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05-24-2015, 02:23 AM   #61
Catherine
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Have you had a faecel calprotectin done?

Can't believe they didn't take biopsies. My colonscopy shown nothing and they still took biopsies.

I hope this specialist is not your daughter new GI.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
05-24-2015, 02:46 AM   #62
upsetmom
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No, l haven't had one done but will ask GP tomorrow.

The DR that did my scopes was a colorectal surgeon not a GI .
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05-24-2015, 03:48 AM   #63
Catherine
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Just remember faecel calproectin is not free. You will need to ring the labs for the price.

Glad it wasn't dd new GI.

Last edited by Catherine; 05-24-2015 at 08:20 PM.
05-24-2015, 08:49 AM   #64
Lady Organic
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wow I cant believe it either. with all your latest story and daughter CD diagnosis..., no biopsiy, no referral with a GI...
i encourage greatly calprotectine test thats an easy and unexpensive test to do.
you need a referral to see a GI consultant who might want to remake a small sigmoido-rectoscopy or (even colonoscopy if you mention pain in the right area) and analyse your case furthermore.
sending you support.
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05-24-2015, 11:30 PM   #65
upsetmom
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Saw my GP and she thinks we're running around in circles. At this stage she feels it's best if l was referred to a GI who knows exactly what tests need to be done next, but in the meantime l'm having a lower abdomen and a rectal ultrasound done. Does anyone know if the rectal ultrasound is done internally? l asked the receptionist but she didn't know.
05-25-2015, 12:00 AM   #66
Lady Organic
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ive never had rectal ultrasound (and had never heard of it since you mentionned it!). When an abscess was suspected, I had an MRI only and also rectoscopy.
about rectal ultrasound: http://www.colonrectal.org/services....und/index.html

Has your GP sign you a referral to a GI consultant?
05-25-2015, 03:41 AM   #67
upsetmom
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Reading about this ultrasound doesn't sound good..
I was told nothing about an enema, but then the girl that made the appointment had no clue about the actual procedure. I'll have to ring back.

I never got the referral for the GI, probably after these ultrasounds results. I'm guessing this is about the 10th ultrasound on my abdomen over the years.
06-01-2015, 10:13 PM   #68
upsetmom
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I had my rectal ultrasound today, it was done through the skin. When she finished she said results were going to get faxed through to my GP this afternoon and asked when l was going to go see her. I knew straight away something was wrong. I asked if she has seen anything and she said there was still residual there from the abscess. I don't know how they didn't see this on the colonoscopy. I feel scared again...
06-01-2015, 11:56 PM   #69
Catherine
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My guess would be because its not inside the colon.

Ring GP see whether they have results and tell them you told that you needed an appointment this afternoon or tomorrow morning to discuss.
06-02-2015, 12:43 AM   #70
upsetmom
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I was hoping to delay my appointment till after l have my abdominal ultrasound on Thursday. My GP usually rings me if she thinks its urgent, so far no call.
06-02-2015, 05:05 AM   #71
Catherine
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They may want to an internal abdominal ultrasound. The only reason the didn't do one with my daughter was her age.
06-02-2015, 05:29 AM   #72
upsetmom
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I usually do have an internal as my uterus is retroverted.

I didn't hear from my GP so it must not be too bad.
06-04-2015, 01:39 AM   #73
upsetmom
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So the ultrasound shows that the abscess is still there. My GP doesn't know if its come back or never went away in the first place. I need to have a ct and then go see the surgeon. I'm still confused whether this thing is in the bowel or not..Here are the findings
In the region of interest, posteriorly, in the perianal region, there is a nonvascular heterogenerous collection with dimensions of 3.2 x 3.6 x 4.0cm.

So it's not much smaller.
06-04-2015, 02:33 AM   #74
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I'm sorry you're still having troubles. Sure wish things could be at least a little simpler for you and that they'll get you taken care of soon. Continuing to send lots of hugs your way...
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06-04-2015, 07:39 AM   #75
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I'm not sure what that means either.

how are you feeling? Have they totally ruled out ibd?
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06-04-2015, 02:35 PM   #76
upsetmom
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I'm not feeling too bad, l just try to avoid sitting if l can. I was told if l start having severe pain, fevers or vomiting to head straight to the ER.

