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10-02-2012, 09:02 PM   #31
lola99
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Join Date: May 2011
My coworkers wonder why I come in most days, hunkered over my cart at work. Working with one hand on my gut, and one hand stocking product. When you spend $300/paycheck on your medical insurance, it leaves little leeway (supporting a family of 4) to take proper care of yourself. My most recent Emergency Room visit (3 days after Christmas, didn't want to ruin the holiday for my family) totaled $1600 out of pocket for a CT scan and 4 shots of morphine to dull the pain. The ER doc got extremely mad at me when I refused to be admitted to the hospital for 2 weeks of testing (she actually threw a hissy fit and tried to admit me anyway.....how do you afford that bill when you can't work? I'm still trying to pay off $600 of that visit, destroyed my perfect credit report and any chance of my wife and myself buying a house. I had just put an offer down on a house when 3 bills hit my credit report, that I wasn't even aware of due to the ER making a spelling mistake in my address.

I choose to endure the pain and side effects, so my family doesn't have to endure the financial strain.
Do you live in the united states? Because if you do, maybe you should consider humira. I went from paying $100.00 a month on prescriptions to paying just $5.00. They have a patient assistant program and they say 96% of people qualify. I just started taking it a few days ago so can't say how its working for me yet. Also if you are low income and really can't afford to pay your hospital bills you should call the hospital and ask if you qualify to have part of your bills taken off.
10-02-2012, 09:48 PM   #32
LucyLee
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I have no insurance and its crazy!! i just know that they told me stress makes it worse....so the bills are piling up!!! but what do ya do....i pay a little each month where and when i can. This disease is crazy expensive!! when they told me Asacol was $400.00/month i laughed and said...oh well! How do you eat an elephant? One bite at a time
10-16-2012, 05:03 PM   #33
CrohnsChicago
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Location: Chicago, Illinois

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I pay anywhere between $200 and $300/mo if I am mid-flare. (GI visits, GP visits, Asacol, Prednisone, Antibiotics, supplements, B12 injection visits)
Colonoscopies if I need them cost an additional $300

I can't imagine how much more it would cost me if I had to go on stronger meds

It's hard sometimes but I have to make do. I'm 29, I am on my own literally with a job (thankful to have but always fearing I will lose because of my illnesses) that pays my monthly bills on time (if I am not sick, then I have to put the bills aside) and just enough to eat, no frills. But the meds/doctor visits use up all the money I could have put in savings to have a cushion for serious emergencies. Family and friend support is not available for me. So I have no choice but to make it work. Being surrounded by healthy, able-bodied young professionals just makes me feel like crap sometimes.

I want to get a second job on top of my full time job but this illness wears me out mentally and physically and wears me down so randomly and I am afraid I will only get sicker if I push myself too hard with working so much.
__________________
Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

10-16-2012, 05:10 PM   #34
Sarahkk
 
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Join Date: Oct 2012
Location: New Jersey
I'm currently only on Pentasa, and I only just started up again a couple of months ago. I was symptom free for many years. I was diagnosed in 2003, found out about diet changes in 2006-ish, and was in full remission in 2009. No medications worked for me so slowly my parents just stopped ordering them cause there was no point. I relied strictly on diet (I have a post of my specific diet) and that sent me into a full remission, so other than the cost of some more expensive foods, my costs weren't too bad so if the medications aren't really helping (sometimes people just do what the doctors tell them regardless if it's working), I would suggest going off them if you can. What is your diet?
__________________
Sarah Keller
Age: 16
Diagnosed: severe Crohn's Disease throughout entire digestive tract. October 2003, 7 years old
Every medicinal treatment:failed
Iron supplement: half-worked
Colonoscopies, x-rays, and MRI's
Severe anemia and malnutrition
Accidentally prescribed overdose twice. Caught in time
Blood transfusion March 2006 (hemoglobin levels went below 2)
Diet: avoided foods that bothered me and slowly but surely entered a full remission in 2009
10-16-2012, 06:10 PM   #35
lindbergh
 
Join Date: Sep 2012
Location: minneapolis mn
if you can not afford your drugs buy from Canada
I am on Assocol 400mg I know the biill from Walgreens is 400 a month
I now by from Canada 125.00 a month
And generic yes there is a generic in the rest of the world $65 a month
10-16-2012, 06:21 PM   #36
gutgremlins
 
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Join Date: Oct 2011
Location: New York
My COBRA insurance premium is $557.84/month.
Doctor copay $25/$40.
Medication copay $15/$25/$50.
Deductible $2000.
Coinsurance 30%.
Lialda is $25/month.
Ursodiol is $15/month.
10-16-2012, 07:15 PM   #37
CrohnsChicago
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How do you go about ordering meds from Canada? Aren't there certain restrictions on that? (I'm in the US). I never understood how that worked.

