do their job the inflammation will have subsided and he can see at what stage the disease is in.
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08-10-2014, 11:22 PM   #309
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Risky Foods that can cause me bloating, diarrhea, dashes to toilet, pain, bleeding, mucous, and occasionally horrific internal painful wind are:

Hot Spicy Foods

Excessive Chocolate Consumption

Artificial Sweeteners and Colors

Deep Fried Foods anything battered or greasy

Raw Broccoli - although I am fine with juicing it

Dairy

Gluten - especially bread

Gluten-Free Products - like almond meal or rice flour

Nuts

Hard to Digest Animal Proteins like Chicken, Pork and Beef - ok with fish

Carbonated beverages - ok with mineral water

Legumes - ok with them apart from chronic wind! (where did you think the name SmellyMelly came from!!)


Fast Food

Alcohol - especially beer and spirits



I do over indulge occasionally with risky food and always pay the price afterwards.

Gluten-free, mainly vegan, properly blended fruit smoothies and lots of vegetable juicing works best for me.

I am always nervous about trying new foods. But I do because you need variety on a nutritional level.
08-11-2014, 07:26 AM   #310
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1 Crohn's

2 fast food, spicy foods fried food dairy coffee

3 chicken beef

Not long diagnosed and seems at the moment that everything is causing flares but that's what I'm certain of great thread btw : D
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08-11-2014, 11:12 AM   #311
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I have Crohn's or UC (doctors are unsure) and my newest Gastro put me on this Low-Fodmap diet and I have noticed a huge difference in how I feel. It's very odd, can have raspberries but not blackberries, red bell peppers but not green. I do recommend it because I have done low-residue and non-dairy and this is the best I have felt in a long time. (Still non-dairy but now Gluten-free on the low-fodmap) Can't eat a huge variety but I'd rather not feel like I was being stabbed and just eat some blueberries than feel like death and have real bread. (well....most of the time)
08-11-2014, 09:19 PM   #312
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I should mention that I can handle oats in the form of porridge; even though oats do contain some gluten.

Apparently you can buy gluten-free oats. But I don't know where from and I have never seen them.

The oats in question must be organic and the old fashioned type (i.e.) not instant and not microwavable.

They must be rinsed, soaked overnight first and rinsed again, then must be cooked properly and slowly for one hour by the water absorption method until they are soft.

I then have them with ripe banana and homemade nut milk. Porridge is very nutritious and filling especially in winter...not to mention fabulous for your complexion... so it is good to have made this discovery.

Eating raw or salted nuts from the packet sets me off with horrific pain and nausea. But by soaking the raw nuts overnight and them blending them with water to form a "milk" is fine, I can drink this no problem. Same with soaking sunflower seeds first.

The key in both these cases is: soaking overnight first
08-12-2014, 09:58 PM   #313
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I have not yet decided if seeds are my enemy or friend.

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08-13-2014, 06:08 AM   #314
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Seeds are definitely my enemy.
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08-16-2014, 11:12 AM   #315
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Spicy foods (makes me want to vomit almost immediately), anything rich in fibre which includes a lot of stuff I just LOVE... fruits and a lot of vegetables. I do seem to have better luck with fruits than with veggies, however. Like corn, broccoli, snow peas, cabbage.

Greasy.. and I mean very greasy foods. A cheeseburger here and there is not a problem, but deep fried treats are.

Dairy bothers me but not always. Which is annoying for me given my total addiction to chai tea.

All junk food is a problem except for chocolate, gummies and scotch mints.

All meats are safe so far. Fish, too. Which I eat a lot of, including sushi.

The reality over the last 15 years or so is that I eat more protein than anything else.

After my surgery, I was told that I should slowly reintroduce fibre to my diet and I have done so.. only probably a lot slower than recommended out of habit and fear. I don't think the fact that I resumed eating some fibre is what brought on the recurrence because my flare ups always involved being constipated, not having diarrhea.
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08-29-2014, 11:58 AM   #316
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1. UC

2.onions (make me horribly sick), tomato, oranges (causes severe symptoms), milk, whole wheat bread, spinach, carrots, pork (severe), strawberries, and anything spicy.

