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Crohn's Disease Forum » Parents of Kids with IBD » Canadian Thanksgiving


10-06-2016, 08:30 AM   #1
Tesscorm
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Join Date: Jun 2011
Location: Ontario

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Canadian Thanksgiving

Hi all,

This weekend is our Thanksgiving and I wanted to just say thanks to all my friends here!

I'm not here nearly as much as I used to be for different reasons... busy with parents, S is all grown up now and, best of all, he has done well over the years! But, I do want to say that I'll ALWAYS be thankful for the support and advice I've received from all of you. Learning to deal with his dx and accepting it was the hardest thing I've faced and I wouldn't have gotten through it without everyone here! I do consider all the 'oldies' as friends that I know I can go to, who will understand any 'mom' worries (crohns or otherwise) and will just be there for me! (And, I hope I have been able to give back just as much!) Thank you so much! (And, newbies... you've found a great place here with some fantastic people!)

Praying that everyone's child soon finds relief and can move on with their lives happy and healthy!
__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
10-06-2016, 03:09 PM   #2
pdx
Senior Member
 
Join Date: Dec 2014
Location: Portland, Oregon

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Have a great Thanksgiving! And thanks to you (and everyone on the board!) for all the advice and support over the years.
__________________
Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
10-09-2016, 08:07 PM   #3
kimmidwife
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Have a wonderful Thanksgiving!
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
10-10-2016, 08:44 AM   #4
Sleeplessma
 
Join Date: Oct 2016
Location: Toronto, Ontario
Hi, I'm in Canada myself...my 13 year old had her scope last week and she was started on sulfasalzine and salofalk...looking for support.
10-10-2016, 11:10 AM   #5
pdx
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Join Date: Dec 2014
Location: Portland, Oregon

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Hi, I'm in Canada myself...my 13 year old had her scope last week and she was started on sulfasalzine and salofalk...looking for support.
Sorry you had to find us, Sleeplessma. How is your daughter doing?
10-10-2016, 11:52 AM   #6
Sleeplessma
 
Join Date: Oct 2016
Location: Toronto, Ontario
Sorry you had to find us, Sleeplessma. How is your daughter doing?
She's doing so much better with these meds, thank you! Do you know if all kids recently diagnosed start on these meds?
10-10-2016, 11:20 PM   #7
pdx
Senior Member
 
Join Date: Dec 2014
Location: Portland, Oregon

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She's doing so much better with these meds, thank you! Do you know if all kids recently diagnosed start on these meds?
I don't know too much about those particular meds, but hopefully someone else will be by soon who knows more. (Also, in general, if you have specific questions, it's a good idea to start a new thread--you'll get more responses that way!)

Glad to hear that your daughter is doing better; the one good thing about diagnosis is that you can finally get started with treatment.
10-11-2016, 09:17 AM   #8
Jmrogers4
Moderator
 
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Happy Thanksgiving Tess (a little late but when our kiddos are doing good, everday is Thanksgiving).
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
10-13-2016, 09:04 AM   #9
awmom
Senior Member
 
Join Date: Sep 2012
Location: College Station, Texas
Happy Thanksgiving Tess! I am so glad S is doing well and living his life fully!!
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