The crappy thing about Asacol is the patent doesn't expire until July 2013 from what I understand so there is no generic as of yet. The bulk of my payments come from multiple doctor visits from two doctors, my GI and my General doctor who does all the lab tests my GI recommends (I'm HMO) and deals with healing all the damn side effects of the prednisone. Whenever I see my GI, there's a 95% chance I have to follow up once or twice with my regular doctor, BEFORE I have to follow up with my GI again.


GI visits are $35 and I will see him once or twice a month mid-flare
GP visits are $15 and I see her from one to three times a month mid-flare
10-16-2012, 09:43 PM   #38
lindbergh
 
Join Date: Sep 2012
Location: minneapolis mn
You order through a Canadian certified pharmacy.
I use one called Big mountain
you must fax them a persciption first and then you can order what you want.
It takes about 2 weeks to get your order. because they have to go through the mail system.
UPS and Fed Ex will not carry them for fear of looseing the drug co. business
Also there is a generic. It is made by Sun Pharmicuticals the 5th largest drug co in the world.. The generic is sold everywhere but in the USA
My wife was very leary of ordering from Sun Pharm but I told her to look at
her migraine meds she gets from Walgreens. They are made by Sun Pharm.
10-31-2015, 11:55 PM   #39
tincho_lavie
 
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Location: Buenos Aires, Argentina

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My first surgery was paid by my insurance company, then I got two estimations for my second surgery. The first one was 15.000 dollars, wich I find ridiculous, but then I changed my doctor and the second one charged me 2500 dollars for my resection surgery. It's not cheap but I find it acceptable.
I could get free treatment if I went to a public hospital, but I'm happy where I am.
The treatment (Humira) and everything else (Colonoscopy included and doctor visits includes) is paid by my insurance company too. I pay about 120 dollars/month for my insurance.
11-01-2015, 09:47 AM   #40
-Rita-
 
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Location: Lisbon, Portugal

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Since I'm a kid I have everything for free except a couple medicines. But the most important one which is Imuran is completely free for me. I don't pay any medical care or doctor visits because, once again, I'm a kid hahah. I don't know if my parents have insurance or anything like that but so far we haven't had any problems with money regarding my disease. I find it harder to pay for school supplies (which reaches 300 every year) than my medicine. It's sad to see you all suffer because of this Healthcare should be free for everyone, especially people with these types of diseases. It's not our fault and we need medicine to survive!
__________________
Medicine I take:

Imuran - two pills a day. One after lunch and one before going to sleep.

Medicine I used to take:
Flagyl - one pill a day every morning.

Esomeprazole - one pill every morning. This is a stomach protector I take every morning before eating.


Prednisolone
- one pill a day but this one is slowly being cut.

Dagravit - one pill a day before or after meals. This is calcium because of the Prednisolone side effects on my bones and the fact I'm lactose intolerant.
11-01-2015, 11:51 AM   #41
erinjayee
 
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Location: Victoria, Australia

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Im from Australia.
My hospital stays/surgeries have been free (because I went public - I don't have private insurance)
My meds cost around $100 month.
My consultant fees are free (im a nurse at his hospital and he spoils me... would be 80$ a visit otherwise).
My surgeon charges $85 a visit - and that can be fortnightly at times.
11-02-2015, 12:53 AM   #42
tots
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Location: Austin, Texas

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I was recently charged $1800 for a UTI. Of course, I was really sick over a weekend and with my Remicade the Dr didn't want me to wait. So, that could be considered a CD expense.


Lauren
__________________


Diagnosed= 1992 and again Feb 2012 Confirmed with
CT enterography May 2015 !!


Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


:
11-02-2015, 06:13 PM   #43
ronroush7
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The biologics have really gotten to me.
11-02-2015, 11:45 PM   #44
tots
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I have been lucky, what my ins doesn't pay Remistart does.
Otherwise i just couldn't do it.


Lauren
11-03-2015, 05:24 PM   #45
DougUte
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If it wasn't for Humira Complete I would dead financially. $5.00/Month for a Biologic is very nice. They even cover the expense when my Insurance is in the deductible period.
__________________
Surgery Oct 12, 2010

Crohns Medicines:
Started Humira June 22nd, 2011
Increased to weekly injections on November 1st, 2016
Due to the insurance company, Humira ended on January 31, 2017.
Started Entyvio February 9th, 2017
Loperamide 3 capsules twice a day
Vitamin B6, B12, Folic Acid
Vitamin D3 10000 I.U.
Nature Made Multivitamin
11-06-2015, 08:45 PM   #46
irishgal
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I'm lucky that in the U.S. I have pretty decent health insurance since my husband works in the public sector, but I can't imagine the cost without insurance, or for those caught in that low/middle income level where they don't qualify for public assistance but can't afford the staggering costs of private insurance! Something needs to change with the US insurance system so people don't have to make a choice between food or meds.