3. almond milk, soy products, potato bread, white rice, cantaloupe, flat rootbeer, tortillas, any white meat, low fat roast beef, bananas, pears, grape juice (if I minimize it), peas, rice crackers, fast food fries, and light pasta with light miracle whip (it's all I can seem to eat in severe flare ups).

I hope this helps
10-03-2014, 05:27 PM   #317
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Great thread thanks for starting.

1. Crohns

2. dairy, gluten, fried foods, some nuts (peanuts, cashews), eggs, coconut flour and coconut milk, nightshade veg, oats, sometimes fish, anything with high sugar or flavorings or sweeteners, red meat, any processed meats, apples, pears, carbonated drinks, honey, anything spicy, onions and garlic,

3. white meats, sea veg, fruits (blueberries, strawberries, banana) , veg either boiled, steamed or juiced. Cacao, carrots, white rice in small amounts, some gluten free flours. Sometimes fats like avocado if not flaring

The list is short but still refining
10-05-2014, 07:50 PM   #318
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2) unsafe: garlic powder (other forms are fine), spicy food (I love it, but it has triggered SBOs twice)

3) watermelon, chicken
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10-06-2014, 09:13 PM   #319
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Last night I had some organic potato chips and I had some minor pain for the first time.

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10-19-2014, 06:45 PM   #320
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It sucks to be so obsessed with food. Sometimes even my safe foods stop being safe. It is confusing. I am so frustrated lately and it's getting worse not better.
02-26-2015, 10:41 PM   #321
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I already replied, but I'm learning more as I go on. I had symptoms of Crohn's as a child and the doctor told me to give up caffeine and that helped so, so much. Shortly after I also became a vegetarian and felt wonderful for many years. I never had any stomach pain, quite the opposite, I felt so healthy. I only ever had Crohn's symptoms with an occasional salad. I don't know if it is related to crohns or just a random allergy, but I discovered that eating cilantro or corriander makes me extremely ill. I even ended up in the hospital twice after drinking gin, which is made from corriander. I cannot eat anything with cilantro/corriander or I will go into a severe vomiting fit and feel like I am going to die. It makes my life difficult because cilantro is in so much vegetarian food. Eating out has always been difficult as a vegetarian who cannot eat raw vegetables, no cilantro, no fiberous seeds, not too much dairy, no caffeine, etc. it's so complicated. Especially in St. Louis where meat and salad is pretty much all you can find. And beers with a lot of hops also make me very sick, which makes it difficult at parties when everyone is like "try this beer" and I'm like "I can't I'm allergic!" I started eating some meat when I was pregnant with my son because I thought the extra protein/fat would be good for me, but that is really when my crohns symptoms flared out of control. I was also under a lot of stress and drinking caffeine just to get through the day, so it's hard to say exactly what caused the flare. I'm sure eating meat suddenly for the first time in twenty years is shocking to the system and then add in the caffeine. Now that I can put a name on what I've been experiencing for so long, and hearing other people's stories that are a lot like mine, things are starting to make a lot more sense. It makes sense now why I've always preferred my vegetables and fruits pulverized and in near liquid form. It makes sense now why I love restaurants and parties but have social anxiety in these situations, because I simply cannot eat the same food as others and I can't always just try something to be nice. I feel like the pickiest eater in the world, a true food outsider in so many ways, and no one can relate unless they also have this disease. I currently in a flare and so am determined to eat healthy. The main thing for me is to give up caffeine, it is so difficult, but it improves my symptoms so much. And eating vegetarian and even vegan really helps me to keep things under control. I have been occasionally been eating white meat, just out of desperation or because its the only thing available, while it doesnt cause abdominal pain or vomiting, it does make me feel bloated and gassy. Sooo.... long story short...
1. CROHN'S
2.UNSAFE: Caffeine, Cilantro/Corriander, Meat, Large Quantities of dairy, Salad, Popcorn, any uncooked and fibrous vegetables, fruits with skins or seeds, things that are high in fat and sugars (like Little Debbie snack cakes or something similar)
3. SAFE: Rice, Avocados, Anything coconut, Pasta, Tofu, vegetables that are well cooked and chopped or pureed, fruits without skins or seeds, cooked beans, hummus, cream of wheat, cottage cheese, yogurt
03-01-2015, 03:12 PM   #322
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I know I replied to this thread a while back, but a lot has changed since then. This was my old post:

Unsafe: anything containing insoluble fibre (whole grain cereals like bran; raw vegies, beans, nuts and seeds), but only in large quanities - a small amount each day is ok. Anything really rich. A lot of typically unsafe foods, like alcohol, coffee or spicy food I don't like anyway so I'm not sure if they're unsafe for me. Also the volume of food matters for me - large portions of anything are unsafe!

