Share Facebook
Crohn's Disease Forum » Treatment » Remicade/Infliximab » Poll: How long have you been on Remicade?


03-08-2016, 09:53 AM   #1
cassimw
Senior Member
 
cassimw's Avatar
 
Join Date: Nov 2015
Location: Fairfax, Virginia

My Support Groups:
Poll: How long have you been on Remicade?

I just read a post by someone who has been on it for 10 years! My daughter has only had 4 infusions. I'm interested to hear from folks who have been on it for a long time and what that's been like.

If you eventually stopped taking it, I'm curious to know why and how that's gone?
03-08-2016, 11:07 AM   #2
lenny
Senior Member
19 year old son has been on it since April, so not quite a year.
03-08-2016, 11:50 AM   #3
Lisa
Adminstrator
 
Lisa's Avatar
 
Join Date: Apr 2010
Location: New York

My Support Groups:
10+ years and still working for me.
__________________

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
03-08-2016, 12:26 PM   #4
cassimw
Senior Member
 
cassimw's Avatar
 
Join Date: Nov 2015
Location: Fairfax, Virginia

My Support Groups:
10+ years and still working for me.

That's great news, and very encouraging! Thanks for posting.
03-17-2016, 01:51 PM   #5
Mehita
Forum Monitor
 
Mehita's Avatar
 
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
My son is going on 2 1/2 years and been in remission the whole time. We're adding mtx this week to hopefully keep this going awhile longer. Ten years would be wonderful!!
__________________
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013, added Solumedrol June 2015
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
03-17-2016, 10:20 PM   #6
FrozenGirl
Senior Member
 
FrozenGirl's Avatar
Wow. I'm at a bit over 2 years. Infusion #28 coming up. No remission but I'm happy to hear people have been on it so long successfully.
__________________
Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
03-18-2016, 09:42 AM   #7
JaimeM
Senior Member
 
JaimeM's Avatar
 
Join Date: Sep 2015
Location: United States, North Dakota

My Support Groups:
I was on Remicade for 6 years, had a baby and switched to cimzia because my infusion site was 70 miles away and with a baby that was pretty tough to do. Cimzia didn't work for me so now I'm going back to Remicade and they're letting me do my infusion at the hospital in my home town. I was in remission nearly the entire time I was on remicade
__________________
Diagnosed Terminal Ileum Crohns 2008
Remicade 6yrs
Had a healthy baby boy 2014
Switched to Cimzia but didn't work 2015
Back to Remicade and added Azathioprine 2016
03-18-2016, 12:12 PM   #8
rrhood1
Senior Member
 
rrhood1's Avatar
 
Join Date: Oct 2013
Location: Didsbury, Alberta

My Support Groups:
3 years - in remission - gut is "pristine" according to my GI. However, I now have Remicade induced psoriasis so maybe going on Stelera. Too bad - Remicade has been a miracle drug for me.
__________________
Alison

Dx: Crohns - 2010
Dx: Severe cervical spondylosis/foraminal stenosis, ruptured discs
Dx: Severe lumbar ruptured discs
Dx: thyroid cancer - 2 surgeries - done with
Rx: Remicade, Methotrexate, Sulfasalazine, Lyrica
Vitamin D, C, B, calcium
03-18-2016, 04:48 PM   #9
DJW
Forum Monitor
 
DJW's Avatar
 
Join Date: Jul 2013
Location: Ontario

My Support Groups:
About 2.5 years. Very pleased.
__________________
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:
http://www.crohnsandcolitis.ca/site/...tis_Canada.htm

Living in Ontario with no drug benefits?

Trillium Drug Program:
http://www.health.gov.on.ca/en/publi..._trillium.aspx

Dave
03-21-2016, 07:21 PM   #10
Lyman
 
Join Date: Oct 2014
Location: Monterey, California
I've been on Remicade for 12 years. So far its gone good and I've stayed in remission most of the time.
03-21-2016, 07:53 PM   #11
Justanothercp
Senior Member
 
Justanothercp's Avatar
 
Join Date: Aug 2013
Location: Sacramento

My Support Groups:
12+ years, going in again tomorrow....
05-08-2016, 09:02 AM   #12
lenny
Senior Member
12 years makes me sad because where are the new, improved meds???
05-17-2016, 12:36 PM   #13
cdnrose
 
Join Date: Sep 2015
Location: Ontario

My Support Groups:
Just since Oct 2015. After my first 3 infustions Doc said I was in remission but to keep on it. Also been on methotrexate since 2012, not sure if it helped with the quick remission or not.
Reply

Crohn's Disease Forum » Treatment » Remicade/Infliximab » Poll: How long have you been on Remicade?
Thread Tools


All times are GMT -5. The time now is 11:01 PM.
Copyright 2006-2017 Crohnsforum.com