As a side note, I was on very costly (for my insurance) Remicade and Humira over the past 8 years, each month racking up thousands of dollars that they'd pay. When they failed, I desperately gave AntiMAP a go, and miraculously it worked!!! Like, it worked so quickly that I feel as if I've never had Crohn's. I paid out of pocket for an integrative health MD to help me with the research and monitor me. I see her about four times a year now, and pay $125 each visit. She also does a ton with diet, supplements and lifestyle which I think help. AntiMAP itself only costs me $10/month, so the insurance has saved about $30-$40K in the past year, but they refuse to pay the small amount for me to see my integrative health doc who fixed me!!! To me, this makes no sense, and therein lies the problem. They'd happily keep me on costly Remicade, but won't reevaluate my case and pay a fraction of their potential cost to keep me better.
__________________
Currently on: Anti-MAP therapy and loving life! Full remission since Jan 2015. Clarithromycin, rifampin and low dose naltrexone. (Levofloxicin had too many side effects so discontinued after 5 months.) Resources on human MAP and Crohn's here: HumanPara.org.

Past (failed) Treatments: Remicade, Humira, Prednisone, Pentasa, Azulfadine, Lialda, No gluten/dairy/sugar/coffee or processed food in general. Flagyl worked but not long term.
11-18-2015, 08:04 PM   #47
tdht
 
Join Date: Oct 2015
Location: Philadelphia, Pennsylvania
I have Medicaid and I don't pay co-pays for any doctors/specialists/er and I pay $3 for my Humira and $1 for my other medications. I want to get a job but some employer insurance isn't as good as what I have.
12-16-2015, 09:08 AM   #48
ich
 
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In Ireland, maximum you can be charged is 144 euro per month (1724 p.a.) for all your medication if you have to pay.
You then claim 20pc of this cost back from Revenue under the Med 1 medical expenses scheme
12-18-2015, 12:02 AM   #49
polgara59
 
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Another Canadian here who has full coverage through my job. All I pay for my prescriptions are the dispensing fees. My premiums are a taxable benefit through my employer.
12-18-2015, 10:08 AM   #50
The Real MC
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I'm in the US and have insurance through work.

My resection surgery was $40,000 and my out of pocket costs were zero.

I pay a $100 copay every time I go to the ER.

This year I had a colonoscopy. I got an $800 bill for a $3000 procedure. This is not my first BBQ and I never paid that much in the past. So I enlisted the services of a health advocate to dispute the patient responsibility. Two months later, the insurance company ponied up.

If they are available, I encourage enlisting health advocates to dispute a medical bill. They are experts in navigating the medical insurance minefield and they engage with the insurance company for you on your behalf, which took a great burden off my day job. I have used them before with success. Only one occasion was the patient responsibility truly mine but that wasn't a huge hit.

One interesting case of mine was an ER visit right around midnight. There was a change in insurance providers at midnight that night. I got billed 100% for that visit because both providers argued that the other was liable for the expenses. There was no lapse in coverage, yet the providers disputed paying my expenses because of the changeover at midnight. My health advocate got that resolved for me.
12-18-2015, 11:08 AM   #51
ronroush7
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The biologics are expensive.

12-18-2015, 10:22 PM   #52
DougUte
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Ron, I pay $5.00 a month for Humira. With co-pay assistance it is not expensive
12-19-2015, 12:11 AM   #53
2010mustang
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I paid the same for humia. On remistart now but waiting to see my 1st bill.
12-19-2015, 12:52 AM   #54
ronroush7
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Ron, I pay $5.00 a month for Humira. With co-pay assistance it is not expensive
That is great.

12-19-2015, 07:05 AM   #55
NicholasPTimms
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Location: Milton Keynes, United Kingdom
I always find it unbelievable how much people have to pay due to an illness they can do nothing about. I'm very fortunate to live in the UK so get everything free through the NHS. The system has it's flaws but when I see threads like this it makes me so much more grateful for it. I did have to pay for medications at first before getting my ostomy which cost around 7 a month per item (or you could pay for a certificate for so many months and that gets you all your meds for free) but now have a medical exemption certificate and get all my meds and supplys. I really don't know what I'd do if i had to pay or deal with insurance companies.
In 2010, having somewhat a little spare time on my hands, I decided to crack some numbers to ascertain exactly how much it was the experience of Crohns had cost since diagnosis in 1999.

Such was calculated taking into consideration, the cost of medication and travel to and from appointments, the various costs incurred during hospital stays, direct loss of earnings and all the additional expenses you have to pay in terms of living costs ; such as toilet roll These costs were then off-set with any benefits I had received during that time... The figure was 42,000.. throw in the reasonable potential earnings for several promotion opportunities I had to turn down and that figure more than doubles...

