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01-20-2015, 08:53 AM   #61
my little penguin
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Does proctitis inflammation show up in bloodwork or fecal cal????
Just trying to get confirmation without a scope
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01-20-2015, 09:16 AM   #62
CDJ
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I am not sure. Josh's has only shown up when he has had colonoscopies. I think that blood work will only show inflammation and not where it actually is.
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diagnosed 29/10/2009

Taken off azathioprine Jan 2011 due to needle phobia
carried on with just pentasa until March 2013

6 weeks Modulen Dec 12 / Jan 13

Finally overcame needle phobia after 3 very long years due to getting right help.

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01-20-2015, 09:37 AM   #63
2thFairy
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I doctor can see proctitis in the office via anoscopy which takes 1 minute or less and requires no prep or anesthesia.
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"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation
01-20-2015, 09:42 AM   #64
2thFairy
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Anoscopes
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File Type: jpg Cylindrical_Anoscope.jpg (16.4 KB, 93 views)
01-20-2015, 09:48 AM   #65
my little penguin
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Thanks but not a good option for an 11 year old
01-20-2015, 10:01 AM   #66
my little penguin
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Forgot to add he has rectal prolapse so think that complicates looking
01-20-2015, 05:24 PM   #67
Cross-stitch gal
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Mine was diagnosed through a flexible sig test.
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Diagnosed:
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday, Canasa Suppositories (when needed) 1000mg 1xday

Non-Meds:
600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday


UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
01-21-2015, 08:14 AM   #68
scottsma
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And mine
01-21-2015, 10:16 AM   #69
my little penguin
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He was dx with crohn and inflammation in multiple spots including the rectum a few years ago.
Just trying to avoid a new scope to confirm the inflammation is back kwim
01-21-2015, 10:21 AM   #70
scottsma
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I can't begin to understand how a child can cope with this nasty disease.And the worry to you must be enormous,knowing what you do.Please accept my best wishes to you both.
01-25-2015, 10:43 AM   #71
my little penguin
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Update
Since stoppibg the bentyl and the over a week since the mre/barium reaction his rectum seems better -no pain between BMs just pain during a BM /with prolapse . His BMs went from 2-3 ( 5 on bad days ) down to 1 formed BM on a capful of miralax .
He normal needs only 1/2-3/4 cap to have loose
BMs .
I assume that means things are getting better ???
He sees Gi in two weeks
His joints joined the party as well
01-27-2015, 05:48 AM   #72
Cross-stitch gal
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I wish things were much easier on your little guy penguin. Hopefully things will start settling down soon.
01-27-2015, 09:56 AM   #73
my little penguin
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Gi scheduled flex sig without discussing it
Since he is little and needs put under anyways and has crohns in TI/caecum
Not a fan
Wil be talking to Gi
01-27-2015, 10:04 AM   #74
my little penguin
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Talked to Gi
Full upper and lower scheduled
01-27-2015, 10:10 AM   #75
scottsma
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Ah,bless him.
01-27-2015, 10:26 AM   #76
my little penguin
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Kinda funny but not
Ds says he gets rectal pain
With passing gas
But only "big gas" then he does sound effects for you
01-27-2015, 11:34 AM   #77
scottsma
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That's boys for you........girls don't do gas.(not much they don't)
01-27-2015, 04:35 PM   #78
2thFairy
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Now with a stoma, I crack up when I am accused of passing wind.
02-04-2015, 06:32 PM   #79
my little penguin
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DS was admitted this past weekend due to abdominal pain and given a rush scope Tuesday.
Original outpatient scope was schedule for March .

Everything looked visually good -always does
Just loss vascularity on one spot of the transverse colon
So we wait for biopsys now
02-04-2015, 07:17 PM   #80
Cross-stitch gal
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Sorry to hear about DS. Glad to hear nothing's wrong, but hope at the same time that they'll be able to find somethng that works in order to help. Lots of hugs.
02-09-2015, 06:54 PM   #81
my little penguin
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Biopsies clear except for gastritis
Gi agrees whatever it is -it's behaving like proctitis /sigmoiditis
So DS started flagyl today
To wipe out whatever is irritating his gut hopefully .

Last edited by my little penguin; 02-09-2015 at 10:29 PM.
02-22-2015, 04:01 PM   #82
buttER
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Hello, I have left-sided colitis that was treated with Asacol that helped alot, but the pain (and urgency) lower down did not go away so I was given Pentasa suppositories for 2 weeks. That helped and the pain has not returned for 1 month.

I saw the gastroenterologist and he doesnt want to continue with the suppositories. He suggested that we try budesonide instead (after a colonoscopy due soon).

Has anyone been treated with budesonide for sigmoid proctitis or proctitis? I am sceptical it reaches that far down the colon.
Or, is anyone on long-term treatment with 5-ASA suppositories and what is your opinion and experience?

Thanks for any comments!
02-22-2015, 04:26 PM   #83
2thFairy
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Budesonide in what form? I used the enemas for a few months just before my colectomy and they helped slow down the bleeding.

I used 5-ASA suppositories every day for two years, sometimes twice a day. While they did not stop the flare, I was much worse off when I didn't use them. It helped reduce some of the pain I had and lessened the rectal spasms too.
02-22-2015, 04:31 PM   #84
buttER
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Did you use the enema and the suppositories at the same time?
02-22-2015, 10:52 PM   #85
2thFairy
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5-ASA suppositories in the morning and budesonide enemas at night.
02-23-2015, 05:44 AM   #86
scottsma
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I have used Asacol supps.for 9yrs as maintenance.After a colonoscopy in Sept.showed my lower bowel was clear (although I had inflammation higher up in the splenic flexure)
I stopped using them.I was on a 4wk course of steroids last month prior to an MRI scan and have flared for 5wks.(blood,mucus) Have used the suppositories for the last 3wks, and it's all cleared up.So they work for me,but we're all different.My meds might be changed soon,as I have an ultrasound of the small bowel next month.
02-23-2015, 02:46 PM   #87
Cross-stitch gal
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5asa supps are part of my meds. Although, I haven't been using them lately since I've been doing so well. I used hydrocortisone enemas at one point. At one time they worked wonders for me along with my regular meds. But, since I had that bad flare a couple years ago the supps work better than the enemas.
02-23-2015, 03:26 PM   #88
buttER
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Hello everyone

thank you for the replies.
The doctor talked about budesonide in oral form. I thought that was only for Crohns in the small intestine and first part of the large intestine.
It does not seem to make sense. If the 5-ASA suppositories were working for me I wonder why he does not want to give them to me.
02-23-2015, 03:31 PM   #89
2thFairy
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Oh, my apologies! I used hydrocortisone enemas (Cortenema), not budesonide enema. I'm glad Cross-stitch gal said that...it sparked my memory.

I've used both hydrocortisone enemas and mesalamine enemas, for awhile using both every day. I tolerated the mesalamine enemas much better than the hydrocortisone, though the hydrocortisone had a more profound effect at minimizing my flare.
02-23-2015, 04:15 PM   #90
2thFairy
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Hello everyone

thank you for the replies.
The doctor talked about budesonide in oral form. I thought that was only for Crohns in the small intestine and first part of the large intestine.
It does not seem to make sense. If the 5-ASA suppositories were working for me I wonder why he does not want to give them to me.
Suppositories only help the rectum. Is your active disease higher up? I am also surprised that your doctor would have you stop using them since they are helping you.
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