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09-26-2015, 05:56 AM   #1
Zootini
 
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Location: milton keynes, United Kingdom
Hating life! 6mp

I have started 6mp a few months ago after coming off steroids finally. Since last month I have just been feeling terrible, anxiety, headaches, chest tightness, chest pain, back pain, aches in my sides, mentally not feeling great. Does anyone else suffer with these effects on 6mp? I think I want to come off them, my quality of life is terrible at the min and don't know what else it could be. Please help if anyone has had anything similar

Thank you s
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Zoe, 17
Current meds:
Prednisolone 7mg
Sulphasalazine
Codeine
09-26-2015, 09:47 AM   #2
DJW
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Sorry your going through this; it is awful.

I get many of those same issues when my anxiety gets out of control. The other symptoms you describe are also symptoms of anxiety.
I'd suggest talking to your doctor about it.

Sending you my support.
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Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
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Living in Ontario with no drug benefits?

Trillium Drug Program:
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Dave
09-26-2015, 12:28 PM   #3
Om3ga1
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Started 6MP this week. Thankfully no side effects yet.
09-27-2015, 06:39 AM   #4
Zootini
 
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Thank you, yes my anxiety is bad at the moment I suppose, I am on propranolol to help control it. Think I'm going to stop 6mp, haven't taken it for 3 days now x
10-03-2015, 12:04 PM   #5
Om3ga1
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Thank you, yes my anxiety is bad at the moment I suppose, I am on propranolol to help control it. Think I'm going to stop 6mp, haven't taken it for 3 days now x
Before you give up on 6MP try basalazine instead of pred. 4 750 mg a day has turned my situation around. I'd never heard of the stuff until this new GI suggested it after I complained about hating pred. Now I'm a big fan of the stuff.
10-03-2015, 06:48 PM   #6
InkyStinky
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I am so sorry for what you're going through!

6MP has been my "miracle drug" for my gut, though as IBD is so varied different meds are needed in different cases. Did your GI check your TMPT levels before you started it? http://www.crohnsforum.com/showthread.php?t=29139

For years I thought that 6MP gave me fatigue and brain fog. About a year ago I came across Katy Bowman's alignment stretches. These have helped me a lot. She has a number of her stretches on her youtube channel (nutritious movement) - might be worth trying to see if they help you at all.

(Have you had any surgeries? If you have check with your doctor before doing any of the ones that involve your midsection)

A few of my favorites:

Start at 1:43 for the calf stretch (you can use a rolled up towel instead of that foam thing) - https://www.youtube.com/watch?v=oAjNBzhvpIo

Head hang - https://www.youtube.com/watch?v=Dq2Sj4eEs-Q

Hip stretch - https://www.youtube.com/watch?v=hpQtvPyvpw4
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Sabrina
IBD diagnosed 1990 @ 8yrs old (current dx: Crohn’s); Blood clots 12/2009 (DVT, bilateral PE)
6MP: 50mg/day

Ethel: “So, is everything okey-dokey?” Lucy: “No, it’s inky-stinky” ~ I Love Lucy

-Are you looking for a new treatment option for your Crohn's disease? If so, I suggest you look into the ongoing clinical trial by Qu Biologics for their SSI treatment. Click here for more information or to help spread the word.
10-12-2015, 10:22 PM   #7
Catherine
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
10-29-2015, 04:06 PM   #8
vchrep
 
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oh..
12-01-2015, 06:43 PM   #9
Om3ga1
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Done with 6MP. The way my hair is falling out you'd think I was getting radiation.
12-01-2015, 11:34 PM   #10
ronroush7
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Thank you, yes my anxiety is bad at the moment I suppose, I am on propranolol to help control it. Think I'm going to stop 6mp, haven't taken it for 3 days now x
Talk with your doctor before giving up on the medicine. Maybe he can make an adjustment.
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