01-13-2016, 10:39 AM   #56
Sar
 
Join Date: Jul 2015
Location: Ontario

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It's unbelievable to see the numbers as you start to add them up. I am extremely lucky since I live in Canada, plus I have two additional insurance plans (one through my work, the other through my husbands work). Even with all that there are still a number of out of pocket expenses. But here's the breakdown:
Disability - covers 67% of income but I do work part time hours when I can so my insurance allows a max of 85% of my income ($10,000.00 loss approx).
Meds - (thankfully 100% unlimited coverage except for the medical cannabis) approx $45,000.00/year
Complementary tx (massage - $800.00/year; Chiro - $500.00; dietitian - $250.00/year)
Travel to appointments - approx. $3,000/year
Procedures - hard to guesstimate but I've done the following test this year alone: x-Ray x 3; colonoscopy; gastroscopy; capsule endoscopy; small bowel follow through; ct scan x 2; ultrasound x 2; monthly blood work; consults with 4 specialists (not all GI docs lol); approx 3 physician appointments each month; and 3 total ER trips the last year.

So it's a total of $60,000.00 without looking at adding to cost for appointments and procedures (thankfully no expenses here for me). If I didn't have additional insurance and long term disability I would have lost $30,000.00 worth of employment and spent $50,000.00 on treatment. Thanks just the last year. I'm 25 years old and I would be bankrupt and living on the streets if I didn't have the additional supports. The free healthcare in Canada is amazing but it doesn't help if you can't work and don't have money to pay for meds. Crazy when you look at it. Money is still the number one deterrent of health. Hang in there everyone!
01-13-2016, 12:09 PM   #57
ronroush7
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Entocort is 138 dollars. Not cheap.
01-13-2016, 12:28 PM   #58
InstantCoffee
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Location: Connecticut

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My deductible is $1500 and I pay 100% out of pocket until then and apparently nothing after that unless it's out of network or whatever exceptions, and for procedures my company will cover up to half (750).

I'm planning on taking my tax return, getting a colonoscopy/endoscopy done early in the year ($3000 procedure) and being set for the year at $750, which is super nice because I have a lot of plans for the year including seeing an endocrinologist to get my cholesterol and hormone levels checked, seeing a dermatologist, getting my heart checked for signs of Marfan's and probably more things yet to come that I've been putting off for years.

I'm lucky that I can control my symptoms with diet and OTC supplements about 95% of the time, but I haven't had a screening in years to be sure that it's going well.

If I had to be on prescriptions though idk what I would do.
__________________
Dx 05
Past drugs: Remicade, Azathioprine, Prednizone, antacids, Humira
Current therapy: Diet and supplements.
I'm my own guinea pig.
My log with studies, journal of my experiments:
http://www.crohnsforum.com/showthread.php?t=72046
My Blog
https://beyondtheoddsfitness.wordpress.com/
02-22-2016, 01:06 PM   #59
hcrum87hc
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I'm not sure about a typical month, as it varies, but these are my usual costs:

Standard Insurance Plan at work-$0
Typical GI visit-$19 and some change (20/80 co-insurance)
Humira-$5 per month with the Humira copay
Entocort (generic) - $12 for 1 month
Imuran (generic) -$24 for 3 months
Blook work-$6 to $100 depending on tests

I've been very blessed with good insurance, and it has saved me loads of money.
__________________
Blessed is he who trusts in the Lord, whose confidence is in Him. Jeremiah 17:7.

Officially diagnosed with Crohn's Disease in June, 2014 2 weeks before 27th birthday after ER visit due to partial blockage (stricture).

Current Meds:
Humira-40 mg every other week
Imuran-150 mg/day

Surgeries: Ileocecectomy 7/13/16 removed 60cm of small intestines.

Status: All inflamed and strictured intestines removed. All remaining intestines are currently healthy.
02-22-2016, 03:00 PM   #60
Ian_H
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Location: Charleston, South Carolina

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I have decent health insurance but have to pay an arm and a leg for it. Remistart is great as they pay 90% of my medicine cost. Unfortunately my employer does not offer benefits cause our company has 3 people haha, but we are supplemented with more money so its not a bad deal. If we are to get one more person on board the owner will have to offer benefits as in SC 4 or more employees requires insurance for all employees

$350 for health insurance
$Azathioprine for free
$5 for Remicade per infusion (Thats just cost of meds)
Infusion services usually cost $100

So about $450/month on medical
__________________
Ian

Remicade q6wks
Azathioprine 150 mg
Ferrous Gluconate
Vitamin D2 50,000 units weekly
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