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Crohn's Disease Forum » Treatment » Pain medication and addiction in Crohn's Disease


 
05-19-2015, 05:29 AM   #421
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So update on the pain med situation: I've fractured my spine. I think I probably fractured it over a year ago as that's how long I've been having lower back pain for, but I recently had an X ray confirming it. The background to this is that I've had osteoporosis since childhood (idiopathic juvenile osteoporosis) and the idiopathic childhood disease has been worsened by steroids, low weight and malnutrition to result in my bones being incredibly thin. So this fracture is undoubtedly going to be joined by more (it's amazing I haven't had other breaks by now) so more pain is in my future. And besides that there's the stomach pain of course, though I've been lucky that my Crohn's pain has not been chronic; I've had episodes of severe pain, and of course pain from surgeries, but I've always known there was an end in sight. And that's still the case. I get blockages and such, but normally my stomach is merely uncomfortable.

But anyway, my doctor has increased my opiate pain meds. I know I'm horribly addicted (I went through one of my opiate-free trials yesterday, just twenty-four hours, and I was beginning to get a bit desperate by this morning. I just took them half an hour ago and feel very relieved). But I would rather continue the addiction than give it up. My doctor and I have tried all sorts of non-opiate meds, and physiotherapy, but they don't touch the pain. (Though the physio has helped a lot with other issues.) The only other thing that's ever helped relieve pain for me is diazepam (used as a muscle relaxant), but that's addictive too! Amitriptyline is hugely beneficial as it allows me to sleep through my various pains and discomforts at night, but I've not yet become desperate enough to need to sleep through the days as well.

I don't think I really have a question to ask with this post, but any advice is welcome, even if it's to tell me that increasing my meds further isn't a good idea. If that is how anyone feels I'm open to discussing it.
05-19-2015, 07:13 AM   #422
darster
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Having been through the pain med/addiction/recovery road, I sympathize with you. Being in constant pain is awful. There aren't a lot of alternatives. It is a difficult situation, no getting around that.
05-24-2015, 05:41 PM   #423
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I realize that this might be very late but I would like to point out that they do give you narcotics when you have pain because being in pain not just sore or discomfort but real Crohn's pain puts stress on your heart which if you are already dehydrated and having problems would be very bad now of course you should not be taking them like candy or on a constant basis but when used properly they work with little to no addiction problems it's a medication like any other one and can be dangerous like all medications so if you do what your doc says to do you will be alright now yes you can become dependant on them but that does not mean addict sometimes its because you are litterally in pain and without them your body will freak out that is why they are only used when pain is interfering with your daily life especially when eating or sleeping which are crucial to healing also no they don't like to prescribe then when you have obstruction and blockages but in the words of my old GI who was awesome what are you supposed to do be in pain all the time litterly there are not that many options as seeing the only over the counter a person with Crohn's can take is Tylenol and to be honest not does not even treat my constant headaches I hate when anyone says take tylenol it doesn't help but to each his own so it's not uncommon for Crohn's patients to be put on narcotics for pain it's just not what they want but they cannot keep you in pain at least any well-meaning caring physician should not do and if they refuse to do anything at all about the pain time to find one who will
05-30-2015, 07:17 PM   #424
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Take a look at ondansetron. It's an anti-emetic. I was given it to get me off cyclizine, but it causes terrible migraines.

However! There are very promising studies showing ondansetron can mask the worst cold turkey withdrawal symptoms. This is why I've kept as many as I can - sooner or later I'm going to have to come off the codeine. Last time took weeks and was extremely uncomfortable.

Someone earlier mentioned methadone. This is foolish - if you're shooting up heroin every day then, yes! For codeine it would actually make you higher and re-enforce the physiological dependence.
05-30-2015, 10:56 PM   #425
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I get bad insomnia and headaches that last 2 days when I take hydocodone or morphine. Does anyone else have theses issues with pain meds?
05-31-2015, 04:14 AM   #426
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Take a look at ondansetron. It's an anti-emetic. I was given it to get me off cyclizine, but it causes terrible migraines.

However! There are very promising studies showing ondansetron can mask the worst cold turkey withdrawal symptoms. This is why I've kept as many as I can - sooner or later I'm going to have to come off the codeine. Last time took weeks and was extremely uncomfortable.

Someone earlier mentioned methadone. This is foolish - if you're shooting up heroin every day then, yes! For codeine it would actually make you higher and re-enforce the physiological dependence.
You're right about the methadone.

Does ondansetron help with any withdrawal symptoms besides nausea?
05-31-2015, 04:24 AM   #427
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I get bad insomnia and headaches that last 2 days when I take hydocodone or morphine. Does anyone else have theses issues with pain meds?
I've not had that problem. I don't know about hydrocodone, but I've had morphine several times, and I've always found the side effects I do have to be very short-lived rather than continuing for days. I think morphine causes drowsiness rather than insomnia. But I've contradictory side effects from some meds, so I think it's perfectly possible that your insomnia and headaches are from hydrocone and morphine. Have you tried any other painkillers?

Last edited by UnXmas; 05-31-2015 at 04:59 AM.
05-31-2015, 10:54 AM   #428
pfosterm1963
 
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I've tried Tramadol with the same problems. I have to be very sick in order to take a pain med. I am in a bad place with these issues. Thanks for your reply. 😀
06-27-2015, 05:58 AM   #429
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A pain management Doctor once told me I should never feel guilty or ashamed because I have to take pain medication. Its a needed medication for some and one should never feel guilty or be made to feel like a addict because they are in constant pain from a health issue. You cannot help the fact that you are in pain and its not appropriate for anyone to call you a addict because you need these meds to function.

