Share Facebook
Crohn's Disease Forum » Support Forum » Need some support


07-07-2016, 02:48 PM   #1
Christi
Senior Member
 
Join Date: Oct 2015
Location: South Africa

My Support Groups:
Need some support

Hi everyone I feel that im in need of some support and suggestions , I am going through some stuff and my dr cant help me just upped my pred again I have been on it for 6 months now? What am I supposed to do if no one are listening to me while I am suffering like this? Dr tells me I might be on pred for the rest of my life. Im hopeless now
07-07-2016, 04:09 PM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I would seek a second opinion. I didn't think you could be on prednisone for a prolonged period.
07-07-2016, 11:12 PM   #3
Christi
Senior Member
 
Join Date: Oct 2015
Location: South Africa

My Support Groups:
Ron I dont think that its good to be on pred for this long and now even longer. I have been in horrible pain it feels as if my stomach are tearing apart. My meds are not working and it seems that im getting no where with this or getting any better
07-07-2016, 11:14 PM   #4
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Is there another doctor you can go to?

07-24-2016, 09:31 AM   #5
Trysha
Senior Member
 
Trysha's Avatar
 
Join Date: Aug 2009

My Support Groups:
Christi....sorry you are having such problems and I would definitely be seeking another opinion from a gastroenterologist specializing in IBD.
I don't think it's a good idea to be on steroids for that length of time.
Have you been offered Remicade or Humira?
There is always hope and there will be something else you can try until you find one that works.
You do need a good specialist to help you more
Feel better soon
Hugs and best wishes
Trysha
07-29-2016, 02:23 PM   #6
Christi
Senior Member
 
Join Date: Oct 2015
Location: South Africa

My Support Groups:
Hi my friends sorry again for being quite but ya what can I say. Trysha the doctor said there aint anything else. I am.happy to say that I will.be seeing another doctor very soon. I honestly dont know what to do I am so fed up and tired and depressed.
07-29-2016, 02:42 PM   #7
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Hi my friends sorry again for being quite but ya what can I say. Trysha the doctor said there aint anything else. I am.happy to say that I will.be seeing another doctor very soon. I honestly dont know what to do I am so fed up and tired and depressed.
It is so good to see yoiu. I hope the new doctor works out.
07-29-2016, 09:48 PM   #8
Trysha
Senior Member
 
Trysha's Avatar
 
Join Date: Aug 2009

My Support Groups:
Hello Christi
Thank you for the update.
Hopefully your new doctor will be more helpful to you and find something to quench your symptoms.
Never give up and never give in
Something will be found to help you.
Please keep in touch and let us know how you get on
Feel better soon
Hugs
Trysha
07-29-2016, 10:04 PM   #9
Justanothercp
Senior Member
 
Justanothercp's Avatar
 
Join Date: Aug 2013
Location: Sacramento

My Support Groups:
Christi,
I'd encourage you to discuss other treatment option or surgical options with new MD. Find a compassionate MD that will listen to you.
07-29-2016, 10:12 PM   #10
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Christi,
I'd encourage you to discuss other treatment option or surgical options with new MD. Find a compassionate MD that will listen to you.
Aneb

07-29-2016, 11:37 PM   #11
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I meant amen.
07-31-2016, 02:58 PM   #12
Christi
Senior Member
 
Join Date: Oct 2015
Location: South Africa

My Support Groups:
Thank you guys I will keep.you updated
07-31-2016, 03:03 PM   #13
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Thank you guys I will keep.you updated
I tried responding to your other message. I am feeling better today.

08-09-2016, 11:56 AM   #14
Christi
Senior Member
 
Join Date: Oct 2015
Location: South Africa

My Support Groups:
Hi so I went to see another doc yesterday and it were not worth it at all no solution no answers
08-09-2016, 12:09 PM   #15
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Hi so I went to see another doc yesterday and it were not worth it at all no solution no answers
So sorry. Keep pushing for answers.

08-09-2016, 01:04 PM   #16
MissLeopard83
Senior Member
 
MissLeopard83's Avatar
 
Join Date: Jul 2016

My Support Groups:
Hi everyone I feel that im in need of some support and suggestions , I am going through some stuff and my dr cant help me just upped my pred again I have been on it for 6 months now? What am I supposed to do if no one are listening to me while I am suffering like this? Dr tells me I might be on pred for the rest of my life. Im hopeless now
I would definitely seek a second opinion. I'm currently undiagnosed but I was on Prednisone and Advair (both steroids) for asthma a lot as a teenager and I know that it is not for prolonged use. If your doctor is not willing to listen or willing to try other meds, then he is not worth your while. You deserve good care.
__________________
Severe IBS-M with gut dysmotility and lactose intolerance; Celiac disease; unspecified joint pain and fibromyalgia
Reply

Crohn's Disease Forum » Support Forum » Need some support
Thread Tools


All times are GMT -5. The time now is 07:11 AM.
Copyright 2006-2017 Crohnsforum.com