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Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Have you had your fecal calprotectin or CRP levels tested?


View Poll Results: Have you had your fecal calprotectin or CRP tested?
I have had both fecal calprotectin and CRP tested 76 41.99%
I have had just fecal calprotectin tested 20 11.05%
I have had just CRP tested 66 36.46%
I have not had either tested 19 10.50%
Voters: 181. You may not vote on this poll

 
04-01-2016, 01:15 PM   #61
smt
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FC of 1400 suggests inflammation.

Can you please share the exact values of WBC, Hb/other blood parameters, CRP and ESR?
04-01-2016, 02:01 PM   #62
Daisie99ca
 
Join Date: Apr 2016
Location: Canada
Thanks smt.
WBC-12.9
Hgb- 109
Serum Iron-5.0
% Iron Sat- 10.5
hsCRP- 9.0
04-01-2016, 02:18 PM   #63
smt
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Thanks smt.
WBC-12.9
Hgb- 109
Serum Iron-5.0
% Iron Sat- 10.5
hsCRP- 9.0
Indeed the WBC was above limits, and the Hb was below limits, only just. The HS CRP units are not mentioned. If in mg/l, this is elevated:

http://emedicine.medscape.com/article/2094831-overview

I had 0.36 mg/l in December. This is a non-specific marker of inflammation.
04-01-2016, 02:20 PM   #64
smt
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If the second FC is elevated, the small intestine may be examined, in my opinion.
04-01-2016, 04:20 PM   #65
Scipio
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"Does anyone out there have CD that is isolated to the small bowel?"

I do. CD that is confined to terminal ileum of the small bowel is quite common - about 30% of all Crohn's cases.
04-01-2016, 06:33 PM   #66
Daisie99ca
 
Join Date: Apr 2016
Location: Canada
Thanks for the replies.

The hsCRP was 9.0 mg/L

Terminal ileum was normal as per the colonoscopy. I am wondering about disease of the jejunum? or maybe microscopic colitis. The biopsies from the colonoscopy are not back yet.
04-02-2016, 10:48 AM   #67
Pug Gamer
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I was just reading a letter to my doctor from my GI and it says my faecal calprotectin is 850. I havent had anything explained to me so I googled it then just so happened to come across this thread. My result is since ive been massively improved on entocort, god knows what it was before that!!
04-19-2016, 08:46 PM   #68
Beckyd23
 
Join Date: Apr 2016
I'm curious how many of you have had your fecal calprotectin or CRP levels tested?

Thanks
My daughter just had hers tested came back 2500. normal is <50 . doctor ordered colonoscopy and upper scope. Upper is healthy but She has ulcerative colitis.
04-19-2016, 08:55 PM   #69
Pilgrim
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My daughter has been tested several times. Once she was down to about 280. Last test, a few weeks back, was 3400. Ironically , she is symptomatically in remission. Scopes in the next month.
04-20-2016, 11:18 PM   #70
aypues
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Had very low iron and ferritin, also low albumin levels. They decided to do a fecal calprotectin test that came back at like 850. Subsequent MR enterography showed extensive disease and multiple strictures....all unbeknowst to me! Not very much pain. Anyway, now going on Humira and 6-MP combination therapy. The Entocort wasn't controlling the disease in the small bowel. Also had recent Iritis and a Shingles outbreak! Yikes!
04-24-2016, 11:50 AM   #71
Sophia
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Yes, on a regular basis. They vary from less than fifty to several thousands depending on whether I'm flaring or not. (Calprotectin) CRP is generally low for me.
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07-08-2016, 01:27 PM   #72
amber_griffin
 
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We get my husbands done regularly. Thankfully it keeps going down. But from what I understand, some use under 50 and another uses 162.9 for "normal". We use quest diagnostics with the 162.9 as the reference point.
07-08-2016, 01:54 PM   #73
MissLeopard83
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I've not had either one tested as I am still awaiting the colonoscopy by my GI doc later this month.
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07-08-2016, 03:07 PM   #74
Alliesavage
 
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Location: Seneca, South Carolina

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CBC,ESR and CRP get done quite often because I have Lupus as well as Crohn's of the small bowel and ileum thickening.
07-08-2016, 03:13 PM   #75
Alliesavage
 
Join Date: May 2016
Location: Seneca, South Carolina

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I'm curious how many of you have had your fecal calprotectin or CRP levels tested?

Thanks
I'm have a silly question for everyone who has done the fecal calprotectin; What did you carry the "sample" in? My last one was done on a very hot day. The doctor said to keep it cold and we live 45 minutes away from my GI. I didnít want fecal matter in any reusable cooler so I put the sample in the given container then put that in an empty Folger can that I'd put ice in. You should have seen the Gosh awful look the phlebotomy/ lab girl gave me. LOL! It was great. She gasped and said I don't think I can take THAT. I said relax I'm sick not stupid. Hahaha.
07-08-2016, 03:16 PM   #76
MissLeopard83
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I've never done it, but I bet it would be a good idea to put the sample in a plastic baggie with ice in an insulated lunchbag that is not too expensive so you can through it away later.
07-09-2016, 12:04 PM   #77
emm142
 
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Yes to both - my CRP was 4 (within lab normal range) and fecal calprotectin 450ug/g. Not yet diagnosed but Crohn's suspected, having first GI appointment this week (CRP and calprotectin were measured by GP prior to referral).

Wish they'd done this years ago when I first presented with GI problems... they only tested for ova/cysts, e-coli and vibrio.
07-14-2016, 05:23 AM   #78
eleanor_rigby
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Hi,

I have Crohn's of the terminal ileum and duodenum, as well as coeliac disease.

My Fecal calprotectin levels are:

Aug 2015: 65
Feb 2016: 70
June 2016: 60

I guess I am going in the right direction... :-/ very strange my GI is not at all concerned due to my low levels but there were a number of ulcers on colonoscopy in Dec 2015.
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History:
2nd Generation affected

Symptoms since 08/2006 (age 17)

Emergency open bowel resection after perforation in 12/2011 (age 22) (wrongly diagnosed as burst appendix ). Three years remission following this unmonitored

Diagnosis:
Perforating small bowel Crohn's Disease 01/2016 (terminal ileum, duodenum)
Coeliac disease (age 26)

Meds:
50mg azathioprine (down from 75mg after my WBC dropped)
Gluten-free diet
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