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Crohn's Disease Forum » Treatment » Humira/Adalimumab » Is anyone being successfully treated on just Humira?


09-16-2016, 09:40 PM   #1
mom5272
 
Join Date: Aug 2010
Location: Virginia
Is anyone being successfully treated on just Humira?

My GI Dr wants to add Humira to my 6MP. I would prefer to just take the Humira after a few months if possible and not be on combined treatment. Is anyone taking just Humira and doing well long term? I've been on 100mg 6mp for 18 years and have done well but have skin problems and flare about twice per year and have to take steroids. My Dr thinks flaring twice a year is too much.

I wouldn't be second guessing the combined treatment if I didn't already have major skin issues from 6MP. I feel like adding another drug is going to be worse. I would like to try Humira with the 6MP and then back of the 6MP to see how I do but he didn't seem to think that was a great idea. Ive never taken humira so I have no idea what to expect.

Never had blockages or surgery before.
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Prednisone when occasionally flare
09-16-2016, 09:58 PM   #2
aypues
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i didn't respond at all to Humira. I just switched to Remicade + Cellcept and doing 100% better.
09-16-2016, 10:25 PM   #3
ronroush7
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I am on Humira, imuran and Lialda specifically for Crohns.
09-17-2016, 01:46 AM   #4
Ranchmom
 
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Location: Alberta
I was on Humira alone for 5 years and did amazing. Stopped working last December and was switched to Stelera.
09-17-2016, 02:11 AM   #5
StrayTaco
 
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I was on Lialda for about 9 years, then it quit working. I switched to Humira a year ago and it's worked great on its own.

09-17-2016, 04:04 AM   #6
steph_irish
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Hey there, I didn't respond well to aza or 6mp.
I'm on Infliximb alone and have responded very well. I get a shot of hydracortizone and anti-allergy prior to each infusion to minimise reaction to the drug.

I believe from speaking with others GI will keep you on aza or 6mp for a while to avoid developing antibodies to the new treatment with a view to withdrawing the aza or 6mp over time.

Your GI should be better able to inform you, wish you every success
Steph
09-20-2016, 06:37 PM   #7
JackG
 
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I also am on Humira alone for my Crohns and doing well, but have a lot of skin issues as a result.
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Diagnosed 1982
Ileostomy and reconnect
Meds over the years: Sulfasalazine, Pentasa, Prednisone, Entocort, Azathioprine (allergic reaction)
Present: Humira
09-20-2016, 07:27 PM   #8
mom5272
 
Join Date: Aug 2010
Location: Virginia
@jackG, can you tell me what skin issues you are having? I'm having warts spreading everywhere on 6MP.
09-20-2016, 07:43 PM   #9
JackG
 
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A dermatologist calls it psoriasis, but its crusty patches that itch; pimple type things that burst; and spots that spread everywhere. I was prescribed a tub of something that helps knock them down, but it doesn't go away. A great bother.
09-28-2016, 07:45 PM   #10
JLL from SC
 
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I am now coming up on three months of Humira treatment alone. The good news is that I am suffering very little in the way of side effects other than a runny nose and having problems at night falling asleep and staying asleep. The bad news is that there is absolutely no improvement in the Crohns symptoms. It's beginning to look like I am spending $4000 a month for a dud treatment. As a medicare part 4 insurance subscriber, it is costing me much less than that but it pains me greatly (even more than the pain in my gut) to realize that I am spending my grandchildren's future on an ineffective medication. Is this the best that our super hiper-expensive medical science has to offer?
09-28-2016, 07:48 PM   #11
ronroush7
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I am now coming up on three months of Humira treatment alone. The good news is that I am suffering very little in the way of side effects other than a runny nose and having problems at night falling asleep and staying asleep. The bad news is that there is absolutely no improvement in the Crohns symptoms. It's beginning to look like I am spending $4000 a month for a dud treatment. As a medicare part 4 insurance subscriber, it is costing me much less than that but it pains me greatly (even more than the pain in my gut) to realize that I am spending my grandchildren's future on an ineffective medication. Is this the best that our super hiper-expensive medical science has to offer?
Ask your doctor if you need something like azathioprine to complement the Humira.

11-10-2016, 10:33 PM   #12
byrn09
 
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I was on imuran for a long time and switched to humira in January and have been doing well! Recently been having issues with shortness of breath even though all my labs and tests and normal. Not sure if they'll want to switch me to something else or not but I have been doing well other than that on just the humira.
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