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12-30-2015, 01:22 PM   #1
p2baa
 
Join Date: Dec 2015
Location: United Kingdom
Stoma Help

My first post, so please go easy and apologies if this is in the wrong part of the forum...

My wife has a stoma and it doesn't look right. She has been to hospital and seen a surgeon (not her usual surgeon) and he said it did not require any surgical intervention and to contact Stoma Care. Stoma Care came and seen her while she was in hospital and all they did was change bag and said to put some powder on it.

That is not very reassuring, giving what it looks like. She then tried to contact her usual team today for advice, but they said they had spoken to Stoma Nurse that my wife had seen yesterday and they were happy that the stoma was ok and that they weren't concerned and as she had seen them yesterday, they were not prepared to see her today.

Now I'm no doctor or Stoma Nurse, but I know when something doesn't look right. Wife has posted a picture of stoma on a stoma Facebook page and they have all said that it doesn't look right and that theirs has never been that bad.

We are now stuck with what to do. Hospital want help and we don't know where to turn to next? Anybody got any suggestions.

I can post picture of stoma if that helps, but not sure if you are allowed to do that on here.

Thanks.
12-30-2015, 01:50 PM   #2
DJW
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Hi and welcome.

How long has she had her stoma?

If you are unable to post here the try posting in your photo album.
Just click on your name and you should find it.

If its new it will go through a lot of changes in the first year.
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12-30-2015, 01:55 PM   #3
p2baa
 
Join Date: Dec 2015
Location: United Kingdom
She has had it almost two years, although it was a non-functioning stoma for a while as she had an Ileostomy.

Here are pictures:



12-30-2015, 02:03 PM   #4
DJW
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I see what you mean.

I'd be wanting answers if I was in your shoes also.
Can you email her regular team with the picture?
Is she in any pain?
Did they say what it was? Or the cause?

Keep pushing for answers. Hopefully someone from the UK will know where to turn.
12-30-2015, 02:15 PM   #5
p2baa
 
Join Date: Dec 2015
Location: United Kingdom
I see what you mean.

I'd be wanting answers if I was in your shoes also.
Can you email her regular team with the picture?
Is she in any pain?
Did they say what it was? Or the cause?

Keep pushing for answers. Hopefully someone from the UK will know where to turn.
Tried talking to the head of the stoma team today, but she was not interested as she said wife seen Stoma Nurse at a different hospital yesterday and she was happy with it.

She is in constant pain, but yes it has increased with this.

No, they have not said what has caused it. That's all we want, how to prevent it happening again and what can help with healing it.
12-30-2015, 02:17 PM   #6
p2baa
 
Join Date: Dec 2015
Location: United Kingdom
On the left hand side (right as you look at the picture), it is split all the way down. It is not connected at all. Easiest way to describe it, is that it is a C instead of an O.
12-30-2015, 03:08 PM   #7
Lisa
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I'm no expert by any means, but I didn't think a stoma is supposed to bleed? It also looks like she has ulceration on it? I am going to copy this post over to the stoma sub-forum so it gets more attention.

I would be pushing for someone else to see it and not take no for an answer. Can you see her regular surgeon?
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12-30-2015, 03:09 PM   #8
p2baa
 
Join Date: Dec 2015
Location: United Kingdom
Here are three pictures that I took of stoma on Monday, you can see just how much it has deteriorated in just two days.




12-30-2015, 03:10 PM   #9
p2baa
 
Join Date: Dec 2015
Location: United Kingdom
I'm no expert by any means, but I didn't think a stoma is supposed to bleed? It also looks like she has ulceration on it? I am going to copy this post over to the stoma sub-forum so it gets more attention.

I would be pushing for someone else to see it and not take no for an answer. Can you see her regular surgeon?
Thanks, I couldn't find the Stoma forum that's why I posted here. If a MOD wants to move it feel free.
12-30-2015, 04:14 PM   #10
Lisa
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Thanks, I couldn't find the Stoma forum that's why I posted here. If a MOD wants to move it feel free.
It has been copied over there already.
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