Safe: pretty much everything else - refined/white cereals and grains; sugary foods (cakes, bicuits, etc.); fruits and veg that are safe for me are root vegetables/bananas/tinned fruit/avocado; protein: fish, dairy products, eggs and meat; drinks: juice, fizzy drinks, squash, milk; milk-based puddings are great when I don't feel like eating. Peanut butter is safe and useful for getting in calories.
After posting this, I got an ileostomy. I had to become incredibly careful about fibre, a small amount and my stoma would block. But then several months ago, I had to have surgery which resulted in me getting a new stoma. This one doesn't block anywhere near as easily. I was so cautious at first, but I'm gradually trying foods I haven't eaten for so long and increasing the amount of fibre in my diet.

I'm actually not sure I have that many unsafe foods now. There are ones I haven't yet risked for fear of pushing my luck with a stoma blockage. I still keep my fibre intake moderately low, and have not tried the worst offenders for stoma blockkages: e.g. mushrooms, stir fry vegetables, but these I don't miss anyway. The one thing I'd like to eat again but haven't dared yet is a fruit with pith - an orange or satsuma or clementine, etc.

The closest things to unsafe foods I have now are rich foods that make me feel full and horrible - puddings like cheesecakes if they're really rich, creamy or greek yoghurts, thick chocolate mousses, etc., or red meat like beef burgers. And the same as I wrote in my original post still applies regarding there being foods that are often unsafe but which I have no desire to try - alcohol, coffee, spicy food.

I think pretty much everything else is ok for me now, in that it won't provoke symptoms, but I do have safe foods for the times when my digestive system is already upset in some way, things that will go down easiest despite nausea or which may help to slow stoma output if I've got watery, high-volume output (stoma equivalent of diarrhoea): plain, white rice, crackers, biscuits, smooth soups, instant pasta/noodle meals, rice pudding, ice cream. I have a lot of safe foods, it's just a question of finding ones I can face on a bad day.
03-10-2015, 09:30 AM   #323
ronroush7
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Do any of you h

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03-10-2015, 09:31 AM   #324
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Do any of you have trouble with peanuts?

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03-10-2015, 10:37 AM   #325
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Yes, I can't do nuts. I also can't do carbonated beverages or coffee. Most stuff Im good with, but these are my main triggers. I only drink red wine for alcohol, and don't touch cabbage, broccoli or cauliflower because they give me a stomach ache.

Last edited by Mercury1; 03-10-2015 at 10:38 AM. Reason: Addition
03-26-2015, 04:13 PM   #326
The Real MC
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I had to cut out raw nuts, they triggered painful agonizing cramps. But they don't bother me when they are cooked or in butter form. But beware of candy with peanut butter - peanut butter M&Ms triggered the cramps.
04-02-2015, 10:27 PM   #327
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I cant do collard greens.

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04-06-2015, 08:46 AM   #328
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Peanuts-almonds-all nuts can kill me. I cannot tolerate peanut butter either. I can have some squash seeds and some sunflower seeds but in small-tiny amounts. I so wish I could snack on some nuts.
04-06-2015, 10:41 PM   #329
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Collard greens are unsafe, but well cooked (I mean reduced for hours) Kale is fine. I cook it with a little oil and broth on low heat for hours, but collards greens never digest well.
04-06-2015, 10:43 PM   #330
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Nuts seem to be fine chopped up and baked, or in butter form in moderation, but not raw, for me.
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Crohn's Disease Forum » Diet, Fitness, and Supplements » What are your SAFE and UNSAFE foods?
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