IBD was ruled out by this surgeon with clean scopes and no biopsies. My GP was going to refer me to a GI but the abscess needs to be sorted out first.
06-04-2015, 09:24 PM   #77
Catherine
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When the CT scan?
06-04-2015, 10:37 PM   #78
upsetmom
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06-05-2015, 07:37 AM   #79
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I'm not feeling too bad, l just try to avoid sitting if l can. I was told if l start having severe pain, fevers or vomiting to head straight to the ER.

IBD was ruled out by this surgeon with clean scopes and no biopsies. My GP was going to refer me to a GI but the abscess needs to be sorted out first.
that ticks me off! I can't believe they didn't even biopsy in the area where they thought the abscess should have been.

I hope you stay feeling well. Update when you can!
06-06-2015, 03:35 PM   #80
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Sorry you're going through this!

When I had an appendectomy and bowel resection last June, the pathology came back as suspected Crohn's; however, the GI that did my colonoscopy afterwards didn't do biopsies, either. That was my hint to find a new GI! The new GI was able to diagnose through the prior pathology, blood work, and a pill cam. They didn't think insurance would cover scopes again so soon. It is so frustrating to wake up after all of that and realize they didn't do what you thought they were going to!

It sounds like your GP has your back. Good luck with the CT and keep us updated!
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06-06-2015, 05:33 PM   #81
upsetmom
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This is probably stupid of me but l chose to go back to the surgeon that did my scopes. When my GP said there was an abscess and l needed to be seen by a surgeon she didn't want me going back to that surgeon. She gave me a few other options but l chose to go back to him as he knew exactly what had been going on. I thought l'd give him another chance...l just hope l made the right decision.
06-06-2015, 08:46 PM   #82
lenny
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Ask nurses if the surgeon is good. My daughter says, when patients ask her, she will tell them "getting a second opinion is always wise" (when she wants to say the doctor sucks).
06-08-2015, 06:45 PM   #83
upsetmom
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There's been a change of plans. My GP wanted me to have a CT before seeing the surgeon but l just got a call saying he only wants a blood test done and to see him tomorrow.
06-08-2015, 11:34 PM   #84
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It's true if you trust the referring Dr. and they suggest seeing someone else I would do it. They may have info on the original Dr that can't be shared.
Doesn't mean you have to continue with the Dr giving the second
opinion.

I
Good luck!

Lauren
06-09-2015, 07:26 AM   #85
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There's been a change of plans. My GP wanted me to have a CT before seeing the surgeon but l just got a call saying he only wants a blood test done and to see him tomorrow.
Interesting, update when you can!
06-09-2015, 09:31 PM   #86
upsetmom
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I don't know where to start. I go in to see the DR and he said blood tests are all good. He said there is a small collection but bloods aren't indicating an infection so he's not too concerned at the moment. He told me 4cm sounded big but really its only as big as our thumbnail. I don't know how big his nail is but mine surely isn't 4cm. He said it was in a very bad area and if he did try to drain it he'll create a lot of problems. So that's all he was going to do, just leave it and keep an eye on things. Just as l was about to leave he decided to check my bottom and that's when he found a fistula that he said was not there when the colonoscopy was done. He wanted to know if l has an leakage from my bottom. I remembered a few days ago l had a bit of leakage and a lot of stinging. I don't recall any other leakage. He also said l definitely don't have crohn's. So now l've been booked in for an MRI to see what's happening.... l really should have listened to my GP and seen another DR.
06-09-2015, 09:58 PM   #87
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I am new at this as well as new to crohns. I started today with diarrhea now its just blood and no stool. any suggestion?
06-09-2015, 10:23 PM   #88
Catherine
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Do you like DD new GI? Can you get referral to them?

Keep appointment this surgeon has make. Just move on with a new referral at the same time.

4cm is a lot bigger than thumbnail. Can you get a copy of the report?
06-09-2015, 10:47 PM   #89
upsetmom
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I am new at this as well as new to crohns. I started today with diarrhea now its just blood and no stool. any suggestion?
Sorry l can't help you. Start a new thread and l'm sure you'll get a lot of replies.
06-09-2015, 10:55 PM   #90
upsetmom
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Catherine l do like my daughters new GI but at the moment l think l need a surgeon. I'm thinking after the MRI if he's still not willing to do drain it l have to find someone who will. I'm scared this abscess is going to get bigger and cause more problems. I do have a copy of the ultrasound report, l posted the results above.
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