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Crohn's Disease Forum » Treatment » 5-ASA/Mesalamine » Pentasa tablets/enemas.is anyone finding these hard to take/side effects?


05-07-2014, 03:36 AM   #1
wonderwoman4815
 
Join Date: May 2014
Location: belfast, United Kingdom
Pentasa tablets/enemas.is anyone finding these hard to take/side effects?

Hi everyone am taking pentasa tablets 8 a day and 1 enema at night for a dx of inderminate distal colitis.am finding it making my symptoms worse,espcially lots of joint pain.any advice anyone and would love to hear from anyone with same diagnosis thanks:-D.x
05-07-2014, 03:52 AM   #2
theOcean
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Joint pain is more likely to be from your IBD being active than from the Pentasa. It may mean you need to go on stronger medication, like prednisone or an immunosuppressant.
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Diagnosis: Fistulizing Crohn's, 2011 (originally Dx as Ulcerative Pancolitis)
Past Medication: Pentasa, Remicade, Prednisone, Imuran
Current Medication: Humira (biweekly), 100mg 6mp
Unrelated Medication: 36mg Concerta, 75mg Pregabalin
Currently: In remission!
05-07-2014, 04:49 AM   #3
Cross-stitch gal
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When I first started taking the pentasa, I did have a hard time swallowing the pills. It took some time for me to get used to taking something of that size. But, eventually my throat and all got used to it and I don't have any trouble anymore. I'm sure that if you're having the same problems, it'll just take some time and you'll do fine too.
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


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05-07-2014, 04:55 AM   #4
Ness1993
 
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I had a hard time swallowing the pentasa tablets. Ask for the pentasa sachets instead they are much easier to take. My symptoms also got worse when i started the enemas. I contacted my IBD nurse so he has changed my medication.
Also i suffer with joint pain but even with change of medication its still there so im assuming its more to do with my UC rather than tablets.
Hope i helped in someway and hope you get things sorted.
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Diagnosis: Ulcerative Colitis March 14
Current medication: Waiting on new medication & Omeprazole
Previous medication: Prednisolone, Pentasa & Salofalk
Currently in a flare
05-07-2014, 03:45 PM   #5
wonderwoman4815
 
Join Date: May 2014
Location: belfast, United Kingdom
Thanks for your replies:-D.yeah,i agree the joint pain prob related to the diease rather than the tablets.it is just the pain has got much sorer very quickly and in new parts of my body to:-(.i am very frustrated at my diagnosis to (inderminate distal colitis moderatly active) what does that even mean!lol;-);-)
05-07-2014, 05:58 PM   #6
Kev
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I was on 4 G (8 x 500mg) of 5-ASA every day for 7 years. Absolutely no evidence it did anything positive for me... it discolored my urine, it gave me GERD, it caused migraines, and leg cramps. I was AMAZED how much better I felt after coming off that drug entirely.
Zero adverse effect from coming off it. All my side effects went away, and stayed away.

Now, as for enema's... Years ago I was on high steroidal enemas. Most painful treatment ever. gut wrenching... 45 days (eer, nights of it).. but it put me in remission that lasted years... I was undiagnosed at the time, the enemas made everything go away... and I didn't give it a thought until after it all came back to bite me in the proverbial.... My understanding is... direct application this way ensures less side effects.
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KEV

Dx'd July, 2006
Meds: Flagyl, Cipro, Pred, AZA.. to no effect
Low Dose Naltrexone Nov 2007 - May 2014
Remicade June 17th, 2014
05-08-2014, 04:23 AM   #7
Ness1993
 
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My pain was only in my back but looking over the years i did suffer with knee and elbow problems. This has all came back now. Including my shoulders and hands. Also had pain in my ribs but not sure if that could be asthma related. Going to get bloods done tomorrow so i am going to ask about arthritis just for peace of mind.
05-08-2014, 05:32 PM   #8
wonderwoman4815
 
Join Date: May 2014
Location: belfast, United Kingdom
Thanks for all the advice and it is good to hear other peoples stories:-D.just got call from gastro dr today.my ogd showed chronic grastic inflamation with helicobater,to start eradication treatment for that.my second colonoscopy showed new inflamation in my right/left hemi colon as well as the other areas found last time.lastly my ferritain level very low:-o.will it never end and will I ever feel normal?!just want to know is it crohns or ulcerative colitis and get treated properly:-o:-)
09-26-2014, 07:42 AM   #9
rollingwithmycrohnies
 
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You can put the pentasa in a shot glass with some water and shoot it. I used to do that. It's like a party in your mouth and crohn's is not invited.
09-26-2014, 08:43 AM   #10
BlackButterflies
 
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You can put the pentasa in a shot glass with some water and shoot it. I used to do that. It's like a party in your mouth and crohn's is not invited.
Hah. I like that!
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