That being said I do take pain medication and I would say my body is addicted to them. But what exactly are you suppose to do? Am I suppose to curl up on the couch in pain all day? If it were not for these medications I would not be able to do much of anything. Between my Stomach and back I wouldn't be able to function on a daily basis. I'm certainly not saying you need them for every little twing that you feel as pain is the bodies way of letting you know there is something wrong. But when you know whats wrong and there is nothing that can be done. It is certainly not the humane thing to do to expect someone to experience debilitating pain.

People that have called me a "Pill head" are the same people that would rush there dog to the vet if they thought it was in pain, would do anything for the animal to help its pain. But yet a person in pain taking a prescribed medication is a drug addict. There is something wrong with the world today.

If you are in pain please do not feel bad about taking your medications. These people asking you why you need it are not the ones in the pain. They do not know your pain nor do they understand what its like to be in constant pain as we sometimes are.

I get asked what Crohn's pain feels like by people all the time. My reply: Go get a pair of vice grip pliers, grab your stomach with them and twist as many times as you can never letting go. This is the best way I have found to express the lvl of pain I experience with Crohn's. And I'm suppose to go without my meds no I think not.
06-27-2015, 06:55 AM   #430
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All good points, pjm. What medication do you take, if you don't mind my asking? Do you find tolerance a problem? (You probably know the difference between physical tolerance and mental addiction, as you seem to know what you're talking about, but if not, tolerance to a pain med means you need to keep upping the dosage because you've used it often and your body has become tolerant to its pain-relieving effects.)
06-27-2015, 07:45 AM   #431
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All good points, pjm. What medication do you take, if you don't mind my asking? Do you find tolerance a problem? (You probably know the difference between physical tolerance and mental addiction, as you seem to know what you're talking about, but if not, tolerance to a pain med means you need to keep upping the dosage because you've used it often and your body has become tolerant to its pain-relieving effects.)
I take hydrocodone when its really bad I take percocet. My PM Doctor had me on Methadone at one time but it created a problem with constipation so he switched me to the Fentanyl Patch. I had to ask him to think about it for a minute. This medication is causing extreme constipation in someone with a narrowed ulcerated bowel which in turn is causing me pain which I come to you for help with. He took a minute to let it sink in and then changed me to the patch.

Yes I have a problem with resistance to pain medications. But I find that if I keep my GI DR informed on my pain medication lvl's and inform the ER dr's they will generally treat my pain correctly when I have to go to the ER or am hospitalized.

Its a shame that we have to go to a pain management dr to get the relieve we should be able to get from our GI Doctors. These recent laws they have created related to narcotics have caused more and more people that cannot afford 3 Doctor visits a month to have to turn to other means of pain relief. How is it that a Dr treating a extremely painful condition has to ignore one of the symptoms of the condition for fear of loosing his practice.
06-27-2015, 07:54 AM   #432
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I get bad insomnia and headaches that last 2 days when I take hydocodone or morphine. Does anyone else have theses issues with pain meds?
Hydrocodone keeps me up at night when I have to use it. I find it helpful to take a melatonin tablet. Its a non addictive sleep aid found in the vitamin section of your pharmacy. It WORKS! As with any addition to your meds I would ask my GI DR if it was ok before taking it though.
10-24-2016, 02:04 AM   #433
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After 7 years of being rx'd Hydromorphone, I'd become hopelessly addicted to opioids. Throughout those years my saving grace was a friend with a Buprenorphine prescription.
I now have my own RX for Suboxone and I think its safe to say that it has completely saved my life. Not to mention the constipating effect actually allows me to function without the fear and anxiety that comes with not being able to control my bowls.
I wonder if any of you can relate to this positive effect opioid constipation can have? Understandably some opioids cause more severe constipation then others, and believe me I've tried them all, but at the same time I've found that others allow me to function in life. Specifically (for me) Buprenorphine.
03-16-2017, 03:38 AM   #434
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hi
A doctor treating a person for pain needs to look for potential risk factors for substance abuse, such as a personal or family history of other types of substance abuse or psychiatric disorders,


Thanks

Last edited by Nickk2017; 03-16-2017 at 04:49 AM.
03-21-2017, 11:57 AM   #435
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I've been on percocett for over 15 years and have not had any real problems. First off one has to respect the med as its very additive. The tendency is to want more as time goes on. I avoided that route and limit it to two tablets a day maximum. Often only half a tablet is enough to settle the pain. This painkiller does two things well. It provides that all important glow or feel good as it goes to work that other pain meds don't. This reduces stress and takes away ugly weight of cramps giving me a decent level of life quality. The other thing is it helps with watery stool and I have better formed bowel movements.
04-04-2017, 07:49 AM   #436
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Hi UnXmas. I didn't kow there was a group for fibro and those taking Elavil. It really does take the pain away at night time and helps me to rest. One a new note....I tried the new drug Entyvio approved by the FDA for Crohns and after the fourth does I had an anaphalysis response and off to the ER I went. I looked like a burn victim. It was all over, hurt like being a burn victim and had respiratory involvement. Now my GI guy is sending me to medical centers to see if they have any studies going on. The only thing I am on now is steriods and that aint cutting it. Hope all is well with you and hope others have more success with this new drug. It is a great hopeful drug for so many that struggle with remission.
Didn't your GI Rx Benedryl and/or prednisone bolus in your first month or so of a new biologic to PREVENT the anphaphalctic shock?
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