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02-09-2015, 10:51 PM   #1
Asher
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Both spouses with IBD

Does anyone here have IBD along with their spouse?

We've been thinking about pregnancy, and with me having Crohn's and my husband has/had UC (he had his colon removed and has a J-pouch now...), I am so worried about the statistics of our kids having IBD...
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Crohn's diagnosis: 9/2014

Medication:
Lialda 800mg (3x)
Remicade (started 12/2014)

Past Medication
ASACOL HD 800mg

"Be Joyful in Hope, Patient in Affliction, and Faithful in Prayer"
- Romans 12:12
02-10-2015, 04:00 AM   #2
Lianne
 
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Location: Cape Town, South Africa
Hi Asher,

I'm new to the forum, I'm 41 years old and was diagnosed at 22 with Crohn's disease, I had a little boy in May 2013, conceived naturally and fell pregnant within two months. I had a normal pregnancy. I went for foetal assessments because of my age and then had a CVS test (testing of placenta tissue) as my blood proteins through the risk factor out, which I knew it would because blood work in a Crohn's patient is never normal. My son was born healthy and arrived early at 36 weeks. He is a normal little toddler and no IBD or anything. As far as I know and have read quite a bit, Crohn's is not hereditary.

I delivered by C-section and the anaesethist administered anti-inflammatory medications that did not agree with me it caused my haemaglobin to drop and I had to go back into theatre two days after as they thought I may have internal bleeding. My specialist said that although not impossible for a Crohn's patient to have children, whether it be natural or c-section delivery it is strenuous on your body. I have a friend that had two children with the same experience.

Having children is very possible, so don't worry your baby will be fine.
02-10-2015, 09:19 AM   #3
FrozenGirl
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In all honesty, I believe the risk does go up with both of you. That doesn't mean your child will for sure have it though. And ultimately if they do, I'm sure you will love them just as much. ( You love you husband don't you? )
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Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
02-10-2015, 10:00 AM   #4
my little penguin
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Neither my DH or I have crohns no family history but DS started to have Gi issues at 2 weeks of age and dx at age 7.
We had his DNa done
Tons of genes assiciated with crohns
Why some get it and others don't who knows
It just is .

Good luck
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02-10-2015, 10:39 AM   #5
lenny
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My son has Crohn's and he's already made the decision to never have children. He doesn't want to pass it along or be expected to take care of kids when he isn't well. He said, "What if my child and I both go into a flare at the same time? I couldn't even be there for them."
02-10-2015, 06:07 PM   #6
Asher
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My son has Crohn's and he's already made the decision to never have children. He doesn't want to pass it along or be expected to take care of kids when he isn't well. He said, "What if my child and I both go into a flare at the same time? I couldn't even be there for them."
Oh no that is really heartbreaking. What if he married and could trust his wife to be there for them?

This is one of the worst things about this disease, is never knowing what the future holds. What if he never flares again? What is it doesn't get passed down? (My husband and I both don't have anyone in our families with history of IBD).

I've wondered how id be able to encourage my kid not to allow this disease to rule them when I'm so easily influenced to do that myself. This is all just so tough and decisions that shouldn't need to be made need to be made.
02-10-2015, 09:25 PM   #7
my little penguin
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Hugs it's really hard but honestly you could adopt and still have a medical issue .
We do the best we can for DS (he has multiple medical issues ) teaching that this is life and everyone has to deal with something or has it worse -so no pity parties allowed.
Even if he feels bad he goes to school they let him rest or nap as needed but normalcy is very important .
You shouldn't have to chose but no child should be sick but one good hug and smile over a paper they completed or project they finished and its all worth it regardless of illness
02-10-2015, 11:19 PM   #8
Maya142
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I've wondered how id be able to encourage my kid not to allow this disease to rule them when I'm so easily influenced to do that myself. This is all just so tough and decisions that shouldn't need to be made need to be made.
My husband has AS and both my daughters have AS (the younger one also has IBD). When they're in pain or not feeling well, I'm much more likely to encourage them to go to school, try and do their homework or see their friends. He really "gets" it in a way I can't, and so doesn't have the heart to try to "make" them do anything when they're not feeling well. Sounds counterintuitive, but I guess he knows the pain they're feeling, while I don't.

Both my daughters also say they won't have kids. They say it's irresponsible and they wouldn't want a child to suffer so much. It breaks my heart, but they have both had such a hard time that I understand where it is coming from. I hope in the future there will be better treatments and they'll change their minds.

Sending hugs. Good luck with your decision!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
05-04-2015, 10:59 AM   #9
VioletRose
 
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Hi,

both my husband and I have Crohn's and our daughter turned one 2 weeks ago. The chances of having a child with Crohn's when both parents have it are about 35%. We didn't think twice about having children (we want more than 1) even though we both have this disease (we were diagnosed at 10 and 14). Nowadays the treatments are much better than back in the day, when we were diagnosed as kids. If you have any question, feel free to ask!
05-04-2015, 09:39 PM   #10
Asher
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Thank you so much violet rose
05-05-2015, 02:05 PM   #11
helena101
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My husband has UC and I have crohns. I was very hesitant about having children, but we had a baby girl last year (she is just 11 months). It was a difficult decision for me, but we are so happy to have our little girl.
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