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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Remicade infusion and BP


06-15-2016, 12:30 PM   #1
tots
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Remicade infusion and BP

Does your BP go up when you have your infusion?
Do they slow it down?? I seem to remember in the beginning
they did. Today not so much.


Lauren
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Diagnosed= 1992 and again Feb 2012 Confirmed with
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Waiting for the ok from my Ins company to restart Remicade. Will also start Imuron to get into remission!
I know it's out there somewhere and I WILL find it!


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Ok, my family Dr told me to cut down on the stress- a husband, 3 kids, and 3 dogs!
06-16-2016, 07:50 AM   #2
Bunty
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I suffer from 'white coat syndrome' in that my blood pressure is always higher when taken in hospital or at the doctors. I have a home monitor which has been calibrated by my GP, my blood pressure is always well within normal limits when I take it at home.
They always comment on my infusion days that my blood pressure is a little high.
Bunty x
06-16-2016, 02:07 PM   #3
fuzzy butterfly
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Hi i think that most folks blood pressure rises in certain situations.
My pressure always seems to be ok even when in extreme pain. Maybe im not normal .. tho i never claimed to be 😃 haha.
06-24-2016, 09:22 AM   #4
Madhu
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My husband's pressure is always low on the infusion days. We have no clue why. His GI told us to ignore it. He just keeps hydrated a lot during infusion.
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Hubby dx with Crohn's in Feb 2015, in remission from Feb 2016 to Feb 2017.
2 anal fistulas (setons placed in June 2015 and removed in Feb 2016)

Mild flare in Mar 2017. Remicade schedule adjusted

Current Meds - Remicade 10mg/kg
07-06-2016, 01:59 PM   #5
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Mine is generally lower than usual as well. Still within "normal" range but definitely on the lower side of normal.
07-07-2016, 02:50 PM   #6
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Mine goes from 14x/80 to 107/71 within 15 minutes into my infusion. No ill.effects & told it's quite normal. The last one was number 16.

In the UK we have switched from remicade to remsima which is a biological similar drug but cheaper containing infliximab (the core drug).

Shalom john

07-08-2016, 05:38 AM   #7
Bunty
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We haven't at my hospital John.
Bunty x
07-08-2016, 05:56 AM   #8
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We haven't at my hospital John.

Bunty x


I should have said in the process of switching. According to my IBD I'm the 1st to have been switched over to remsima from remicade so a type of "Guinea pig"

It's passed all the tests, licensed & been approved by NICE but cheaper than remicade (to be honest serves them right for holding the price so high).

Since remicade/remsima not 1 emergency dash to hospital with flare up causing small bowel to twist (just over 3 years now) so very grateful indeed.

Shalom, my you be "flare up" free, john
07-09-2016, 10:38 PM   #9
Tuff
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My blood pressure drops with each infusion. Last time it went from 110/80 to 78/56. They slowed the infusion down and it went back to normal after. Scary though.
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Stelara, Warfarin, calcium, Vitamins B12, D.
Previously: 5-Asa, Cipro, Flagyl, Prednisone, Aza, Remicade.
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07-11-2016, 02:56 AM   #10
Jomar_uk
 
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My blood pressure drops with each infusion. Last time it went from 110/80 to 78/56. They slowed the infusion down and it went back to normal after. Scary though.


Just shows how powerful & almost instant acting this drug is. Trust you are stabilising though, I am so grateful for the NHS as no way could I afford 1 or 2 months, never mind over 3 years

Shalom john
07-15-2016, 02:35 PM   #11
Tuff
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I've been in remission for two years on Remicade. It also healed my fistulas after the first month. I'm very grateful for getting my life back.
07-15-2016, 02:38 PM   #12
fuzzy butterfly
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Thats great to hear tuff long may it continue to work well for you.. best wishes 💕
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