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Crohn's Disease Forum » Treatment » Remicade/Infliximab » New dosage for Remicade


05-31-2016, 08:52 PM   #1
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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New dosage for Remicade

Hi everyone!
So I was on 5 mg/kg of Remicade (every 8 weeks) but noticed that once the 6th week began, I began getting symptoms again (bathroom, very fatigue, fevers). So my doctor now changed it to 7.5 mg/kg, which I got last Friday. I wanted to know if there was anyone here who got their remicade dose increased and it actually ended up working better/lasting longer for them. Thanks for the help!
__________________
19 year old female,
Crohns dx: March 2014 at 16 years old,
Past medications/treatment: 5 and 7.5 mg/kg Remicade every 4-8 weeks, Pentasa, EEN nutrition with Boost Plus (10 weeks), Prednisone
Current medication: 10 mg/kg Remicade every 7-8 weeks, 50 mg 6 MP daily, and vitamin D supplement

In remission!
06-01-2016, 11:59 AM   #2
FrozenGirl
Senior Member
 
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I increased my Remi to 10mg/kg at dose 4 and noticed it helped. It's nice because it's the same infusion time but it was only when I increased my dose that I felt Remi start working.
__________________
Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Calcium
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
06-01-2016, 03:37 PM   #3
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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I increased my Remi to 10mg/kg at dose 4 and noticed it helped. It's nice because it's the same infusion time but it was only when I increased my dose that I felt Remi start working.
So are you currently on 10 mg/kg every 4 weeks?
06-02-2016, 06:35 PM   #4
FrozenGirl
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Yep.
06-03-2016, 08:24 AM   #5
JaimeM
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Join Date: Sep 2015
Location: United States, North Dakota

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The first time I was on Remicade we started at 5 and after a few years increased the dose to 10
__________________
Diagnosed Terminal Ileum Crohns 2008
Remicade 6yrs
Had a healthy baby boy 2014
Switched to Cimzia but didn't work 2015
Back to Remicade and added Azathioprine 2016
06-04-2016, 12:43 AM   #6
Lorlai
 
Join Date: Jun 2016
I have been on Remicade for years and started at 5mg/kg. I stayed at 5mg/kg every 6 weeks for years but started having flair so the dose was increased to 10mg/kg. I felt great! I also have joint issues associated with Crohn's. Unfortunately I started getting infections so I couldn't stay at that dose and went to 7.5 mg/kg. I have been at this dose for at least 2 years and it is working well for me. Most symptoms are minimal and I am no longer getting infections.
06-05-2016, 06:04 AM   #7
Charlotte.
Senior Member
 
Join Date: Nov 2014

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@laura98: Glad to hear the dosage can be upped where you live. The maximum allowed dose where I live is 5mg/kg bodyweight every 4 weeks, I was on that dose for several months without effectiveness, it was not the right drug for me.
Fingers crossed you get back into remission with Remicade.
__________________
Crohn's Disease: diagnosed 2014 (at 24), symptoms for 10 years now
Enteropathic Arthritis, Sacroliitis, Osteopenia

Stelara; Uceris; Lansoprazole; Domperidone.

Previously: Remicade, Humira, Simponi, Azathioprine, Methotrexate, Sulfasalazine, Entocort, Uceris, Prednisolone, TPN, EEN, different alternative treatments.
06-05-2016, 08:26 AM   #8
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

My Support Groups:
I have been on Remicade for years and started at 5mg/kg. I stayed at 5mg/kg every 6 weeks for years but started having flair so the dose was increased to 10mg/kg. I felt great! I also have joint issues associated with Crohn's. Unfortunately I started getting infections so I couldn't stay at that dose and went to 7.5 mg/kg. I have been at this dose for at least 2 years and it is working well for me. Most symptoms are minimal and I am no longer getting infections.
That's good that you don't get infections anymore! How often do you get the 7.5 mg/kg?
06-05-2016, 08:28 AM   #9
laura98
 
Join Date: Nov 2015
Location: Chicago, Illinois

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@laura98: Glad to hear the dosage can be upped where you live. The maximum allowed dose where I live is 5mg/kg bodyweight every 4 weeks, I was on that dose for several months without effectiveness, it was not the right drug for me.
Fingers crossed you get back into remission with Remicade.
Oh, I'm sorry it didn't work for you
And thank you! Best of luck to you as well!
06-05-2016, 09:58 AM   #10
Lorlai
 
Join Date: Jun 2016
Every 6 weeks.
That's good that you don't get infections anymore! How often do you get the 7.5 mg/kg?
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