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11-16-2015, 11:56 AM   #1
Grant
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2 Choices

Infliximab here I come. Humira has stopped working & I've 2 choices, Infliximab or an Ileostomy. Really feeling upbeat about Infliximab, my Specialist tells me there's a 50% chance it'll work. So I 'm going to embrace it & hope to high heaven this is going to sort me out once & for all.
Rgds
Grant
__________________
1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate
Currently on:
Inflectra
Questran
Loperamide
Calcichew
Pentasa 4gm daily
Daily Multi Vitamins
3mthly B12 Jabs
11-16-2015, 02:48 PM   #2
DJW
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Hope it works well for you.
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Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
11-16-2015, 06:00 PM   #3
ronroush7
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Hoping the best for you.
11-16-2015, 06:01 PM   #4
ronroush7
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Hoping the best.
11-16-2015, 06:33 PM   #5
Robrich
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Highly suggest you add aza or MTX AS COMBO THERAPY to give yourself the best shot
__________________
DX. Crohns 50 yrs. with fistulas for 20 years until remicade
Meds: MTX,ENTYVIO 9/14' augmentin,
pred. 10mg.
probiotics
d3, calcium, k2' magnesium, resveratrol,
Turmeric,paleo, bone broths
Past: humira no response after 6 mos., remicade amazing for 10 years then stopped working.
Entocort
6mp, Imuran never helped nasty side effects liver problems, caught pneumonia
Asacol, rowasa no response
Flagyl worked well but got PN cipro same.
11-17-2015, 05:06 AM   #6
Grant
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Hi Robrich, I've been on both before. Methotrexate made me feel awful, quality of life was poor. Aza very nearly had very serious consequences for my blood.
Rgds
Grant
11-17-2015, 09:56 AM   #7
Kero
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Hope it helps! I am waiting to start Remicade myself
__________________
Crohn's Disease Dx: October 2015
Anxiety/depression
Previously diagnosed with IBS-D

Medications:

Celexa for anxiety/depression

Crohns
Remicade HAd first loading dose, second on on Dec 23. 500mg
Imuran 150 mg
Entocort 3mg
Pentasa 4g/day-failed

IBS-D
Buscopan-failed
Librax-failed
Dicetel-failed
Modulon-failed
Prevacid-failed
Elavil-failed
11-17-2015, 10:52 AM   #8
ronroush7
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The best to Robrich and Grant.

04-20-2016, 05:26 AM   #9
Grant
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2 weeks after my last infusion & I have tonsilitis & its horrible. We all know the risks of being on immunosuppressants but 2 days into a course of AB's & I feel utterly lousy. The inflammation is giving me terrible headaches.
The good news is my gut is atm good.
You cant have it all I guess.
Keep well everyone
Grant
04-20-2016, 09:16 AM   #10
ronroush7
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Prayers and support.

04-21-2016, 01:22 PM   #11
Tuff
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Get better soon. I currently have strep throat, which is not fun, but since I've been in remission for two years with Remicade, I just try to cope with the viruses as they come along. This year has been a bad one for colds for me.
__________________
Inflammatory bowel disease may more than double the risk of a serious blood clot in the legs or lungs.
************************************************** ********************************************

Stelara, Warfarin, calcium, Vitamins B12, D.
Previously: 5-Asa, Cipro, Flagyl, Prednisone, Aza, Remicade.
Pulmonary Embolism, DVT's, osteopenia, Peripheral neuropathy.
04-21-2016, 01:38 PM   #12
ronroush7
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Get better soon. I currently have strep throat, which is not fun, but since I've been in remission for two years with Remicade, I just try to cope with the viruses as they come along. This year has been a bad one for colds for me.
I am sorry for the strep throat.

04-21-2016, 02:18 PM   #13
Grant
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Thankyou everyone for your kind comments.
Tuff, I hope you continue in remission & the infections cease. My Dr has doubled me up on AB's & I'm feeling much better. Stomach is stable, obviously AB's can be a problem if they strip your gut of bacteria & along can come C Diff.
But no worries on that ft thankfully.
Rgds
Grant
04-21-2016, 04:33 PM   #14
JaimeM
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I love remicade.. I was on just remicade for 6 years and did very well. switched to cimzia bc it was an injection I could give myself and it failed.. so now I'm back on remicade, but they had to add imuran. However the moment I started back on remicade I've been feeling great again.
__________________
Diagnosed Terminal Ileum Crohns 2008
Remicade 6yrs
Had a healthy baby boy 2014
Switched to Cimzia but didn't work 2015
Back to Remicade and added Azathioprine 2016
04-21-2016, 04:42 PM   #15
ronroush7
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Hoping the best.
Sorry for repeating myself
04-23-2016, 09:40 AM   #16
Charlotte.
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Have you tried antibiotics? They do many medical trials in Europe with rifaximine. Have you considered trials as well before surgery?
__________________
Crohn's Disease: diagnosed 2014 (at 24), symptoms for 10 years now
Enteropathic Arthritis, Sacroliitis, Osteopenia

Stelara; Uceris; Lansoprazole; Domperidone.

Previously: Remicade, Humira, Simponi, Azathioprine, Methotrexate, Sulfasalazine, Entocort, Uceris, Prednisolone, TPN, EEN, different alternative treatments.
05-26-2016, 02:26 PM   #17
Grant
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Had my latest infusion yesterday, a week early because I've been feeling lousy. Now I'm taking a keen interest in things like my CRP & weight.
Well my weight is down a bit again for the 3rd time running since feb. My CRP is 4, now this doesn't sound much but I'm not feeling great. But the worrying thing is my Red Cells are down, I'm not entirely surprised as I feel very tired & listless. I'm seeing my Specialist a week Monday, I'll try & have another blood test so he has really up to date results. Recently I haven't had visible blood in my BM's so if I'm bleeding its well hidden & the colouration is darker than the usual vivid red.
Bit worried about this turn of events tbh.
Best Wishes
Grant
05-26-2016, 02:31 PM   #18
ronroush7
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Sending support. Keep us updated.

05-26-2016, 02:42 PM   #19
Grant
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Will do, thanks Ron.
Grant
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